{"id":"https://openalex.org/W4411809767","doi":"https://doi.org/10.1177/20539517251352815","title":"The ethics of data interoperability: Mapping problems and strategies in biomedical data and beyond","display_name":"The ethics of data interoperability: Mapping problems and strategies in biomedical data and beyond","publication_year":2025,"publication_date":"2025-06-01","ids":{"openalex":"https://openalex.org/W4411809767","doi":"https://doi.org/10.1177/20539517251352815"},"language":"en","primary_location":{"id":"doi:10.1177/20539517251352815","is_oa":true,"landing_page_url":"https://doi.org/10.1177/20539517251352815","pdf_url":null,"source":{"id":"https://openalex.org/S2736409588","display_name":"Big Data & Society","issn_l":"2053-9517","issn":["2053-9517"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Big Data & Society","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1177/20539517251352815","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5114100452","display_name":"A L Caplan","orcid":"https://orcid.org/0000-0002-2927-5273"},"institutions":[{"id":"https://openalex.org/I181233156","display_name":"University of Oregon","ror":"https://ror.org/0293rh119","country_code":"US","type":"education","lineage":["https://openalex.org/I181233156"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Asher Brandon Caplan","raw_affiliation_strings":["University of Oregon","Department of Philosophy, University of Oregon, Eugene, Oregon, USA"],"raw_orcid":"https://orcid.org/0000-0002-2927-5273","affiliations":[{"raw_affiliation_string":"University of Oregon","institution_ids":[]},{"raw_affiliation_string":"Department of Philosophy, University of Oregon, Eugene, Oregon, USA","institution_ids":["https://openalex.org/I181233156"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5054037487","display_name":"Colin Koopman","orcid":"https://orcid.org/0000-0003-0354-7522"},"institutions":[{"id":"https://openalex.org/I181233156","display_name":"University of Oregon","ror":"https://ror.org/0293rh119","country_code":"US","type":"education","lineage":["https://openalex.org/I181233156"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Colin Koopman","raw_affiliation_strings":["University of Oregon","Department of Philosophy, University of Oregon, Eugene, Oregon, USA"],"raw_orcid":"https://orcid.org/0000-0003-0354-7522","affiliations":[{"raw_affiliation_string":"University of Oregon","institution_ids":[]},{"raw_affiliation_string":"Department of Philosophy, University of Oregon, Eugene, Oregon, USA","institution_ids":["https://openalex.org/I181233156"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5114100452"],"corresponding_institution_ids":["https://openalex.org/I181233156"],"apc_list":{"value":800,"currency":"USD","value_usd":800},"apc_paid":{"value":800,"currency":"USD","value_usd":800},"fwci":0.9651,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.80072607,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":98,"max":99},"biblio":{"volume":"12","issue":"2","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.9947999715805054,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.9947999715805054,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9797999858856201,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13280","display_name":"Biomedical and Engineering Education","score":0.947700023651123,"subfield":{"id":"https://openalex.org/subfields/2204","display_name":"Biomedical Engineering"},"field":{"id":"https://openalex.org/fields/22","display_name":"Engineering"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/interoperability","display_name":"Interoperability","score":0.6118769645690918},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.5040287375450134},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.43521246314048767},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.39954620599746704},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.34746381640434265},{"id":"https://openalex.org/keywords/engineering-ethics","display_name":"Engineering ethics","score":0.3459882438182831},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.19412899017333984},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.15923592448234558}],"concepts":[{"id":"https://openalex.org/C20136886","wikidata":"https://www.wikidata.org/wiki/Q749647","display_name":"Interoperability","level":2,"score":0.6118769645690918},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.5040287375450134},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.43521246314048767},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.39954620599746704},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.34746381640434265},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.3459882438182831},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.19412899017333984},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.15923592448234558}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1177/20539517251352815","is_oa":true,"landing_page_url":"https://doi.org/10.1177/20539517251352815","pdf_url":null,"source":{"id":"https://openalex.org/S2736409588","display_name":"Big Data & Society","issn_l":"2053-9517","issn":["2053-9517"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Big Data & Society","raw_type":"journal-article"},{"id":"pmh:oai:doaj.org/article:b9b7b279905b41cf85e1f3aa0cd2bba6","is_oa":true,"landing_page_url":"https://doaj.org/article/b9b7b279905b41cf85e1f3aa0cd2bba6","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Big Data & Society, Vol 12 (2025)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1177/20539517251352815","is_oa":true,"landing_page_url":"https://doi.org/10.1177/20539517251352815","pdf_url":null,"source":{"id":"https://openalex.org/S2736409588","display_name":"Big Data & Society","issn_l":"2053-9517","issn":["2053-9517"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Big Data & Society","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320306100","display_name":"National Endowment for the Humanities","ror":"https://ror.org/02vdm1p28"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":69,"referenced_works":["https://openalex.org/W9610398","https://openalex.org/W320587423","https://openalex.org/W1966693455","https://openalex.org/W1979471136","https://openalex.org/W2040354723","https://openalex.org/W2050638275","https://openalex.org/W2067535711","https://openalex.org/W2093083435","https://openalex.org/W2132311479","https://openalex.org/W2155354890","https://openalex.org/W2165067028","https://openalex.org/W2168610667","https://openalex.org/W2185308952","https://openalex.org/W2260653943","https://openalex.org/W2269138787","https://openalex.org/W2293240009","https://openalex.org/W2414426160","https://openalex.org/W2489541593","https://openalex.org/W2594787922","https://openalex.org/W2614528974","https://openalex.org/W2767072682","https://openalex.org/W2768481906","https://openalex.org/W2785451497","https://openalex.org/W2796716809","https://openalex.org/W2888109941","https://openalex.org/W2891242909","https://openalex.org/W2939104293","https://openalex.org/W2941985495","https://openalex.org/W2950178552","https://openalex.org/W3023990047","https://openalex.org/W3030601289","https://openalex.org/W3034395054","https://openalex.org/W3040683733","https://openalex.org/W3044550747","https://openalex.org/W3045649240","https://openalex.org/W3045904206","https://openalex.org/W3095849054","https://openalex.org/W3108105561","https://openalex.org/W3121476363","https://openalex.org/W3123940206","https://openalex.org/W3125558515","https://openalex.org/W3126881242","https://openalex.org/W3128789686","https://openalex.org/W3168799536","https://openalex.org/W3173693863","https://openalex.org/W3183603840","https://openalex.org/W3195144758","https://openalex.org/W3196520174","https://openalex.org/W4210255269","https://openalex.org/W4213439731","https://openalex.org/W4223506650","https://openalex.org/W4224279156","https://openalex.org/W4234012931","https://openalex.org/W4235633549","https://openalex.org/W4246517853","https://openalex.org/W4247939274","https://openalex.org/W4249194216","https://openalex.org/W4249373201","https://openalex.org/W4251395411","https://openalex.org/W4281723863","https://openalex.org/W4295800923","https://openalex.org/W4298315136","https://openalex.org/W4309619003","https://openalex.org/W4312663109","https://openalex.org/W4317904523","https://openalex.org/W4405810157","https://openalex.org/W6734711069","https://openalex.org/W6737387012","https://openalex.org/W6749630143"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W2093262417","https://openalex.org/W4312626803","https://openalex.org/W2123131699","https://openalex.org/W650116260","https://openalex.org/W2378329187","https://openalex.org/W4390790060","https://openalex.org/W2134191509"],"abstract_inverted_index":{"Data":[0,39],"interoperability":[1,21,40,68,107,128,153],"poses":[2,69],"unique":[3],"ethical":[4,73,85,123],"challenges":[5],"across":[6],"a":[7,70,109,132],"range":[8],"of":[9,15,25,62,72,92,117,152],"academic,":[10],"industrial,":[11],"and":[12,27,53,130,149,165],"governmental":[13],"implementations":[14],"data":[16,20,33,63,94,106,118,163,167],"systems.":[17],"Central":[18],"to":[19,83,134,146],"is":[22,41],"the":[23,93,121],"design":[24],"systems":[26],"protocols":[28],"for":[29,46,58,64],"exchanging":[30],"or":[31,101],"integrating":[32],"from":[34],"different":[35,51],"initial":[36],"source":[37],"domains.":[38],"often":[42],"regarded":[43],"as":[44,55,57,98,108],"necessary":[45],"carrying":[47],"out":[48],"tasks":[49],"between":[50],"organizations":[52],"suborganizations":[54],"well":[56],"ensuring":[59],"secondary":[60],"use":[61],"research":[65],"purposes.":[66],"However,":[67],"number":[71],"problems":[74,136],"whose":[75],"contours":[76],"can":[77],"prove":[78],"especially":[79],"challenging":[80],"in":[81,141],"comparison":[82],"how":[84],"harms":[86,124,151],"take":[87],"hold":[88],"at":[89],"other":[90],"moments":[91],"life":[95],"cycle":[96],"(such":[97],"algorithmic":[99],"processing":[100],"results":[102],"dissemination).":[103],"Taking":[104],"biomedical":[105],"focal":[110],"domain,":[111],"this":[112],"article":[113],"provides":[114],"an":[115,138],"overview":[116],"interoperability,":[119],"maps":[120],"central":[122],"that":[125],"may":[126],"challenge":[127],"projects,":[129],"proposes":[131],"response":[133],"these":[135],"through":[137,156],"approach":[139],"rooted":[140],"philosophical":[142],"pragmatism.":[143],"Pragmatist":[144],"responses":[145],"both":[147],"individual":[148],"structural":[150],"are":[154],"presented":[155],"three":[157],"companion":[158],"strategies:":[159],"shared":[160],"standards,":[161],"manual":[162],"curation,":[164],"meticulous":[166],"documentation.":[168]},"counts_by_year":[{"year":2026,"cited_by_count":2}],"updated_date":"2026-05-23T08:51:43.019350","created_date":"2025-10-10T00:00:00"}