{"id":"https://openalex.org/W3024937079","doi":"https://doi.org/10.21307/joss-2019-008","title":"Structural and Contextual Patterns in Family Health History Knowledge among African American Adults: A Mixed-Methods Social Network Analysis Study*","display_name":"Structural and Contextual Patterns in Family Health History Knowledge among African American Adults: A Mixed-Methods Social Network Analysis Study*","publication_year":2019,"publication_date":"2019-01-01","ids":{"openalex":"https://openalex.org/W3024937079","doi":"https://doi.org/10.21307/joss-2019-008","mag":"3024937079","pmid":"https://pubmed.ncbi.nlm.nih.gov/40808879"},"language":"en","primary_location":{"id":"doi:10.21307/joss-2019-008","is_oa":true,"landing_page_url":"https://doi.org/10.21307/joss-2019-008","pdf_url":"http://www.exeley.com/exeley/journals/journal_of_social_structure/20/3/pdf/10.21307_joss-2019-008.pdf","source":{"id":"https://openalex.org/S191413112","display_name":"Journal of Social Structure","issn_l":"1529-1227","issn":["1529-1227"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310316766","host_organization_name":"Carnegie Mellon University Press","host_organization_lineage":["https://openalex.org/P4310316766"],"host_organization_lineage_names":["Carnegie Mellon University Press"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Social Structure","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"http://www.exeley.com/exeley/journals/journal_of_social_structure/20/3/pdf/10.21307_joss-2019-008.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5081550937","display_name":"Sula Hood","orcid":"https://orcid.org/0000-0002-9607-5714"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Sula M. Hood","raw_affiliation_strings":["Indiana University Richard M. Fairbanks School of Public Health, Department of Social and Behavioral Sciences , Indiana , Indianapolis"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Indiana University Richard M. Fairbanks School of Public Health, Department of Social and Behavioral Sciences , Indiana , Indianapolis","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072407299","display_name":"Elizabeth H. Golembiewski","orcid":"https://orcid.org/0000-0003-1015-3935"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Elizabeth H. Golembiewski","raw_affiliation_strings":["Indiana University Richard M. Fairbanks School of Public Health, Department of Health Policy and Management , Indiana , Indianapolis"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Indiana University Richard M. Fairbanks School of Public Health, Department of Health Policy and Management , Indiana , Indianapolis","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066583857","display_name":"Hadyatoullaye Sow","orcid":"https://orcid.org/0000-0001-8654-5869"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hadyatoullaye Sow","raw_affiliation_strings":["Indiana University Richard M. Fairbanks School of Public Health, Department of Social and Behavioral Sciences , Indiana , Indianapolis"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Indiana University Richard M. Fairbanks School of Public Health, Department of Social and Behavioral Sciences , Indiana , Indianapolis","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5083885507","display_name":"Kyle Benbow","orcid":null},"institutions":[{"id":"https://openalex.org/I198089087","display_name":"Ball State University","ror":"https://ror.org/00k6tx165","country_code":"US","type":"education","lineage":["https://openalex.org/I198089087"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kyle Benbow","raw_affiliation_strings":["Ball State University, Department of Counseling Psychology, Social Psychology and Counseling , Muncie , Indianapolis"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Ball State University, Department of Counseling Psychology, Social Psychology and Counseling , Muncie , Indianapolis","institution_ids":["https://openalex.org/I198089087"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5008115127","display_name":"Jeremy Prather","orcid":null},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jeremy Prather","raw_affiliation_strings":["Indiana University Richard M. Fairbanks School of Public Health, Department of Environmental Health , Indiana , Indianapolis"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Indiana University Richard M. Fairbanks School of Public Health, Department of Environmental Health , Indiana , Indianapolis","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5028055347","display_name":"Lisa Robison","orcid":null},"institutions":[{"id":"https://openalex.org/I39422238","display_name":"University of Illinois Chicago","ror":"https://ror.org/02mpq6x41","country_code":"US","type":"education","lineage":["https://openalex.org/I39422238"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lisa D. Robison","raw_affiliation_strings":["University of Illinois at Chicago, Center for Dissemination and Implementation Research , Chicago , Indianapolis"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Illinois at Chicago, Center for Dissemination and Implementation Research , Chicago , Indianapolis","institution_ids":["https://openalex.org/I39422238"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5035601006","display_name":"Elisabeth Martin-Hagler","orcid":null},"institutions":[{"id":"https://openalex.org/I2802101240","display_name":"Carolinas Medical Center","ror":"https://ror.org/0483mr804","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334069289","https://openalex.org/I2802101240"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Elisabeth Martin-Hagler","raw_affiliation_strings":["Carolinas Medical Center, Department of Emergency Medicine , North Carolina , United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Carolinas Medical Center, Department of Emergency Medicine , North Carolina , United States","institution_ids":["https://openalex.org/I2802101240"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5081550937"],"corresponding_institution_ids":["https://openalex.org/I55769427"],"apc_list":null,"apc_paid":null,"fwci":0.36,"has_fulltext":false,"cited_by_count":4,"citation_normalized_percentile":{"value":0.71093197,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":95},"biblio":{"volume":"20","issue":"3","first_page":"96","last_page":"118"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":0.4745999872684479,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":0.4745999872684479,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T12749","display_name":"Race, Genetics, and Society","score":0.03819999843835831,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10556","display_name":"Global Cancer Incidence and Screening","score":0.036400001496076584,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/family-history","display_name":"Family history","score":0.5954688787460327},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.5449094772338867},{"id":"https://openalex.org/keywords/social-network","display_name":"Social network (sociolinguistics)","score":0.479549378156662},{"id":"https://openalex.org/keywords/interpersonal-communication","display_name":"Interpersonal communication","score":0.4777740240097046},{"id":"https://openalex.org/keywords/ethnic-group","display_name":"Ethnic group","score":0.45201218128204346},{"id":"https://openalex.org/keywords/health-equity","display_name":"Health equity","score":0.4121079742908478},{"id":"https://openalex.org/keywords/gerontology","display_name":"Gerontology","score":0.3700837790966034},{"id":"https://openalex.org/keywords/clinical-psychology","display_name":"Clinical psychology","score":0.3519563674926758},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.33540719747543335},{"id":"https://openalex.org/keywords/public-health","display_name":"Public health","score":0.3115481734275818},{"id":"https://openalex.org/keywords/social-psychology","display_name":"Social psychology","score":0.2971511781215668},{"id":"https://openalex.org/keywords/social-media","display_name":"Social media","score":0.1333787441253662},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.12457641959190369},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.10563692450523376}],"concepts":[{"id":"https://openalex.org/C2781179581","wikidata":"https://www.wikidata.org/wiki/Q2857712","display_name":"Family history","level":2,"score":0.5954688787460327},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5449094772338867},{"id":"https://openalex.org/C4727928","wikidata":"https://www.wikidata.org/wiki/Q17164759","display_name":"Social network (sociolinguistics)","level":3,"score":0.479549378156662},{"id":"https://openalex.org/C164850336","wikidata":"https://www.wikidata.org/wiki/Q3685487","display_name":"Interpersonal communication","level":2,"score":0.4777740240097046},{"id":"https://openalex.org/C137403100","wikidata":"https://www.wikidata.org/wiki/Q41710","display_name":"Ethnic group","level":2,"score":0.45201218128204346},{"id":"https://openalex.org/C2250968","wikidata":"https://www.wikidata.org/wiki/Q1512929","display_name":"Health equity","level":3,"score":0.4121079742908478},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3700837790966034},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.3519563674926758},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.33540719747543335},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.3115481734275818},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.2971511781215668},{"id":"https://openalex.org/C518677369","wikidata":"https://www.wikidata.org/wiki/Q202833","display_name":"Social media","level":2,"score":0.1333787441253662},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.12457641959190369},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.10563692450523376},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C126838900","wikidata":"https://www.wikidata.org/wiki/Q77604","display_name":"Radiology","level":1,"score":0.0}],"mesh":[],"locations_count":5,"locations":[{"id":"doi:10.21307/joss-2019-008","is_oa":true,"landing_page_url":"https://doi.org/10.21307/joss-2019-008","pdf_url":"http://www.exeley.com/exeley/journals/journal_of_social_structure/20/3/pdf/10.21307_joss-2019-008.pdf","source":{"id":"https://openalex.org/S191413112","display_name":"Journal of Social Structure","issn_l":"1529-1227","issn":["1529-1227"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310316766","host_organization_name":"Carnegie Mellon University Press","host_organization_lineage":["https://openalex.org/P4310316766"],"host_organization_lineage_names":["Carnegie Mellon University Press"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Social Structure","raw_type":"journal-article"},{"id":"pmid:40808879","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40808879","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of social structure : JOSS","raw_type":null},{"id":"pmh:oai:doaj.org/article:ed3db8316c3c478ea6e65152013c7089","is_oa":true,"landing_page_url":"https://doaj.org/article/ed3db8316c3c478ea6e65152013c7089","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal of Social Structure, Vol 20, Iss 3 (2019)","raw_type":"article"},{"id":"pmh:oai:europepmc.org:11154673","is_oa":false,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/12346325","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"},{"id":"pmh:oai:scholarworks.iupui.edu:1805/22632","is_oa":true,"landing_page_url":"http://hdl.handle.net/1805/22632","pdf_url":null,"source":{"id":"https://openalex.org/S4306400987","display_name":"IUScholarWorks (Indiana University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I592451","host_organization_name":"Indiana University","host_organization_lineage":["https://openalex.org/I592451"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Publisher","raw_type":"Article"}],"best_oa_location":{"id":"doi:10.21307/joss-2019-008","is_oa":true,"landing_page_url":"https://doi.org/10.21307/joss-2019-008","pdf_url":"http://www.exeley.com/exeley/journals/journal_of_social_structure/20/3/pdf/10.21307_joss-2019-008.pdf","source":{"id":"https://openalex.org/S191413112","display_name":"Journal of Social Structure","issn_l":"1529-1227","issn":["1529-1227"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310316766","host_organization_name":"Carnegie Mellon University Press","host_organization_lineage":["https://openalex.org/P4310316766"],"host_organization_lineage_names":["Carnegie Mellon University Press"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Social Structure","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.6000000238418579,"display_name":"Quality Education","id":"https://metadata.un.org/sdg/4"}],"awards":[{"id":"https://openalex.org/G3529658321","display_name":null,"funder_award_id":"R25 HD079352","funder_id":"https://openalex.org/F4320337611","funder_display_name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development"},{"id":"https://openalex.org/G8419798616","display_name":null,"funder_award_id":"UL1 TR001108","funder_id":"https://openalex.org/F4320337472","funder_display_name":"National Center for Advancing Translational Sciences"}],"funders":[{"id":"https://openalex.org/F4320337472","display_name":"National Center for Advancing Translational Sciences","ror":"https://ror.org/04pw6fb54"},{"id":"https://openalex.org/F4320337611","display_name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development","ror":"https://ror.org/04byxyr05"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":49,"referenced_works":["https://openalex.org/W167968754","https://openalex.org/W584154449","https://openalex.org/W1129192333","https://openalex.org/W1837900954","https://openalex.org/W1865005974","https://openalex.org/W1914972138","https://openalex.org/W1980361844","https://openalex.org/W1992067340","https://openalex.org/W1993161429","https://openalex.org/W2005518396","https://openalex.org/W2011400952","https://openalex.org/W2023322102","https://openalex.org/W2025310735","https://openalex.org/W2025616679","https://openalex.org/W2037046649","https://openalex.org/W2037876281","https://openalex.org/W2043325612","https://openalex.org/W2046523764","https://openalex.org/W2050189840","https://openalex.org/W2071276733","https://openalex.org/W2071491451","https://openalex.org/W2071600257","https://openalex.org/W2073988209","https://openalex.org/W2076554107","https://openalex.org/W2078700949","https://openalex.org/W2091553541","https://openalex.org/W2106030860","https://openalex.org/W2113188514","https://openalex.org/W2119930118","https://openalex.org/W2122560081","https://openalex.org/W2132034058","https://openalex.org/W2133352336","https://openalex.org/W2135162034","https://openalex.org/W2135952508","https://openalex.org/W2144546053","https://openalex.org/W2154888659","https://openalex.org/W2155902818","https://openalex.org/W2160416179","https://openalex.org/W2167031799","https://openalex.org/W2167905137","https://openalex.org/W2256896884","https://openalex.org/W2343017947","https://openalex.org/W2517857668","https://openalex.org/W2522994450","https://openalex.org/W2883363407","https://openalex.org/W2884758361","https://openalex.org/W3210030168","https://openalex.org/W4232869892","https://openalex.org/W4300374877"],"related_works":["https://openalex.org/W2381483116","https://openalex.org/W2348506863","https://openalex.org/W2371917728","https://openalex.org/W2007982614","https://openalex.org/W2389579140","https://openalex.org/W2113257626","https://openalex.org/W2512568326","https://openalex.org/W2808021644","https://openalex.org/W1984243130","https://openalex.org/W2355279474"],"abstract_inverted_index":{"Abstract":[0],"Background:":[1],"Family":[2],"health":[3,27,37,131,147,187,205,237,256,268,280,310,369,376,383],"history":[4,28,148,377],"is":[5,301,354],"a":[6,21,33,87,104,129,203,264,346],"strong":[7],"risk":[8],"factor":[9,35],"for":[10,99,317,323,327],"many":[11],"chronic":[12,236],"diseases.":[13],"Ethnic":[14],"minorities":[15],"have":[16,20],"been":[17],"found":[18],"to":[19,36,50,90,113,127,140,198,284,373],"low":[22],"awareness":[23],"of":[24,42,97,149,166,181,222,266,320,358],"their":[25,68,92,117,155,182],"family":[26,69,78,83,105,121,163,225,267,375,382],"(FHH),":[29],"which":[30,124],"may":[31],"pose":[32],"contributing":[34],"disparities.":[38],"Purpose:":[39],"The":[40],"purpose":[41],"this":[43,100],"mixed-methods":[44],"social":[45,329],"network":[46,79,164,184],"analysis":[47,101],"study":[48],"was":[49,102,107,210,245,263,277],"identify":[51],"structural":[52],"and":[53,276,326,344,351,365,386],"contextual":[54],"patterns":[55],"in":[56],"African":[57,72,359],"American":[58,73],"adults\u2019":[59],"FHH":[60,299,335,361],"knowledge":[61,300],"based":[62],"on":[63,177],"interpersonal":[64],"communication":[65,306],"exchanges":[66],"with":[67,250],"members.":[70],"Methods:":[71],"adults":[74],"completed":[75],"individually":[76],"administered":[77],"interviews.":[80],"Participants\u2019":[81],"3-generation":[82],"pedigree":[84],"served":[85],"as":[86,109,128,185,202,314],"visual":[88],"aid":[89],"guide":[91],"interview.":[93,156],"Our":[94],"primary":[95],"outcome":[96],"interest":[98],"whether":[103],"member":[106],"reported":[108,160],"someone":[110,246,278],"who":[111,247],"talks":[112],"the":[114,120,146,150,208,219,223,251,254,281,318],"participant":[115,252,282],"about":[116,145,253,334],"own":[118],"(i.e.,":[119],"member\u2019s)":[122],"health,":[123],"we":[125],"refer":[126],"\u201cpersonal":[130],"informant.\u201d":[132],"To":[133],"contextualize":[134],"quantitative":[135],"findings,":[136],"participants":[137,194],"were":[138,195,312],"asked":[139],"describe":[141],"how":[142],"they":[143,152],"learned":[144,333],"relatives":[151,168],"identified":[153],"during":[154,342],"Results:":[157],"Participants":[158,331],"(n=37)":[159],"an":[161,200,355],"average":[162],"size":[165],"29.4":[167],"(SD":[169],"=":[170,173,213,216,227,230,240,243,258,271,274,289,292],"15.5;":[171],"Range":[172],"10-67).":[174],"Each":[175],"participant,":[176],"average,":[178],"named":[179],"17%":[180],"familial":[183],"personal":[186,204],"informants.":[188],"Multivariate":[189],"regression":[190],"results":[191],"showed":[192],"that":[193,298],"more":[196,235],"likely":[197],"name":[199],"alter":[201,209],"informant":[206],"if":[207],"female":[211],"(OR":[212,226,239,257,270,288],"2.14,":[214],"p":[215,229,242,260,273,291],"0.0519),":[217],"from":[218],"maternal":[220],"side":[221],"participant\u2019s":[224,255],"1.12,":[228],"0.0006),":[231],"had":[232],"one":[233],"or":[234,286],"conditions":[238],"2.41,":[241],"0.0041),":[244],"has":[248],"discussions":[249],"16.28,":[259],"<":[261],"0.0001),":[262],"source":[265],"information":[269,316],"3.46,":[272],"0.0072),":[275],"whose":[279],"helps":[283],"monitor":[285],"track":[287],"5.93,":[290],"0.0002).":[293],"Complementary":[294],"qualitative":[295],"findings":[296],"indicate":[297],"facilitated":[302],"by":[303],"open,":[304],"direct":[305,340],"among":[307],"relatives.":[308,388],"Personal":[309],"informants":[311],"described":[313],"disclosing":[315],"purposes":[319,325],"informing":[321],"others":[322],"preventive":[324],"gaining":[328],"support.":[330],"also":[332],"via":[336],"other":[337],"methods,":[338],"including":[339],"observation,":[341],"caretaking,":[343],"following":[345],"relative\u2019s":[347],"death.":[348],"Conclusions:":[349],"Communication":[350],"disclosure":[352],"practices":[353],"important":[356],"determinant":[357],"Americans\u2019":[360],"knowledge.":[362],"More":[363],"culturally":[364],"contextually":[366],"meaningful":[367],"public":[368],"efforts":[370],"are":[371],"needed":[372],"promote":[374],"sharing,":[378],"especially":[379],"regarding":[380],"paternal":[381],"history,":[384],"siblings,":[385],"extended":[387]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2023,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":1}],"updated_date":"2026-06-24T13:16:06.693445","created_date":"2025-10-10T00:00:00"}