{"id":"https://openalex.org/W1587250215","doi":"https://doi.org/10.3233/978-1-60750-044-5-292","title":"An Analysis of Personal Medical Information Disclosed in YouTube Videos Created by Patients with Multiple Sclerosis","display_name":"An Analysis of Personal Medical Information Disclosed in YouTube Videos Created by Patients with Multiple Sclerosis","publication_year":2009,"publication_date":"2009-01-01","ids":{"openalex":"https://openalex.org/W1587250215","doi":"https://doi.org/10.3233/978-1-60750-044-5-292","mag":"1587250215","pmid":"https://pubmed.ncbi.nlm.nih.gov/19745316"},"language":"en","primary_location":{"id":"doi:10.3233/978-1-60750-044-5-292","is_oa":true,"landing_page_url":"https://doi.org/10.3233/978-1-60750-044-5-292","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.3233/978-1-60750-044-5-292","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5066113250","display_name":"Luis Fern\u00e1ndez-Luque","orcid":"https://orcid.org/0000-0001-8165-9904"},"institutions":[{"id":"https://openalex.org/I2800853303","display_name":"Northern Research Institute","ror":"https://ror.org/04wdcx151","country_code":"NO","type":"nonprofit","lineage":["https://openalex.org/I2800853303"]}],"countries":["NO"],"is_corresponding":false,"raw_author_name":"Fernandez-Luque Luis","raw_affiliation_strings":["Northern Research Institute (Norut), 9292 Troms\u00f8, Norway. luis.luque@norut.no"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Northern Research Institute (Norut), 9292 Troms\u00f8, Norway. luis.luque@norut.no","institution_ids":["https://openalex.org/I2800853303"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003047576","display_name":"Najeed Elahi","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Elahi Najeed","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5067934104","display_name":"Francisco J Grajales","orcid":"https://orcid.org/0000-0003-2942-4889"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Grajales III Francisco J.","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":15.8386,"has_fulltext":false,"cited_by_count":70,"citation_normalized_percentile":{"value":0.99367089,"is_in_top_1_percent":true,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":99},"biblio":{"volume":"150","issue":null,"first_page":"292","last_page":"6"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.9943000078201294,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.9943000078201294,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.9937999844551086,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10759","display_name":"Translation Studies and Practices","score":0.9240000247955322,"subfield":{"id":"https://openalex.org/subfields/1203","display_name":"Language and Linguistics"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/the-internet","display_name":"The Internet","score":0.6758995652198792},{"id":"https://openalex.org/keywords/health-information","display_name":"Health information","score":0.5650681257247925},{"id":"https://openalex.org/keywords/inclusion","display_name":"Inclusion (mineral)","score":0.5547670125961304},{"id":"https://openalex.org/keywords/medical-information","display_name":"Medical information","score":0.5510264039039612},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.5437728762626648},{"id":"https://openalex.org/keywords/health-professionals","display_name":"Health professionals","score":0.5081660747528076},{"id":"https://openalex.org/keywords/content-analysis","display_name":"Content analysis","score":0.43744349479675293},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.4373953938484192},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.36017340421676636},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3362201452255249},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.3228936791419983},{"id":"https://openalex.org/keywords/multimedia","display_name":"Multimedia","score":0.32004398107528687},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.30366143584251404},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.20387312769889832},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.129527747631073},{"id":"https://openalex.org/keywords/social-psychology","display_name":"Social psychology","score":0.11493870615959167},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.09109565615653992}],"concepts":[{"id":"https://openalex.org/C110875604","wikidata":"https://www.wikidata.org/wiki/Q75","display_name":"The Internet","level":2,"score":0.6758995652198792},{"id":"https://openalex.org/C2982795734","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health information","level":3,"score":0.5650681257247925},{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.5547670125961304},{"id":"https://openalex.org/C3019150057","wikidata":"https://www.wikidata.org/wiki/Q92779279","display_name":"Medical information","level":2,"score":0.5510264039039612},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.5437728762626648},{"id":"https://openalex.org/C3019806175","wikidata":"https://www.wikidata.org/wiki/Q11974939","display_name":"Health professionals","level":3,"score":0.5081660747528076},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.43744349479675293},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4373953938484192},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.36017340421676636},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3362201452255249},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.3228936791419983},{"id":"https://openalex.org/C49774154","wikidata":"https://www.wikidata.org/wiki/Q131765","display_name":"Multimedia","level":1,"score":0.32004398107528687},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.30366143584251404},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.20387312769889832},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.129527747631073},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.11493870615959167},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.09109565615653992},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009103","descriptor_name":"Multiple Sclerosis","qualifier_ui":"Q000188","qualifier_name":"drug therapy","is_major_topic":false},{"descriptor_ui":"D009103","descriptor_name":"Multiple Sclerosis","qualifier_ui":"Q000188","qualifier_name":"drug therapy","is_major_topic":false},{"descriptor_ui":"D009103","descriptor_name":"Multiple Sclerosis","qualifier_ui":"Q000188","qualifier_name":"drug therapy","is_major_topic":false},{"descriptor_ui":"D014342","descriptor_name":"Truth Disclosure","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D014342","descriptor_name":"Truth Disclosure","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D014342","descriptor_name":"Truth Disclosure","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3233/978-1-60750-044-5-292","is_oa":true,"landing_page_url":"https://doi.org/10.3233/978-1-60750-044-5-292","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},{"id":"pmid:19745316","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/19745316","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in health technology and informatics","raw_type":null}],"best_oa_location":{"id":"doi:10.3233/978-1-60750-044-5-292","is_oa":true,"landing_page_url":"https://doi.org/10.3233/978-1-60750-044-5-292","pdf_url":null,"source":{"id":"https://openalex.org/S4210179765","display_name":"Studies in health technology and informatics","issn_l":"0926-9630","issn":["0926-9630","1879-8365"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310318577","host_organization_name":"IOS Press","host_organization_lineage":["https://openalex.org/P4310318577"],"host_organization_lineage_names":["IOS Press"],"type":"book series"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Studies in Health Technology and Informatics","raw_type":"book-chapter"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/10","score":0.699999988079071,"display_name":"Reduced inequalities"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":7,"referenced_works":["https://openalex.org/W1492646687","https://openalex.org/W1980580891","https://openalex.org/W1991032455","https://openalex.org/W2127711536","https://openalex.org/W2142958709","https://openalex.org/W2407614487","https://openalex.org/W4285719527"],"related_works":["https://openalex.org/W92426816","https://openalex.org/W4243133296","https://openalex.org/W2505241121","https://openalex.org/W1988118454","https://openalex.org/W2000604450","https://openalex.org/W2322711667","https://openalex.org/W2153189845","https://openalex.org/W2356238079","https://openalex.org/W1511892615","https://openalex.org/W137540605"],"abstract_inverted_index":{"The":[0],"Internet":[1],"has":[2],"become":[3],"one":[4],"of":[5,9,23,42,61,73,76,112,118,137],"the":[6,20,24,59,94,110,129,138],"main":[7],"sources":[8],"health":[10,89,101],"information.":[11,90],"Today,":[12],"content":[13,133],"generation":[14],"is":[15],"no":[16],"longer":[17],"limited":[18],"to":[19,35],"healthcare":[21],"professionals":[22],"late":[25],"nineties;":[26],"Web":[27],"2.0":[28],"services":[29],"and":[30,37,50,82,97,134,142],"platforms":[31],"have":[32],"empowered":[33],"patients":[34],"create":[36],"interact":[38],"with":[39,105,146],"various":[40],"forms":[41],"Patient-Generated":[43],"Content":[44],"(PGC);":[45],"these":[46],"include:":[47],"videos,":[48],"blogs,":[49],"social":[51],"networking":[52],"pages,":[53],"among":[54,121],"others.":[55],"This":[56],"investigation":[57],"evaluated":[58],"characteristics":[60],"PGC":[62,147],"found":[63,148],"within":[64,131],"YouTube":[65,150],"video":[66,151],"comments.":[67,152],"We":[68],"selected":[69],"a":[70],"random":[71],"sample":[72],"25":[74],"out":[75],"769":[77],"Multiple":[78],"Sclerosis":[79],"patient-generated":[80],"videos":[81],"analyzed":[83],"their":[84],"corresponding":[85,139],"557":[86],"comments":[87,92],"for":[88,109],"320":[91],"met":[93],"inclusion":[95],"criteria":[96],"70":[98],"contained":[99],"personal":[100],"information":[102,114],"(PHI).":[103],"Comments":[104],"PHI":[106],"were":[107],"sub-characterized":[108],"type":[111],"medical":[113],"(i.e.,":[115],"diagnosis,":[116,119],"date":[117],"medication,":[120],"others).":[122],"In":[123],"this":[124,132],"descriptive":[125],"study,":[126],"we":[127],"present":[128],"strata":[130],"postulate":[135],"some":[136],"patient":[140],"risks":[141],"ethical":[143],"challenges":[144],"associated":[145],"in":[149]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":4},{"year":2021,"cited_by_count":6},{"year":2020,"cited_by_count":2},{"year":2019,"cited_by_count":7},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":4},{"year":2016,"cited_by_count":3},{"year":2015,"cited_by_count":2},{"year":2014,"cited_by_count":5},{"year":2013,"cited_by_count":10},{"year":2012,"cited_by_count":7}],"updated_date":"2026-06-11T09:08:48.828518","created_date":"2025-10-10T00:00:00"}