{"id":"https://openalex.org/W2105797771","doi":"https://doi.org/10.1186/2047-2501-2-4","title":"Traits and types of health data repositories","display_name":"Traits and types of health data repositories","publication_year":2014,"publication_date":"2014-06-30","ids":{"openalex":"https://openalex.org/W2105797771","doi":"https://doi.org/10.1186/2047-2501-2-4","mag":"2105797771","pmid":"https://pubmed.ncbi.nlm.nih.gov/25825668"},"language":"en","primary_location":{"id":"doi:10.1186/2047-2501-2-4","is_oa":true,"landing_page_url":"https://doi.org/10.1186/2047-2501-2-4","pdf_url":"https://link.springer.com/content/pdf/10.1186%2F2047-2501-2-4.pdf","source":{"id":"https://openalex.org/S4210178793","display_name":"Health Information Science and Systems","issn_l":"2047-2501","issn":["2047-2501"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Information Science and Systems","raw_type":"journal-article"},"type":"review","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://link.springer.com/content/pdf/10.1186%2F2047-2501-2-4.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5084097016","display_name":"Ted D. Wade","orcid":"https://orcid.org/0000-0002-4296-7143"},"institutions":[{"id":"https://openalex.org/I921990950","display_name":"University of Colorado Denver","ror":"https://ror.org/02hh7en24","country_code":"US","type":"education","lineage":["https://openalex.org/I921990950"]},{"id":"https://openalex.org/I3019586173","display_name":"National Jewish Health","ror":"https://ror.org/016z2bp30","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I3019586173"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Ted D Wade","raw_affiliation_strings":["Division of Biostatistics and Bioinformatics, National Jewish Health, Denver, CO 80206-2761 USA","Division of Biostatistics and Bioinformatics, National Jewish Health, Denver, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Biostatistics and Bioinformatics, National Jewish Health, Denver, CO 80206-2761 USA","institution_ids":[]},{"raw_affiliation_string":"Division of Biostatistics and Bioinformatics, National Jewish Health, Denver, USA","institution_ids":["https://openalex.org/I3019586173","https://openalex.org/I921990950"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5084097016"],"corresponding_institution_ids":["https://openalex.org/I3019586173","https://openalex.org/I921990950"],"apc_list":{"value":2790,"currency":"EUR","value_usd":3590},"apc_paid":{"value":2790,"currency":"EUR","value_usd":3590},"fwci":0.6563,"has_fulltext":true,"cited_by_count":22,"citation_normalized_percentile":{"value":0.76937442,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":98},"biblio":{"volume":"2","issue":"1","first_page":"4","last_page":"4"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9954000115394592,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9954000115394592,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11819","display_name":"Data-Driven Disease Surveillance","score":0.9945999979972839,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.9941999912261963,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/data-warehouse","display_name":"Data warehouse","score":0.6822134256362915},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.45110830664634705},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.44609150290489197},{"id":"https://openalex.org/keywords/population","display_name":"Population","score":0.42454245686531067},{"id":"https://openalex.org/keywords/institutional-research","display_name":"Institutional research","score":0.4175122082233429},{"id":"https://openalex.org/keywords/typology","display_name":"Typology","score":0.41574689745903015},{"id":"https://openalex.org/keywords/database","display_name":"Database","score":0.23335814476013184},{"id":"https://openalex.org/keywords/geography","display_name":"Geography","score":0.20354342460632324},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.17025130987167358},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.14305013418197632},{"id":"https://openalex.org/keywords/higher-education","display_name":"Higher education","score":0.1246919333934784}],"concepts":[{"id":"https://openalex.org/C135572916","wikidata":"https://www.wikidata.org/wiki/Q193351","display_name":"Data warehouse","level":2,"score":0.6822134256362915},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.45110830664634705},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.44609150290489197},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.42454245686531067},{"id":"https://openalex.org/C2777161012","wikidata":"https://www.wikidata.org/wiki/Q6041211","display_name":"Institutional research","level":3,"score":0.4175122082233429},{"id":"https://openalex.org/C75795011","wikidata":"https://www.wikidata.org/wiki/Q917904","display_name":"Typology","level":2,"score":0.41574689745903015},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.23335814476013184},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.20354342460632324},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.17025130987167358},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.14305013418197632},{"id":"https://openalex.org/C120912362","wikidata":"https://www.wikidata.org/wiki/Q136822","display_name":"Higher education","level":2,"score":0.1246919333934784},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1186/2047-2501-2-4","is_oa":true,"landing_page_url":"https://doi.org/10.1186/2047-2501-2-4","pdf_url":"https://link.springer.com/content/pdf/10.1186%2F2047-2501-2-4.pdf","source":{"id":"https://openalex.org/S4210178793","display_name":"Health Information Science and Systems","issn_l":"2047-2501","issn":["2047-2501"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Information Science and Systems","raw_type":"journal-article"},{"id":"pmid:25825668","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/25825668","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health information science and systems","raw_type":null},{"id":"pmh:oai:europepmc.org:3339435","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/4340801","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1186/2047-2501-2-4","is_oa":true,"landing_page_url":"https://doi.org/10.1186/2047-2501-2-4","pdf_url":"https://link.springer.com/content/pdf/10.1186%2F2047-2501-2-4.pdf","source":{"id":"https://openalex.org/S4210178793","display_name":"Health Information Science and Systems","issn_l":"2047-2501","issn":["2047-2501"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Information Science and Systems","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.49000000953674316,"display_name":"Partnerships for the goals","id":"https://metadata.un.org/sdg/17"}],"awards":[{"id":"https://openalex.org/G5967390910","display_name":null,"funder_award_id":"UL1RR025780","funder_id":"https://openalex.org/F4320332161","funder_display_name":"National Institutes of Health"},{"id":"https://openalex.org/G6986171645","display_name":null,"funder_award_id":"UL1 RR025780","funder_id":"https://openalex.org/F4320337375","funder_display_name":"National Center for Research Resources"}],"funders":[{"id":"https://openalex.org/F4320313443","display_name":"National Jewish Health","ror":"https://ror.org/016z2bp30"},{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337375","display_name":"National Center for Research Resources","ror":"https://ror.org/04pw6fb54"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2105797771.pdf","grobid_xml":"https://content.openalex.org/works/W2105797771.grobid-xml"},"referenced_works_count":33,"referenced_works":["https://openalex.org/W139985339","https://openalex.org/W155462512","https://openalex.org/W156393264","https://openalex.org/W1498129555","https://openalex.org/W1536826708","https://openalex.org/W1568079082","https://openalex.org/W1835259194","https://openalex.org/W1969772201","https://openalex.org/W1984789788","https://openalex.org/W2006872004","https://openalex.org/W2027867013","https://openalex.org/W2032991527","https://openalex.org/W2046607138","https://openalex.org/W2080422995","https://openalex.org/W2081432109","https://openalex.org/W2090226269","https://openalex.org/W2092970016","https://openalex.org/W2098915901","https://openalex.org/W2102729801","https://openalex.org/W2104608657","https://openalex.org/W2105752956","https://openalex.org/W2109914026","https://openalex.org/W2117239687","https://openalex.org/W2119002393","https://openalex.org/W2124972954","https://openalex.org/W2134256069","https://openalex.org/W2135490708","https://openalex.org/W2138278593","https://openalex.org/W2151868700","https://openalex.org/W2152741971","https://openalex.org/W2154362705","https://openalex.org/W2332306208","https://openalex.org/W2400968868"],"related_works":["https://openalex.org/W2241143171","https://openalex.org/W3212604275","https://openalex.org/W4210715198","https://openalex.org/W4298181027","https://openalex.org/W654341863","https://openalex.org/W4291712895","https://openalex.org/W1904057732","https://openalex.org/W3170213355","https://openalex.org/W2172189869","https://openalex.org/W2152151412"],"abstract_inverted_index":{"We":[0],"review":[1],"traits":[2],"of":[3,11,17,21,40,107,113,143,150,157,204,221],"reusable":[4],"clinical":[5,12,22,77],"data":[6,23,45,58,82,88,93,130,158,199,223,231],"and":[7,42,52,90,110,167,176],"offer":[8],"a":[9,15,87,96,140,201,226],"typology":[10],"repositories":[13],"with":[14],"range":[16],"known":[18],"examples.":[19],"Sources":[20],"suitable":[24],"for":[25,182],"research":[26,50,69,183],"can":[27,115,171],"be":[28,116,172],"classified":[29],"into":[30],"types":[31],"reflecting":[32],"the":[33,146,219],"data's":[34],"institutional":[35,73],"origin,":[36],"original":[37,92],"purpose,":[38],"level":[39,106,142],"integration":[41],"governance.":[43],"Primary":[44],"nearly":[46],"always":[47],"come":[48],"from":[49,83],"studies":[51],"electronic":[53],"medical":[54],"records.":[55],"Registries":[56],"collect":[57],"on":[59,200,218],"focused":[60],"populations":[61,160,170],"primarily":[62],"to":[63,228],"track":[64],"outcomes,":[65],"often":[66],"using":[67],"observational":[68],"methods.":[70],"Warehouses":[71],"are":[72,102,122,164,209],"information":[74],"utilities":[75],"repackaging":[76],"care":[78],"data.":[79],"Collections":[80],"organize":[81],"more":[84,91],"organizations":[85],"than":[86,95,118],"warehouse,":[89],"sources":[94],"registry.":[97],"Therefore":[98],"even":[99],"if":[100],"they":[101],"heavily":[103],"curated,":[104],"their":[105,230],"internal":[108],"integration,":[109],"thus":[111],"ease":[112],"use,":[114],"less":[117],"other":[119],"types.":[120],"Federations":[121,136],"like":[123],"collections":[124],"except":[125],"that":[126],"physical":[127],"control":[128],"over":[129,161],"is":[131],"distributed":[132],"among":[133],"donor":[134],"organizations.":[135],"sometimes":[137],"federate,":[138],"giving":[139],"second":[141],"organization.":[144],"While":[145],"size,":[147],"in":[148,174],"number":[149],"patients,":[151],"varies":[152],"widely":[153],"within":[154],"each":[155],"type":[156],"source,":[159],"10":[162],"K":[163],"relatively":[165],"numerous,":[166],"much":[168],"larger":[169],"seen":[173],"warehouses":[175],"federations.":[177],"One":[178],"imagined":[179],"ideal":[180],"structure":[181],"progress":[184],"has":[185],"been":[186],"called":[187],"an":[188],"\"Information":[189],"Commons\".":[190],"It":[191],"would":[192,213],"have":[193],"longitudinal,":[194],"multi-leveled":[195],"(environmental":[196],"through":[197],"molecular)":[198],"large":[202],"population":[203],"identified,":[205],"consenting":[206],"individuals.":[207],"These":[208],"qualities":[210],"whose":[211],"achievement":[212],"require":[214],"long":[215],"term":[216],"commitment":[217],"part":[220],"many":[222],"donors,":[224],"including":[225],"willingness":[227],"make":[229],"public.":[232]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":5},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":1},{"year":2016,"cited_by_count":2}],"updated_date":"2026-06-24T13:16:06.693445","created_date":"2025-10-10T00:00:00"}