{"id":"https://openalex.org/W4283736887","doi":"https://doi.org/10.3233/shti220663","title":"ICT Tools for Registry Research: A Market Survey","display_name":"ICT Tools for Registry Research: A Market Survey","publication_year":2022,"publication_date":"2022-06-29","ids":{"openalex":"https://openalex.org/W4283736887","doi":"https://doi.org/10.3233/shti220663","pmid":"https://pubmed.ncbi.nlm.nih.gov/35773809"},"language":"en","primary_location":{"id":"doi:10.3233/shti220663","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220663","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220663","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220663","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5078049770","display_name":"J\u00fcrgen Stausberg","orcid":"https://orcid.org/0000-0003-0348-5579"},"institutions":[{"id":"https://openalex.org/I4210086407","display_name":"Institut f\u00fcr Medizinische Informatik, Biometrie und Epidemiologie","ror":"https://ror.org/00wqjrk21","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210086407"]},{"id":"https://openalex.org/I62318514","display_name":"University of Duisburg-Essen","ror":"https://ror.org/04mz5ra38","country_code":"DE","type":"education","lineage":["https://openalex.org/I62318514"]}],"countries":["DE"],"is_corresponding":true,"raw_author_name":"J\u00fcrgen Stausberg","raw_affiliation_strings":["University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Essen, Germany","Biometry and Epidemiology (IMIBE), Essen, Germany","Corresponding Author, Institute for Medical Informatics, Biometry and Epidemiology, Faculty of Medicine, University Duisburg-Essen, Hufelandstrasse 55, 45122 Essen, Germany;","University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Essen, Germany","institution_ids":["https://openalex.org/I4210086407"]},{"raw_affiliation_string":"Biometry and Epidemiology (IMIBE), Essen, Germany","institution_ids":["https://openalex.org/I4210086407"]},{"raw_affiliation_string":"Corresponding Author, Institute for Medical Informatics, Biometry and Epidemiology, Faculty of Medicine, University Duisburg-Essen, Hufelandstrasse 55, 45122 Essen, Germany;","institution_ids":["https://openalex.org/I62318514"]},{"raw_affiliation_string":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics,","institution_ids":["https://openalex.org/I62318514"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5077522757","display_name":"Sonja Harkener","orcid":null},"institutions":[{"id":"https://openalex.org/I4210086407","display_name":"Institut f\u00fcr Medizinische Informatik, Biometrie und Epidemiologie","ror":"https://ror.org/00wqjrk21","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210086407"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Sonja Harkener","raw_affiliation_strings":["University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Essen, Germany","Biometry and Epidemiology (IMIBE), Essen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Essen, Germany","institution_ids":["https://openalex.org/I4210086407"]},{"raw_affiliation_string":"Biometry and Epidemiology (IMIBE), Essen, Germany","institution_ids":["https://openalex.org/I4210086407"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5078049770"],"corresponding_institution_ids":["https://openalex.org/I4210086407","https://openalex.org/I62318514"],"apc_list":null,"apc_paid":null,"fwci":0.2833,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":{"value":0.50455927,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":94},"biblio":{"volume":"295","issue":null,"first_page":"71","last_page":"74"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.96670001745224,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.96670001745224,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9480999708175659,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10556","display_name":"Global Cancer Incidence and Screening","score":0.9465000033378601,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/information-and-communications-technology","display_name":"Information and Communications Technology","score":0.6778718829154968},{"id":"https://openalex.org/keywords/market-research","display_name":"Market research","score":0.48864132165908813},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.48426195979118347},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.4432941973209381},{"id":"https://openalex.org/keywords/core","display_name":"Core (optical fiber)","score":0.4270637035369873},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.3974865674972534},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.35338419675827026},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.26537150144577026},{"id":"https://openalex.org/keywords/marketing","display_name":"Marketing","score":0.24890395998954773},{"id":"https://openalex.org/keywords/telecommunications","display_name":"Telecommunications","score":0.20109093189239502}],"concepts":[{"id":"https://openalex.org/C67363961","wikidata":"https://www.wikidata.org/wiki/Q5268834","display_name":"Information and Communications Technology","level":2,"score":0.6778718829154968},{"id":"https://openalex.org/C27564746","wikidata":"https://www.wikidata.org/wiki/Q913709","display_name":"Market research","level":2,"score":0.48864132165908813},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.48426195979118347},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.4432941973209381},{"id":"https://openalex.org/C2164484","wikidata":"https://www.wikidata.org/wiki/Q5170150","display_name":"Core (optical fiber)","level":2,"score":0.4270637035369873},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3974865674972534},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.35338419675827026},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.26537150144577026},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.24890395998954773},{"id":"https://openalex.org/C76155785","wikidata":"https://www.wikidata.org/wiki/Q418","display_name":"Telecommunications","level":1,"score":0.20109093189239502}],"mesh":[{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti220663","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220663","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220663","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:35773809","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/35773809","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":{"id":"doi:10.3233/shti220663","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220663","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220663","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[{"score":0.6100000143051147,"id":"https://metadata.un.org/sdg/9","display_name":"Industry, innovation and infrastructure"}],"awards":[{"id":"https://openalex.org/G2479293820","display_name":"REGISVF-AP - Begleitprojekt der F\u00f6rderma\u00dfnahme Register der Versorgungsforschung - Teilprojekt A (Koordination und Kommunikation)","funder_award_id":"01GY1917A","funder_id":"https://openalex.org/F4320321114","funder_display_name":"Bundesministerium f\u00fcr Bildung und Forschung"},{"id":"https://openalex.org/G5644287052","display_name":"REGISVF-AP - Begleitprojekt der F\u00f6rderma\u00dfnahme Register der Versorgungsforschung - Teilprojekt B (Qualit\u00e4tsmanagement)","funder_award_id":"01GY1917B","funder_id":"https://openalex.org/F4320321114","funder_display_name":"Bundesministerium f\u00fcr Bildung und Forschung"}],"funders":[{"id":"https://openalex.org/F4320321114","display_name":"Bundesministerium f\u00fcr Bildung und Forschung","ror":"https://ror.org/04pz7b180"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4283736887.pdf","grobid_xml":"https://content.openalex.org/works/W4283736887.grobid-xml"},"referenced_works_count":6,"referenced_works":["https://openalex.org/W1997691052","https://openalex.org/W2400968868","https://openalex.org/W2404444064","https://openalex.org/W3039058084","https://openalex.org/W3153618310","https://openalex.org/W7033478710"],"related_works":["https://openalex.org/W2606944002","https://openalex.org/W1544399416","https://openalex.org/W1913032233","https://openalex.org/W2914720863","https://openalex.org/W2041870230","https://openalex.org/W2811178767","https://openalex.org/W2596684947","https://openalex.org/W4244625256","https://openalex.org/W1866411286","https://openalex.org/W2640916427"],"abstract_inverted_index":{"Registries":[0],"in":[1,39,56],"health":[2],"research":[3,41],"are":[4],"complex":[5],"systems":[6],"requiring":[7],"a":[8,57,73,124],"diverse":[9],"infrastructure":[10],"with":[11],"information":[12,105],"and":[13,34,52,64,80,93,101,106,129],"communications":[14],"technology":[15],"tools":[16,23,61,69,132],"(ICT":[17],"tools)":[18],"for":[19,62,72,133],"manifold":[20,139],"tasks.":[21],"Those":[22],"should":[24,148],"support":[25],"not":[26],"only":[27],"data":[28,91,110],"management":[29],"but":[30],"also":[31,42],"several":[32],"core":[33,84],"accompanying":[35],"processes.":[36],"Recent":[37],"trends":[38,117],"registry":[40,88,134],"need":[43],"to":[44,78,99,108,137],"be":[45,149],"taken":[46],"into":[47],"account.":[48],"Thirty-five":[49],"vendors,":[50],"suppliers,":[51],"experts":[53],"were":[54,118],"included":[55],"survey":[58],"on":[59],"ICT":[60,131],"registries":[63],"cohorts.":[65],"Information":[66],"from":[67,96,142],"28":[68],"was":[70,112],"available":[71,141],"preliminary":[74],"analysis.":[75],"In":[76],"comparison":[77],"2015":[79],"2018,":[81],"coverage":[82],"of":[83,127],"processes":[85],"such":[86],"as":[87],"development":[89],"or":[90],"analysis":[92],"utilization":[94],"increased":[95],"below":[97],"40%":[98],"39%":[100],"higher.":[102],"Recording":[103],"patient-reported":[104],"linkage":[107],"other":[109],"collections":[111],"well":[113],"covered.":[114],"However,":[115],"near-patient":[116],"less":[119],"supported.":[120],"The":[121],"market":[122],"offers":[123,140],"rich":[125],"selection":[126],"commercial":[128],"non-commercial":[130],"research.":[135],"Due":[136],"the":[138,143],"market,":[144],"in-house":[145],"developed":[146],"software":[147],"an":[150],"absolute":[151],"exception.":[152]},"counts_by_year":[{"year":2024,"cited_by_count":1}],"updated_date":"2026-07-28T07:46:37.118299","created_date":"2025-10-10T00:00:00"}
