{"id":"https://openalex.org/W3036844314","doi":"https://doi.org/10.3233/shti200300","title":"Development of a ePRO-Based Palliative Care Intervention for Cancer Patients: A Participatory Design Approach","display_name":"Development of a ePRO-Based Palliative Care Intervention for Cancer Patients: A Participatory Design Approach","publication_year":2020,"publication_date":"2020-01-01","ids":{"openalex":"https://openalex.org/W3036844314","doi":"https://doi.org/10.3233/shti200300","mag":"3036844314","pmid":"https://pubmed.ncbi.nlm.nih.gov/32570520"},"language":"en","primary_location":{"id":"doi:10.3233/shti200300","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti200300","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.3233/shti200300","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5033681686","display_name":"Christina Karamanidou","orcid":"https://orcid.org/0000-0002-2849-3690"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":true,"raw_author_name":"Karamanidou Christina","raw_affiliation_strings":["Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece"],"affiliations":[{"raw_affiliation_string":"Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Maramis Christos","orcid":null},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Maramis Christos","raw_affiliation_strings":["Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece"],"affiliations":[{"raw_affiliation_string":"Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5044130307","display_name":"\u039a\u03ce\u03c3\u03c4\u03b1\u03c2 \u03a3\u03c4\u03b1\u03bc\u03b1\u03c4\u03cc\u03c0\u03bf\u03c5\u03bb\u03bf\u03c2","orcid":"https://orcid.org/0000-0001-8529-640X"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Stamatopoulos Kostas","raw_affiliation_strings":["Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece"],"affiliations":[{"raw_affiliation_string":"Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5079365908","display_name":"Vassilis Koutkias","orcid":"https://orcid.org/0000-0003-4154-850X"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Koutkias Vassilis","raw_affiliation_strings":["Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece"],"affiliations":[{"raw_affiliation_string":"Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thermi, Thessaloniki, Greece","institution_ids":["https://openalex.org/I4210134249"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5033681686"],"corresponding_institution_ids":["https://openalex.org/I4210134249"],"apc_list":null,"apc_paid":null,"fwci":3.6891,"has_fulltext":false,"cited_by_count":9,"citation_normalized_percentile":{"value":0.93274413,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":97},"biblio":{"volume":"270","issue":null,"first_page":"941","last_page":"945"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.9416999816894531,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.9416999816894531,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.9004999995231628,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/participatory-design","display_name":"Participatory design","score":0.7276811003684998},{"id":"https://openalex.org/keywords/ehealth","display_name":"eHealth","score":0.7068631052970886},{"id":"https://openalex.org/keywords/focus-group","display_name":"Focus group","score":0.5858385562896729},{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.5853050947189331},{"id":"https://openalex.org/keywords/palliative-care","display_name":"Palliative care","score":0.5617236495018005},{"id":"https://openalex.org/keywords/qualitative-research","display_name":"Qualitative research","score":0.48119455575942993},{"id":"https://openalex.org/keywords/participatory-action-research","display_name":"Participatory action research","score":0.4763065576553345},{"id":"https://openalex.org/keywords/intervention","display_name":"Intervention (counseling)","score":0.47278356552124023},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.466799795627594},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.4606142044067383},{"id":"https://openalex.org/keywords/citizen-journalism","display_name":"Citizen journalism","score":0.44825172424316406},{"id":"https://openalex.org/keywords/qualitative-property","display_name":"Qualitative property","score":0.4165857136249542},{"id":"https://openalex.org/keywords/research-design","display_name":"Research design","score":0.4106752872467041},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.40867263078689575},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.3738318681716919},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.2104676067829132},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.13100329041481018},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.11857035756111145},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.11799466609954834},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.11322164535522461},{"id":"https://openalex.org/keywords/operations-management","display_name":"Operations management","score":0.1050494909286499},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.09423965215682983}],"concepts":[{"id":"https://openalex.org/C2777455480","wikidata":"https://www.wikidata.org/wiki/Q1038171","display_name":"Participatory design","level":3,"score":0.7276811003684998},{"id":"https://openalex.org/C202645933","wikidata":"https://www.wikidata.org/wiki/Q4930","display_name":"eHealth","level":3,"score":0.7068631052970886},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.5858385562896729},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.5853050947189331},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.5617236495018005},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.48119455575942993},{"id":"https://openalex.org/C140988679","wikidata":"https://www.wikidata.org/wiki/Q7140444","display_name":"Participatory action research","level":2,"score":0.4763065576553345},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.47278356552124023},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.466799795627594},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4606142044067383},{"id":"https://openalex.org/C203663800","wikidata":"https://www.wikidata.org/wiki/Q848979","display_name":"Citizen journalism","level":2,"score":0.44825172424316406},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.4165857136249542},{"id":"https://openalex.org/C2779318504","wikidata":"https://www.wikidata.org/wiki/Q1438035","display_name":"Research design","level":2,"score":0.4106752872467041},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.40867263078689575},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3738318681716919},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.2104676067829132},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.13100329041481018},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.11857035756111145},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.11799466609954834},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.11322164535522461},{"id":"https://openalex.org/C21547014","wikidata":"https://www.wikidata.org/wiki/Q1423657","display_name":"Operations management","level":1,"score":0.1050494909286499},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.09423965215682983},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C2775922551","wikidata":"https://www.wikidata.org/wiki/Q7135033","display_name":"Parallels","level":2,"score":0.0},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006115","descriptor_name":"Greece","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006115","descriptor_name":"Greece","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006115","descriptor_name":"Greece","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017216","descriptor_name":"Telemedicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017216","descriptor_name":"Telemedicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017216","descriptor_name":"Telemedicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti200300","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti200300","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:32570520","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/32570520","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":{"id":"doi:10.3233/shti200300","is_oa":true,"landing_page_url":"https://doi.org/10.3233/shti200300","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[{"score":0.6100000143051147,"display_name":"Peace, Justice and strong institutions","id":"https://metadata.un.org/sdg/16"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4308190148","https://openalex.org/W2196310376","https://openalex.org/W4281488710","https://openalex.org/W4310458807","https://openalex.org/W754949616","https://openalex.org/W2089391498","https://openalex.org/W2562861752","https://openalex.org/W4320806424","https://openalex.org/W4311657436","https://openalex.org/W4311478311"],"abstract_inverted_index":{"This":[0],"paper":[1],"describes":[2],"a":[3,12,170],"qualitative":[4],"study":[5,30],"conducted":[6,82],"in":[7,60,91,163],"the":[8,29,38,51,67,84,111,133,141,165],"context":[9],"of":[10,28,37,53,69,115,136,143,168],"developing":[11],"novel":[13,70],"ePRO":[14],"(electronic":[15],"Patient":[16],"Reported":[17],"Outcome)":[18],"based":[19],"palliative":[20],"care":[21],"intervention":[22],"for":[23,43,86,150],"cancer":[24],"patients.":[25],"The":[26,154],"aim":[27],"was":[31,48],"to":[32],"elicit":[33],"end-users'":[34],"needs,":[35],"judgements":[36],"MyPal":[39,105],"system":[40],"and":[41,88,97,117,125,146,177],"recommendations":[42],"improvement.":[44],"A":[45],"participatory":[46,155],"design":[47,63,156],"chosen":[49],"as":[50,64,66,121,123],"value":[52],"this":[54],"approach":[55,157],"has":[56,159],"been":[57,160],"well":[58,65,122],"established":[59],"eHealth":[61],"systems'":[62],"development":[68],"healthcare":[71,112],"services.":[72],"Focus":[73],"groups":[74],"with":[75,110],"Chronic":[76],"Lymphocytic":[77],"Leukemia":[78],"(CLL)":[79],"patients":[80,103],"were":[81],"at":[83],"Centre":[85],"Research":[87],"Technology":[89],"(CERTH)":[90],"Greece":[92],"using":[93],"specially":[94],"designed":[95],"vignettes":[96],"discussion":[98],"guides.":[99],"Findings":[100],"revealed":[101],"that":[102],"saw":[104],"offering":[106],"increased,":[107],"direct":[108],"contact":[109],"team,":[113],"freedom":[114],"physical":[116],"psychological":[118],"symptom":[119],"reporting":[120],"valid":[124],"reliable":[126],"information.":[127,153],"However,":[128],"they":[129],"had":[130],"concerns":[131],"about":[132],"appropriate":[134],"use":[135],"data":[137,144,147],"collected":[138],"by":[139],"MyPal,":[140],"efficiency":[142],"analysis":[145],"security":[148],"adopted":[149],"sensitive":[151],"personal":[152],"used":[158],"very":[161],"useful":[162],"encouraging":[164],"genuine":[166],"involvement":[167],"participants,":[169],"factor":[171],"which":[172],"over":[173],"time":[174],"can":[175],"empower":[176],"promote":[178],"participants'":[179],"long-term":[180],"engagement.":[181]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":1},{"year":2020,"cited_by_count":1}],"updated_date":"2026-03-25T23:56:10.502304","created_date":"2025-10-10T00:00:00"}
