{"id":"https://openalex.org/W2404538262","doi":"https://doi.org/10.5220/0004902404050412","title":"How to Collect Consent for an Anonymous Medical Database","display_name":"How to Collect Consent for an Anonymous Medical Database","publication_year":2014,"publication_date":"2014-01-01","ids":{"openalex":"https://openalex.org/W2404538262","doi":"https://doi.org/10.5220/0004902404050412","mag":"2404538262"},"language":"en","primary_location":{"id":"doi:10.5220/0004902404050412","is_oa":true,"landing_page_url":"https://doi.org/10.5220/0004902404050412","pdf_url":null,"source":null,"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the International Conference on Health Informatics","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.5220/0004902404050412","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5027673165","display_name":"Emmanuel Benoist","orcid":"https://orcid.org/0000-0001-6231-7503"},"institutions":[{"id":"https://openalex.org/I130692619","display_name":"Bern University of Applied Sciences","ror":"https://ror.org/02bnkt322","country_code":"CH","type":"education","lineage":["https://openalex.org/I130692619"]}],"countries":["CH"],"is_corresponding":true,"raw_author_name":"Emmanuel Benoist","raw_affiliation_strings":["RISIS, Bern University of Applied Sciences -TI, Quellgasse 21, CH-2501 Biel, Switzerland"],"affiliations":[{"raw_affiliation_string":"RISIS, Bern University of Applied Sciences -TI, Quellgasse 21, CH-2501 Biel, Switzerland","institution_ids":["https://openalex.org/I130692619"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5033899393","display_name":"Jan Sliwa","orcid":null},"institutions":[{"id":"https://openalex.org/I130692619","display_name":"Bern University of Applied Sciences","ror":"https://ror.org/02bnkt322","country_code":"CH","type":"education","lineage":["https://openalex.org/I130692619"]}],"countries":["CH"],"is_corresponding":false,"raw_author_name":"Jan Sliwa","raw_affiliation_strings":["RISIS, Bern University of Applied Sciences -TI, Quellgasse 21, CH-2501 Biel, Switzerland"],"affiliations":[{"raw_affiliation_string":"RISIS, Bern University of Applied Sciences -TI, Quellgasse 21, CH-2501 Biel, Switzerland","institution_ids":["https://openalex.org/I130692619"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5027673165"],"corresponding_institution_ids":["https://openalex.org/I130692619"],"apc_list":null,"apc_paid":null,"fwci":0.422,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.78123755,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":94},"biblio":{"volume":null,"issue":null,"first_page":"405","last_page":"412"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9972000122070312,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9972000122070312,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10237","display_name":"Cryptography and Data Security","score":0.9957000017166138,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11045","display_name":"Privacy, Security, and Data Protection","score":0.9839000105857849,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/documentation","display_name":"Documentation","score":0.6195789575576782},{"id":"https://openalex.org/keywords/certificate","display_name":"Certificate","score":0.5838773250579834},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.5823444128036499},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.5793546438217163},{"id":"https://openalex.org/keywords/confidentiality","display_name":"Confidentiality","score":0.527397096157074},{"id":"https://openalex.org/keywords/identity","display_name":"Identity (music)","score":0.49202582240104675},{"id":"https://openalex.org/keywords/key","display_name":"Key (lock)","score":0.48944392800331116},{"id":"https://openalex.org/keywords/medical-record","display_name":"Medical record","score":0.46029719710350037},{"id":"https://openalex.org/keywords/computer-security","display_name":"Computer security","score":0.4548126459121704},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.4527873396873474},{"id":"https://openalex.org/keywords/patient-data","display_name":"Patient data","score":0.44582945108413696},{"id":"https://openalex.org/keywords/masking","display_name":"Masking (illustration)","score":0.44028031826019287},{"id":"https://openalex.org/keywords/informed-consent","display_name":"Informed consent","score":0.41473960876464844},{"id":"https://openalex.org/keywords/order","display_name":"Order (exchange)","score":0.41076046228408813},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.30142951011657715},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.2019372284412384},{"id":"https://openalex.org/keywords/alternative-medicine","display_name":"Alternative medicine","score":0.08601522445678711}],"concepts":[{"id":"https://openalex.org/C56666940","wikidata":"https://www.wikidata.org/wiki/Q788790","display_name":"Documentation","level":2,"score":0.6195789575576782},{"id":"https://openalex.org/C96865113","wikidata":"https://www.wikidata.org/wiki/Q2946816","display_name":"Certificate","level":2,"score":0.5838773250579834},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5823444128036499},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.5793546438217163},{"id":"https://openalex.org/C71745522","wikidata":"https://www.wikidata.org/wiki/Q2476929","display_name":"Confidentiality","level":2,"score":0.527397096157074},{"id":"https://openalex.org/C2778355321","wikidata":"https://www.wikidata.org/wiki/Q17079427","display_name":"Identity (music)","level":2,"score":0.49202582240104675},{"id":"https://openalex.org/C26517878","wikidata":"https://www.wikidata.org/wiki/Q228039","display_name":"Key (lock)","level":2,"score":0.48944392800331116},{"id":"https://openalex.org/C195910791","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Medical record","level":2,"score":0.46029719710350037},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.4548126459121704},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.4527873396873474},{"id":"https://openalex.org/C3018822202","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Patient data","level":2,"score":0.44582945108413696},{"id":"https://openalex.org/C2777402240","wikidata":"https://www.wikidata.org/wiki/Q6783436","display_name":"Masking (illustration)","level":2,"score":0.44028031826019287},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.41473960876464844},{"id":"https://openalex.org/C182306322","wikidata":"https://www.wikidata.org/wiki/Q1779371","display_name":"Order (exchange)","level":2,"score":0.41076046228408813},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.30142951011657715},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2019372284412384},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.08601522445678711},{"id":"https://openalex.org/C153349607","wikidata":"https://www.wikidata.org/wiki/Q36649","display_name":"Visual arts","level":1,"score":0.0},{"id":"https://openalex.org/C11413529","wikidata":"https://www.wikidata.org/wiki/Q8366","display_name":"Algorithm","level":1,"score":0.0},{"id":"https://openalex.org/C126838900","wikidata":"https://www.wikidata.org/wiki/Q77604","display_name":"Radiology","level":1,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C142362112","wikidata":"https://www.wikidata.org/wiki/Q735","display_name":"Art","level":0,"score":0.0},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0},{"id":"https://openalex.org/C24890656","wikidata":"https://www.wikidata.org/wiki/Q82811","display_name":"Acoustics","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.5220/0004902404050412","is_oa":true,"landing_page_url":"https://doi.org/10.5220/0004902404050412","pdf_url":null,"source":null,"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the International Conference on Health Informatics","raw_type":"proceedings-article"},{"id":"pmh:oai:arbor.bfh.ch:7689","is_oa":true,"landing_page_url":"https://arbor.bfh.ch/7689/","pdf_url":null,"source":{"id":"https://openalex.org/S4406922806","display_name":"ARBOR - Bern University of Applied Sciences Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Benoist, Emmanuel; Sliwa, Jan (2014). How to collect consent for an anonymous medical database In: Proceedings of the International Conference on Health Informatics 1 (pp. 405-412). Scitepress 10.5220/0004902404050412 <http://dx.doi.org/10.5220/0004902404050412>","raw_type":"info:eu-repo/semantics/bookPart"}],"best_oa_location":{"id":"doi:10.5220/0004902404050412","is_oa":true,"landing_page_url":"https://doi.org/10.5220/0004902404050412","pdf_url":null,"source":null,"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the International Conference on Health Informatics","raw_type":"proceedings-article"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":5,"referenced_works":["https://openalex.org/W1565745194","https://openalex.org/W1964493386","https://openalex.org/W2033681977","https://openalex.org/W2165210192","https://openalex.org/W2400968868"],"related_works":["https://openalex.org/W2105289139","https://openalex.org/W2775690699","https://openalex.org/W4399484853","https://openalex.org/W2609554258","https://openalex.org/W4310703934","https://openalex.org/W4380149284","https://openalex.org/W4400969508","https://openalex.org/W2083874514","https://openalex.org/W12911312","https://openalex.org/W2336750505"],"abstract_inverted_index":{"The":[0],"goal":[1],"of":[2,13,79,85,92,121,137,183,187,204],"some":[3],"medical":[4,22],"databases":[5,28],"is":[6,63,151],"not":[7,41,67,167],"to":[8,17,30,43,55,97,101,113,129,133,142,169,175,194,200],"support":[9],"the":[10,19,45,57,83,95,99,102,119,131,135,138,144,181,184,188,196,202,205,209,213],"actual":[11],"treatment":[12],"individual":[14],"patients,":[15],"but":[16],"provide":[18],"platform":[20],"for":[21,50,74,117,147],"research.Health":[23],"data":[24,48,103,145],"collected":[25,49],"in":[26,140,161],"such":[27,156],"have":[29],"be":[31,35,53,192],"anynomized":[32],"-they":[33],"should":[34,40,52],"analyzed":[36],"only":[37,68],"statistically":[38],"and":[39],"permit":[42],"retrieve":[44],"patient's":[46,214],"identity.Medical":[47],"research":[51],"anonymized":[54],"protect":[56],"patients'":[58],"privacy.In":[59],"many":[60,65],"countries":[61],"it":[62],"mandatory.In":[64],"cases,":[66],"one":[69,106],"person":[70],"treats":[71],"a":[72,75,80,115,126],"patient":[73,96,139,189,197,206],"given":[76],"illness.The":[77],"documentation":[78],"case":[81],"requires":[82,94],"collaboration":[84],"different":[86],"physicians":[87],"that":[88,148,190],"share":[89],"information.This":[90],"sharing":[91],"information":[93],"authorise":[98],"access":[100,143],"stored":[104],"by":[105,108],"physician":[107],"another":[109],"one.We":[110],"need":[111],"therefore":[112],"implement":[114],"system":[116],"collecting":[118],"consent":[120,136],"an":[122],"anonymous":[123],"person.We":[124],"present":[125],"novel":[127],"solution":[128,150],"allow":[130],"practitioner":[132],"collect":[134],"order":[141],"recorded":[146],"person.This":[149],"based":[152],"on":[153],"existing":[154],"infrastructure,":[155],"as":[157],"X509":[158],"certificates":[159],"(present":[160],"e-ID":[162],"or":[163,174,211],"e-Health":[164],"cards).Patients":[165],"do":[166],"require":[168],"acquire":[170],"any":[171,177],"new":[172,178],"hardware":[173],"remember":[176],"secret.We":[179],"produce":[180],"fingerprint":[182],"private":[185],"key":[186],"can":[191],"used":[193],"re-identify":[195],"without":[198],"having":[199],"know":[201],"identity":[203],"(for":[207],"instance":[208],"certificate)":[210],"even":[212],"public":[215],"key.":[216]},"counts_by_year":[{"year":2020,"cited_by_count":1},{"year":2015,"cited_by_count":1}],"updated_date":"2026-04-04T16:13:02.066488","created_date":"2025-10-10T00:00:00"}