{"id":"https://openalex.org/W2941006276","doi":"https://doi.org/10.3233/978-1-61499-959-1-1","title":"Raising the Impact of Real World Evidence","display_name":"Raising the Impact of Real World Evidence","publication_year":2019,"publication_date":"2019-01-01","ids":{"openalex":"https://openalex.org/W2941006276","doi":"https://doi.org/10.3233/978-1-61499-959-1-1","mag":"2941006276","pmid":"https://pubmed.ncbi.nlm.nih.gov/30942700"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-61499-959-1-1","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-959-1-1","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5115599352","display_name":"Dipak Kalra","orcid":"https://orcid.org/0000-0002-2998-9882"},"institutions":[{"id":"https://openalex.org/I4210143902","display_name":"Farr Institute","ror":"https://ror.org/0585r9546","country_code":"GB","type":"education","lineage":["https://openalex.org/I4210143902"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Kalra Dipak","raw_affiliation_strings":["Institute of Health Informatics, Centre for Health Informatics and Multiprofessional Education (CHIME) at University College, London, Great Britain"],"affiliations":[{"raw_affiliation_string":"Institute of Health Informatics, Centre for Health Informatics and Multiprofessional Education (CHIME) at University College, London, Great Britain","institution_ids":["https://openalex.org/I4210143902"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5115599352"],"corresponding_institution_ids":["https://openalex.org/I4210143902"],"apc_list":null,"apc_paid":null,"fwci":3.2275,"has_fulltext":false,"cited_by_count":5,"citation_normalized_percentile":{"value":0.92257788,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":96},"biblio":{"volume":"258","issue":null,"first_page":"1","last_page":"1"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.8889999985694885,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.8889999985694885,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.7588000297546387,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.7498999834060669,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/benchmarking","display_name":"Benchmarking","score":0.7075434327125549},{"id":"https://openalex.org/keywords/data-governance","display_name":"Data governance","score":0.5982385873794556},{"id":"https://openalex.org/keywords/big-data","display_name":"Big data","score":0.5756490230560303},{"id":"https://openalex.org/keywords/data-quality","display_name":"Data quality","score":0.52504563331604},{"id":"https://openalex.org/keywords/quality","display_name":"Quality (philosophy)","score":0.5186275839805603},{"id":"https://openalex.org/keywords/health-informatics","display_name":"Health informatics","score":0.48453444242477417},{"id":"https://openalex.org/keywords/corporate-governance","display_name":"Corporate governance","score":0.4546433687210083},{"id":"https://openalex.org/keywords/scale","display_name":"Scale (ratio)","score":0.4473938047885895},{"id":"https://openalex.org/keywords/reputation","display_name":"Reputation","score":0.4311451315879822},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.417961984872818},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.4137198030948639},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.3929934501647949},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.38846781849861145},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.35270652174949646},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.18093904852867126},{"id":"https://openalex.org/keywords/marketing","display_name":"Marketing","score":0.17902764678001404},{"id":"https://openalex.org/keywords/data-mining","display_name":"Data mining","score":0.13361600041389465}],"concepts":[{"id":"https://openalex.org/C86251818","wikidata":"https://www.wikidata.org/wiki/Q816754","display_name":"Benchmarking","level":2,"score":0.7075434327125549},{"id":"https://openalex.org/C196879817","wikidata":"https://www.wikidata.org/wiki/Q872685","display_name":"Data governance","level":4,"score":0.5982385873794556},{"id":"https://openalex.org/C75684735","wikidata":"https://www.wikidata.org/wiki/Q858810","display_name":"Big data","level":2,"score":0.5756490230560303},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.52504563331604},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.5186275839805603},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.48453444242477417},{"id":"https://openalex.org/C39389867","wikidata":"https://www.wikidata.org/wiki/Q380767","display_name":"Corporate governance","level":2,"score":0.4546433687210083},{"id":"https://openalex.org/C2778755073","wikidata":"https://www.wikidata.org/wiki/Q10858537","display_name":"Scale (ratio)","level":2,"score":0.4473938047885895},{"id":"https://openalex.org/C48798503","wikidata":"https://www.wikidata.org/wiki/Q877546","display_name":"Reputation","level":2,"score":0.4311451315879822},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.417961984872818},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.4137198030948639},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.3929934501647949},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.38846781849861145},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.35270652174949646},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.18093904852867126},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.17902764678001404},{"id":"https://openalex.org/C124101348","wikidata":"https://www.wikidata.org/wiki/Q172491","display_name":"Data mining","level":1,"score":0.13361600041389465},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013673","descriptor_name":"Technology Assessment, Biomedical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D013673","descriptor_name":"Technology Assessment, Biomedical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D013673","descriptor_name":"Technology Assessment, Biomedical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019317","descriptor_name":"Evidence-Based Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019317","descriptor_name":"Evidence-Based Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019317","descriptor_name":"Evidence-Based Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D019985","descriptor_name":"Benchmarking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D019985","descriptor_name":"Benchmarking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D019985","descriptor_name":"Benchmarking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3233/978-1-61499-959-1-1","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-959-1-1","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:30942700","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/30942700","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.5899999737739563,"id":"https://metadata.un.org/sdg/16","display_name":"Peace, Justice and strong institutions"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4389473037","https://openalex.org/W2899425562","https://openalex.org/W4386462015","https://openalex.org/W3015446482","https://openalex.org/W4388729223","https://openalex.org/W4401225495","https://openalex.org/W4399496272","https://openalex.org/W4393006833","https://openalex.org/W1580000338","https://openalex.org/W1597628794"],"abstract_inverted_index":{"In":[0],"an":[1],"environment":[2],"in":[3,83,119],"which":[4,84],"most":[5],"regulatory":[6],"and":[7,45,60,75,88,100,108,130,154],"authoritative":[8],"health":[9,28,58,79,124,172],"strategy":[10],"decisions":[11],"are":[12,92,102,140],"made":[13],"on":[14],"the":[15,49,72,81,109,115,155],"basis":[16],"of":[17,52,55,77,111,117],"randomised":[18],"control":[19],"trials,":[20],"real-world":[21],"evidence":[22,36,106],"(RWE),":[23],"primarily":[24],"derived":[25,47],"from":[26,48],"electronic":[27],"records,":[29],"remains":[30],"a":[31],"second-class":[32],"citizen.":[33],"Real":[34],"world":[35,147],"is":[37],"widely":[38],"taken":[39],"to":[40,143,159,167],"include":[41],"Pragmatic":[42],"clinical":[43],"trials":[44],"insights":[46],"distributed":[50],"analysis":[51],"large":[53],"volumes":[54],"routinely":[56],"collected":[57],"data":[59,62,91,95],"registry":[61],"(so":[63],"called":[64],"big":[65,78],"data).":[66],"This":[67,134],"presentation":[68],"will":[69,136,165],"look":[70],"at":[71,96],"growing":[73],"scale":[74],"reputation":[76],"data,":[80],"ways":[82],"good":[85],"governance":[86],"principles":[87],"better":[89,104],"quality":[90,105],"creating":[93],"reusable":[94],"scale,":[97],"how":[98,138],"platforms":[99],"tools":[101],"enabling":[103],"generation,":[107],"perspectives":[110],"different":[112],"stakeholders":[113],"towards":[114],"positioning":[116],"RWE":[118],"decision":[120],"making:":[121],"by":[122,152,170],"regulators,":[123],"technology":[125],"assessment":[126],"agencies,":[127],"outcomes":[128],"benchmarking":[129],"value":[131],"based":[132],"care.":[133],"talk":[135],"review":[137],"we":[139,150],"presently":[141],"able":[142],"generate":[144],"trustworthy":[145],"real":[146],"evidence,":[148],"what":[149],"mean":[151],"that,":[153],"barriers":[156,164],"that":[157],"remain":[158],"trusting":[160],"it.":[161],"These":[162],"remaining":[163],"need":[166],"be":[168],"tackled":[169],"future":[171],"informatics":[173],"research.":[174]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":2}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}