{"id":"https://openalex.org/W4407802345","doi":"https://doi.org/10.3233/978-1-61499-678-1-242","title":"Clinical Cancer Registries – Are They Up for Health Services Research?","display_name":"Clinical Cancer Registries – Are They Up for Health Services Research?","publication_year":2016,"publication_date":"2016-01-01","ids":{"openalex":"https://openalex.org/W4407802345","doi":"https://doi.org/10.3233/978-1-61499-678-1-242"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-61499-678-1-242","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-678-1-242","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5047983814","display_name":"Pobiruchin Monika","orcid":null},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Pobiruchin Monika","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081353909","display_name":"Bochum Sylvia","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Bochum Sylvia","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5116354663","display_name":"Martens Uwe M.","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Martens Uwe M.","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5058221260","display_name":"Schramm Wendelin","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Schramm Wendelin","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5047983814"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.92389705,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12708","display_name":"Economic and Financial Impacts of Cancer","score":0.9912999868392944,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12708","display_name":"Economic and Financial Impacts of Cancer","score":0.9912999868392944,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9764999747276306,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10556","display_name":"Global Cancer Incidence and Screening","score":0.9656999707221985,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/health-services","display_name":"Health services","score":0.487842321395874},{"id":"https://openalex.org/keywords/cancer","display_name":"Cancer","score":0.4391769468784332},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.41607680916786194},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.2902659773826599},{"id":"https://openalex.org/keywords/environmental-health","display_name":"Environmental health","score":0.262319415807724},{"id":"https://openalex.org/keywords/internal-medicine","display_name":"Internal medicine","score":0.09659698605537415}],"concepts":[{"id":"https://openalex.org/C2986740045","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health services","level":3,"score":0.487842321395874},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.4391769468784332},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.41607680916786194},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2902659773826599},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.262319415807724},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.09659698605537415},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.3233/978-1-61499-678-1-242","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-61499-678-1-242","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2186113122","https://openalex.org/W1523310174","https://openalex.org/W2531913951","https://openalex.org/W4302381976","https://openalex.org/W4243634448","https://openalex.org/W4393095456","https://openalex.org/W4283831541","https://openalex.org/W4298027456","https://openalex.org/W4401643531"],"abstract_inverted_index":{"Clinical":[0],"cancer":[1,37,61,194],"registries":[2,195],"are":[3,153],"a":[4,40,142,164,169],"valuable":[5],"data":[6,22,32,50,56,65,196],"source":[7],"for":[8,23,75,159,200],"health":[9,183],"services":[10],"research":[11],"(HSR).":[12],"HSR":[13,160],"is":[14],"in":[15,39,47,84,146],"need":[16],"of":[17,30,49,77,98,112,122,126,156,168,179,192],"high":[18],"quality":[19],"routine":[20,31,165],"care":[21,166,184],"its":[24],"evaluations.":[25],"However,":[26],"the":[27,59,67,99,109,190],"secondary":[28],"use":[29],"–":[33,43],"such":[34,151],"as":[35,161],"documented":[36],"cases":[38],"disease":[41,79,93,105,110,123],"registry":[42,62],"poses":[44],"new":[45],"challenges":[46],"terms":[48],"quality,":[51],"IT-management,":[52],"documentation":[53,175],"processes":[54,80],"and":[55,81,102,134,155,198],"privacy.":[57],"In":[58,149],"clinical":[60,193],"Heilbronn-Franken,":[63],"real-world":[64],"from":[66,181],"Giessen":[68],"Tumor":[69],"Documentation":[70],"System":[71],"(GTDS)":[72],"was":[73,89],"utilized":[74],"analyses":[76,191],"patients'":[78,104],"guideline":[82],"adherence":[83],"follow-up":[85],"care.":[86],"A":[87],"process":[88,111],"developed":[90],"to":[91,96,117],"map":[92],"state":[94],"definitions":[95],"fields":[97],"GTDS":[100],"database":[101],"extract":[103],"progress":[106],"information.":[107],"Thus,":[108],"sub-cohorts":[113,188],"could":[114],"be":[115],"compared":[116],"each":[118],"other,":[119],"e.g.,":[120],"comparison":[121],"free":[124],"survival":[125],"HER2":[127],"(human":[128],"epidermal":[129],"growth":[130],"factor":[131],"receptor":[132],"2)-positive":[133],"-negative":[135],"women":[136],"who":[137],"were":[138],"treated":[139],"with":[140],"Trastuzumab,":[141],"targeted":[143],"therapy":[144],"applied":[145],"breast":[147],"cancer.":[148],"principle,":[150],"comparisons":[152],"feasible":[154],"great":[157],"value":[158],"they":[162],"depict":[163],"setting":[167],"diverse":[170],"patient":[171],"cohort.":[172],"Yet,":[173],"local":[174],"practice,":[176],"missing":[177],"flow":[178],"information":[180],"external":[182],"providers":[185],"or":[186],"small":[187],"impede":[189],"bases":[197],"usage":[199],"HSR.":[201]},"counts_by_year":[],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}