{"id":"https://openalex.org/W3036637760","doi":"https://doi.org/10.3233/shti200333","title":"Designing a Solution to Manage Electronic Consent for Children","display_name":"Designing a Solution to Manage Electronic Consent for Children","publication_year":2020,"publication_date":"2020-01-01","ids":{"openalex":"https://openalex.org/W3036637760","doi":"https://doi.org/10.3233/shti200333","mag":"3036637760","pmid":"https://pubmed.ncbi.nlm.nih.gov/32570552"},"language":"en","primary_location":{"id":"doi:10.3233/shti200333","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti200333","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.3233/shti200333","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5024685232","display_name":"Gary Leeming","orcid":"https://orcid.org/0000-0002-5554-5302"},"institutions":[{"id":"https://openalex.org/I2799725268","display_name":"Manchester Academic Health Science Centre","ror":"https://ror.org/04rrkhs81","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2799725268"]},{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Leeming Gary","raw_affiliation_strings":["Centre for Health Informatics, Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom"],"affiliations":[{"raw_affiliation_string":"Centre for Health Informatics, Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom","institution_ids":["https://openalex.org/I2799725268","https://openalex.org/I28407311"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Thew Sarah","orcid":null},"institutions":[{"id":"https://openalex.org/I2799725268","display_name":"Manchester Academic Health Science Centre","ror":"https://ror.org/04rrkhs81","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2799725268"]},{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]},{"id":"https://openalex.org/I4210122276","display_name":"Suntory (Japan)","ror":"https://ror.org/02jg1fa85","country_code":"JP","type":"company","lineage":["https://openalex.org/I4210122276"]}],"countries":["GB","JP"],"is_corresponding":false,"raw_author_name":"Thew Sarah","raw_affiliation_strings":["Centre for Health Informatics, Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom","Storybook UX Ltd"],"affiliations":[{"raw_affiliation_string":"Centre for Health Informatics, Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom","institution_ids":["https://openalex.org/I2799725268","https://openalex.org/I28407311"]},{"raw_affiliation_string":"Storybook UX Ltd","institution_ids":["https://openalex.org/I4210122276"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5071641219","display_name":"John Ainsworth","orcid":"https://orcid.org/0000-0002-2187-9195"},"institutions":[{"id":"https://openalex.org/I2799725268","display_name":"Manchester Academic Health Science Centre","ror":"https://ror.org/04rrkhs81","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2799725268"]},{"id":"https://openalex.org/I28407311","display_name":"University of Manchester","ror":"https://ror.org/027m9bs27","country_code":"GB","type":"education","lineage":["https://openalex.org/I28407311"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Ainsworth John","raw_affiliation_strings":["Centre for Health Informatics, Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom"],"affiliations":[{"raw_affiliation_string":"Centre for Health Informatics, Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom","institution_ids":["https://openalex.org/I2799725268","https://openalex.org/I28407311"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5024685232"],"corresponding_institution_ids":["https://openalex.org/I2799725268","https://openalex.org/I28407311"],"apc_list":null,"apc_paid":null,"fwci":1.6092,"has_fulltext":false,"cited_by_count":4,"citation_normalized_percentile":{"value":0.8477626,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":97},"biblio":{"volume":"270","issue":null,"first_page":"1103","last_page":"1107"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9696000218391418,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9696000218391418,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14201","display_name":"Data Analysis and Archiving","score":0.911300003528595,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/informed-consent","display_name":"Informed consent","score":0.7136428952217102},{"id":"https://openalex.org/keywords/cohort","display_name":"Cohort","score":0.5690864324569702},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.44502848386764526},{"id":"https://openalex.org/keywords/cohort-study","display_name":"Cohort study","score":0.4366809129714966},{"id":"https://openalex.org/keywords/electronic-medical-record","display_name":"Electronic medical record","score":0.41681936383247375},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.4074545204639435},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.38727521896362305},{"id":"https://openalex.org/keywords/alternative-medicine","display_name":"Alternative medicine","score":0.18102869391441345},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.1560949683189392}],"concepts":[{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.7136428952217102},{"id":"https://openalex.org/C72563966","wikidata":"https://www.wikidata.org/wiki/Q1303415","display_name":"Cohort","level":2,"score":0.5690864324569702},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.44502848386764526},{"id":"https://openalex.org/C201903717","wikidata":"https://www.wikidata.org/wiki/Q1778788","display_name":"Cohort study","level":2,"score":0.4366809129714966},{"id":"https://openalex.org/C3018060332","wikidata":"https://www.wikidata.org/wiki/Q10871684","display_name":"Electronic medical record","level":2,"score":0.41681936383247375},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4074545204639435},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.38727521896362305},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.18102869391441345},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.1560949683189392},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004739","descriptor_name":"England","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004739","descriptor_name":"England","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004739","descriptor_name":"England","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011247","descriptor_name":"Pregnancy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011247","descriptor_name":"Pregnancy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011247","descriptor_name":"Pregnancy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015331","descriptor_name":"Cohort Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D015331","descriptor_name":"Cohort Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D015331","descriptor_name":"Cohort Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti200333","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti200333","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:32570552","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/32570552","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":{"id":"doi:10.3233/shti200333","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti200333","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[{"score":0.44999998807907104,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2376604200","https://openalex.org/W87959654","https://openalex.org/W2335258598","https://openalex.org/W1606496894","https://openalex.org/W3081332639","https://openalex.org/W2782606626","https://openalex.org/W2055704044","https://openalex.org/W1986135018","https://openalex.org/W2148718224","https://openalex.org/W2103425699"],"abstract_inverted_index":{"Electronic":[0],"systems":[1],"for":[2,21,78],"managing":[3],"consent":[4,14,53,79,136],"do":[5],"exist":[6],"but":[7],"are":[8],"generally":[9],"only":[10],"able":[11],"to":[12,26,54,108,117,178],"record":[13,32],"from":[15,42,71],"the":[16,47,58,69,90,97,105,111,113,126,131,148,152,155,170],"research":[17,22,161],"subject":[18],"directly.":[19],"Consent":[20],"is":[23,39,144],"also":[24,115],"challenging":[25],"integrate":[27],"into":[28,139,163],"many":[29],"electronic":[30,141],"patient":[31],"systems.":[33,122],"The":[34],"Born":[35],"In":[36],"Bradford":[37,106],"study":[38,45,70,91,112],"a":[40,62,75,93,164],"large,":[41],"birth":[43],"cohort":[44,166],"in":[46,68,110],"North":[48],"of":[49,61,99,129,137,150],"England":[50],"which":[51],"requires":[52],"be":[55,66],"recorded":[56],"by":[57],"pregnant":[59],"mother":[60],"child":[63],"who":[64],"will":[65],"included":[67],"birth.":[72],"This":[73,123],"creates":[74],"complex":[76],"challenge":[77],"management":[80],"that":[81,143],"has":[82],"previously":[83],"been":[84],"achieved":[85],"through":[86],"paper-based":[87],"processes.":[88],"As":[89],"begins":[92],"new":[94,102],"phase":[95],"with":[96,119],"objective":[98],"inviting":[100],"all":[101],"parents":[103],"within":[104],"region":[107],"participate":[109],"solution":[114],"needs":[116],"work":[118],"existing":[120],"maternity":[121],"paper":[124],"considers":[125],"specific":[127],"challenges":[128],"converting":[130],"often":[132],"grey":[133],"rules":[134],"around":[135],"children":[138],"an":[140],"system":[142],"transparent":[145],"and":[146,154,157,168,174],"supports":[147],"trust":[149],"both":[151],"family":[153],"clinical":[156],"care":[158],"teams":[159],"recruiting":[160],"subjects":[162],"large":[165],"study,":[167],"describes":[169],"user":[171],"centred":[172],"design":[173],"technical":[175],"approach":[176],"taken":[177],"resolve":[179],"it.":[180]},"counts_by_year":[{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1}],"updated_date":"2026-04-16T08:26:57.006410","created_date":"2025-10-10T00:00:00"}