{"id":"https://openalex.org/W4407840175","doi":"https://doi.org/10.3233/978-1-61499-852-5-341","title":"Understanding Study Participants Views on Co-Creation of Data and Use of EHR in Clinical Studies","display_name":"Understanding Study Participants Views on Co-Creation of Data and Use of EHR in Clinical Studies","publication_year":2018,"publication_date":"2018-01-01","ids":{"openalex":"https://openalex.org/W4407840175","doi":"https://doi.org/10.3233/978-1-61499-852-5-341"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-61499-852-5-341","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-852-5-341","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-364799","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5116379348","display_name":"Scott Duncan Therese","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Scott Duncan Therese","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5049758055","display_name":"H. Heartlin Maria","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Hägglund Maria","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.4308,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":{"value":0.93167117,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":94},"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11744","display_name":"Health Sciences Research and Education","score":0.7645000219345093,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11744","display_name":"Health Sciences Research and Education","score":0.7645000219345093,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.6796000003814697,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4443008005619049},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.4116383194923401},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.32163622975349426}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4443008005619049},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.4116383194923401},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.32163622975349426}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.3233/978-1-61499-852-5-341","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-852-5-341","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmh:oai:DiVA.org:uu-364799","is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-364799","pdf_url":null,"source":{"id":"https://openalex.org/S4306401559","display_name":"KTH Publication Database DiVA (KTH Royal Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Conference paper"}],"best_oa_location":{"id":"pmh:oai:DiVA.org:uu-364799","is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-364799","pdf_url":null,"source":{"id":"https://openalex.org/S4306401559","display_name":"KTH Publication Database DiVA (KTH Royal Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Conference paper"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W2390279801","https://openalex.org/W4391913857","https://openalex.org/W2358668433","https://openalex.org/W4396701345","https://openalex.org/W2376932109","https://openalex.org/W2001405890","https://openalex.org/W4396696052"],"abstract_inverted_index":{"In":[0],"order":[1],"to":[2,12,28,60,63,71],"increase":[3],"clinical":[4,31,44,85],"trial":[5],"participation,":[6],"the":[7,39,50,58,64,69,100,107],"reasons":[8],"for":[9,57,68],"participating":[10,103],"need":[11],"be":[13,91],"observed.":[14],"Since":[15],"there":[16],"is":[17,55],"rather":[18],"inadequate":[19],"information":[20],"concerning":[21],"how":[22],"individuals":[23],"such":[24],"as":[25],"patients,":[26],"decides":[27],"participate":[29],"in":[30,43,84],"trials":[32,45,86],"semi-structured":[33],"interviews":[34],"have":[35,61],"been":[36],"done.":[37],"Examining":[38],"use":[40,108],"of":[41,48,77,81,102,109,114],"EHR":[42,66],"and":[46,67,93,112],"co-creation":[47],"data,":[49,115],"result":[51],"showed":[52],"that":[53,88,99],"it":[54,89],"important":[56],"researches":[59],"access":[62],"patients'":[65],"patients":[70,96],"contribute":[72],"with":[73,106],"their":[74],"own":[75],"ideas":[76],"research.":[78],"Important":[79],"aspects":[80],"further":[82],"participation":[83],"were":[87],"should":[90],"fun":[92],"informative.":[94],"The":[95],"agreed":[97],"on":[98],"effort":[101],"could":[104],"decrease":[105],"electronically":[110],"collection":[111],"self-reporting":[113],"e.g.":[116],"through":[117],"a":[118],"patient":[119],"portal.":[120]},"counts_by_year":[{"year":2020,"cited_by_count":1}],"updated_date":"2026-06-11T09:08:48.828518","created_date":"2025-10-10T00:00:00"}