{"id":"https://openalex.org/W4281478997","doi":"https://doi.org/10.3233/shti220523","title":"Extending the Austrian National EHR System with Patient-Reported Outcome Data","display_name":"Extending the Austrian National EHR System with Patient-Reported Outcome Data","publication_year":2022,"publication_date":"2022-05-25","ids":{"openalex":"https://openalex.org/W4281478997","doi":"https://doi.org/10.3233/shti220523","pmid":"https://pubmed.ncbi.nlm.nih.gov/35612144"},"language":"en","primary_location":{"id":"doi:10.3233/shti220523","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220523","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220523","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220523","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5022037530","display_name":"Florian Katsch","orcid":"https://orcid.org/0000-0001-7952-9326"},"institutions":[{"id":"https://openalex.org/I4210104219","display_name":"Austrian Institute for Health Technology Assessment GmbH","ror":"https://ror.org/00v16df20","country_code":"AT","type":"nonprofit","lineage":["https://openalex.org/I4210104219"]},{"id":"https://openalex.org/I76134821","display_name":"Medical University of Vienna","ror":"https://ror.org/05n3x4p02","country_code":"AT","type":"education","lineage":["https://openalex.org/I76134821"]}],"countries":["AT"],"is_corresponding":false,"raw_author_name":"Florian Katsch","raw_affiliation_strings":["Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria","Ludwig Boltzmann Institute for Digital Health and Prevention, Salzburg, Austria"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria","institution_ids":["https://openalex.org/I76134821"]},{"raw_affiliation_string":"Ludwig Boltzmann Institute for Digital Health and Prevention, Salzburg, Austria","institution_ids":["https://openalex.org/I4210104219"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041007161","display_name":"Rada Hussein","orcid":"https://orcid.org/0000-0003-1257-4848"},"institutions":[{"id":"https://openalex.org/I4210104219","display_name":"Austrian Institute for Health Technology Assessment GmbH","ror":"https://ror.org/00v16df20","country_code":"AT","type":"nonprofit","lineage":["https://openalex.org/I4210104219"]}],"countries":["AT"],"is_corresponding":false,"raw_author_name":"Rada Hussein","raw_affiliation_strings":["Ludwig Boltzmann Institute for Digital Health and Prevention, Salzburg, Austria"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Ludwig Boltzmann Institute for Digital Health and Prevention, Salzburg, Austria","institution_ids":["https://openalex.org/I4210104219"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068676899","display_name":"Stefan Sabutsch","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Stefan Sabutsch","raw_affiliation_strings":["ELGA GmbH, Vienna, Austria"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"ELGA GmbH, Vienna, Austria","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5070019623","display_name":"Helene Prenner","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Helene Prenner","raw_affiliation_strings":["ELGA GmbH, Vienna, Austria"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"ELGA GmbH, Vienna, Austria","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5037720718","display_name":"Fabian Pra\u00dfer","orcid":"https://orcid.org/0000-0003-3172-3095"},"institutions":[{"id":"https://openalex.org/I4210139777","display_name":"Berlin Institute of Health at Charit\u00e9 - Universit\u00e4tsmedizin Berlin","ror":"https://ror.org/0493xsw21","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210139777","https://openalex.org/I7877124"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Fabian Prasser","raw_affiliation_strings":["Berlin Institute of Health at Charit\u00e9 \u2013 Universit\u00e4tsmedizin Berlin, Berlin, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Berlin Institute of Health at Charit\u00e9 \u2013 Universit\u00e4tsmedizin Berlin, Berlin, Germany","institution_ids":["https://openalex.org/I4210139777"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020718006","display_name":"Tanja Stamm","orcid":"https://orcid.org/0000-0003-3073-7284"},"institutions":[{"id":"https://openalex.org/I76134821","display_name":"Medical University of Vienna","ror":"https://ror.org/05n3x4p02","country_code":"AT","type":"education","lineage":["https://openalex.org/I76134821"]}],"countries":["AT"],"is_corresponding":false,"raw_author_name":"Tanja Stamm","raw_affiliation_strings":["Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria","institution_ids":["https://openalex.org/I76134821"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5033998677","display_name":"Georg Duftschmid","orcid":"https://orcid.org/0000-0001-8007-0735"},"institutions":[{"id":"https://openalex.org/I76134821","display_name":"Medical University of Vienna","ror":"https://ror.org/05n3x4p02","country_code":"AT","type":"education","lineage":["https://openalex.org/I76134821"]}],"countries":["AT"],"is_corresponding":false,"raw_author_name":"Georg Duftschmid","raw_affiliation_strings":["Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria","institution_ids":["https://openalex.org/I76134821"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":7,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.16243486,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"294","issue":null,"first_page":"561","last_page":"562"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13022","display_name":"Health and Medical Studies","score":0.925599992275238,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13022","display_name":"Health and Medical Studies","score":0.925599992275238,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.9175000190734863,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/outcome","display_name":"Outcome (game theory)","score":0.6645983457565308},{"id":"https://openalex.org/keywords/observatory","display_name":"Observatory","score":0.5510035157203674},{"id":"https://openalex.org/keywords/identifier","display_name":"Identifier","score":0.45934849977493286},{"id":"https://openalex.org/keywords/health-records","display_name":"Health records","score":0.45114797353744507},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.36328527331352234},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.27846044301986694},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.17345985770225525},{"id":"https://openalex.org/keywords/physics","display_name":"Physics","score":0.12942948937416077},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.092547208070755},{"id":"https://openalex.org/keywords/economics","display_name":"Economics","score":0.07762381434440613},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.0613078773021698}],"concepts":[{"id":"https://openalex.org/C148220186","wikidata":"https://www.wikidata.org/wiki/Q7111912","display_name":"Outcome (game theory)","level":2,"score":0.6645983457565308},{"id":"https://openalex.org/C2779919027","wikidata":"https://www.wikidata.org/wiki/Q62832","display_name":"Observatory","level":2,"score":0.5510035157203674},{"id":"https://openalex.org/C154504017","wikidata":"https://www.wikidata.org/wiki/Q853614","display_name":"Identifier","level":2,"score":0.45934849977493286},{"id":"https://openalex.org/C3019952477","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Health records","level":3,"score":0.45114797353744507},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.36328527331352234},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.27846044301986694},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.17345985770225525},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.12942948937416077},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.092547208070755},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.07762381434440613},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0613078773021698},{"id":"https://openalex.org/C144237770","wikidata":"https://www.wikidata.org/wiki/Q747534","display_name":"Mathematical economics","level":1,"score":0.0},{"id":"https://openalex.org/C44870925","wikidata":"https://www.wikidata.org/wiki/Q37547","display_name":"Astrophysics","level":1,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001317","descriptor_name":"Austria","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001317","descriptor_name":"Austria","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001317","descriptor_name":"Austria","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti220523","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220523","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220523","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:35612144","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/35612144","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":{"id":"doi:10.3233/shti220523","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220523","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220523","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[{"display_name":"Industry, innovation and infrastructure","id":"https://metadata.un.org/sdg/9","score":0.6600000262260437}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4281478997.pdf","grobid_xml":"https://content.openalex.org/works/W4281478997.grobid-xml"},"referenced_works_count":3,"referenced_works":["https://openalex.org/W2314507420","https://openalex.org/W2941663933","https://openalex.org/W4300150459"],"related_works":["https://openalex.org/W2889237311","https://openalex.org/W3174110465","https://openalex.org/W3011453101","https://openalex.org/W2810187945","https://openalex.org/W1610795781","https://openalex.org/W1820348870","https://openalex.org/W2164260925","https://openalex.org/W2182677235","https://openalex.org/W337971545","https://openalex.org/W2923493534"],"abstract_inverted_index":{"The":[0,55],"Austrian":[1],"national":[2],"Electronic":[3],"Health":[4,50],"Record":[5],"system":[6],"ELGA":[7,33,44,74,78],"is":[8],"a":[9],"population-based":[10],"infrastructure":[11,47],"for":[12,64,81],"health":[13],"data.":[14,37],"However,":[15],"to":[16],"date,":[17],"it":[18],"does":[19],"not":[20],"include":[21],"patient-reported":[22,35],"outcomes.":[23],"In":[24],"this":[25],"paper,":[26],"we":[27],"describe":[28],"on-going":[29],"work":[30],"on":[31,59],"extending":[32],"with":[34,45],"outcome":[36,70],"This":[38],"will":[39,57],"be":[40,58],"done":[41],"by":[42],"linking":[43],"the":[46,49],"of":[48],"Outcomes":[51],"Observatory":[52],"(H2O)":[53],"initiative.":[54],"focus":[56],"using":[60],"ELGA's":[61],"identifier":[62],"registry":[63],"H2O":[65,69],"patients":[66],"and":[67],"making":[68],"data":[71],"accessible":[72],"in":[73],"via":[75],"an":[76],"existing":[77],"document":[79],"type":[80],"telemonitoring.":[82]},"counts_by_year":[],"updated_date":"2026-06-11T09:08:48.828518","created_date":"2025-10-10T00:00:00"}