{"id":"https://openalex.org/W7161941371","doi":"https://doi.org/10.3233/shti260511","title":"Developing an HL7 FHIR Implementation Guide for Rare Cancers: The IDEA4RC Project Experience","display_name":"Developing an HL7 FHIR Implementation Guide for Rare Cancers: The IDEA4RC Project Experience","publication_year":2026,"publication_date":"2026-05-21","ids":{"openalex":"https://openalex.org/W7161941371","doi":"https://doi.org/10.3233/shti260511","pmid":"https://pubmed.ncbi.nlm.nih.gov/42175182"},"language":"en","primary_location":{"id":"doi:10.3233/shti260511","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti260511","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.3233/shti260511","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5049470110","display_name":"Roberta Gazzarata","orcid":"https://orcid.org/0000-0002-7778-7601"},"institutions":[{"id":"https://openalex.org/I4210112262","display_name":"Health Level Seven International","ror":"https://ror.org/029ga8k16","country_code":"BE","type":"healthcare","lineage":["https://openalex.org/I4210112262"]}],"countries":["BE"],"is_corresponding":false,"raw_author_name":"Roberta Gazzarata","raw_affiliation_strings":["HL7 Europe, Brussels, Belgium","Healthropy srl, Savona, Italy"],"raw_orcid":"https://orcid.org/0000-0002-7778-7601","affiliations":[{"raw_affiliation_string":"HL7 Europe, Brussels, Belgium","institution_ids":["https://openalex.org/I4210112262"]},{"raw_affiliation_string":"Healthropy srl, Savona, Italy","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5136628576","display_name":"IDEA4RC Working Group","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"IDEA4RC Working Group","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030176667","display_name":"Giorgio Cangioli","orcid":"https://orcid.org/0000-0003-1918-376X"},"institutions":[{"id":"https://openalex.org/I4210112262","display_name":"Health Level Seven International","ror":"https://ror.org/029ga8k16","country_code":"BE","type":"healthcare","lineage":["https://openalex.org/I4210112262"]}],"countries":["BE"],"is_corresponding":false,"raw_author_name":"Giorgio Cangioli","raw_affiliation_strings":["HL7 Europe, Brussels, Belgium"],"raw_orcid":"https://orcid.org/0000-0003-1918-376X","affiliations":[{"raw_affiliation_string":"HL7 Europe, Brussels, Belgium","institution_ids":["https://openalex.org/I4210112262"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5136644667","display_name":"Wylem Bars","orcid":null},"institutions":[{"id":"https://openalex.org/I4210112262","display_name":"Health Level Seven International","ror":"https://ror.org/029ga8k16","country_code":"BE","type":"healthcare","lineage":["https://openalex.org/I4210112262"]}],"countries":["BE"],"is_corresponding":false,"raw_author_name":"Wylem Bars","raw_affiliation_strings":["HL7 Europe, Brussels, Belgium"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"HL7 Europe, Brussels, Belgium","institution_ids":["https://openalex.org/I4210112262"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5135822264","display_name":"Catherine Chronaki","orcid":null},"institutions":[{"id":"https://openalex.org/I4210112262","display_name":"Health Level Seven International","ror":"https://ror.org/029ga8k16","country_code":"BE","type":"healthcare","lineage":["https://openalex.org/I4210112262"]}],"countries":["BE"],"is_corresponding":false,"raw_author_name":"Catherine Chronaki","raw_affiliation_strings":["HL7 Europe, Brussels, Belgium"],"raw_orcid":"https://orcid.org/0000-0001-6638-8448","affiliations":[{"raw_affiliation_string":"HL7 Europe, Brussels, Belgium","institution_ids":["https://openalex.org/I4210112262"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088507117","display_name":"Eugenio Gaeta","orcid":"https://orcid.org/0000-0001-9500-9283"},"institutions":[{"id":"https://openalex.org/I88060688","display_name":"Universidad Polit\u00e9cnica de Madrid","ror":"https://ror.org/03n6nwv02","country_code":"ES","type":"education","lineage":["https://openalex.org/I88060688"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Eugenio Gaeta","raw_affiliation_strings":["Universidad Polit\u00e9cnica de Madrid, Madrid, Spain"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidad Polit\u00e9cnica de Madrid, Madrid, Spain","institution_ids":["https://openalex.org/I88060688"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052785153","display_name":"Unai Zulaika","orcid":"https://orcid.org/0000-0002-7366-9579"},"institutions":[{"id":"https://openalex.org/I136040515","display_name":"Universidad de Deusto","ror":"https://ror.org/00ne6sr39","country_code":"ES","type":"education","lineage":["https://openalex.org/I136040515"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Unai Zulaika","raw_affiliation_strings":["Universitad de Deusto, Bilbao, Spain"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universitad de Deusto, Bilbao, Spain","institution_ids":["https://openalex.org/I136040515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5062192534","display_name":"Vincenzo Falanga","orcid":"https://orcid.org/0000-0001-5973-6504"},"institutions":[{"id":"https://openalex.org/I4210101866","display_name":"Informa (Italy)","ror":"https://ror.org/017c2y429","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210101866","https://openalex.org/I4210154378"]},{"id":"https://openalex.org/I4210127672","display_name":"Engineering (Italy)","ror":"https://ror.org/045s9b323","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210127672"]},{"id":"https://openalex.org/I4210139705","display_name":"Ingegneria dei Sistemi (Italy)","ror":"https://ror.org/03spsm219","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210139705"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Vincenzo Falanga","raw_affiliation_strings":["Engineering Ingegneria Informatica S.p.A, Roma, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Engineering Ingegneria Informatica S.p.A, Roma, Italy","institution_ids":["https://openalex.org/I4210101866","https://openalex.org/I4210127672","https://openalex.org/I4210139705"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5013901835","display_name":"Federica Sacc\u00e0","orcid":"https://orcid.org/0000-0003-2608-5383"},"institutions":[{"id":"https://openalex.org/I4210101866","display_name":"Informa (Italy)","ror":"https://ror.org/017c2y429","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210101866","https://openalex.org/I4210154378"]},{"id":"https://openalex.org/I4210127672","display_name":"Engineering (Italy)","ror":"https://ror.org/045s9b323","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210127672"]},{"id":"https://openalex.org/I4210139705","display_name":"Ingegneria dei Sistemi (Italy)","ror":"https://ror.org/03spsm219","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210139705"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Federica Sacc\u00e0","raw_affiliation_strings":["Engineering Ingegneria Informatica S.p.A, Roma, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Engineering Ingegneria Informatica S.p.A, Roma, Italy","institution_ids":["https://openalex.org/I4210101866","https://openalex.org/I4210127672","https://openalex.org/I4210139705"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5047822022","display_name":"Annalisa Trama","orcid":"https://orcid.org/0000-0001-8220-9833"},"institutions":[{"id":"https://openalex.org/I4210156707","display_name":"Fondazione IRCCS Istituto Nazionale dei Tumori","ror":"https://ror.org/05dwj7825","country_code":"IT","type":"healthcare","lineage":["https://openalex.org/I4210153126","https://openalex.org/I4210156707"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Annalisa Trama","raw_affiliation_strings":["Istituto Nazionale dei Tumori, Milano, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Istituto Nazionale dei Tumori, Milano, Italy","institution_ids":["https://openalex.org/I4210156707"]}]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":7,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.68438003,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"336","issue":null,"first_page":"1679","last_page":"1684"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11642","display_name":"Genomics and Rare Diseases","score":0.2606000006198883,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T11642","display_name":"Genomics and Rare Diseases","score":0.2606000006198883,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T11710","display_name":"Biomedical Text Mining and Ontologies","score":0.23800000548362732,"subfield":{"id":"https://openalex.org/subfields/1312","display_name":"Molecular Biology"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T11287","display_name":"Cancer Genomics and Diagnostics","score":0.14309999346733093,"subfield":{"id":"https://openalex.org/subfields/1306","display_name":"Cancer Research"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/terminology","display_name":"Terminology","score":0.6331999897956848},{"id":"https://openalex.org/keywords/data-exchange","display_name":"Data exchange","score":0.597000002861023},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.5709999799728394},{"id":"https://openalex.org/keywords/harmonization","display_name":"Harmonization","score":0.534600019454956},{"id":"https://openalex.org/keywords/snomed-ct","display_name":"SNOMED CT","score":0.46380001306533813},{"id":"https://openalex.org/keywords/resource","display_name":"Resource (disambiguation)","score":0.39820000529289246},{"id":"https://openalex.org/keywords/interoperability","display_name":"Interoperability","score":0.373199999332428},{"id":"https://openalex.org/keywords/data-integration","display_name":"Data integration","score":0.3564999997615814}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.7447999715805054},{"id":"https://openalex.org/C547195049","wikidata":"https://www.wikidata.org/wiki/Q1725664","display_name":"Terminology","level":2,"score":0.6331999897956848},{"id":"https://openalex.org/C15845906","wikidata":"https://www.wikidata.org/wiki/Q1172338","display_name":"Data exchange","level":2,"score":0.597000002861023},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.5709999799728394},{"id":"https://openalex.org/C2779962950","wikidata":"https://www.wikidata.org/wiki/Q5659376","display_name":"Harmonization","level":2,"score":0.534600019454956},{"id":"https://openalex.org/C206497026","wikidata":"https://www.wikidata.org/wiki/Q1753883","display_name":"SNOMED CT","level":3,"score":0.46380001306533813},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.40369999408721924},{"id":"https://openalex.org/C206345919","wikidata":"https://www.wikidata.org/wiki/Q20380951","display_name":"Resource (disambiguation)","level":2,"score":0.39820000529289246},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.382099986076355},{"id":"https://openalex.org/C20136886","wikidata":"https://www.wikidata.org/wiki/Q749647","display_name":"Interoperability","level":2,"score":0.373199999332428},{"id":"https://openalex.org/C72634772","wikidata":"https://www.wikidata.org/wiki/Q386824","display_name":"Data integration","level":2,"score":0.3564999997615814},{"id":"https://openalex.org/C527412718","wikidata":"https://www.wikidata.org/wiki/Q855395","display_name":"Interpretation (philosophy)","level":2,"score":0.3084000051021576},{"id":"https://openalex.org/C100463513","wikidata":"https://www.wikidata.org/wiki/Q5227322","display_name":"Data model (GIS)","level":2,"score":0.3046000003814697},{"id":"https://openalex.org/C115903868","wikidata":"https://www.wikidata.org/wiki/Q80993","display_name":"Software engineering","level":1,"score":0.3003000020980835},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.2976999878883362},{"id":"https://openalex.org/C3018822202","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Patient data","level":2,"score":0.29649999737739563},{"id":"https://openalex.org/C173483453","wikidata":"https://www.wikidata.org/wiki/Q1040689","display_name":"Synonym (taxonomy)","level":3,"score":0.2802000045776367},{"id":"https://openalex.org/C47487241","wikidata":"https://www.wikidata.org/wiki/Q5227230","display_name":"Data access","level":2,"score":0.26750001311302185},{"id":"https://openalex.org/C2778759051","wikidata":"https://www.wikidata.org/wiki/Q5691085","display_name":"Health information exchange","level":4,"score":0.26330000162124634},{"id":"https://openalex.org/C41525213","wikidata":"https://www.wikidata.org/wiki/Q690189","display_name":"Electronic data interchange","level":2,"score":0.262800008058548},{"id":"https://openalex.org/C116409475","wikidata":"https://www.wikidata.org/wiki/Q1385056","display_name":"External Data Representation","level":2,"score":0.25769999623298645},{"id":"https://openalex.org/C67186912","wikidata":"https://www.wikidata.org/wiki/Q367664","display_name":"Data modeling","level":2,"score":0.2565999925136566},{"id":"https://openalex.org/C2777303404","wikidata":"https://www.wikidata.org/wiki/Q759757","display_name":"Convergence (economics)","level":2,"score":0.2558000087738037},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.25279998779296875},{"id":"https://openalex.org/C191630685","wikidata":"https://www.wikidata.org/wiki/Q4027615","display_name":"Informatics","level":2,"score":0.25060001015663147}],"mesh":[{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000145","qualifier_name":"classification","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000145","qualifier_name":"classification","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D035583","descriptor_name":"Rare Diseases","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D035583","descriptor_name":"Rare Diseases","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D035583","descriptor_name":"Rare Diseases","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D057208","descriptor_name":"Health Level Seven","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057208","descriptor_name":"Health Level Seven","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057208","descriptor_name":"Health Level Seven","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti260511","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti260511","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:42175182","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42175182","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.3233/shti260511","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti260511","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"Rare":[0],"cancers":[1],"hinder":[2],"data":[3,30,52,103,173],"sharing":[4,174],"and":[5,14,64,80,110,140,155,175],"secondary":[6],"use":[7],"due":[8],"to":[9,93,145],"low":[10],"incidence,":[11],"heterogeneous":[12],"pathways,":[13],"fragmented":[15],"sources.":[16],"The":[17,67,163],"IDEA4RC":[18,41,50,68,165],"project":[19],"addresses":[20],"these":[21],"issues":[22],"by":[23,132],"creating":[24],"a":[25,98,116,126],"federated":[26],"ecosystem":[27],"for":[28,62,159,179],"harmonized":[29],"exchange":[31],"across":[32,57,182],"European":[33,100,160],"Centers":[34],"of":[35,115],"Excellence.":[36],"This":[37],"paper":[38],"presents":[39],"the":[40,49,102,113,177,189],"HL7":[42,69,166,190],"FHIR":[43,70,94,128,167],"Implementation":[44],"Guide":[45],"(IG),":[46],"which":[47],"operationalizes":[48],"common":[51],"model-organizing":[53],"279":[54],"clinical":[55,108],"variables":[56],"19":[58],"entities-into":[59],"computable":[60,127],"specifications":[61],"semantic":[63],"computational":[65],"interoperability.":[66],"IG":[71,129,168],"combines":[72],"logical":[73],"models,":[74],"constrained":[75],"resource":[76],"profiles,":[77],"terminology":[78],"bindings,":[79],"grouped":[81],"ConceptMaps":[82],"that":[83],"document":[84],"traceable":[85],"mappings":[86],"from":[87],"model":[88,104],"entities":[89],"(e.g.,":[90],"Cancer":[91,191],"Episode)":[92],"profiles.":[95],"Developed":[96],"within":[97],"multi-stakeholder":[99],"consortium,":[101],"was":[105],"co-designed":[106],"with":[107,135,188],"partners":[109],"it":[111],"is":[112],"topic":[114],"specific":[117],"paper;":[118],"here":[119],"we":[120],"report":[121],"its":[122],"technical":[123],"translation":[124],"into":[125],"primarily":[130],"led":[131],"technological":[133],"partners;":[134],"clinicians":[136],"supporting":[137],"concept":[138],"interpretation":[139],"early":[141],"implementation":[142],"feedback.":[143],"Compared":[144],"existing":[146],"initiatives":[147],"such":[148],"as":[149],"mCODE,":[150],"our":[151],"approach":[152],"strengthens":[153],"longitudinal":[154],"episode-based":[156],"representation":[157],"needed":[158],"research":[161],"contexts.":[162],"resulting":[164],"underpins":[169],"robust":[170],"rare":[171],"cancer":[172],"paves":[176],"way":[178],"broader":[180],"harmonization":[181],"oncology":[183],"standards,":[184],"including":[185],"future":[186],"convergence":[187],"Common":[192],"Model":[193],"Project.":[194]},"counts_by_year":[],"updated_date":"2026-07-22T07:51:19.307946","created_date":"2026-05-22T00:00:00"}