{"id":"https://openalex.org/W2798492438","doi":"https://doi.org/10.3233/978-1-61499-852-5-36","title":"Collecting Patient Reported Outcomes in the Wild: Opportunities and Challenges","display_name":"Collecting Patient Reported Outcomes in the Wild: Opportunities and Challenges","publication_year":2018,"publication_date":"2018-01-01","ids":{"openalex":"https://openalex.org/W2798492438","doi":"https://doi.org/10.3233/978-1-61499-852-5-36","mag":"2798492438","pmid":"https://pubmed.ncbi.nlm.nih.gov/29677918"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-61499-852-5-36","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-852-5-36","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5023849668","display_name":"Federico Cabitza","orcid":"https://orcid.org/0000-0002-4065-3415"},"institutions":[{"id":"https://openalex.org/I4210113215","display_name":"Istituto Ortopedico Galeazzi","ror":"https://ror.org/01vyrje42","country_code":"IT","type":"healthcare","lineage":["https://openalex.org/I4210113215","https://openalex.org/I4210153126"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Cabitza Federico","raw_affiliation_strings":["IRCCS IO Galeazzi, Milan, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"IRCCS IO Galeazzi, Milan, Italy","institution_ids":["https://openalex.org/I4210113215"]}]},{"author_position":"last","author":{"id":null,"display_name":"Dui Linda Greta","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dui Linda Greta","raw_affiliation_strings":["Datareg, Cinisello Balsamo, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Datareg, Cinisello Balsamo, Italy","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.4308,"has_fulltext":false,"cited_by_count":4,"citation_normalized_percentile":{"value":0.85618288,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":96},"biblio":{"volume":"247","issue":null,"first_page":"36","last_page":"40"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11590","display_name":"Primary Care and Health Outcomes","score":0.8708999752998352,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11590","display_name":"Primary Care and Health Outcomes","score":0.8708999752998352,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11990","display_name":"Global Health Workforce Issues","score":0.7821000218391418,"subfield":{"id":"https://openalex.org/subfields/3604","display_name":"Emergency Medical Services"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.36579668521881104},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.36327072978019714},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.33764469623565674},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.3272203207015991}],"concepts":[{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.36579668521881104},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.36327072978019714},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.33764469623565674},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.3272203207015991}],"mesh":[{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015203","descriptor_name":"Reproducibility of Results","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015203","descriptor_name":"Reproducibility of Results","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015203","descriptor_name":"Reproducibility of Results","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.3233/978-1-61499-852-5-36","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-852-5-36","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:29677918","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/29677918","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W3108674512","https://openalex.org/W1506200166"],"abstract_inverted_index":{"Collecting":[0],"Patient":[1],"Reported":[2],"Outcomes":[3],"(PROs)":[4],"is":[5,91],"generally":[6],"seen":[7],"as":[8,93],"an":[9],"effective":[10],"way":[11],"to":[12,69],"assess":[13],"the":[14,22,27,50,53,57,63,70,74,78,101,124],"efficacy":[15],"and":[16,41,76,86,110,114,129],"appropriateness":[17],"of":[18,35,56,65,126],"medical":[19],"interventions,":[20],"from":[21,38,52],"patients'":[23],"perspective.":[24],"In":[25,45],"2016":[26],"Galeazzi":[28],"Orthopaedic":[29],"Institute":[30],"established":[31],"a":[32,107],"digitized":[33],"program":[34],"PROs":[36,66,89],"collection":[37,90],"spine,":[39],"hip":[40],"knee":[42],"surgery":[43],"patients.":[44],"this":[46],"work,":[47],"we":[48,118],"re-port":[49],"findings":[51],"data":[54,71],"analysis":[55],"responses":[58],"collected":[59],"so":[60],"far":[61,95],"about":[62,77],"complementarity":[64],"with":[67],"respect":[68],"reported":[72],"by":[73],"clinicians,":[75],"main":[79],"biases":[80],"that":[81],"can":[82],"undermine":[83],"their":[84,120],"validity":[85],"reliability.":[87],"Although":[88],"recognized":[92],"being":[94],"more":[96],"complex":[97],"than":[98],"just":[99],"asking":[100],"patients":[102],"\"how":[103],"they":[104],"feel\"":[105],"on":[106],"regular":[108],"basis":[109],"it":[111],"entails":[112],"costs":[113],"devoted":[115],"electronic":[116],"platforms,":[117],"advocate":[119],"further":[121],"diffusion":[122],"for":[123],"assessment":[125],"health":[127],"technology":[128],"clinical":[130],"procedures.":[131]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":1}],"updated_date":"2026-06-11T09:08:48.828518","created_date":"2025-10-10T00:00:00"}