{"id":"https://openalex.org/W2135231103","doi":"https://doi.org/10.1186/1472-6947-4-13","title":"Feasibility of a patient decision aid regarding disclosure of personal health information: qualitative evaluation of the Health Care Information Directive","display_name":"Feasibility of a patient decision aid regarding disclosure of personal health information: qualitative evaluation of the Health Care Information Directive","publication_year":2004,"publication_date":"2004-09-10","ids":{"openalex":"https://openalex.org/W2135231103","doi":"https://doi.org/10.1186/1472-6947-4-13","mag":"2135231103","pmid":"https://pubmed.ncbi.nlm.nih.gov/15361257"},"language":"en","primary_location":{"id":"doi:10.1186/1472-6947-4-13","is_oa":true,"landing_page_url":"https://doi.org/10.1186/1472-6947-4-13","pdf_url":"https://bmcmedinformdecismak.biomedcentral.com/track/pdf/10.1186/1472-6947-4-13","source":{"id":"https://openalex.org/S107516304","display_name":"BMC Medical Informatics and Decision Making","issn_l":"1472-6947","issn":["1472-6947"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Medical Informatics and Decision Making","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://bmcmedinformdecismak.biomedcentral.com/track/pdf/10.1186/1472-6947-4-13","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5109193352","display_name":"C. Shawn Tracy","orcid":null},"institutions":[{"id":"https://openalex.org/I2802362269","display_name":"Health Sciences Centre","ror":"https://ror.org/05pr37258","country_code":"CA","type":"funder","lineage":["https://openalex.org/I110535807","https://openalex.org/I2802362269"]},{"id":"https://openalex.org/I1323843004","display_name":"Sunnybrook Health Science Centre","ror":"https://ror.org/03wefcv03","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1323843004"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"C Shawn Tracy","raw_affiliation_strings":["Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre 2075 Bayview Avenue, Room E3-49 Toronto, ON M4N 3M5 Canada. shawn.tracy@sw.ca","Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, Toronto, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre 2075 Bayview Avenue, Room E3-49 Toronto, ON M4N 3M5 Canada. shawn.tracy@sw.ca","institution_ids":["https://openalex.org/I1323843004"]},{"raw_affiliation_string":"Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, Toronto, Canada","institution_ids":["https://openalex.org/I2802362269","https://openalex.org/I1323843004"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5024003812","display_name":"Guilherme Coelho Dantas","orcid":"https://orcid.org/0000-0002-9584-901X"},"institutions":[{"id":"https://openalex.org/I1323843004","display_name":"Sunnybrook Health Science Centre","ror":"https://ror.org/03wefcv03","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1323843004"]},{"id":"https://openalex.org/I2802362269","display_name":"Health Sciences Centre","ror":"https://ror.org/05pr37258","country_code":"CA","type":"funder","lineage":["https://openalex.org/I110535807","https://openalex.org/I2802362269"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Guilherme Coelho Dantas","raw_affiliation_strings":["Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, 2075 Bayview Avenue, Room, E3-49, Toronto, ON, M4N 3M5, Canada","Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, Toronto, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, 2075 Bayview Avenue, Room, E3-49, Toronto, ON, M4N 3M5, Canada","institution_ids":["https://openalex.org/I2802362269","https://openalex.org/I1323843004"]},{"raw_affiliation_string":"Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, Toronto, Canada","institution_ids":["https://openalex.org/I2802362269","https://openalex.org/I1323843004"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5055101693","display_name":"Ross Upshur","orcid":"https://orcid.org/0000-0003-1128-0557"},"institutions":[{"id":"https://openalex.org/I1323843004","display_name":"Sunnybrook Health Science Centre","ror":"https://ror.org/03wefcv03","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1323843004"]},{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]},{"id":"https://openalex.org/I4210155638","display_name":"Department of Public Health","ror":"https://ror.org/04thj7y95","country_code":"US","type":"government","lineage":["https://openalex.org/I4210155638"]},{"id":"https://openalex.org/I2802362269","display_name":"Health Sciences Centre","ror":"https://ror.org/05pr37258","country_code":"CA","type":"funder","lineage":["https://openalex.org/I110535807","https://openalex.org/I2802362269"]}],"countries":["CA","US"],"is_corresponding":false,"raw_author_name":"Ross EG Upshur","raw_affiliation_strings":["Department of Family and Community Medicine, University of Toronto, 257 McCaul Street, 2nd Floor, Toronto, ON, M5T 2W5, Canada","Department of Public Health Sciences, University of Toronto McMurrich Building, 12 Queen's Park Crescent West, Toronto, ON, M5S 1A8, Canada","Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, 2075 Bayview Avenue, Room, E3-49, Toronto, ON, M4N 3M5, Canada","Department of Public Health Sciences, University of Toronto McMurrich Building, Toronto, Canada","Primary Care Research Unit, Sunnybrook & Women's College Health Sciences Centre, Toronto, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Family and Community Medicine, University of Toronto, 257 McCaul Street, 2nd Floor, Toronto, ON, M5T 2W5, Canada","institution_ids":["https://openalex.org/I185261750"]},{"raw_affiliation_string":"Department of Public Health Sciences, University of Toronto McMurrich Building, 12 Queen's Park Crescent West, Toronto, ON, M5S 1A8, Canada","institution_ids":["https://openalex.org/I4210155638"]},{"raw_affiliation_string":"Primary Care Research Unit, Sunnybrook and Women's College Health Sciences Centre, 2075 Bayview Avenue, Room, E3-49, Toronto, ON, M4N 3M5, Canada","institution_ids":["https://openalex.org/I2802362269","https://openalex.org/I1323843004"]},{"raw_affiliation_string":"Department of Public Health Sciences, University of Toronto McMurrich Building, Toronto, Canada","institution_ids":["https://openalex.org/I185261750"]},{"raw_affiliation_string":"Primary Care Research Unit, Sunnybrook & Women's College Health Sciences Centre, Toronto, Canada","institution_ids":["https://openalex.org/I2802362269","https://openalex.org/I1323843004"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5109193352"],"corresponding_institution_ids":["https://openalex.org/I1323843004","https://openalex.org/I2802362269"],"apc_list":{"value":1570,"currency":"GBP","value_usd":1925},"apc_paid":{"value":1570,"currency":"GBP","value_usd":1925},"fwci":0.8232,"has_fulltext":true,"cited_by_count":23,"citation_normalized_percentile":{"value":0.82889364,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":96},"biblio":{"volume":"4","issue":"1","first_page":"13","last_page":"13"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.2980000078678131,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.2980000078678131,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13048","display_name":"Patient Dignity and Privacy","score":0.164900004863739,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11678","display_name":"Healthcare Decision-Making and Restraints","score":0.07609999924898148,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/health-informatics","display_name":"Health informatics","score":0.8097108602523804},{"id":"https://openalex.org/keywords/directive","display_name":"Directive","score":0.7668137550354004},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5719998478889465},{"id":"https://openalex.org/keywords/health-information","display_name":"Health information","score":0.4837644100189209},{"id":"https://openalex.org/keywords/health-information-exchange","display_name":"Health information exchange","score":0.43376290798187256},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.42186859250068665},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.3996400237083435},{"id":"https://openalex.org/keywords/public-health","display_name":"Public health","score":0.25119179487228394},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.24607941508293152},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.10226526856422424}],"concepts":[{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.8097108602523804},{"id":"https://openalex.org/C2779547435","wikidata":"https://www.wikidata.org/wiki/Q1121492","display_name":"Directive","level":2,"score":0.7668137550354004},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5719998478889465},{"id":"https://openalex.org/C2982795734","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health information","level":3,"score":0.4837644100189209},{"id":"https://openalex.org/C2778759051","wikidata":"https://www.wikidata.org/wiki/Q5691085","display_name":"Health information exchange","level":4,"score":0.43376290798187256},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.42186859250068665},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3996400237083435},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.25119179487228394},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.24607941508293152},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.10226526856422424},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003661","descriptor_name":"Decision Support Techniques","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003661","descriptor_name":"Decision Support Techniques","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003661","descriptor_name":"Decision Support Techniques","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005240","descriptor_name":"Feasibility Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005240","descriptor_name":"Feasibility Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005240","descriptor_name":"Feasibility Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007722","descriptor_name":"Health Knowledge, Attitudes, Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009864","descriptor_name":"Ontario","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009864","descriptor_name":"Ontario","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009864","descriptor_name":"Ontario","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010353","descriptor_name":"Patient Education as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010353","descriptor_name":"Patient Education as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010353","descriptor_name":"Patient Education as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D014505","descriptor_name":"Urban Population","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014505","descriptor_name":"Urban Population","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014505","descriptor_name":"Urban Population","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D022126","descriptor_name":"Access to Information","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D022126","descriptor_name":"Access to Information","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D022126","descriptor_name":"Access to Information","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D026684","descriptor_name":"Personal Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D026684","descriptor_name":"Personal Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D026684","descriptor_name":"Personal Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030881","descriptor_name":"Disclosure","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030881","descriptor_name":"Disclosure","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030881","descriptor_name":"Disclosure","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D035502","descriptor_name":"Trust","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D035502","descriptor_name":"Trust","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D035502","descriptor_name":"Trust","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":9,"locations":[{"id":"doi:10.1186/1472-6947-4-13","is_oa":true,"landing_page_url":"https://doi.org/10.1186/1472-6947-4-13","pdf_url":"https://bmcmedinformdecismak.biomedcentral.com/track/pdf/10.1186/1472-6947-4-13","source":{"id":"https://openalex.org/S107516304","display_name":"BMC Medical Informatics and Decision Making","issn_l":"1472-6947","issn":["1472-6947"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Medical Informatics and Decision Making","raw_type":"journal-article"},{"id":"pmid:15361257","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15361257","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC medical informatics and decision making","raw_type":null},{"id":"pmh:oai:utoronto.scholaris.ca:1807/84191","is_oa":true,"landing_page_url":"http://hdl.handle.net/1807/84191","pdf_url":"https://utoronto.scholaris.ca/bitstreams/a69f9452-3dfc-485b-8529-e6cdc5d6958b/download","source":{"id":"https://openalex.org/S7407055458","display_name":"TSpace","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Article"},{"id":"pmh:oai:doaj.org/article:b31ecd1f5212454699db7b69b63f8f1c","is_oa":false,"landing_page_url":"https://doaj.org/article/b31ecd1f5212454699db7b69b63f8f1c","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"BMC Medical Informatics and Decision Making, Vol 4, Iss 1, p 13 (2004)","raw_type":"article"},{"id":"pmh:oai:europepmc.org:103114","is_oa":false,"landing_page_url":"http://europepmc.org/pmc/articles/PMC518970","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Text"},{"id":"pmh:oai:localhost:1807/17034","is_oa":true,"landing_page_url":"http://hdl.handle.net/1807/17034","pdf_url":null,"source":{"id":"https://openalex.org/S4306400261","display_name":"TSpace (University of Toronto)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I185261750","host_organization_name":"University of Toronto","host_organization_lineage":["https://openalex.org/I185261750"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":""},{"id":"pmh:oai:localhost:1807/84191","is_oa":false,"landing_page_url":"http://doi.org/10.1186/1472-6947-4-13","pdf_url":null,"source":{"id":"https://openalex.org/S4306400261","display_name":"TSpace (University of Toronto)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I185261750","host_organization_name":"University of Toronto","host_organization_lineage":["https://openalex.org/I185261750"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:518970","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/518970","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"BMC Med Inform Decis Mak","raw_type":"Text"},{"id":"pmh:oai:repository.library.georgetown.edu:10822/995515","is_oa":false,"landing_page_url":"http://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Feasibility+of+a+patient+decision+aid+regarding+disclosure+of+personal+health+information:+qualitative+evaluation+of+the+Health+Care+Information+Directive&title=BMC+Health+Services+Research+&volume=4&issue=1&spage=http://biomedcentral.com/1472-6963/4/13&date=2004&au=Tracy,+C.+Shawn;+Dantas,+Guilherme+Coelho;+Upshur,+Ross+E.G.","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"eweb:266308","raw_type":""}],"best_oa_location":{"id":"doi:10.1186/1472-6947-4-13","is_oa":true,"landing_page_url":"https://doi.org/10.1186/1472-6947-4-13","pdf_url":"https://bmcmedinformdecismak.biomedcentral.com/track/pdf/10.1186/1472-6947-4-13","source":{"id":"https://openalex.org/S107516304","display_name":"BMC Medical Informatics and Decision Making","issn_l":"1472-6947","issn":["1472-6947"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Medical Informatics and Decision Making","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/1","display_name":"No poverty","score":0.4300000071525574}],"awards":[],"funders":[{"id":"https://openalex.org/F4320321716","display_name":"Industry Canada","ror":"https://ror.org/03zp01h17"},{"id":"https://openalex.org/F4320322015","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087"},{"id":"https://openalex.org/F4320334392","display_name":"Health Canada","ror":"https://ror.org/05p8nb362"},{"id":"https://openalex.org/F4320334506","display_name":"Canadian Institutes of Health Research","ror":"https://ror.org/01gavpb45"},{"id":"https://openalex.org/F4320335299","display_name":"Department of Family and Community Medicine, University of Toronto","ror":"https://ror.org/03dbr7087"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2135231103.pdf","grobid_xml":"https://content.openalex.org/works/W2135231103.grobid-xml"},"referenced_works_count":21,"referenced_works":["https://openalex.org/W15191234","https://openalex.org/W1529983430","https://openalex.org/W1833439641","https://openalex.org/W1932448580","https://openalex.org/W1992235944","https://openalex.org/W2020859361","https://openalex.org/W2035028841","https://openalex.org/W2050099640","https://openalex.org/W2068771544","https://openalex.org/W2069351201","https://openalex.org/W2069756413","https://openalex.org/W2073461195","https://openalex.org/W2075091874","https://openalex.org/W2079212417","https://openalex.org/W2111048564","https://openalex.org/W2133645359","https://openalex.org/W2134717397","https://openalex.org/W2135852187","https://openalex.org/W2171041514","https://openalex.org/W2396617087","https://openalex.org/W4299823277"],"related_works":["https://openalex.org/W2029176015","https://openalex.org/W2004643146","https://openalex.org/W2032445269","https://openalex.org/W2118565390","https://openalex.org/W4292253180","https://openalex.org/W2605266677","https://openalex.org/W1546520133","https://openalex.org/W2287832629","https://openalex.org/W3128619913","https://openalex.org/W2472981111"],"abstract_inverted_index":{"BACKGROUND:":[0],"Concerns":[1],"regarding":[2,131,178],"the":[3,13,26,30,36,50,65,132,158,179,185,197,210,230],"privacy":[4],"of":[5,16,32,38,44,67,81,96,136,160,181,200,212],"health":[6,68,103,138,201,214,236],"information":[7,17,69,146],"are":[8],"escalating":[9],"owing":[10],"both":[11],"to":[12,19,25,34,48,63,74,163,172,196,232],"growing":[14],"use":[15,37,159],"technology":[18],"store":[20],"and":[21,24,99,111,134,150,169,220],"exchange":[22],"data":[23,161],"increasing":[27],"demand":[28],"on":[29],"part":[31],"patients":[33],"control":[35,234],"their":[39,145,173],"medical":[40],"records.":[41],"The":[42],"objective":[43],"this":[45],"study":[46,205],"was":[47],"evaluate":[49],"Health":[51],"Care":[52],"Information":[53],"Directive":[54],"(HCID),":[55],"a":[56,79,90,117,182,191,224],"recently-developed":[57],"patient":[58,225],"decision":[59,226],"aid":[60,227],"that":[61,190],"aims":[62],"delineate":[64],"level":[66],"an":[70],"individual":[71],"is":[72],"willing":[73],"share.":[75],"METHODS:":[76],"We":[77],"convened":[78],"series":[80],"four":[82],"focus":[83],"group":[84],"meetings":[85],"with":[86],"several":[87],"communities":[88],"in":[89],"large":[91],"Canadian":[92],"city.":[93],"A":[94],"total":[95],"28":[97],"men":[98],"women":[100],"participated,":[101],"representing":[102],"care":[104],"consumer":[105],"advocates,":[106],"urban":[107],"professionals,":[108],"senior":[109],"citizens,":[110],"immigrants":[112],"who":[113],"speak":[114],"English":[115],"as":[116,229],"second":[118],"language.":[119],"Data":[120],"were":[121,154,188],"analysed":[122],"using":[123],"qualitative":[124],"methods.":[125],"RESULTS:":[126],"Participants":[127],"lacked":[128],"substantial":[129],"knowledge":[130,208],"fate":[133],"uses":[135,211],"personal":[137,213],"information.":[139,202],"They":[140],"expressed":[141],"mistrust":[142],"concerning":[143,209,217],"how":[144],"will":[147],"be":[148],"used":[149],"protected.":[151],"Several":[152],"suggestions":[153],"made":[155],"towards":[156],"customizing":[157],"according":[162],"specific":[164],"needs":[165],"rather":[166],"than":[167],"broad":[168],"full":[170],"access":[171],"charts.":[174],"Furthermore,":[175],"despite":[176],"concern":[177],"implementation":[180],"tool":[183],"like":[184],"HCID,":[186],"participants":[187],"hopeful":[189],"refined":[192],"instrument":[193],"could":[194],"contribute":[195],"improved":[198],"regulation":[199],"CONCLUSION:":[203],"This":[204],"indicated":[206],"poor":[207],"information,":[215],"distrust":[216],"security":[218],"provisions,":[219],"cautious":[221],"support":[222],"for":[223],"such":[228],"HCID":[231],"improve":[233],"over":[235],"data.":[237]},"counts_by_year":[{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2020,"cited_by_count":2},{"year":2019,"cited_by_count":1},{"year":2018,"cited_by_count":1},{"year":2015,"cited_by_count":2},{"year":2014,"cited_by_count":1},{"year":2013,"cited_by_count":2}],"updated_date":"2026-05-06T08:25:59.206177","created_date":"2025-10-10T00:00:00"}