{"id":"https://openalex.org/W4407779487","doi":"https://doi.org/10.3390/systems13030140","title":"Barriers to Leveraging Valuable Health Data for Collaborative Patient Care: How Will We Integrate Family Health Histories?","display_name":"Barriers to Leveraging Valuable Health Data for Collaborative Patient Care: How Will We Integrate Family Health Histories?","publication_year":2025,"publication_date":"2025-02-20","ids":{"openalex":"https://openalex.org/W4407779487","doi":"https://doi.org/10.3390/systems13030140"},"language":"en","primary_location":{"id":"doi:10.3390/systems13030140","is_oa":true,"landing_page_url":"https://doi.org/10.3390/systems13030140","pdf_url":"https://www.mdpi.com/2079-8954/13/3/140/pdf?version=1740046709","source":{"id":"https://openalex.org/S4210219410","display_name":"Systems","issn_l":"2079-8954","issn":["2079-8954"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310310987","host_organization_name":"Multidisciplinary Digital Publishing Institute","host_organization_lineage":["https://openalex.org/P4310310987"],"host_organization_lineage_names":["Multidisciplinary Digital Publishing Institute"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Systems","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://www.mdpi.com/2079-8954/13/3/140/pdf?version=1740046709","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5017310049","display_name":"Laura Hays","orcid":"https://orcid.org/0000-0001-7318-0127"},"institutions":[{"id":"https://openalex.org/I79620101","display_name":"University of Arkansas for Medical Sciences","ror":"https://ror.org/00xcryt71","country_code":"US","type":"education","lineage":["https://openalex.org/I79620101"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Laura Hays","raw_affiliation_strings":["Department of Science and Practice, University of Arkansas for Medical Sciences College of Nursing, Little Rock, AR 72205, USA"],"raw_orcid":"https://orcid.org/0000-0001-7318-0127","affiliations":[{"raw_affiliation_string":"Department of Science and Practice, University of Arkansas for Medical Sciences College of Nursing, Little Rock, AR 72205, USA","institution_ids":["https://openalex.org/I79620101"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5114045664","display_name":"Jordan Weaver","orcid":null},"institutions":[{"id":"https://openalex.org/I79620101","display_name":"University of Arkansas for Medical Sciences","ror":"https://ror.org/00xcryt71","country_code":"US","type":"education","lineage":["https://openalex.org/I79620101"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jordan Weaver","raw_affiliation_strings":["Regional Programs, University of Arkansas for Medical Sciences College of Integrated Clinical Enterprise, Batesville, AR 72501, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Regional Programs, University of Arkansas for Medical Sciences College of Integrated Clinical Enterprise, Batesville, AR 72501, USA","institution_ids":["https://openalex.org/I79620101"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Matthew Gauger","orcid":null},"institutions":[{"id":"https://openalex.org/I4210109581","display_name":"Wolfspeed, Inc. (United States)","ror":"https://ror.org/02127h732","country_code":"US","type":"company","lineage":["https://openalex.org/I4210109581"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Matthew Gauger","raw_affiliation_strings":["One Cow Standing LLC, Durham, NC 27701, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"One Cow Standing LLC, Durham, NC 27701, USA","institution_ids":["https://openalex.org/I4210109581"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5089599703","display_name":"Nickie Buckner","orcid":"https://orcid.org/0000-0002-6437-9916"},"institutions":[{"id":"https://openalex.org/I4210109581","display_name":"Wolfspeed, Inc. (United States)","ror":"https://ror.org/02127h732","country_code":"US","type":"company","lineage":["https://openalex.org/I4210109581"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nickie Buckner","raw_affiliation_strings":["One Cow Standing LLC, Durham, NC 27701, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"One Cow Standing LLC, Durham, NC 27701, USA","institution_ids":["https://openalex.org/I4210109581"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009496753","display_name":"Brett J. Bailey","orcid":null},"institutions":[{"id":"https://openalex.org/I79620101","display_name":"University of Arkansas for Medical Sciences","ror":"https://ror.org/00xcryt71","country_code":"US","type":"education","lineage":["https://openalex.org/I79620101"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Brett Bailey","raw_affiliation_strings":["Innovation, Research & Entrepreneurship, University of Arkansas for Medical Sciences College of Pharmacy, Little Rock, AR 72205, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Innovation, Research & Entrepreneurship, University of Arkansas for Medical Sciences College of Pharmacy, Little Rock, AR 72205, USA","institution_ids":["https://openalex.org/I79620101"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101662397","display_name":"Ashley Stone","orcid":"https://orcid.org/0000-0002-1191-9552"},"institutions":[{"id":"https://openalex.org/I4210156829","display_name":"Research Network (United States)","ror":"https://ror.org/04tgjxk96","country_code":"US","type":"company","lineage":["https://openalex.org/I4210156829"]},{"id":"https://openalex.org/I79620101","display_name":"University of Arkansas for Medical Sciences","ror":"https://ror.org/00xcryt71","country_code":"US","type":"education","lineage":["https://openalex.org/I79620101"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ashley Stone","raw_affiliation_strings":["Translational Research Institute, University of Arkansas for Medical Sciences, Rural Research Network, Batesville, AR 72501, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Translational Research Institute, University of Arkansas for Medical Sciences, Rural Research Network, Batesville, AR 72501, USA","institution_ids":["https://openalex.org/I4210156829","https://openalex.org/I79620101"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5090987238","display_name":"Lori A. Orlando","orcid":"https://orcid.org/0000-0003-2534-7855"},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lori Orlando","raw_affiliation_strings":["Department of Medicine, Duke University, Durham, NC 27708, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Duke University, Durham, NC 27708, USA","institution_ids":["https://openalex.org/I170897317"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5017310049"],"corresponding_institution_ids":["https://openalex.org/I79620101"],"apc_list":{"value":2400,"currency":"CHF","value_usd":2896},"apc_paid":{"value":2400,"currency":"CHF","value_usd":2896},"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.04610226,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"13","issue":"3","first_page":"140","last_page":"140"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11590","display_name":"Primary Care and Health Outcomes","score":0.9955000281333923,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11590","display_name":"Primary Care and Health Outcomes","score":0.9955000281333923,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.9830999970436096,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11712","display_name":"Intergenerational Family Dynamics and Caregiving","score":0.977400004863739,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5400242805480957},{"id":"https://openalex.org/keywords/health-data","display_name":"Health data","score":0.4831070899963379},{"id":"https://openalex.org/keywords/family-health","display_name":"Family health","score":0.459719181060791},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.3583638072013855},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.33776968717575073},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.32173532247543335},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.3202258348464966},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.3158532381057739},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.22891128063201904},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.1729745864868164}],"concepts":[{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5400242805480957},{"id":"https://openalex.org/C3017977704","wikidata":"https://www.wikidata.org/wiki/Q18745135","display_name":"Health data","level":3,"score":0.4831070899963379},{"id":"https://openalex.org/C2993872733","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family health","level":2,"score":0.459719181060791},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.3583638072013855},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.33776968717575073},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.32173532247543335},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.3202258348464966},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3158532381057739},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.22891128063201904},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.1729745864868164},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.3390/systems13030140","is_oa":true,"landing_page_url":"https://doi.org/10.3390/systems13030140","pdf_url":"https://www.mdpi.com/2079-8954/13/3/140/pdf?version=1740046709","source":{"id":"https://openalex.org/S4210219410","display_name":"Systems","issn_l":"2079-8954","issn":["2079-8954"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310310987","host_organization_name":"Multidisciplinary Digital Publishing Institute","host_organization_lineage":["https://openalex.org/P4310310987"],"host_organization_lineage_names":["Multidisciplinary Digital Publishing Institute"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Systems","raw_type":"journal-article"},{"id":"pmh:oai:doaj.org/article:629206d6308c40f2919c833507bd96ed","is_oa":true,"landing_page_url":"https://doaj.org/article/629206d6308c40f2919c833507bd96ed","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Systems, Vol 13, Iss 3, p 140 (2025)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.3390/systems13030140","is_oa":true,"landing_page_url":"https://doi.org/10.3390/systems13030140","pdf_url":"https://www.mdpi.com/2079-8954/13/3/140/pdf?version=1740046709","source":{"id":"https://openalex.org/S4210219410","display_name":"Systems","issn_l":"2079-8954","issn":["2079-8954"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310310987","host_organization_name":"Multidisciplinary Digital Publishing Institute","host_organization_lineage":["https://openalex.org/P4310310987"],"host_organization_lineage_names":["Multidisciplinary Digital Publishing Institute"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Systems","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G4544877629","display_name":null,"funder_award_id":"2023-02","funder_id":"https://openalex.org/F4320310585","funder_display_name":"University of Arkansas for Medical Sciences"},{"id":"https://openalex.org/G8078056743","display_name":null,"funder_award_id":"UL1 RR029884","funder_id":"https://openalex.org/F4320337472","funder_display_name":"National Center for Advancing Translational Sciences"}],"funders":[{"id":"https://openalex.org/F4320310585","display_name":"University of Arkansas for Medical Sciences","ror":"https://ror.org/00xcryt71"},{"id":"https://openalex.org/F4320337472","display_name":"National Center for Advancing Translational Sciences","ror":"https://ror.org/04pw6fb54"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4407779487.pdf","grobid_xml":"https://content.openalex.org/works/W4407779487.grobid-xml"},"referenced_works_count":18,"referenced_works":["https://openalex.org/W591743112","https://openalex.org/W2007183909","https://openalex.org/W2020155291","https://openalex.org/W2027867013","https://openalex.org/W2093274439","https://openalex.org/W2107862628","https://openalex.org/W2168909179","https://openalex.org/W2226311111","https://openalex.org/W2296266034","https://openalex.org/W2891925439","https://openalex.org/W2944434778","https://openalex.org/W2946717256","https://openalex.org/W2965787050","https://openalex.org/W3006148615","https://openalex.org/W3106258594","https://openalex.org/W4317951937","https://openalex.org/W4323656318","https://openalex.org/W4391152065"],"related_works":["https://openalex.org/W2404257900","https://openalex.org/W2442696241","https://openalex.org/W2424075050","https://openalex.org/W4320719229","https://openalex.org/W4391546193","https://openalex.org/W3010806226","https://openalex.org/W4288913676","https://openalex.org/W4403514037","https://openalex.org/W2602301310","https://openalex.org/W2083734720"],"abstract_inverted_index":{"We":[0,88,144],"sought":[1],"to":[2,73,109,116,127,137,201],"incorporate":[3],"a":[4,8,26,53,69,111,121],"community-based":[5],"solution":[6],"with":[7,21,83,204],"family":[9],"health":[10,28,30],"history":[11],"(FHH)":[12],"clinical":[13,170],"support":[14,189],"program":[15],"(MeTree)":[16],"integrated":[17],"into":[18],"well-patient":[19],"appointments":[20],"the":[22,46,57,62,65,94,99,107,131,134,141,147,162,191],"novel":[23],"partnership":[24],"of":[25,61,101,114,133,149,161,194,225],"public":[27],"state-level":[29],"information":[31,155],"exchange":[32],"(HIE).":[33],"The":[34,124],"Arkansas\u2014Making":[35],"History":[36],"pilot":[37,95],"project":[38,108,119,128],"tested":[39],"informatics":[40],"compatibility":[41,151],"among":[42],"these":[43],"systems":[44,150],"and":[45,75,96,103,152,159,213,215,219],"patients\u2019":[47],"electronic":[48],"medical":[49],"record":[50],"(EPIC)":[51],"in":[52,56,85,180,190,198,216],"rural":[54],"clinic":[55],"north":[58],"central":[59],"region":[60],"state,":[63],"having":[64],"state":[66,135],"HIE":[67,136],"as":[68,165,167],"means":[70],"for":[71,90,98,146,207,223],"patients":[72,102,185],"store":[74],"share":[76,140],"their":[77,209],"FHHs":[78],"across":[79],"multiple":[80],"healthcare":[81,104],"providers":[82,105],"updates":[84],"real":[86],"time.":[87],"monitored":[89],"unexpected":[91],"issues":[92],"during":[93],"asked":[97],"perspectives":[100],"throughout":[106],"have":[110],"clear":[112],"understanding":[113],"how":[115,208],"implement":[117],"this":[118,195],"on":[120],"larger":[122,192],"scale.":[123],"greatest":[125],"barrier":[126],"implementation":[129],"was":[130],"inability":[132],"host":[138],"or":[139],"FHH":[142,178],"data.":[143],"compensated":[145],"lack":[148],"documented":[153],"valuable":[154],"about":[156],"patient":[157],"acceptability":[158],"usability":[160],"MeTree":[163,177],"platform,":[164],"well":[166],"gleaning":[168],"important":[169],"outcome":[171],"data":[172,210],"from":[173],"those":[174],"who":[175],"completed":[176],"accounts":[179],"an":[181],"underserved":[182],"area.":[183],"Rural":[184],"need":[186],"additional":[187],"technological":[188],"scaling":[193],"project,":[196],"both":[197],"available":[199,222],"linkages":[200],"community":[202],"clinics":[203],"patient-controlled":[205],"options":[206,221],"is":[211],"stored":[212],"shared":[214],"Internet":[217],"connectivity":[218],"software":[220],"ease":[224],"use.":[226]},"counts_by_year":[],"updated_date":"2026-08-23T07:36:19.812096","created_date":"2025-10-10T00:00:00"}