{"id":"https://openalex.org/W2798486893","doi":"https://doi.org/10.3233/978-1-61499-852-5-226","title":"Establishing a Nation Wide Infrastructure for Systematic Use of Patient Reported Information","display_name":"Establishing a Nation Wide Infrastructure for Systematic Use of Patient Reported Information","publication_year":2018,"publication_date":"2018-01-01","ids":{"openalex":"https://openalex.org/W2798486893","doi":"https://doi.org/10.3233/978-1-61499-852-5-226","mag":"2798486893","pmid":"https://pubmed.ncbi.nlm.nih.gov/29677956"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-61499-852-5-226","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-852-5-226","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Jensen Sanne","orcid":null},"institutions":[{"id":"https://openalex.org/I4210096320","display_name":"Danish Business Authority","ror":"https://ror.org/00n92fc55","country_code":"DK","type":"other","lineage":["https://openalex.org/I4210096320"]}],"countries":["DK"],"is_corresponding":true,"raw_author_name":"Jensen Sanne","raw_affiliation_strings":["National Health Data Authority, Denmark"],"affiliations":[{"raw_affiliation_string":"National Health Data Authority, Denmark","institution_ids":["https://openalex.org/I4210096320"]}]},{"author_position":"last","author":{"id":null,"display_name":"Lyng Karen Marie","orcid":null},"institutions":[{"id":"https://openalex.org/I4210096320","display_name":"Danish Business Authority","ror":"https://ror.org/00n92fc55","country_code":"DK","type":"other","lineage":["https://openalex.org/I4210096320"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Lyng Karen Marie","raw_affiliation_strings":["National Health Data Authority, Denmark"],"affiliations":[{"raw_affiliation_string":"National Health Data Authority, Denmark","institution_ids":["https://openalex.org/I4210096320"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I4210096320"],"apc_list":null,"apc_paid":null,"fwci":1.457,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.78744029,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":94},"biblio":{"volume":"247","issue":null,"first_page":"226","last_page":"230"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12918","display_name":"Healthcare Systems and Technology","score":0.8747000098228455,"subfield":{"id":"https://openalex.org/subfields/1407","display_name":"Organizational Behavior and Human Resource Management"},"field":{"id":"https://openalex.org/fields/14","display_name":"Business, Management and Accounting"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12918","display_name":"Healthcare Systems and Technology","score":0.8747000098228455,"subfield":{"id":"https://openalex.org/subfields/1407","display_name":"Organizational Behavior and Human Resource Management"},"field":{"id":"https://openalex.org/fields/14","display_name":"Business, Management and Accounting"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.8240000009536743,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12443","display_name":"Delphi Technique in Research","score":0.7639999985694885,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/workflow","display_name":"Workflow","score":0.6760996580123901},{"id":"https://openalex.org/keywords/stakeholder","display_name":"Stakeholder","score":0.6172188520431519},{"id":"https://openalex.org/keywords/process","display_name":"Process (computing)","score":0.5390109419822693},{"id":"https://openalex.org/keywords/citizen-journalism","display_name":"Citizen journalism","score":0.5295549035072327},{"id":"https://openalex.org/keywords/information-infrastructure","display_name":"Information infrastructure","score":0.5289998650550842},{"id":"https://openalex.org/keywords/process-management","display_name":"Process management","score":0.5168531537055969},{"id":"https://openalex.org/keywords/scale","display_name":"Scale (ratio)","score":0.5112631320953369},{"id":"https://openalex.org/keywords/phase","display_name":"Phase (matter)","score":0.46201908588409424},{"id":"https://openalex.org/keywords/set","display_name":"Set (abstract data type)","score":0.45492783188819885},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4502876400947571},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.4392934739589691},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.3951478600502014},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.3732183575630188},{"id":"https://openalex.org/keywords/information-system","display_name":"Information system","score":0.24752533435821533},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.20553112030029297},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.19584089517593384},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.1425265073776245},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.14221903681755066},{"id":"https://openalex.org/keywords/geography","display_name":"Geography","score":0.08938190340995789}],"concepts":[{"id":"https://openalex.org/C177212765","wikidata":"https://www.wikidata.org/wiki/Q627335","display_name":"Workflow","level":2,"score":0.6760996580123901},{"id":"https://openalex.org/C201305675","wikidata":"https://www.wikidata.org/wiki/Q852998","display_name":"Stakeholder","level":2,"score":0.6172188520431519},{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.5390109419822693},{"id":"https://openalex.org/C203663800","wikidata":"https://www.wikidata.org/wiki/Q848979","display_name":"Citizen journalism","level":2,"score":0.5295549035072327},{"id":"https://openalex.org/C31652620","wikidata":"https://www.wikidata.org/wiki/Q1047251","display_name":"Information infrastructure","level":3,"score":0.5289998650550842},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.5168531537055969},{"id":"https://openalex.org/C2778755073","wikidata":"https://www.wikidata.org/wiki/Q10858537","display_name":"Scale (ratio)","level":2,"score":0.5112631320953369},{"id":"https://openalex.org/C44280652","wikidata":"https://www.wikidata.org/wiki/Q104837","display_name":"Phase (matter)","level":2,"score":0.46201908588409424},{"id":"https://openalex.org/C177264268","wikidata":"https://www.wikidata.org/wiki/Q1514741","display_name":"Set (abstract data type)","level":2,"score":0.45492783188819885},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4502876400947571},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.4392934739589691},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.3951478600502014},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3732183575630188},{"id":"https://openalex.org/C180198813","wikidata":"https://www.wikidata.org/wiki/Q121182","display_name":"Information system","level":2,"score":0.24752533435821533},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.20553112030029297},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.19584089517593384},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.1425265073776245},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.14221903681755066},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.08938190340995789},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.0},{"id":"https://openalex.org/C178790620","wikidata":"https://www.wikidata.org/wiki/Q11351","display_name":"Organic chemistry","level":1,"score":0.0},{"id":"https://openalex.org/C185592680","wikidata":"https://www.wikidata.org/wiki/Q2329","display_name":"Chemistry","level":0,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C119599485","wikidata":"https://www.wikidata.org/wiki/Q43035","display_name":"Electrical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C58640448","wikidata":"https://www.wikidata.org/wiki/Q42515","display_name":"Cartography","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003718","descriptor_name":"Denmark","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003718","descriptor_name":"Denmark","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003718","descriptor_name":"Denmark","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007256","descriptor_name":"Information Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007256","descriptor_name":"Information Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007256","descriptor_name":"Information Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.3233/978-1-61499-852-5-226","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-852-5-226","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:29677956","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/29677956","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.6200000047683716,"id":"https://metadata.un.org/sdg/9","display_name":"Industry, innovation and infrastructure"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W1981780420","https://openalex.org/W2182707996","https://openalex.org/W45233828","https://openalex.org/W2964988449","https://openalex.org/W2397952901","https://openalex.org/W2029380707","https://openalex.org/W188202134","https://openalex.org/W4255934811","https://openalex.org/W2465382974","https://openalex.org/W2010229520"],"abstract_inverted_index":{"In":[0,75,104],"Denmark,":[1],"we":[2,79,108,128],"have":[3,68,80],"set":[4],"up":[5],"a":[6,10,29,83,89],"program":[7],"to":[8,69,87,130],"establish":[9],"nationwide":[11],"infrastructure":[12,26,113],"for":[13],"Patient":[14],"Reported":[15],"Outcome":[16],"(PRO)":[17],"questionnaires.":[18,134],"The":[19],"effort":[20],"is":[21,50],"divided":[22],"into":[23,72],"an":[24],"IT":[25,57,112],"part":[27],"and":[28,38,56,64,96],"questionnaire":[30],"development":[31,37],"part.":[32],"This":[33],"paper":[34],"describes":[35],"how":[36],"evaluation":[39,118],"are":[40],"closely":[41],"knit":[42],"together":[43],"in":[44,52,114,123],"the":[45,53,65,76,101,105,111,115,120,124],"two":[46],"tracks,":[47],"as":[48],"complexity":[49],"high":[51,90],"PRO":[54],"field":[55],"infrastructure,":[58],"legal":[59],"issues,":[60],"various":[61],"clinical":[62],"workflows":[63],"numerous":[66],"stakeholders":[67],"be":[70],"taken":[71],"account":[73],"concurrently.":[74],"design":[77,85],"process,":[78],"thus":[81],"used":[82],"participatory":[84],"approach":[86],"ensure":[88],"level":[91],"of":[92,98,119],"active":[93],"stakeholder":[94],"involvement":[95],"capability":[97],"addressing":[99],"all":[100],"relevant":[102],"issues.":[103],"next":[106],"phases,":[107],"will":[109],"apply":[110],"planned":[116],"full-scale":[117],"questionnaires":[121],"developed":[122],"first":[125],"phase,":[126],"while":[127],"continue":[129],"develop":[131],"new":[132],"national":[133]},"counts_by_year":[{"year":2023,"cited_by_count":1},{"year":2021,"cited_by_count":1}],"updated_date":"2026-04-16T08:26:57.006410","created_date":"2025-10-10T00:00:00"}
