{"id":"https://openalex.org/W4281557110","doi":"https://doi.org/10.3233/shti220440","title":"Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer","display_name":"Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer","publication_year":2022,"publication_date":"2022-05-25","ids":{"openalex":"https://openalex.org/W4281557110","doi":"https://doi.org/10.3233/shti220440","pmid":"https://pubmed.ncbi.nlm.nih.gov/35612059"},"language":"en","primary_location":{"id":"doi:10.3233/shti220440","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220440","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220440","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220440","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5068552707","display_name":"Awais Ahmad","orcid":"https://orcid.org/0000-0001-6947-9409"},"institutions":[{"id":"https://openalex.org/I123387679","display_name":"Uppsala University","ror":"https://ror.org/048a87296","country_code":"SE","type":"education","lineage":["https://openalex.org/I123387679"]}],"countries":["SE"],"is_corresponding":true,"raw_author_name":"Awais Ahmad","raw_affiliation_strings":["Department of Information Technology, Uppsala University, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Information Technology, Uppsala University, Sweden","institution_ids":["https://openalex.org/I123387679"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5017019103","display_name":"\u00c5sa Cajander","orcid":"https://orcid.org/0000-0001-7472-2215"},"institutions":[{"id":"https://openalex.org/I123387679","display_name":"Uppsala University","ror":"https://ror.org/048a87296","country_code":"SE","type":"education","lineage":["https://openalex.org/I123387679"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"\u00c5sa Cajander","raw_affiliation_strings":["Department of Information Technology, Uppsala University, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Information Technology, Uppsala University, Sweden","institution_ids":["https://openalex.org/I123387679"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5084584250","display_name":"Birgitta Johansson","orcid":"https://orcid.org/0000-0001-6226-6849"},"institutions":[{"id":"https://openalex.org/I123387679","display_name":"Uppsala University","ror":"https://ror.org/048a87296","country_code":"SE","type":"education","lineage":["https://openalex.org/I123387679"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Birgitta Johansson","raw_affiliation_strings":["Department of Immunology, Uppsala University, Sweden","Department of Immunology, Uppsala University, Sweden,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Immunology, Uppsala University, Sweden","institution_ids":["https://openalex.org/I123387679"]},{"raw_affiliation_string":"Department of Immunology, Uppsala University, Sweden,","institution_ids":["https://openalex.org/I123387679"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5064230060","display_name":"Ylva Tiblom Ehrsson","orcid":"https://orcid.org/0000-0001-7435-167X"},"institutions":[{"id":"https://openalex.org/I123387679","display_name":"Uppsala University","ror":"https://ror.org/048a87296","country_code":"SE","type":"education","lineage":["https://openalex.org/I123387679"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Ylva Tiblom Ehrsson","raw_affiliation_strings":["Department of Surgical Sciences, Section of Otorhinolaryngology and Head & Neck Surgery, Uppsala University, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Surgical Sciences, Section of Otorhinolaryngology and Head & Neck Surgery, Uppsala University, Sweden","institution_ids":["https://openalex.org/I123387679"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5019254614","display_name":"Ulrica Langeg\u00e5rd","orcid":"https://orcid.org/0000-0001-8174-579X"},"institutions":[{"id":"https://openalex.org/I123387679","display_name":"Uppsala University","ror":"https://ror.org/048a87296","country_code":"SE","type":"education","lineage":["https://openalex.org/I123387679"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Ulrica Langeg\u00e5rd","raw_affiliation_strings":["Department of Immunology, Uppsala University, Sweden","Department of Immunology, Uppsala University, Sweden,","Department of Surgical Sciences, Section of Otorhinolaryngology and Head & Neck Surgery, Uppsala University, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Immunology, Uppsala University, Sweden","institution_ids":["https://openalex.org/I123387679"]},{"raw_affiliation_string":"Department of Immunology, Uppsala University, Sweden,","institution_ids":["https://openalex.org/I123387679"]},{"raw_affiliation_string":"Department of Surgical Sciences, Section of Otorhinolaryngology and Head & Neck Surgery, Uppsala University, Sweden","institution_ids":["https://openalex.org/I123387679"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5068552707"],"corresponding_institution_ids":["https://openalex.org/I123387679"],"apc_list":null,"apc_paid":null,"fwci":3.572,"has_fulltext":true,"cited_by_count":5,"citation_normalized_percentile":{"value":0.91181658,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":98},"biblio":{"volume":"294","issue":null,"first_page":"214","last_page":"218"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9696999788284302,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9696999788284302,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9049000144004822,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11977","display_name":"Technology Use by Older Adults","score":0.9013000130653381,"subfield":{"id":"https://openalex.org/subfields/3317","display_name":"Demography"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/spouse","display_name":"Spouse","score":0.814987301826477},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"Family caregivers","score":0.5337233543395996},{"id":"https://openalex.org/keywords/social-support","display_name":"Social support","score":0.4536019563674927},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.4490099251270294},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.3861870765686035},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.31499016284942627},{"id":"https://openalex.org/keywords/psychotherapist","display_name":"Psychotherapist","score":0.20726534724235535},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.1074596643447876}],"concepts":[{"id":"https://openalex.org/C2777495918","wikidata":"https://www.wikidata.org/wiki/Q1196129","display_name":"Spouse","level":2,"score":0.814987301826477},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.5337233543395996},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.4536019563674927},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4490099251270294},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3861870765686035},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.31499016284942627},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.20726534724235535},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.1074596643447876},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008603","descriptor_name":"Mental Health","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008603","descriptor_name":"Mental Health","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008603","descriptor_name":"Mental Health","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D033062","descriptor_name":"Friends","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033062","descriptor_name":"Friends","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033062","descriptor_name":"Friends","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.3233/shti220440","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220440","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220440","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:35612059","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/35612059","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null},{"id":"pmh:oai:DiVA.org:uu-475510","is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-475510","pdf_url":null,"source":{"id":"https://openalex.org/S4306401559","display_name":"KTH Publication Database DiVA (KTH Royal Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Article in journal"}],"best_oa_location":{"id":"doi:10.3233/shti220440","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti220440","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI220440","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4281557110.pdf","grobid_xml":"https://content.openalex.org/works/W4281557110.grobid-xml"},"referenced_works_count":17,"referenced_works":["https://openalex.org/W1543609633","https://openalex.org/W2024257460","https://openalex.org/W2089168113","https://openalex.org/W2097104268","https://openalex.org/W2108353880","https://openalex.org/W2216150311","https://openalex.org/W2801228678","https://openalex.org/W2884492761","https://openalex.org/W2913111791","https://openalex.org/W2915061649","https://openalex.org/W2921309230","https://openalex.org/W2955436843","https://openalex.org/W3033424192","https://openalex.org/W4205870797","https://openalex.org/W4230358619","https://openalex.org/W4244807100","https://openalex.org/W6676051380"],"related_works":["https://openalex.org/W1968424163","https://openalex.org/W1594664307","https://openalex.org/W2164070319","https://openalex.org/W2766296381","https://openalex.org/W2169418693","https://openalex.org/W3174307934","https://openalex.org/W4313545516","https://openalex.org/W2589974334","https://openalex.org/W2381773662","https://openalex.org/W2884199118"],"abstract_inverted_index":{"Informal":[0],"Caregivers":[1],"such":[2],"as":[3,77,105],"a":[4,73,78,106,118,145],"spouse,":[5],"other":[6],"close":[7],"relatives":[8],"or":[9],"friends":[10],"of":[11,45,68,125,140],"cancer":[12],"patients":[13,46],"can":[14,132],"play":[15],"an":[16],"essential":[17],"role":[18],"in":[19,47],"home-based":[20],"treatment":[21],"and":[22,35,56,87,109,116,138,151],"care.":[23],"However,":[24],"the":[25,48,65,83,93,136],"informal":[26,52,94,123],"caregivers":[27,124],"might":[28,37],"not":[29],"be":[30,103,133],"prepared":[31],"for":[32,42,122,135],"this":[33],"responsibility,":[34],"they":[36],"have":[38],"several":[39],"unmet":[40],"requirements":[41],"taking":[43],"care":[44],"home":[49],"environment.":[50],"The":[51,129],"caregivers'":[53,95],"physical,":[54],"social":[55],"psychological":[57],"health":[58,66,141],"is":[59,113],"also":[60],"profoundly":[61],"affected":[62],"due":[63],"to":[64,91,114],"conditions":[67],"their":[69],"relatives.":[70],"We":[71],"propose":[72],"User-centred":[74],"Positive":[75],"Design":[76],"hybrid":[79],"framework":[80,131],"by":[81],"merging":[82],"traditional":[84],"User-cantered":[85],"design":[86,89,137],"positive":[88,152],"frameworks":[90],"enhance":[92],"subjective":[96],"well-being.":[97],"Our":[98],"ongoing":[99],"project":[100],"(Carer-eSupport)":[101],"will":[102],"used":[104,134],"case":[107],"study,":[108],"its":[110],"main":[111],"objective":[112],"co-create":[115],"evaluate":[117],"web-based":[119],"support":[120],"system":[121],"people":[126],"with":[127,144],"cancer.":[128],"proposed":[130],"development":[139],"information":[142],"systems":[143],"special":[146],"focus":[147],"on":[148],"users'":[149],"wellbeing":[150],"emotions.":[153]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":3}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}