{"id":"https://openalex.org/W3165025824","doi":"https://doi.org/10.3233/shti210112","title":"Metadata of Registries: Results from an Initiative in Health Services Research","display_name":"Metadata of Registries: Results from an Initiative in Health Services Research","publication_year":2021,"publication_date":"2021-05-27","ids":{"openalex":"https://openalex.org/W3165025824","doi":"https://doi.org/10.3233/shti210112","mag":"3165025824","pmid":"https://pubmed.ncbi.nlm.nih.gov/34042697"},"language":"en","primary_location":{"id":"doi:10.3233/shti210112","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti210112","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI210112","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI210112","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5078049770","display_name":"J\u00fcrgen Stausberg","orcid":"https://orcid.org/0000-0003-0348-5579"},"institutions":[{"id":"https://openalex.org/I4210086407","display_name":"Institut f\u00fcr Medizinische Informatik, Biometrie und Epidemiologie","ror":"https://ror.org/00wqjrk21","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210086407"]},{"id":"https://openalex.org/I62318514","display_name":"University of Duisburg-Essen","ror":"https://ror.org/04mz5ra38","country_code":"DE","type":"education","lineage":["https://openalex.org/I62318514"]}],"countries":["DE"],"is_corresponding":true,"raw_author_name":"J\u00fcrgen Stausberg","raw_affiliation_strings":["University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Germany","Biometry and Epidemiology (IMIBE), Germany","Corresponding Author, Institute for Medical Informatics, Biometry and Epidemiology, Faculty of Medicine, University Duisburg-Essen, Hufelandstrasse 55, 45122 Essen, Germany;","University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Germany","institution_ids":["https://openalex.org/I4210086407"]},{"raw_affiliation_string":"Biometry and Epidemiology (IMIBE), Germany","institution_ids":["https://openalex.org/I4210086407"]},{"raw_affiliation_string":"Corresponding Author, Institute for Medical Informatics, Biometry and Epidemiology, Faculty of Medicine, University Duisburg-Essen, Hufelandstrasse 55, 45122 Essen, Germany;","institution_ids":["https://openalex.org/I62318514"]},{"raw_affiliation_string":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics,","institution_ids":["https://openalex.org/I62318514"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5077522757","display_name":"Sonja Harkener","orcid":null},"institutions":[{"id":"https://openalex.org/I4210086407","display_name":"Institut f\u00fcr Medizinische Informatik, Biometrie und Epidemiologie","ror":"https://ror.org/00wqjrk21","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210086407"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Sonja Harkener","raw_affiliation_strings":["University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Germany","Biometry and Epidemiology (IMIBE), Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Germany","institution_ids":["https://openalex.org/I4210086407"]},{"raw_affiliation_string":"Biometry and Epidemiology (IMIBE), Germany","institution_ids":["https://openalex.org/I4210086407"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5078049770"],"corresponding_institution_ids":["https://openalex.org/I4210086407","https://openalex.org/I62318514"],"apc_list":null,"apc_paid":null,"fwci":2.1966,"has_fulltext":true,"cited_by_count":3,"citation_normalized_percentile":{"value":0.88100372,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":96},"biblio":{"volume":"281","issue":null,"first_page":"18","last_page":"22"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.9987000226974487,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.9987000226974487,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11986","display_name":"Scientific Computing and Data Management","score":0.9904999732971191,"subfield":{"id":"https://openalex.org/subfields/1802","display_name":"Information Systems and Management"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11710","display_name":"Biomedical Text Mining and Ontologies","score":0.9692000150680542,"subfield":{"id":"https://openalex.org/subfields/1312","display_name":"Molecular Biology"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/metadata","display_name":"Metadata","score":0.9670190811157227},{"id":"https://openalex.org/keywords/meta-data-services","display_name":"Meta Data Services","score":0.7368431091308594},{"id":"https://openalex.org/keywords/data-element","display_name":"Data element","score":0.6332884430885315},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.588283360004425},{"id":"https://openalex.org/keywords/metamodeling","display_name":"Metamodeling","score":0.5758470296859741},{"id":"https://openalex.org/keywords/database-catalog","display_name":"Database catalog","score":0.5722233057022095},{"id":"https://openalex.org/keywords/data-management-plan","display_name":"Data management plan","score":0.5502852201461792},{"id":"https://openalex.org/keywords/database","display_name":"Database","score":0.5056815147399902},{"id":"https://openalex.org/keywords/metadata-modeling","display_name":"Metadata modeling","score":0.4765123426914215},{"id":"https://openalex.org/keywords/metadata-repository","display_name":"Metadata repository","score":0.4574652314186096},{"id":"https://openalex.org/keywords/metadata-management","display_name":"Metadata management","score":0.4571109414100647},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.4387631416320801},{"id":"https://openalex.org/keywords/process-management","display_name":"Process management","score":0.3357986807823181},{"id":"https://openalex.org/keywords/data-management","display_name":"Data management","score":0.2844131290912628},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.20696935057640076},{"id":"https://openalex.org/keywords/software-engineering","display_name":"Software engineering","score":0.12608730792999268}],"concepts":[{"id":"https://openalex.org/C93518851","wikidata":"https://www.wikidata.org/wiki/Q180160","display_name":"Metadata","level":2,"score":0.9670190811157227},{"id":"https://openalex.org/C136976847","wikidata":"https://www.wikidata.org/wiki/Q6822297","display_name":"Meta Data Services","level":4,"score":0.7368431091308594},{"id":"https://openalex.org/C30872290","wikidata":"https://www.wikidata.org/wiki/Q1172389","display_name":"Data element","level":3,"score":0.6332884430885315},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.588283360004425},{"id":"https://openalex.org/C86610423","wikidata":"https://www.wikidata.org/wiki/Q1925081","display_name":"Metamodeling","level":2,"score":0.5758470296859741},{"id":"https://openalex.org/C65610166","wikidata":"https://www.wikidata.org/wiki/Q5227399","display_name":"Database catalog","level":4,"score":0.5722233057022095},{"id":"https://openalex.org/C158746014","wikidata":"https://www.wikidata.org/wiki/Q17085509","display_name":"Data management plan","level":3,"score":0.5502852201461792},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.5056815147399902},{"id":"https://openalex.org/C110326360","wikidata":"https://www.wikidata.org/wiki/Q17149476","display_name":"Metadata modeling","level":4,"score":0.4765123426914215},{"id":"https://openalex.org/C153048206","wikidata":"https://www.wikidata.org/wiki/Q3454922","display_name":"Metadata repository","level":3,"score":0.4574652314186096},{"id":"https://openalex.org/C2779489174","wikidata":"https://www.wikidata.org/wiki/Q6822246","display_name":"Metadata management","level":3,"score":0.4571109414100647},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.4387631416320801},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.3357986807823181},{"id":"https://openalex.org/C1668388","wikidata":"https://www.wikidata.org/wiki/Q1149776","display_name":"Data management","level":2,"score":0.2844131290912628},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.20696935057640076},{"id":"https://openalex.org/C115903868","wikidata":"https://www.wikidata.org/wiki/Q80993","display_name":"Software engineering","level":1,"score":0.12608730792999268}],"mesh":[{"descriptor_ui":"D000071253","descriptor_name":"Metadata","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071253","descriptor_name":"Metadata","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071253","descriptor_name":"Metadata","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti210112","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti210112","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI210112","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:34042697","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/34042697","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":{"id":"doi:10.3233/shti210112","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti210112","pdf_url":"https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI210112","source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/17","display_name":"Partnerships for the goals","score":0.5299999713897705}],"awards":[{"id":"https://openalex.org/G5644287052","display_name":"REGISVF-AP - Begleitprojekt der F\u00f6rderma\u00dfnahme Register der Versorgungsforschung - Teilprojekt B (Qualit\u00e4tsmanagement)","funder_award_id":"01GY1917B","funder_id":"https://openalex.org/F4320321114","funder_display_name":"Bundesministerium f\u00fcr Bildung und Forschung"}],"funders":[{"id":"https://openalex.org/F4320321114","display_name":"Bundesministerium f\u00fcr Bildung und Forschung","ror":"https://ror.org/04pz7b180"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3165025824.pdf","grobid_xml":"https://content.openalex.org/works/W3165025824.grobid-xml"},"referenced_works_count":10,"referenced_works":["https://openalex.org/W2182991361","https://openalex.org/W2302501749","https://openalex.org/W2398626490","https://openalex.org/W2408577762","https://openalex.org/W2787315064","https://openalex.org/W2894335498","https://openalex.org/W2922306173","https://openalex.org/W2991050270","https://openalex.org/W3153618310","https://openalex.org/W4241371625"],"related_works":["https://openalex.org/W3084772717","https://openalex.org/W2380261968","https://openalex.org/W2374379029","https://openalex.org/W3204280384","https://openalex.org/W2376038160","https://openalex.org/W2907247951","https://openalex.org/W2389784781","https://openalex.org/W2365178252","https://openalex.org/W1512114296","https://openalex.org/W2166976511"],"abstract_inverted_index":{"Metadata":[0,53],"management":[1,13],"is":[2,153,162,177,186],"an":[3,18,146],"essential":[4],"condition":[5],"to":[6,63,99,109,118,124,164,188],"follow":[7],"the":[8,34,45,65,68,71,74,78,102,115,126,138,156,160,166,172,181],"FAIR":[9,167],"principles.":[10,168],"Therefore,":[11],"metadata":[12,32,161,193],"was":[14],"one":[15,122],"asset":[16],"of":[17,33,47,70,77,87,93,105,114,159,171,174],"accompanying":[19],"project":[20],"within":[21],"a":[22,41,84,143],"funding":[23,79],"scheme":[24],"for":[25,131,192],"registries":[26,82],"in":[27,40,61,178],"health":[28],"services":[29],"research.":[30],"The":[31,90,111,129,169],"funded":[35],"projects":[36],"were":[37],"acquired,":[38],"combined":[39],"database":[42,116],"compatible":[43],"with":[44,180],"metamodel":[46,173],"ISO/IEC":[48,175],"11179":[49],"\"Information":[50],"technology":[51],"-":[52],"registries\"":[54],"third":[55,123],"edition":[56],"(ISO/IEC":[57],"11179-3),":[58],"and":[59,67,101],"analyzed":[60],"order":[62],"support":[64],"development":[66,148],"operation":[69],"registries.":[72],"In":[73],"second":[75],"phase":[76],"scheme,":[80],"six":[81],"delivered":[83],"complete":[85],"update":[86],"their":[88],"metadata.":[89],"mean":[91,103],"number":[92,104],"data":[94],"elements":[95],"increased":[96],"from":[97,107,137,145],"245.7":[98],"473.5":[100],"values":[106],"569.5":[108],"1,306.0.":[110],"conceptual":[112],"core":[113],"had":[117],"be":[119,141],"extended":[120],"by":[121],"cover":[125],"new":[127],"elements.":[128],"reason":[130],"this":[132],"increase":[133],"remained":[134],"unclear.":[135],"Constraints":[136],"grant":[139],"might":[140],"causal,":[142],"deviation":[144],"evidence-based":[147],"process":[149],"as":[150],"well.":[151],"It":[152],"questionable,":[154],"whether":[155],"revealed":[157],"quality":[158],"sufficient":[163],"fulfill":[165],"extension":[170],"11179-3":[176],"agreement":[179],"literature.":[182],"However,":[183],"further":[184],"research":[185],"needed":[187],"find":[189],"workable":[190],"solutions":[191],"management.":[194]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":2}],"updated_date":"2026-07-28T07:46:37.118299","created_date":"2025-10-10T00:00:00"}