{"id":"https://openalex.org/W4415848531","doi":"https://doi.org/10.1186/s12911-025-03244-9","title":"Using general practice data for chronic disease prevalence: the impact of record linkage on estimation accuracy","display_name":"Using general practice data for chronic disease prevalence: the impact of record linkage on estimation accuracy","publication_year":2025,"publication_date":"2025-11-04","ids":{"openalex":"https://openalex.org/W4415848531","doi":"https://doi.org/10.1186/s12911-025-03244-9","pmid":"https://pubmed.ncbi.nlm.nih.gov/41188863"},"language":"en","primary_location":{"id":"doi:10.1186/s12911-025-03244-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12911-025-03244-9","pdf_url":"https://bmcmedinformdecismak.biomedcentral.com/counter/pdf/10.1186/s12911-025-03244-9","source":{"id":"https://openalex.org/S107516304","display_name":"BMC Medical Informatics and Decision Making","issn_l":"1472-6947","issn":["1472-6947"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Medical Informatics and Decision Making","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://bmcmedinformdecismak.biomedcentral.com/counter/pdf/10.1186/s12911-025-03244-9","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5066311215","display_name":"Richard Varhol","orcid":"https://orcid.org/0000-0003-3608-400X"},"institutions":[{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":true,"raw_author_name":"Richard J. Varhol","raw_affiliation_strings":["School of Population Health, Curtin University, Perth, WA, Australia. rvarhol@curtin.edu.au","School of Population Health, Curtin University, Perth, WA, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Population Health, Curtin University, Perth, WA, Australia. rvarhol@curtin.edu.au","institution_ids":["https://openalex.org/I205640436"]},{"raw_affiliation_string":"School of Population Health, Curtin University, Perth, WA, Australia","institution_ids":["https://openalex.org/I205640436"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043956670","display_name":"Crystal Lee","orcid":"https://orcid.org/0000-0001-6613-5491"},"institutions":[{"id":"https://openalex.org/I149704539","display_name":"Deakin University","ror":"https://ror.org/02czsnj07","country_code":"AU","type":"education","lineage":["https://openalex.org/I149704539"]},{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Crystal Man Ying Lee","raw_affiliation_strings":["Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia","School of Population Health, Curtin University, Perth, WA, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia","institution_ids":["https://openalex.org/I149704539"]},{"raw_affiliation_string":"School of Population Health, Curtin University, Perth, WA, Australia","institution_ids":["https://openalex.org/I205640436"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026306258","display_name":"Sean Randall","orcid":"https://orcid.org/0000-0002-2756-5090"},"institutions":[{"id":"https://openalex.org/I149704539","display_name":"Deakin University","ror":"https://ror.org/02czsnj07","country_code":"AU","type":"education","lineage":["https://openalex.org/I149704539"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Sean Randall","raw_affiliation_strings":["Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia","institution_ids":["https://openalex.org/I149704539"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046545567","display_name":"James Boyd","orcid":"https://orcid.org/0000-0002-8925-8811"},"institutions":[{"id":"https://openalex.org/I196829312","display_name":"La Trobe University","ror":"https://ror.org/01rxfrp27","country_code":"AU","type":"education","lineage":["https://openalex.org/I196829312"]},{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"James H. Boyd","raw_affiliation_strings":["Department of Public Health, La Trobe University, Bundoora, VIC, Australia","School of Population Health, Curtin University, Perth, WA, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public Health, La Trobe University, Bundoora, VIC, Australia","institution_ids":["https://openalex.org/I196829312"]},{"raw_affiliation_string":"School of Population Health, Curtin University, Perth, WA, Australia","institution_ids":["https://openalex.org/I205640436"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5056407301","display_name":"Suzanne Robinson","orcid":"https://orcid.org/0000-0001-5703-6475"},"institutions":[{"id":"https://openalex.org/I149704539","display_name":"Deakin University","ror":"https://ror.org/02czsnj07","country_code":"AU","type":"education","lineage":["https://openalex.org/I149704539"]},{"id":"https://openalex.org/I205640436","display_name":"Curtin University","ror":"https://ror.org/02n415q13","country_code":"AU","type":"education","lineage":["https://openalex.org/I205640436"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Suzanne Robinson","raw_affiliation_strings":["Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia","School of Population Health, Curtin University, Perth, WA, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia","institution_ids":["https://openalex.org/I149704539"]},{"raw_affiliation_string":"School of Population Health, Curtin University, Perth, WA, Australia","institution_ids":["https://openalex.org/I205640436"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5066311215"],"corresponding_institution_ids":["https://openalex.org/I205640436"],"apc_list":{"value":1570,"currency":"GBP","value_usd":1925},"apc_paid":{"value":1570,"currency":"GBP","value_usd":1925},"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.40850565,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"25","issue":"1","first_page":"407","last_page":"407"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.2542000114917755,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.2542000114917755,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11590","display_name":"Primary Care and Health Outcomes","score":0.251800000667572,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.10220000147819519,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/record-linkage","display_name":"Record linkage","score":0.7024999856948853},{"id":"https://openalex.org/keywords/health-informatics","display_name":"Health informatics","score":0.6834999918937683},{"id":"https://openalex.org/keywords/general-practice","display_name":"General practice","score":0.6614000201225281},{"id":"https://openalex.org/keywords/estimation","display_name":"Estimation","score":0.6322000026702881},{"id":"https://openalex.org/keywords/medical-record","display_name":"Medical record","score":0.5547000169754028},{"id":"https://openalex.org/keywords/population-health","display_name":"Population health","score":0.536300003528595},{"id":"https://openalex.org/keywords/chronic-disease","display_name":"Chronic disease","score":0.504800021648407},{"id":"https://openalex.org/keywords/workforce","display_name":"Workforce","score":0.5001999735832214},{"id":"https://openalex.org/keywords/disease","display_name":"Disease","score":0.48919999599456787},{"id":"https://openalex.org/keywords/linkage","display_name":"Linkage (software)","score":0.484499990940094}],"concepts":[{"id":"https://openalex.org/C142210648","wikidata":"https://www.wikidata.org/wiki/Q1266546","display_name":"Record linkage","level":3,"score":0.7024999856948853},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.6834999918937683},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6699000000953674},{"id":"https://openalex.org/C2781318095","wikidata":"https://www.wikidata.org/wiki/Q33127638","display_name":"General practice","level":2,"score":0.6614000201225281},{"id":"https://openalex.org/C96250715","wikidata":"https://www.wikidata.org/wiki/Q965330","display_name":"Estimation","level":2,"score":0.6322000026702881},{"id":"https://openalex.org/C195910791","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Medical record","level":2,"score":0.5547000169754028},{"id":"https://openalex.org/C2778149918","wikidata":"https://www.wikidata.org/wiki/Q3291156","display_name":"Population health","level":3,"score":0.536300003528595},{"id":"https://openalex.org/C2987552334","wikidata":"https://www.wikidata.org/wiki/Q383126","display_name":"Chronic disease","level":2,"score":0.504800021648407},{"id":"https://openalex.org/C2778139618","wikidata":"https://www.wikidata.org/wiki/Q13440398","display_name":"Workforce","level":2,"score":0.5001999735832214},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.48919999599456787},{"id":"https://openalex.org/C31266012","wikidata":"https://www.wikidata.org/wiki/Q6554340","display_name":"Linkage (software)","level":3,"score":0.484499990940094},{"id":"https://openalex.org/C3019952477","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Health records","level":3,"score":0.46869999170303345},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.4417000114917755},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.4413999915122986},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.42320001125335693},{"id":"https://openalex.org/C2779974597","wikidata":"https://www.wikidata.org/wiki/Q28448986","display_name":"Clinical Practice","level":2,"score":0.4117000102996826},{"id":"https://openalex.org/C191630685","wikidata":"https://www.wikidata.org/wiki/Q4027615","display_name":"Informatics","level":2,"score":0.39959999918937683},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3668999969959259},{"id":"https://openalex.org/C29202148","wikidata":"https://www.wikidata.org/wiki/Q287260","display_name":"Resource allocation","level":2,"score":0.33869999647140503},{"id":"https://openalex.org/C206345919","wikidata":"https://www.wikidata.org/wiki/Q20380951","display_name":"Resource (disambiguation)","level":2,"score":0.3382999897003174},{"id":"https://openalex.org/C3020144179","wikidata":"https://www.wikidata.org/wiki/Q10871684","display_name":"Electronic health record","level":3,"score":0.33059999346733093},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.3156000077724457},{"id":"https://openalex.org/C2780877353","wikidata":"https://www.wikidata.org/wiki/Q2518253","display_name":"Health services research","level":3,"score":0.3091000020503998},{"id":"https://openalex.org/C45827449","wikidata":"https://www.wikidata.org/wiki/Q5270338","display_name":"Diagnosis code","level":3,"score":0.30880001187324524},{"id":"https://openalex.org/C545542383","wikidata":"https://www.wikidata.org/wiki/Q2751242","display_name":"Medical emergency","level":1,"score":0.3052999973297119},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.30239999294281006},{"id":"https://openalex.org/C3017409249","wikidata":"https://www.wikidata.org/wiki/Q23582796","display_name":"Resource use","level":2,"score":0.30230000615119934},{"id":"https://openalex.org/C155663085","wikidata":"https://www.wikidata.org/wiki/Q1056396","display_name":"Workforce planning","level":3,"score":0.2969000041484833},{"id":"https://openalex.org/C47344431","wikidata":"https://www.wikidata.org/wiki/Q1519812","display_name":"Health policy","level":3,"score":0.296099990606308},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.29109999537467957},{"id":"https://openalex.org/C2982889124","wikidata":"https://www.wikidata.org/wiki/Q107439039","display_name":"Disease management","level":4,"score":0.29019999504089355},{"id":"https://openalex.org/C2776807786","wikidata":"https://www.wikidata.org/wiki/Q5113964","display_name":"Chronic care","level":3,"score":0.28439998626708984},{"id":"https://openalex.org/C524218345","wikidata":"https://www.wikidata.org/wiki/Q31218","display_name":"Health economics","level":3,"score":0.27379998564720154},{"id":"https://openalex.org/C123403432","wikidata":"https://www.wikidata.org/wiki/Q654068","display_name":"Visibility","level":2,"score":0.27079999446868896},{"id":"https://openalex.org/C2780664029","wikidata":"https://www.wikidata.org/wiki/Q5282120","display_name":"Disease burden","level":3,"score":0.26649999618530273},{"id":"https://openalex.org/C2779968149","wikidata":"https://www.wikidata.org/wiki/Q8034851","display_name":"Workforce development","level":3,"score":0.26350000500679016},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.26159998774528503},{"id":"https://openalex.org/C2988170871","wikidata":"https://www.wikidata.org/wiki/Q11000047","display_name":"Healthcare system","level":3,"score":0.25929999351501465},{"id":"https://openalex.org/C2776480101","wikidata":"https://www.wikidata.org/wiki/Q3555250","display_name":"Disease surveillance","level":3,"score":0.25760000944137573},{"id":"https://openalex.org/C163432668","wikidata":"https://www.wikidata.org/wiki/Q623543","display_name":"Primary health care","level":3,"score":0.2533999979496002}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008498","descriptor_name":"Medical Record Linkage","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D008498","descriptor_name":"Medical Record Linkage","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D008498","descriptor_name":"Medical Record Linkage","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D008498","descriptor_name":"Medical Record Linkage","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012189","descriptor_name":"Retrospective Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012189","descriptor_name":"Retrospective Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012189","descriptor_name":"Retrospective Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012189","descriptor_name":"Retrospective Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014904","descriptor_name":"Western Australia","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D014904","descriptor_name":"Western Australia","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D014904","descriptor_name":"Western Australia","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D014904","descriptor_name":"Western Australia","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D015995","descriptor_name":"Prevalence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015995","descriptor_name":"Prevalence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015995","descriptor_name":"Prevalence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015995","descriptor_name":"Prevalence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D058006","descriptor_name":"General Practice","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D058006","descriptor_name":"General Practice","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D058006","descriptor_name":"General Practice","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D058006","descriptor_name":"General Practice","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true}],"locations_count":5,"locations":[{"id":"doi:10.1186/s12911-025-03244-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12911-025-03244-9","pdf_url":"https://bmcmedinformdecismak.biomedcentral.com/counter/pdf/10.1186/s12911-025-03244-9","source":{"id":"https://openalex.org/S107516304","display_name":"BMC Medical Informatics and Decision Making","issn_l":"1472-6947","issn":["1472-6947"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Medical Informatics and Decision Making","raw_type":"journal-article"},{"id":"pmid:41188863","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/41188863","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC medical informatics and decision making","raw_type":null},{"id":"pmh:oai:doaj.org/article:8d8ea378ed334f5ead1d2ed43424d4be","is_oa":true,"landing_page_url":"https://doaj.org/article/8d8ea378ed334f5ead1d2ed43424d4be","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"BMC Medical Informatics and Decision Making, Vol 25, Iss 1, Pp 1-9 (2025)","raw_type":"article"},{"id":"pmh:oai:europepmc.org:11393405","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/12584321","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"},{"id":"pmh:oai:figshare.com:article/30653213","is_oa":true,"landing_page_url":null,"pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Journal contribution"}],"best_oa_location":{"id":"doi:10.1186/s12911-025-03244-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12911-025-03244-9","pdf_url":"https://bmcmedinformdecismak.biomedcentral.com/counter/pdf/10.1186/s12911-025-03244-9","source":{"id":"https://openalex.org/S107516304","display_name":"BMC Medical Informatics and Decision Making","issn_l":"1472-6947","issn":["1472-6947"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Medical Informatics and Decision Making","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320315885","display_name":"Australian Government","ror":"https://ror.org/0314h5y94"},{"id":"https://openalex.org/F4320320987","display_name":"Curtin University of Technology","ror":"https://ror.org/02n415q13"},{"id":"https://openalex.org/F4320331512","display_name":"Western Australian Health Translation Network","ror":null}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4415848531.pdf","grobid_xml":"https://content.openalex.org/works/W4415848531.grobid-xml"},"referenced_works_count":27,"referenced_works":["https://openalex.org/W2029884206","https://openalex.org/W2088135134","https://openalex.org/W2166813746","https://openalex.org/W2581873580","https://openalex.org/W2594074262","https://openalex.org/W2601957977","https://openalex.org/W2775078427","https://openalex.org/W2802339509","https://openalex.org/W2924948118","https://openalex.org/W2973267506","https://openalex.org/W3101993492","https://openalex.org/W3104393610","https://openalex.org/W3123682539","https://openalex.org/W3194646829","https://openalex.org/W4206009022","https://openalex.org/W4211044753","https://openalex.org/W4213317678","https://openalex.org/W4220888755","https://openalex.org/W4298087642","https://openalex.org/W4366821693","https://openalex.org/W4385215724","https://openalex.org/W4389117633","https://openalex.org/W4399359726","https://openalex.org/W4399401254","https://openalex.org/W4403458694","https://openalex.org/W4404923010","https://openalex.org/W4408008777"],"related_works":[],"abstract_inverted_index":{"BACKGROUND:":[0],"General":[1],"practice":[2,68,81,150,235,322],"data":[3,15],"are":[4,42,274],"increasingly":[5],"used":[6,88],"to":[7,30,203,276,324],"estimate":[8],"chronic":[9,168,262],"disease":[10,263,270],"prevalence.":[11],"Concerns":[12],"remain":[13],"about":[14],"completeness":[16],"and":[17,45,103,128,142,161,179,245,255,311,331,335],"fragmentation,":[18],"particularly":[19],"when":[20,187,272],"patients":[21,34,99,146,153,190,288],"attend":[22],"multiple":[23],"practices.":[24],"Previous":[25],"studies":[26],"have":[27,299],"restricted":[28,275],"analyses":[29,188,273],"only":[31],"include":[32],"'active'":[33],"(frequent":[35],"clinical":[36,129,309],"encounters),":[37],"assuming":[38],"that":[39],"these":[40],"records":[41,69,92,236,249,279],"more":[43,199,258],"complete":[44,259],"representative;":[46],"however,":[47],"the":[48,61,72,94,116,143,212,266,317,326],"validity":[49],"of":[50,75,115,121,145,261,268,328],"this":[51],"approach":[52,74],"has":[53],"not":[54],"been":[55],"tested.":[56],"This":[57,84,281],"study":[58,87],"examines":[59],"whether":[60],"prevalence":[62,135,165,271,296,329],"estimated":[63],"from":[64,71,93,105,285],"patient-level":[65,196,216],"(linked)":[66],"general":[67,80,107,149,234,321],"differs":[70],"common":[73],"using":[76],"active":[77,228,277],"practice-level":[78,227],"(unlinked)":[79],"records.":[82],"METHODS:":[83],"retrospective":[85],"cohort":[86,140,197],"de-identified":[89],"electronic":[90],"health":[91],"MedicineInsight":[95],"dataset,":[96],"comprising":[97],"694,004":[98],"aged":[100],"18":[101],"years":[102],"older":[104],"39":[106],"practices":[108,251],"in":[109,233,295,339],"Western":[110],"Australia,":[111],"covering":[112],"approximately":[113],"32.7%":[114],"state's":[117],"adult":[118],"population":[119,243],"as":[120],"January":[122],"26,":[123],"2022.":[124],"Patient":[125],"demographics,":[126],"diagnoses,":[127],"encounters":[130,157],"were":[131],"analysed.":[132],"RESULTS:":[133],"Condition":[134],"estimates":[136,297,330],"vary":[137],"depending":[138],"on":[139,302],"definition":[141],"inclusion":[144],"with":[147,191,289],"low":[148],"engagement.":[151],"Active":[152],"had":[154],"higher":[155,163],"median":[156],"(9":[158],"vs.":[159,173,177,182],"4)":[160],"consistently":[162],"condition":[164],"across":[166,211,223,240,250],"all":[167],"diseases,":[169],"including":[170],"hypertension":[171],"(18.2%":[172],"11.6%),":[174],"diabetes":[175],"(7.0%":[176],"4.6%),":[178],"asthma":[180],"(11.3%":[181],"8.1%),":[183],"demonstrating":[184],"systematic":[185],"overestimation":[186,282],"exclude":[189],"lower":[192],"healthcare":[193,291],"utilisation.":[194],"The":[195],"captured":[198],"total":[200,208,220],"diagnoses":[201],"due":[202],"its":[204],"larger":[205],"denominator":[206],"(257,023":[207],"diagnosed":[209,221],"conditions":[210,222],"N":[213,224],"=":[214,225],"608,000":[215],"cohort,":[217],"versus":[218],"133,235":[219],"201,817":[226],"patients).":[229],"CONCLUSION:":[230],"Diagnostic":[231],"information":[232],"is":[237],"often":[238],"dispersed":[239],"practices,":[241],"affecting":[242,306],"planning":[244],"research.":[246],"Linking":[247],"patient":[248,278],"enhances":[252],"diagnostic":[253],"visibility":[254],"reveals":[256],"a":[257],"picture":[260],"burden,":[264],"highlighting":[265],"risk":[267],"overestimating":[269],"alone.":[280],"likely":[283],"results":[284],"excluding":[286],"healthier":[287],"fewer":[290],"encounters.":[292],"Small":[293],"differences":[294],"can":[298],"substantial":[300],"implications":[301],"population-level":[303],"planning,":[304],"potentially":[305],"funding":[307],"allocations,":[308],"guideline,":[310],"workforce":[312],"decisions.":[313],"These":[314],"findings":[315],"suggest":[316],"need":[318],"for":[319],"linked":[320],"datasets":[323],"improve":[325],"accuracy":[327],"inform":[332],"effective":[333],"policy":[334],"resource":[336],"allocation":[337],"decisions":[338],"primary":[340],"care.":[341]},"counts_by_year":[],"updated_date":"2026-05-06T08:25:59.206177","created_date":"2025-11-04T00:00:00"}