{"id":"https://openalex.org/W7127067503","doi":"https://doi.org/10.48550/arxiv.2601.23127","title":"\"I Choose to Live, for Life Itself\": Understanding Agency of Home-Based Care Patients Through Information Practices and Relational Dynamics in Care Networks","display_name":"\"I Choose to Live, for Life Itself\": Understanding Agency of Home-Based Care Patients Through Information Practices and Relational Dynamics in Care Networks","publication_year":2026,"publication_date":"2026-01-30","ids":{"openalex":"https://openalex.org/W7127067503","doi":"https://doi.org/10.48550/arxiv.2601.23127"},"language":null,"primary_location":{"id":"pmh:doi:10.48550/arxiv.2601.23127","is_oa":true,"landing_page_url":null,"pdf_url":null,"source":{"id":"https://openalex.org/S4406922384","display_name":"Open MIND","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Article"},"type":"preprint","indexed_in":["datacite"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":null,"any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5124774807","display_name":"Sung-In Kim","orcid":null},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Kim, Sung-In","raw_affiliation_strings":[],"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5124813799","display_name":"Joonyoung Park","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Park, Joonyoung","raw_affiliation_strings":[],"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002976820","display_name":"Bogoan Kim","orcid":"https://orcid.org/0000-0002-9083-1128"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Kim, Bogoan","raw_affiliation_strings":[],"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5025649906","display_name":"Hwajung Hong","orcid":"https://orcid.org/0000-0001-5268-3331"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Hong, Hwajung","raw_affiliation_strings":[],"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5124774807"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11376","display_name":"Geriatric Care and Nursing Homes","score":0.5322999954223633,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11376","display_name":"Geriatric Care and Nursing Homes","score":0.5322999954223633,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10692","display_name":"Urban Green Space and Health","score":0.05290000140666962,"subfield":{"id":"https://openalex.org/subfields/2307","display_name":"Health, Toxicology and Mutagenesis"},"field":{"id":"https://openalex.org/fields/23","display_name":"Environmental Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.03400000184774399,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/agency","display_name":"Agency (philosophy)","score":0.7872999906539917},{"id":"https://openalex.org/keywords/bridge","display_name":"Bridge (graph theory)","score":0.532800018787384},{"id":"https://openalex.org/keywords/representation","display_name":"Representation (politics)","score":0.4973999857902527},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.46369999647140503},{"id":"https://openalex.org/keywords/documentation","display_name":"Documentation","score":0.46140000224113464},{"id":"https://openalex.org/keywords/filter","display_name":"Filter (signal processing)","score":0.43299999833106995},{"id":"https://openalex.org/keywords/ethnography","display_name":"Ethnography","score":0.39489999413490295},{"id":"https://openalex.org/keywords/everyday-life","display_name":"Everyday life","score":0.3343000113964081}],"concepts":[{"id":"https://openalex.org/C108170787","wikidata":"https://www.wikidata.org/wiki/Q3951828","display_name":"Agency (philosophy)","level":2,"score":0.7872999906539917},{"id":"https://openalex.org/C100776233","wikidata":"https://www.wikidata.org/wiki/Q2532492","display_name":"Bridge (graph theory)","level":2,"score":0.532800018787384},{"id":"https://openalex.org/C2776359362","wikidata":"https://www.wikidata.org/wiki/Q2145286","display_name":"Representation (politics)","level":3,"score":0.4973999857902527},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.492900013923645},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.46369999647140503},{"id":"https://openalex.org/C56666940","wikidata":"https://www.wikidata.org/wiki/Q788790","display_name":"Documentation","level":2,"score":0.46140000224113464},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.4388999938964844},{"id":"https://openalex.org/C106131492","wikidata":"https://www.wikidata.org/wiki/Q3072260","display_name":"Filter (signal processing)","level":2,"score":0.43299999833106995},{"id":"https://openalex.org/C179454799","wikidata":"https://www.wikidata.org/wiki/Q132151","display_name":"Ethnography","level":2,"score":0.39489999413490295},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3628999888896942},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.33649998903274536},{"id":"https://openalex.org/C2779018934","wikidata":"https://www.wikidata.org/wiki/Q1129653","display_name":"Everyday life","level":2,"score":0.3343000113964081},{"id":"https://openalex.org/C116834253","wikidata":"https://www.wikidata.org/wiki/Q2039217","display_name":"Identification (biology)","level":2,"score":0.33239999413490295},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.32120001316070557},{"id":"https://openalex.org/C2776854237","wikidata":"https://www.wikidata.org/wiki/Q6031064","display_name":"Information sharing","level":2,"score":0.31850001215934753},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.29910001158714294},{"id":"https://openalex.org/C2777896191","wikidata":"https://www.wikidata.org/wiki/Q22907655","display_name":"Patient experience","level":3,"score":0.29109999537467957},{"id":"https://openalex.org/C194943564","wikidata":"https://www.wikidata.org/wiki/Q1129049","display_name":"Participant observation","level":2,"score":0.2883000075817108},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.28690001368522644},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.2815000116825104},{"id":"https://openalex.org/C2776511598","wikidata":"https://www.wikidata.org/wiki/Q7144993","display_name":"Patient participation","level":3,"score":0.27869999408721924},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.26899999380111694},{"id":"https://openalex.org/C198082294","wikidata":"https://www.wikidata.org/wiki/Q3399648","display_name":"Position (finance)","level":2,"score":0.25440001487731934},{"id":"https://openalex.org/C2989236134","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Patient care","level":2,"score":0.25279998779296875}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:doi:10.48550/arxiv.2601.23127","is_oa":true,"landing_page_url":null,"pdf_url":null,"source":{"id":"https://openalex.org/S4406922384","display_name":"Open MIND","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Article"},{"id":"doi:10.48550/arxiv.2601.23127","is_oa":true,"landing_page_url":"https://doi.org/10.48550/arxiv.2601.23127","pdf_url":null,"source":{"id":"https://openalex.org/S4306400194","display_name":"arXiv (Cornell University)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I205783295","host_organization_name":"Cornell University","host_organization_lineage":["https://openalex.org/I205783295"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":null,"raw_source_name":null,"raw_type":"article"}],"best_oa_location":{"id":"pmh:doi:10.48550/arxiv.2601.23127","is_oa":true,"landing_page_url":null,"pdf_url":null,"source":{"id":"https://openalex.org/S4406922384","display_name":"Open MIND","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Article"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"Home-based":[0],"care":[1,6,40,86],"(HBC)":[2],"delivers":[3],"medical":[4],"and":[5,39,56,88,111,132],"services":[7],"in":[8,25,54],"patients'":[9],"living":[10],"environments,":[11],"offering":[12],"unique":[13],"opportunities":[14],"for":[15],"patient-centered":[16],"care.":[17],"However,":[18],"patient":[19,51,66,109,135],"agency":[20,52,67,136],"is":[21,68],"often":[22],"inadequately":[23],"represented":[24],"shared":[26,138],"HBC":[27,35,55,139],"planning":[28],"processes.":[29],"Through":[30],"23":[31],"multi-stakeholder":[32],"interviews":[33],"with":[34,90],"patients,":[36],"healthcare":[37],"professionals,":[38],"workers,":[41],"alongside":[42],"60":[43],"hours":[44],"of":[45],"ethnographic":[46],"observations,":[47],"we":[48,95,123],"examined":[49],"how":[50],"manifests":[53],"why":[57],"this":[58,129],"representation":[59,130],"gap":[60,131],"occurs.":[61],"Our":[62],"findings":[63],"reveal":[64],"that":[65,97],"not":[69],"a":[70,75],"static":[71],"individual":[72],"attribute":[73],"but":[74],"relational":[76],"capacity":[77],"shaped":[78],"through":[79],"maintaining":[80],"everyday":[81],"continuity,":[82],"mutual":[83],"recognition":[84],"from":[85],"providers,":[87],"engagement":[89],"material":[91],"home":[92],"environments.":[93],"Furthermore,":[94],"identified":[96],"structured":[98],"documentation":[99],"systems":[100],"filter":[101],"out":[102],"contextual":[103],"knowledge,":[104],"informal":[105],"communication":[106],"channels":[107],"fragment":[108],"voices,":[110],"doctor-centered":[112],"hierarchies":[113],"position":[114],"patients":[115],"as":[116],"passive":[117],"recipients.":[118],"Drawing":[119],"on":[120],"these":[121],"insights,":[122],"propose":[124],"design":[125],"considerations":[126],"to":[127,133],"bridge":[128],"integrate":[134],"into":[137],"plans.":[140]},"counts_by_year":[],"updated_date":"2026-04-04T16:13:02.066488","created_date":"2026-02-03T00:00:00"}
