{"id":"https://openalex.org/W2526702520","doi":"https://doi.org/10.5334/dsj-2017-043","title":"Rethinking Data Sharing and Human Participant Protection in Social Science Research: Applications from the Qualitative Realm","display_name":"Rethinking Data Sharing and Human Participant Protection in Social Science Research: Applications from the Qualitative Realm","publication_year":2017,"publication_date":"2017-09-07","ids":{"openalex":"https://openalex.org/W2526702520","doi":"https://doi.org/10.5334/dsj-2017-043","mag":"2526702520"},"language":"en","primary_location":{"id":"doi:10.5334/dsj-2017-043","is_oa":true,"landing_page_url":"https://doi.org/10.5334/dsj-2017-043","pdf_url":"http://datascience.codata.org/articles/10.5334/dsj-2017-043/galley/712/download/","source":{"id":"https://openalex.org/S62969111","display_name":"Data Science Journal","issn_l":"1683-1470","issn":["1683-1470"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Data Science Journal","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"http://datascience.codata.org/articles/10.5334/dsj-2017-043/galley/712/download/","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5113226715","display_name":"Dessi Kirilova","orcid":null},"institutions":[{"id":"https://openalex.org/I4210100589","display_name":"Qualitative Data Repository","ror":"https://ror.org/014trz974","country_code":"US","type":"archive","lineage":["https://openalex.org/I4210100589","https://openalex.org/I70983195"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Dessi Kirilova","raw_affiliation_strings":["Qualitative Data Repository"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Qualitative Data Repository","institution_ids":["https://openalex.org/I4210100589"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5066039394","display_name":"Sebastian Karcher","orcid":"https://orcid.org/0000-0001-8249-7388"},"institutions":[{"id":"https://openalex.org/I4210100589","display_name":"Qualitative Data Repository","ror":"https://ror.org/014trz974","country_code":"US","type":"archive","lineage":["https://openalex.org/I4210100589","https://openalex.org/I70983195"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Sebastian Karcher","raw_affiliation_strings":["Qualitative Data Repository"],"raw_orcid":"https://orcid.org/0000-0001-8249-7388","affiliations":[{"raw_affiliation_string":"Qualitative Data Repository","institution_ids":["https://openalex.org/I4210100589"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5066039394"],"corresponding_institution_ids":["https://openalex.org/I4210100589"],"apc_list":{"value":350,"currency":"GBP","value_usd":429},"apc_paid":{"value":350,"currency":"GBP","value_usd":429},"fwci":5.2623,"has_fulltext":false,"cited_by_count":29,"citation_normalized_percentile":{"value":0.95167178,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":96,"max":98},"biblio":{"volume":"16","issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T14201","display_name":"Data Analysis and Archiving","score":0.9995999932289124,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T14201","display_name":"Data Analysis and Archiving","score":0.9995999932289124,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9595999717712402,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11981","display_name":"Qualitative Research Methods and Ethics","score":0.9501000046730042,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/realm","display_name":"Realm","score":0.835639476776123},{"id":"https://openalex.org/keywords/qualitative-research","display_name":"Qualitative research","score":0.6676373481750488},{"id":"https://openalex.org/keywords/confidentiality","display_name":"Confidentiality","score":0.6046925783157349},{"id":"https://openalex.org/keywords/qualitative-property","display_name":"Qualitative property","score":0.6032418012619019},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.5344991087913513},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.51348477602005},{"id":"https://openalex.org/keywords/data-anonymization","display_name":"Data anonymization","score":0.48895204067230225},{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.47235187888145447},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.47132280468940735},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.4190298020839691},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.391815185546875},{"id":"https://openalex.org/keywords/information-privacy","display_name":"Information privacy","score":0.33864718675613403},{"id":"https://openalex.org/keywords/computer-security","display_name":"Computer security","score":0.27389881014823914},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.20966097712516785},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.12834352254867554},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.11514413356781006}],"concepts":[{"id":"https://openalex.org/C2778757428","wikidata":"https://www.wikidata.org/wiki/Q1250464","display_name":"Realm","level":2,"score":0.835639476776123},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.6676373481750488},{"id":"https://openalex.org/C71745522","wikidata":"https://www.wikidata.org/wiki/Q2476929","display_name":"Confidentiality","level":2,"score":0.6046925783157349},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.6032418012619019},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5344991087913513},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.51348477602005},{"id":"https://openalex.org/C2776945810","wikidata":"https://www.wikidata.org/wiki/Q17006654","display_name":"Data anonymization","level":3,"score":0.48895204067230225},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.47235187888145447},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.47132280468940735},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.4190298020839691},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.391815185546875},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.33864718675613403},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.27389881014823914},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.20966097712516785},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.12834352254867554},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.11514413356781006},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0}],"mesh":[],"locations_count":5,"locations":[{"id":"doi:10.5334/dsj-2017-043","is_oa":true,"landing_page_url":"https://doi.org/10.5334/dsj-2017-043","pdf_url":"http://datascience.codata.org/articles/10.5334/dsj-2017-043/galley/712/download/","source":{"id":"https://openalex.org/S62969111","display_name":"Data Science Journal","issn_l":"1683-1470","issn":["1683-1470"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Data Science Journal","raw_type":"journal-article"},{"id":"pmh:oai:doaj.org/article:02e2cb4df1a34791a3e08ef6a3af5c93","is_oa":true,"landing_page_url":"https://doaj.org/article/02e2cb4df1a34791a3e08ef6a3af5c93","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Data Science Journal, Vol 16 (2017)","raw_type":"article"},{"id":"pmh:oai:ojs.datascience.codata.org:article/674","is_oa":true,"landing_page_url":"https://datascience.codata.org/jms/article/view/dsj-2017-043","pdf_url":null,"source":{"id":"https://openalex.org/S62969111","display_name":"Data Science Journal","issn_l":"1683-1470","issn":["1683-1470"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Data Science Journal; Vol 16 (2017); 43","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:share.osf.io:4623A-AB1-123","is_oa":false,"landing_page_url":"http://api.osf.io/v2/nodes/2sxtz/","pdf_url":null,"source":{"id":"https://openalex.org/S4306401127","display_name":"OSF Preprints (OSF Preprints)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I2799848540","host_organization_name":"Center for Open Science","host_organization_lineage":["https://openalex.org/I2799848540"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"project"},{"id":"pmh:oai:share.osf.io:80bd2f77-c5d8-463f-83b7-94009b9ba02b","is_oa":false,"landing_page_url":"https://osf.io/2sxtz","pdf_url":null,"source":{"id":"https://openalex.org/S4306401127","display_name":"OSF Preprints (OSF Preprints)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I2799848540","host_organization_name":"Center for Open Science","host_organization_lineage":["https://openalex.org/I2799848540"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Project"}],"best_oa_location":{"id":"doi:10.5334/dsj-2017-043","is_oa":true,"landing_page_url":"https://doi.org/10.5334/dsj-2017-043","pdf_url":"http://datascience.codata.org/articles/10.5334/dsj-2017-043/galley/712/download/","source":{"id":"https://openalex.org/S62969111","display_name":"Data Science Journal","issn_l":"1683-1470","issn":["1683-1470"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Data Science Journal","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.5899999737739563,"id":"https://metadata.un.org/sdg/16","display_name":"Peace, Justice and strong institutions"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2526702520.pdf","grobid_xml":"https://content.openalex.org/works/W2526702520.grobid-xml"},"referenced_works_count":9,"referenced_works":["https://openalex.org/W1505496159","https://openalex.org/W1980147143","https://openalex.org/W2018077484","https://openalex.org/W2092760307","https://openalex.org/W2128401058","https://openalex.org/W2316423106","https://openalex.org/W2550505682","https://openalex.org/W4206037106","https://openalex.org/W6679046435"],"related_works":["https://openalex.org/W2092760307","https://openalex.org/W2416246023","https://openalex.org/W4200529402","https://openalex.org/W4207074814","https://openalex.org/W2809809464","https://openalex.org/W4239684875","https://openalex.org/W2099592842","https://openalex.org/W2007425130","https://openalex.org/W4291167835","https://openalex.org/W2604278997"],"abstract_inverted_index":{"<p":[0],"class=\"p1\">While":[1],"data":[2,13,20,127,162,182],"sharing":[3,21,180],"is":[4,22,39],"becoming":[5],"increasingly":[6],"common":[7],"in":[8,147],"quantitative":[9,44,69],"social":[10],"inquiry,":[11],"qualitative":[12,46,58,79,85,181],"are":[14],"rarely":[15],"shared.":[16],"One":[17],"factor":[18],"inhibiting":[19],"a":[23,40,89,123],"concern":[24,41],"about":[25],"human":[26,113],"participant":[27],"protections":[28],"and":[29,34,45,115,133,168,195],"privacy.":[30],"Protecting":[31],"the":[32,54,61,68,78,82,100,142,154,158,197],"confidentiality":[33],"safety":[35],"of":[36,57,63,91,125,200],"research":[37,101],"participants":[38,114],"for":[42,75,93,111,179],"both":[43],"researchers,":[47],"but":[48],"it":[49],"raises":[50],"specific":[51],"concerns":[52,194],"within":[53],"epistemic":[55],"context":[56],"research.":[59],"Thus,":[60],"applicability":[62],"emerging":[64],"protection":[65,95],"models":[66],"from":[67],"realm":[70],"must":[71],"be":[72,119],"carefully":[73],"evaluated":[74],"application":[76],"to":[77,166,191],"realm.":[80],"At":[81],"same":[83],"time,":[84],"scholars":[86,190],"already":[87,139],"employ":[88],"variety":[90],"strategies":[92,110],"human-participant":[94],"implicitly":[96],"or":[97,163],"informally":[98],"during":[99],"process.":[102],"In":[103],"this":[104],"practice":[105],"paper,":[106],"we":[107,156],"assess":[108],"available":[109],"protecting":[112],"how":[116],"they":[117],"can":[118],"deployed.":[120],"We":[121,173],"describe":[122],"spectrum":[124],"possible":[126],"management":[128],"options,":[129],"such":[130],"as":[131],"de-identification":[132],"applying":[134],"access":[135,165],"controls,":[136],"including":[137],"some":[138],"employed":[140],"by":[141],"Qualitative":[143],"Data":[144],"Repository":[145],"(QDR)":[146],"tandem":[148],"with":[149,186],"its":[150],"pilot":[151],"depositors.":[152],"Throughout":[153],"discussion,":[155],"consider":[157],"tension":[159],"between":[160],"modifying":[161],"restricting":[164],"them,":[167],"retaining":[169],"their":[170,201],"analytic":[171],"value.":[172],"argue":[174],"that":[175],"developing":[176],"explicit":[177],"guidelines":[178],"generated":[183],"through":[184],"interaction":[185],"humans":[187],"will":[188],"allow":[189],"address":[192],"privacy":[193],"increase":[196],"secondary":[198],"use":[199],"data.":[202]},"counts_by_year":[{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":4},{"year":2022,"cited_by_count":4},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":3},{"year":2019,"cited_by_count":4}],"updated_date":"2026-05-06T08:25:59.206177","created_date":"2025-10-10T00:00:00"}
