{"id":"https://openalex.org/W1497610752","doi":"https://doi.org/10.3233/978-1-60750-735-2-135","title":"What are the Barriers to Conducting International Research Using Routinely Collected Primary Care Data?","display_name":"What are the Barriers to Conducting International Research Using Routinely Collected Primary Care Data?","publication_year":2011,"publication_date":"2011-01-01","ids":{"openalex":"https://openalex.org/W1497610752","doi":"https://doi.org/10.3233/978-1-60750-735-2-135","mag":"1497610752","pmid":"https://pubmed.ncbi.nlm.nih.gov/21685599"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-60750-735-2-135","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-60750-735-2-135","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"de Lusignan Simon","orcid":null},"institutions":[{"id":"https://openalex.org/I165862685","display_name":"St George's, University of London","ror":"https://ror.org/040f08y74","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I165862685"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"de Lusignan Simon","raw_affiliation_strings":["Primary Care Informatics, St. George's University of London, London, UK. s.lusignan@surrey.ac.uk"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Primary Care Informatics, St. George's University of London, London, UK. s.lusignan@surrey.ac.uk","institution_ids":["https://openalex.org/I165862685"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5007992712","display_name":"Christopher Pearce","orcid":"https://orcid.org/0000-0001-5371-8196"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Pearce Christopher","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101736966","display_name":"Nicola Shaw","orcid":"https://orcid.org/0000-0002-7936-0521"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Shaw Nicola T.","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046550031","display_name":"Siaw\u2010Teng Liaw","orcid":"https://orcid.org/0000-0001-5989-3614"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Liaw Siaw-Teng","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5060356696","display_name":"Georgios Michalakidis","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Michalakidis Georgios","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5083618867","display_name":"Marilia Tristan Vicente","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Vicente Marília T.","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5027650739","display_name":"Michael Bainbridge","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Bainbridge Michael","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I165862685"],"apc_list":null,"apc_paid":null,"fwci":13.7058,"has_fulltext":false,"cited_by_count":20,"citation_normalized_percentile":{"value":0.98755656,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":99},"biblio":{"volume":"165","issue":null,"first_page":"135","last_page":"40"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.7318000197410583,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.7318000197410583,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11731","display_name":"Global Health and Surgery","score":0.02759999968111515,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10629","display_name":"Health Policy Implementation Science","score":0.01850000023841858,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/primary-care","display_name":"Primary care","score":0.5434544086456299},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.4236985743045807},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.3394582271575928},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3078940510749817},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.2260795533657074}],"concepts":[{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.5434544086456299},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.4236985743045807},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3394582271575928},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3078940510749817},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.2260795533657074}],"mesh":[{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D003697","descriptor_name":"Delphi Technique","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003697","descriptor_name":"Delphi Technique","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003697","descriptor_name":"Delphi Technique","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004493","descriptor_name":"Education","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004493","descriptor_name":"Education","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004493","descriptor_name":"Education","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011320","descriptor_name":"Primary Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011320","descriptor_name":"Primary Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011320","descriptor_name":"Primary Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D038622","descriptor_name":"Internationality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D038622","descriptor_name":"Internationality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D038622","descriptor_name":"Internationality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.3233/978-1-60750-735-2-135","is_oa":false,"landing_page_url":"https://doi.org/10.3233/978-1-60750-735-2-135","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:21685599","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/21685599","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/17","score":0.4699999988079071,"display_name":"Partnerships for the goals"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W3108674512","https://openalex.org/W1506200166"],"abstract_inverted_index":{"BACKGROUND:":[0],"Primary":[1,62],"care":[2,51,78],"is":[3,89],"computerized":[4,111],"with":[5],"routine":[6],"data":[7,18,52,57,79,101,148,205],"recorded":[8],"at":[9,91,157],"the":[10,36,92,98,119,125,128,138,154,158,187,190,201,204,218,228,236],"point":[11,159],"or":[12,100],"care.":[13],"Secondary":[14],"use":[15,83,106],"of":[16,116,127,160,162,171,189,203,235,239],"these":[17],"includes:":[19],"genetic":[20],"study,":[21],"epidemiology":[22],"and":[23,56,68,95,133,143,164,216,222],"clinical":[24],"trials.":[25],"However,":[26],"there":[27],"are":[28,80,149],"relatively":[29],"few":[30],"international":[31,45,61,244],"studies.":[32],"OBJECTIVE:":[33],"To":[34,74],"identify":[35],"concepts":[37],"that":[38],"might":[39],"predict":[40],"readiness":[41,172,240],"to":[42,105,113,123,186,199],"collaborate":[43],"in":[44,84,180,243],"research":[46],"using":[47],"routinely":[48],"collected":[49],"primary":[50,77],"METHOD:":[53],"Literature":[54],"review":[55],"gathering":[58],"exercise,":[59],"from":[60],"Care":[63],"Informatics":[64],"working":[65],"group":[66],"workshops,":[67],"email":[69],"modified":[70],"Delphi":[71],"exercise.":[72],"RESULTS:":[73],"establish":[75],"whether":[76],"fit":[81],"for":[82,109,230,241],"a":[85,166,193,232],"collaborative":[86],"study":[87,135],"information":[88,155],"needed":[90,156],"micro-,":[93],"meso-,":[94],"macro-level.":[96],"At":[97,118,137],"micro-":[99],"level":[102],"we":[103,121],"need":[104,122],"documented":[107],"standards":[108],"interoperability,":[110,214],"records,":[112],"facilitate":[114],"linkage":[115],"data.":[117],"meso-level":[120],"understand":[124],"nature":[126],"electronic":[129],"patient":[130],"record":[131],"(EPR)":[132],"specific":[134],"requirements.":[136],"macro-level:":[139],"health":[140],"system,":[141],"social":[142],"cultural":[144],"context":[145],"constrain":[146],"what":[147],"available.":[150],"The":[151,168,208],"framework":[152,225],"defines":[153],"expression":[161],"interest,":[163],"joining":[165],"study.":[167,191],"initial":[169,237],"assessment":[170,238],"should":[173,196],"be":[174,197],"by":[175,178],"self-assessment":[176],"followed":[177],"an":[179],"depth":[181],"appraisal":[182],"more":[183],"immediately":[184],"prior":[185],"start":[188],"Finally,":[192],"sensitivity":[194],"analysis":[195],"conducted":[198],"test":[200],"robustness":[202],"model.":[206],"CONCLUSIONS:":[207],"literature":[209],"focuses":[210],"on":[211,220],"technical":[212],"issues:":[213],"EPR":[215],"modeling;":[217],"workshops":[219],"socio-cultural":[221],"organizational.":[223],"This":[224],"will":[226],"form":[227],"basis":[229],"developing":[231],"survey":[233],"instrument":[234],"collaboration":[242],"research.":[245]},"counts_by_year":[{"year":2022,"cited_by_count":1},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":2},{"year":2015,"cited_by_count":8},{"year":2014,"cited_by_count":3},{"year":2013,"cited_by_count":2},{"year":2012,"cited_by_count":1}],"updated_date":"2026-04-29T09:16:38.111599","created_date":"2025-10-10T00:00:00"}