{"id":"https://openalex.org/W2984997662","doi":"https://doi.org/10.3233/shti190099","title":"Fundamentals of Implementing a National Clinical Registries Program","display_name":"Fundamentals of Implementing a National Clinical Registries Program","publication_year":2019,"publication_date":"2019-01-01","ids":{"openalex":"https://openalex.org/W2984997662","doi":"https://doi.org/10.3233/shti190099","mag":"2984997662","pmid":"https://pubmed.ncbi.nlm.nih.gov/31349248"},"language":"en","primary_location":{"id":"doi:10.3233/shti190099","is_oa":false,"landing_page_url":"https://doi.org/10.3233/shti190099","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Baig Mansoor Ali","orcid":null},"institutions":[{"id":"https://openalex.org/I2800965796","display_name":"King Faisal Specialist Hospital & Research Centre","ror":"https://ror.org/05n0wgt02","country_code":"SA","type":"healthcare","lineage":["https://openalex.org/I2800965796"]}],"countries":["SA"],"is_corresponding":true,"raw_author_name":"Baig Mansoor Ali","raw_affiliation_strings":["Department of Biostatistics Epidemiology & Scientific Computing, KFSHRC, KSA","King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia"],"affiliations":[{"raw_affiliation_string":"Department of Biostatistics Epidemiology & Scientific Computing, KFSHRC, KSA","institution_ids":[]},{"raw_affiliation_string":"King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia","institution_ids":["https://openalex.org/I2800965796"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029998184","display_name":"Somayah J Alzahrani","orcid":null},"institutions":[{"id":"https://openalex.org/I2800965796","display_name":"King Faisal Specialist Hospital & Research Centre","ror":"https://ror.org/05n0wgt02","country_code":"SA","type":"healthcare","lineage":["https://openalex.org/I2800965796"]}],"countries":["SA"],"is_corresponding":false,"raw_author_name":"Alzahrani Somayah J.","raw_affiliation_strings":["Department of Biostatistics Epidemiology & Scientific Computing, KFSHRC, KSA","King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia"],"affiliations":[{"raw_affiliation_string":"Department of Biostatistics Epidemiology & Scientific Computing, KFSHRC, KSA","institution_ids":[]},{"raw_affiliation_string":"King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia","institution_ids":["https://openalex.org/I2800965796"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063963804","display_name":"Mohamad A Almuhaizea","orcid":null},"institutions":[{"id":"https://openalex.org/I2800965796","display_name":"King Faisal Specialist Hospital & Research Centre","ror":"https://ror.org/05n0wgt02","country_code":"SA","type":"healthcare","lineage":["https://openalex.org/I2800965796"]}],"countries":["SA"],"is_corresponding":false,"raw_author_name":"Almuhaizea Mohamad A.","raw_affiliation_strings":["King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia"],"affiliations":[{"raw_affiliation_string":"King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia","institution_ids":["https://openalex.org/I2800965796"]}]},{"author_position":"last","author":{"id":null,"display_name":"Al-Shagathrh Fahad","orcid":null},"institutions":[{"id":"https://openalex.org/I28513355","display_name":"Saudi Arabian Monetary Authority","ror":"https://ror.org/02a0n8d86","country_code":"SA","type":"government","lineage":["https://openalex.org/I28513355"]}],"countries":["SA"],"is_corresponding":false,"raw_author_name":"Al-Shagathrh Fahad","raw_affiliation_strings":["Saudi Food and Drug Authority, Riyadh, Saudi Arabia"],"affiliations":[{"raw_affiliation_string":"Saudi Food and Drug Authority, Riyadh, Saudi Arabia","institution_ids":["https://openalex.org/I28513355"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I2800965796"],"apc_list":null,"apc_paid":null,"fwci":0.6434,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":{"value":0.77058824,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":94},"biblio":{"volume":"262","issue":null,"first_page":"384","last_page":"387"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13690","display_name":"Quality and Safety in Healthcare","score":0.8755999803543091,"subfield":{"id":"https://openalex.org/subfields/3607","display_name":"Medical Laboratory Technology"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13690","display_name":"Quality and Safety in Healthcare","score":0.8755999803543091,"subfield":{"id":"https://openalex.org/subfields/3607","display_name":"Medical Laboratory Technology"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11396","display_name":"Artificial Intelligence in Healthcare","score":0.8655999898910522,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12386","display_name":"Advanced X-ray and CT Imaging","score":0.8303999900817871,"subfield":{"id":"https://openalex.org/subfields/2204","display_name":"Biomedical Engineering"},"field":{"id":"https://openalex.org/fields/22","display_name":"Engineering"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/implementation","display_name":"Implementation","score":0.6988416910171509},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.6114032864570618},{"id":"https://openalex.org/keywords/process","display_name":"Process (computing)","score":0.549376904964447},{"id":"https://openalex.org/keywords/resource","display_name":"Resource (disambiguation)","score":0.5046695470809937},{"id":"https://openalex.org/keywords/guideline","display_name":"Guideline","score":0.46789729595184326},{"id":"https://openalex.org/keywords/conceptualization","display_name":"Conceptualization","score":0.4602985978126526},{"id":"https://openalex.org/keywords/process-management","display_name":"Process management","score":0.4082919657230377},{"id":"https://openalex.org/keywords/engineering-management","display_name":"Engineering management","score":0.38539591431617737},{"id":"https://openalex.org/keywords/database","display_name":"Database","score":0.3252823054790497},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.2573627829551697},{"id":"https://openalex.org/keywords/software-engineering","display_name":"Software engineering","score":0.16550561785697937},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.16092926263809204},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.15051090717315674}],"concepts":[{"id":"https://openalex.org/C26713055","wikidata":"https://www.wikidata.org/wiki/Q245962","display_name":"Implementation","level":2,"score":0.6988416910171509},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.6114032864570618},{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.549376904964447},{"id":"https://openalex.org/C206345919","wikidata":"https://www.wikidata.org/wiki/Q20380951","display_name":"Resource (disambiguation)","level":2,"score":0.5046695470809937},{"id":"https://openalex.org/C2780182762","wikidata":"https://www.wikidata.org/wiki/Q1630279","display_name":"Guideline","level":2,"score":0.46789729595184326},{"id":"https://openalex.org/C90734943","wikidata":"https://www.wikidata.org/wiki/Q17008777","display_name":"Conceptualization","level":2,"score":0.4602985978126526},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.4082919657230377},{"id":"https://openalex.org/C110354214","wikidata":"https://www.wikidata.org/wiki/Q6314146","display_name":"Engineering management","level":1,"score":0.38539591431617737},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.3252823054790497},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2573627829551697},{"id":"https://openalex.org/C115903868","wikidata":"https://www.wikidata.org/wiki/Q80993","display_name":"Software engineering","level":1,"score":0.16550561785697937},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.16092926263809204},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.15051090717315674},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C31258907","wikidata":"https://www.wikidata.org/wiki/Q1301371","display_name":"Computer network","level":1,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000068598","descriptor_name":"Data Accuracy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000068598","descriptor_name":"Data Accuracy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000068598","descriptor_name":"Data Accuracy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016247","descriptor_name":"Information Storage and Retrieval","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D016247","descriptor_name":"Information Storage and Retrieval","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D016247","descriptor_name":"Information Storage and Retrieval","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.3233/shti190099","is_oa":false,"landing_page_url":"https://doi.org/10.3233/shti190099","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:31349248","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/31349248","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/9","score":0.5299999713897705,"display_name":"Industry, innovation and infrastructure"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2748952813","https://openalex.org/W4362575170","https://openalex.org/W1532772865","https://openalex.org/W2531253623","https://openalex.org/W2984230149","https://openalex.org/W2112095637","https://openalex.org/W2237121679","https://openalex.org/W4390616414","https://openalex.org/W2006867289","https://openalex.org/W3212890177"],"abstract_inverted_index":{"A":[0],"National":[1],"registry":[2,24,75],"program":[3,52],"is":[4,100],"a":[5,50,60,90,110,114,126,135],"resource":[6,26],"intensive":[7],"initiative":[8],"involving":[9],"multiple":[10],"stakeholders,":[11],"multi-institutional/multi-role/multi-users":[12],"collaborative":[13],"effort,":[14],"where":[15],"various":[16],"aspects":[17,58],"starting":[18],"from":[19],"work":[20],"culture,":[21,23],"research":[22],"conceptualization,":[25],"availability,":[27],"data":[28,30,33,38],"format,":[29],"storage/retrieval":[31],"techniques,":[32],"sharing":[34],"protocols,":[35],"data/dataset":[36],"standards,":[37],"quality":[39],"etc.":[40],"vary":[41],"drastically":[42],"between":[43],"different":[44],"institutions.":[45],"The":[46,121],"biggest":[47],"challenge":[48],"for":[49,66,117,129,147],"national":[51,119],"will":[53],"be":[54],"to":[55,63,87,102,112,156],"map":[56],"these":[57],"under":[59,134],"common":[61],"umbrella":[62],"establish":[64],"standards":[65],"operations/execution,":[67],"policies":[68,144],"and":[69,141,145,164,167],"procedures,":[70],"which":[71],"means":[72],"aligning":[73],"the":[74,78,143],"operations":[76],"with":[77,95,139],"operative":[79],"process":[80],"of":[81],"each":[82],"institution":[83],"at":[84],"first,":[85],"due":[86],"this":[88],"only":[89],"handful":[91],"initiatives":[92],"are":[93],"implemented":[94],"limited":[96],"success,":[97],"hence":[98],"it":[99],"advisable":[101],"study":[103],"such":[104],"implementations":[105],"in":[106,154],"great":[107],"details":[108],"as":[109],"guideline":[111],"build":[113],"solid":[115,127],"foundation":[116],"future":[118],"initiatives[1][2].":[120],"idea":[122],"goes":[123],"around":[124],"building":[125],"database":[128],"holding":[130],"all":[131],"clinical":[132],"registries":[133],"single":[136],"repository,":[137],"along":[138],"streamlining":[140],"generalizing":[142],"procedures":[146],"any":[148],"disease":[149],"or":[150],"medical":[151],"device":[152],"registry,":[153],"order":[155],"save":[157],"infrastructure":[158],"spending,":[159],"streamlining,":[160],"saving":[161],"on":[162],"management":[163],"operational":[165],"costs":[166],"overheads.":[168]},"counts_by_year":[{"year":2022,"cited_by_count":1}],"updated_date":"2026-04-16T08:26:57.006410","created_date":"2025-10-10T00:00:00"}