{"id":"https://openalex.org/W4366679751","doi":"https://doi.org/10.3233/sw-223220","title":"ciTIzen-centric DAta pLatform (TIDAL): Sharing distributed personal data in a privacy-preserving manner for health research","display_name":"ciTIzen-centric DAta pLatform (TIDAL): Sharing distributed personal data in a privacy-preserving manner for health research","publication_year":2023,"publication_date":"2023-04-21","ids":{"openalex":"https://openalex.org/W4366679751","doi":"https://doi.org/10.3233/sw-223220"},"language":"en","primary_location":{"id":"doi:10.3233/sw-223220","is_oa":true,"landing_page_url":"https://doi.org/10.3233/sw-223220","pdf_url":"https://content.iospress.com:443/download/semantic-web/sw223220?id=semantic-web%2Fsw223220","source":{"id":"https://openalex.org/S4210177235","display_name":"Semantic Web","issn_l":"1570-0844","issn":["1570-0844","2210-4968"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Semantic Web","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://content.iospress.com:443/download/semantic-web/sw223220?id=semantic-web%2Fsw223220","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5007559788","display_name":"Chang Sun","orcid":"https://orcid.org/0000-0001-8325-8848"},"institutions":[{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]}],"countries":["NL"],"is_corresponding":true,"raw_author_name":"Chang Sun","raw_affiliation_strings":["Institute of Data Science, Faculty of Science and Engineering, Maastricht University, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Data Science, Faculty of Science and Engineering, Maastricht University, The Netherlands","institution_ids":["https://openalex.org/I34352273"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5084657105","display_name":"Marc Gallofr\u00e9 Oca\u00f1a","orcid":"https://orcid.org/0000-0001-7637-3303"},"institutions":[{"id":"https://openalex.org/I4432739","display_name":"University of Bergen","ror":"https://ror.org/03zga2b32","country_code":"NO","type":"education","lineage":["https://openalex.org/I4432739"]}],"countries":["NO"],"is_corresponding":false,"raw_author_name":"Marc Gallofr\u00e9 Oca\u00f1a","raw_affiliation_strings":["Department of Information Science and Media Studies, University of Bergen, Norway"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Information Science and Media Studies, University of Bergen, Norway","institution_ids":["https://openalex.org/I4432739"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034589930","display_name":"Johan van Soest","orcid":"https://orcid.org/0000-0003-2548-0330"},"institutions":[{"id":"https://openalex.org/I2800191616","display_name":"Maastricht University Medical Centre","ror":"https://ror.org/02d9ce178","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2800191616"]},{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]},{"id":"https://openalex.org/I4210161616","display_name":"Maastro Clinic","ror":"https://ror.org/059wkzj26","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210161616"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Johan van Soest","raw_affiliation_strings":["Brightlands Institute of Smart Society (BISS), Faculty of Science and Engineering, Maastricht University, The Netherlands","Department of Radiation Oncology (Maastro), GROW School for Oncology and Reproduction, Maastricht University Medical Centre+, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Brightlands Institute of Smart Society (BISS), Faculty of Science and Engineering, Maastricht University, The Netherlands","institution_ids":["https://openalex.org/I34352273"]},{"raw_affiliation_string":"Department of Radiation Oncology (Maastro), GROW School for Oncology and Reproduction, Maastricht University Medical Centre+, The Netherlands","institution_ids":["https://openalex.org/I4210161616","https://openalex.org/I2800191616"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5044836472","display_name":"Michel Dumontier","orcid":"https://orcid.org/0000-0003-4727-9435"},"institutions":[{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Michel Dumontier","raw_affiliation_strings":["Institute of Data Science, Faculty of Science and Engineering, Maastricht University, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Data Science, Faculty of Science and Engineering, Maastricht University, The Netherlands","institution_ids":["https://openalex.org/I34352273"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5007559788"],"corresponding_institution_ids":["https://openalex.org/I34352273"],"apc_list":null,"apc_paid":null,"fwci":2.3981,"has_fulltext":true,"cited_by_count":10,"citation_normalized_percentile":{"value":0.88921513,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":94,"max":98},"biblio":{"volume":"14","issue":"5","first_page":"977","last_page":"996"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11719","display_name":"Data Quality and Management","score":0.9979000091552734,"subfield":{"id":"https://openalex.org/subfields/1803","display_name":"Management Science and Operations Research"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11719","display_name":"Data Quality and Management","score":0.9979000091552734,"subfield":{"id":"https://openalex.org/subfields/1803","display_name":"Management Science and Operations Research"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9976000189781189,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10927","display_name":"Access Control and Trust","score":0.9865000247955322,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/interoperability","display_name":"Interoperability","score":0.6372552514076233},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.6172817349433899},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.5826197266578674},{"id":"https://openalex.org/keywords/information-privacy","display_name":"Information privacy","score":0.45373645424842834},{"id":"https://openalex.org/keywords/data-quality","display_name":"Data quality","score":0.44076237082481384},{"id":"https://openalex.org/keywords/data-access","display_name":"Data access","score":0.4282941222190857},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.40823161602020264},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.3594778776168823},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.3169698119163513},{"id":"https://openalex.org/keywords/database","display_name":"Database","score":0.20528346300125122},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.2047560214996338},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.11066064238548279}],"concepts":[{"id":"https://openalex.org/C20136886","wikidata":"https://www.wikidata.org/wiki/Q749647","display_name":"Interoperability","level":2,"score":0.6372552514076233},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.6172817349433899},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5826197266578674},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.45373645424842834},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.44076237082481384},{"id":"https://openalex.org/C47487241","wikidata":"https://www.wikidata.org/wiki/Q5227230","display_name":"Data access","level":2,"score":0.4282941222190857},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.40823161602020264},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.3594778776168823},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.3169698119163513},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.20528346300125122},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2047560214996338},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.11066064238548279},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.3233/sw-223220","is_oa":true,"landing_page_url":"https://doi.org/10.3233/sw-223220","pdf_url":"https://content.iospress.com:443/download/semantic-web/sw223220?id=semantic-web%2Fsw223220","source":{"id":"https://openalex.org/S4210177235","display_name":"Semantic Web","issn_l":"1570-0844","issn":["1570-0844","2210-4968"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Semantic Web","raw_type":"journal-article"},{"id":"pmh:oai:bora.uib.no:11250/3071112","is_oa":true,"landing_page_url":"https://hdl.handle.net/11250/3071112","pdf_url":"https://bora.uib.no/bora-xmlui/bitstream/11250/3071112/4/sw_2023_14-5_sw-14-5-sw223220_sw-14-sw223220.pdf","source":{"id":"https://openalex.org/S4306401716","display_name":"Duo Research Archive (University of Oslo)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I184942183","host_organization_name":"University of Oslo","host_organization_lineage":["https://openalex.org/I184942183"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Semantic Web Journal","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:cris.maastrichtuniversity.nl:openaire_cris_publications/d535445a-fee8-4d7a-80d6-70f0d636a3b2","is_oa":true,"landing_page_url":"https://cris.maastrichtuniversity.nl/en/publications/d535445a-fee8-4d7a-80d6-70f0d636a3b2","pdf_url":null,"source":{"id":"https://openalex.org/S4306402616","display_name":"Research Publications (Maastricht University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I34352273","host_organization_name":"Maastricht University","host_organization_lineage":["https://openalex.org/I34352273"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Sun , C , Ocana , M G , van Soest , J &amp; Dumontier , M 2023 , ' ciTIzen-centric DAta pLatform (TIDAL) : Sharing distributed personal data in a privacy-preserving manner for health research ' , Semantic web , vol. 14 , no. 5 , pp. 977-996 . https://doi.org/10.3233/SW-223220","raw_type":"article"}],"best_oa_location":{"id":"doi:10.3233/sw-223220","is_oa":true,"landing_page_url":"https://doi.org/10.3233/sw-223220","pdf_url":"https://content.iospress.com:443/download/semantic-web/sw223220?id=semantic-web%2Fsw223220","source":{"id":"https://openalex.org/S4210177235","display_name":"Semantic Web","issn_l":"1570-0844","issn":["1570-0844","2210-4968"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Semantic Web","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Responsible consumption and production","id":"https://metadata.un.org/sdg/12","score":0.5}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":false},"content_urls":{"pdf":"https://content.openalex.org/works/W4366679751.pdf"},"referenced_works_count":21,"referenced_works":["https://openalex.org/W1989991992","https://openalex.org/W2037107113","https://openalex.org/W2123845384","https://openalex.org/W2131660156","https://openalex.org/W2131949595","https://openalex.org/W2492893878","https://openalex.org/W2507130841","https://openalex.org/W2544902556","https://openalex.org/W2964250737","https://openalex.org/W2979948296","https://openalex.org/W2980390182","https://openalex.org/W2981959691","https://openalex.org/W2983728903","https://openalex.org/W2995099704","https://openalex.org/W3009505516","https://openalex.org/W3027705879","https://openalex.org/W3097946119","https://openalex.org/W3100686539","https://openalex.org/W3122112962","https://openalex.org/W3170191984","https://openalex.org/W3175305732"],"related_works":["https://openalex.org/W2414507368","https://openalex.org/W2166798126","https://openalex.org/W4389950265","https://openalex.org/W2421443948","https://openalex.org/W2050921398","https://openalex.org/W4245475085","https://openalex.org/W3186174587","https://openalex.org/W2606756185","https://openalex.org/W4226034287","https://openalex.org/W2949958263"],"abstract_inverted_index":{"Developing":[0],"personal":[1,66,113,146,195,252,302,333,362],"data":[2,10,24,68,114,124,128,147,153,166,170,192,196,254,303,334,349],"sharing":[3],"tools":[4],"and":[5,20,52,72,102,131,168,205,216,250,260,267,276,285,289,308,325,348],"standards":[6],"in":[7,41,80,119,194,208,294,304,358],"conformity":[8],"with":[9,25,105,255],"protection":[11],"regulations":[12],"is":[13],"essential":[14],"to":[15,18,48,59,78,94,107,287,299,309,320,323,344,351],"empower":[16],"citizens":[17,56,77,357],"control":[19,120],"share":[21],"their":[22,65,99,112,301,311,315],"health":[23,51,67,253],"authorized":[26],"parties":[27],"for":[28,38,46,115,184,331,335],"any":[29],"purpose":[30],"they":[31],"approve.":[32],"This":[33],"can":[34,69,339],"be,":[35],"among":[36],"others,":[37],"primary":[39],"use":[40,45,110,290],"healthcare,":[42],"or":[43,149,161],"secondary":[44],"research":[47,116],"improve":[49],"human":[50],"well-being.":[53],"Ensuring":[54],"that":[55,135],"are":[57,318],"able":[58,319],"make":[60,310],"fine-grained":[61,306],"decisions":[62],"about":[63],"how":[64],"be":[70],"used":[71],"shared":[73],"will":[74],"significantly":[75],"encourage":[76],"participate":[79],"more":[81],"health-related":[82,336],"research.":[83,337],"In":[84],"this":[85],"paper,":[86],"we":[87,242],"propose":[88],"a":[89,156,180,209,224,268,305],"ciTIzen-centric":[90],"DatA":[91],"pLatform":[92],"(TIDAL)":[93],"give":[95],"individuals":[96,298,324],"ownership":[97],"of":[98,111,121,159,164,182,187,218,226,246,258,274,361],"own":[100,312],"data,":[101],"connect":[103,345],"them":[104,207,327],"researchers":[106],"donate":[108],"the":[109,122,176,214,219,244,272,283,291,353,359],"while":[117],"being":[118],"entire":[123],"life":[125],"cycle,":[126],"including":[127],"access,":[129],"storage":[130],"analysis.":[132],"We":[133,212],"recognize":[134],"most":[136],"existing":[137],"technologies":[138],"focus":[139],"on":[140,199,278,314],"one":[141],"particular":[142],"aspect":[143],"such":[144],"as":[145],"storage,":[148],"suffer":[150],"from":[151],"executing":[152],"analysis":[154],"over":[155],"large":[157],"number":[158,273],"participants,":[160],"face":[162],"challenges":[163],"low":[165],"quality":[167],"insufficient":[169],"interoperability.":[171],"To":[172],"address":[173],"these":[174],"challenges,":[175],"TIDAL":[177,220,247,292,296,338],"platform":[178,221,293],"integrates":[179],"set":[181,225],"components":[183],"requesting":[185],"subsets":[186],"RDF":[188],"(Resource":[189],"Description":[190],"Framework)":[191],"stored":[193],"vaults":[197],"based":[198],"SOcial":[200],"LInked":[201],"Data":[202],"(Solid)":[203],"technology":[204],"analyzing":[206,251],"privacy-preserving":[210],"manner.":[211],"demonstrate":[213],"feasibility":[215,284],"efficiency":[217],"by":[222,248,356],"conducting":[223],"simulation":[227],"experiments":[228],"using":[229,332],"three":[230],"different":[231],"pod":[232,240,280],"providers":[233,281],"(Inrupt,":[234],"Solidcommunity,":[235],"Self-hosted":[236],"Server).":[237],"On":[238],"each":[239],"provider,":[241],"evaluated":[243],"performance":[245],"querying":[249],"varying":[256],"scales":[257],"participants":[259],"configurations.":[261],"The":[262],"reasonable":[263],"total":[264],"time":[265],"consumption":[266],"linear":[269],"correlation":[270],"between":[271],"pods":[275],"variables":[277],"all":[279],"show":[282],"potential":[286],"implement":[288],"practice.":[295],"facilitates":[297],"access":[300],"manner":[307],"decision":[313],"data.":[316,363],"Researchers":[317],"reach":[321],"out":[322],"send":[326],"digital":[328],"consent":[329],"directly":[330],"play":[340],"an":[341],"important":[342],"role":[343],"citizens,":[346],"researchers,":[347],"organizations":[350],"increase":[352],"trust":[354],"placed":[355],"processing":[360]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":4}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}
