{"id":"https://openalex.org/W4317208168","doi":"https://doi.org/10.1177/14604582231152185","title":"Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare","display_name":"Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare","publication_year":2023,"publication_date":"2023-01-01","ids":{"openalex":"https://openalex.org/W4317208168","doi":"https://doi.org/10.1177/14604582231152185","pmid":"https://pubmed.ncbi.nlm.nih.gov/36651319"},"language":"en","primary_location":{"id":"doi:10.1177/14604582231152185","is_oa":true,"landing_page_url":"https://doi.org/10.1177/14604582231152185","pdf_url":"https://journals.sagepub.com/doi/pdf/10.1177/14604582231152185","source":{"id":"https://openalex.org/S201800618","display_name":"Health Informatics Journal","issn_l":"1460-4582","issn":["1460-4582","1741-2811"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Informatics Journal","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://journals.sagepub.com/doi/pdf/10.1177/14604582231152185","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5067111439","display_name":"Lasse Parvinen","orcid":"https://orcid.org/0000-0002-0549-5239"},"institutions":[{"id":"https://openalex.org/I130217899","display_name":"\u00c5bo Akademi University","ror":"https://ror.org/029pk6x14","country_code":"FI","type":"education","lineage":["https://openalex.org/I130217899"]}],"countries":["FI"],"is_corresponding":true,"raw_author_name":"Lasse Parvinen","raw_affiliation_strings":["\u00c5bo Akademi University","Faculty of Science and Engineering, Laboratory of Industrial Management Finland, \u00c5bo Akademi University, Turku, Finland"],"raw_orcid":"https://orcid.org/0000-0002-0549-5239","affiliations":[{"raw_affiliation_string":"\u00c5bo Akademi University","institution_ids":["https://openalex.org/I130217899"]},{"raw_affiliation_string":"Faculty of Science and Engineering, Laboratory of Industrial Management Finland, \u00c5bo Akademi University, Turku, Finland","institution_ids":["https://openalex.org/I130217899"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082489672","display_name":"Ari Alam\u00e4ki","orcid":"https://orcid.org/0000-0003-4525-8243"},"institutions":[{"id":"https://openalex.org/I38186990","display_name":"Haaga-Helia University of Applied Sciences","ror":"https://ror.org/05cqf4668","country_code":"FI","type":"education","lineage":["https://openalex.org/I38186990"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Ari Alam\u00e4ki","raw_affiliation_strings":["Haaga-Helia University of Applied Sciences","Haaga-Helia University of Applied Sciences, Helsinki, Finland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Haaga-Helia University of Applied Sciences","institution_ids":["https://openalex.org/I38186990"]},{"raw_affiliation_string":"Haaga-Helia University of Applied Sciences, Helsinki, Finland","institution_ids":["https://openalex.org/I38186990"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5005174878","display_name":"Heli Hallikainen","orcid":"https://orcid.org/0000-0002-6908-2898"},"institutions":[{"id":"https://openalex.org/I175532246","display_name":"University of Eastern Finland","ror":"https://ror.org/00cyydd11","country_code":"FI","type":"education","lineage":["https://openalex.org/I175532246"]},{"id":"https://openalex.org/I4210107997","display_name":"Finland University","ror":"https://ror.org/014rks409","country_code":"FI","type":"education","lineage":["https://openalex.org/I4210107997"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Heli Hallikainen","raw_affiliation_strings":["University of Eastern Finland","University of Eastern Finland, Joensuu, Finland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Eastern Finland","institution_ids":["https://openalex.org/I4210107997","https://openalex.org/I175532246"]},{"raw_affiliation_string":"University of Eastern Finland, Joensuu, Finland","institution_ids":["https://openalex.org/I175532246"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5033237794","display_name":"Marko M\u00e4ki","orcid":null},"institutions":[{"id":"https://openalex.org/I38186990","display_name":"Haaga-Helia University of Applied Sciences","ror":"https://ror.org/05cqf4668","country_code":"FI","type":"education","lineage":["https://openalex.org/I38186990"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Marko M\u00e4ki","raw_affiliation_strings":["Haaga-Helia University of Applied Sciences","Haaga-Helia University of Applied Sciences, Helsinki, Finland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Haaga-Helia University of Applied Sciences","institution_ids":["https://openalex.org/I38186990"]},{"raw_affiliation_string":"Haaga-Helia University of Applied Sciences, Helsinki, Finland","institution_ids":["https://openalex.org/I38186990"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5067111439"],"corresponding_institution_ids":["https://openalex.org/I130217899"],"apc_list":{"value":1500,"currency":"USD","value_usd":1500},"apc_paid":{"value":792,"currency":"EUR","value_usd":854},"fwci":10.0681,"has_fulltext":true,"cited_by_count":18,"citation_normalized_percentile":{"value":0.97850538,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":96,"max":99},"biblio":{"volume":"29","issue":"1","first_page":"14604582231152185","last_page":"14604582231152185"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11045","display_name":"Privacy, Security, and Data Protection","score":0.9987000226974487,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11045","display_name":"Privacy, Security, and Data Protection","score":0.9987000226974487,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9940999746322632,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9843999743461609,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.6777781844139099},{"id":"https://openalex.org/keywords/informed-consent","display_name":"Informed consent","score":0.6425005793571472},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.636211633682251},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5830222964286804},{"id":"https://openalex.org/keywords/legislation","display_name":"Legislation","score":0.5538488626480103},{"id":"https://openalex.org/keywords/personally-identifiable-information","display_name":"Personally identifiable information","score":0.5194844007492065},{"id":"https://openalex.org/keywords/data-protection-act-1998","display_name":"Data Protection Act 1998","score":0.5002017021179199},{"id":"https://openalex.org/keywords/information-sharing","display_name":"Information sharing","score":0.4969799816608429},{"id":"https://openalex.org/keywords/european-union","display_name":"European union","score":0.4873450696468353},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.47806814312934875},{"id":"https://openalex.org/keywords/information-privacy","display_name":"Information privacy","score":0.441488653421402},{"id":"https://openalex.org/keywords/information-sensitivity","display_name":"Information sensitivity","score":0.43945789337158203},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.4060622453689575},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.38327357172966003},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.3657747507095337},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3366675078868866},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.24323180317878723},{"id":"https://openalex.org/keywords/alternative-medicine","display_name":"Alternative medicine","score":0.16968020796775818},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.12790441513061523},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.09971043467521667}],"concepts":[{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.6777781844139099},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.6425005793571472},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.636211633682251},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5830222964286804},{"id":"https://openalex.org/C2777351106","wikidata":"https://www.wikidata.org/wiki/Q49371","display_name":"Legislation","level":2,"score":0.5538488626480103},{"id":"https://openalex.org/C169093310","wikidata":"https://www.wikidata.org/wiki/Q3702971","display_name":"Personally identifiable information","level":2,"score":0.5194844007492065},{"id":"https://openalex.org/C69360830","wikidata":"https://www.wikidata.org/wiki/Q1172237","display_name":"Data Protection Act 1998","level":2,"score":0.5002017021179199},{"id":"https://openalex.org/C2776854237","wikidata":"https://www.wikidata.org/wiki/Q6031064","display_name":"Information sharing","level":2,"score":0.4969799816608429},{"id":"https://openalex.org/C2910001868","wikidata":"https://www.wikidata.org/wiki/Q458","display_name":"European union","level":2,"score":0.4873450696468353},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.47806814312934875},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.441488653421402},{"id":"https://openalex.org/C137822555","wikidata":"https://www.wikidata.org/wiki/Q2587068","display_name":"Information sensitivity","level":2,"score":0.43945789337158203},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.4060622453689575},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.38327357172966003},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3657747507095337},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3366675078868866},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.24323180317878723},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.16968020796775818},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.12790441513061523},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.09971043467521667},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C105639569","wikidata":"https://www.wikidata.org/wiki/Q582577","display_name":"Economic policy","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000086382","descriptor_name":"COVID-19","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000086382","descriptor_name":"COVID-19","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000086382","descriptor_name":"COVID-19","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D023281","descriptor_name":"Genomics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D023281","descriptor_name":"Genomics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D023281","descriptor_name":"Genomics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030661","descriptor_name":"Genetic Privacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030661","descriptor_name":"Genetic Privacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030661","descriptor_name":"Genetic Privacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D058873","descriptor_name":"Pandemics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D058873","descriptor_name":"Pandemics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D058873","descriptor_name":"Pandemics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":7,"locations":[{"id":"doi:10.1177/14604582231152185","is_oa":true,"landing_page_url":"https://doi.org/10.1177/14604582231152185","pdf_url":"https://journals.sagepub.com/doi/pdf/10.1177/14604582231152185","source":{"id":"https://openalex.org/S201800618","display_name":"Health Informatics Journal","issn_l":"1460-4582","issn":["1460-4582","1741-2811"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Informatics Journal","raw_type":"journal-article"},{"id":"pmid:36651319","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/36651319","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health informatics journal","raw_type":null},{"id":"pmh:oai:pure.atira.dk:openaire/ba7571fc-caef-4bbc-bde7-591d8c47df85","is_oa":true,"landing_page_url":"https://research.abo.fi/files/58886173/parvinen-et-al-2023-exploring-the-challenges-of-and-solutions-to-sharing-personal-genomic-data-for-use-in-healthcare.pdf","pdf_url":"https://research.abo.fi/ws/files/58886173/parvinen-et-al-2023-exploring-the-challenges-of-and-solutions-to-sharing-personal-genomic-data-for-use-in-healthcare.pdf","source":{"id":"https://openalex.org/S4406923060","display_name":"\u00c5bo Akademi University Research Portal","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Parvinen, L, Alam\u00e4ki, A, Hallikainen, H & M\u00e4ki, M 2023, 'Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare', Health Informatics Journal, vol. 29, no. 1. https://doi.org/10.1177/14604582231152185","raw_type":"info:eu-repo/semantics/publishedVersion"},{"id":"pmh:oai:www.theseus.fi:10024/791281","is_oa":true,"landing_page_url":"http://www.theseus.fi/handle/10024/791281","pdf_url":"http://www.theseus.fi/bitstream/10024/791281/1/ParvinenLetalExploringTheChallengesOfAndSolutionsToSharingPersonalGenomicDataForUseInHealthcare.pdf","source":{"id":"https://openalex.org/S4306400928","display_name":"Theseus (Ammattikorkeakoulujen)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"76030","raw_type":"publication"},{"id":"pmh:oai:doaj.org/article:7eec4d5a06d248be872ba73e41ad3200","is_oa":true,"landing_page_url":"https://doaj.org/article/7eec4d5a06d248be872ba73e41ad3200","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Health Informatics Journal, Vol 29 (2023)","raw_type":"article"},{"id":"pmh:oai:pure.atira.dk:publications/ba7571fc-caef-4bbc-bde7-591d8c47df85","is_oa":true,"landing_page_url":"http://www.scopus.com/inward/record.url?scp=85146410815&partnerID=8YFLogxK","pdf_url":null,"source":{"id":"https://openalex.org/S4406923060","display_name":"\u00c5bo Akademi University Research Portal","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Parvinen , L , Alam\u00e4ki , A , Hallikainen , H &amp; M\u00e4ki , M 2023 , ' Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare ' , Health Informatics Journal , vol. 29 , no. 1 . https://doi.org/10.1177/14604582231152185","raw_type":"article"},{"id":"pmh:oai:pure.atira.dk:publications/ba7571fc-caef-4bbc-bde7-591d8c47df85","is_oa":true,"landing_page_url":"https://research.abo.fi/en/publications/ba7571fc-caef-4bbc-bde7-591d8c47df85","pdf_url":null,"source":{"id":"https://openalex.org/S4406923060","display_name":"\u00c5bo Akademi University Research Portal","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Parvinen, L, Alam\u00e4ki, A, Hallikainen, H & M\u00e4ki, M 2023, 'Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare', Health Informatics Journal, vol. 29, no. 1. https://doi.org/10.1177/14604582231152185","raw_type":"info:eu-repo/semantics/publishedVersion"}],"best_oa_location":{"id":"doi:10.1177/14604582231152185","is_oa":true,"landing_page_url":"https://doi.org/10.1177/14604582231152185","pdf_url":"https://journals.sagepub.com/doi/pdf/10.1177/14604582231152185","source":{"id":"https://openalex.org/S201800618","display_name":"Health Informatics Journal","issn_l":"1460-4582","issn":["1460-4582","1741-2811"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Informatics Journal","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G4283861522","display_name":null,"funder_award_id":"2710/31/2016","funder_id":"https://openalex.org/F4320328501","funder_display_name":"Business Finland"}],"funders":[{"id":"https://openalex.org/F4320328501","display_name":"Business Finland","ror":"https://ror.org/05bgf9v38"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4317208168.pdf","grobid_xml":"https://content.openalex.org/works/W4317208168.grobid-xml"},"referenced_works_count":48,"referenced_works":["https://openalex.org/W317100620","https://openalex.org/W1535943325","https://openalex.org/W1969966826","https://openalex.org/W1972074609","https://openalex.org/W1980068624","https://openalex.org/W2025398397","https://openalex.org/W2073071698","https://openalex.org/W2081259250","https://openalex.org/W2083608806","https://openalex.org/W2084963271","https://openalex.org/W2102357195","https://openalex.org/W2137249087","https://openalex.org/W2144501061","https://openalex.org/W2150045067","https://openalex.org/W2157989366","https://openalex.org/W2163241745","https://openalex.org/W2171705978","https://openalex.org/W2470419803","https://openalex.org/W2521701804","https://openalex.org/W2530370147","https://openalex.org/W2611998772","https://openalex.org/W2763603747","https://openalex.org/W2765398558","https://openalex.org/W2783426222","https://openalex.org/W2788593170","https://openalex.org/W2890515125","https://openalex.org/W2897294494","https://openalex.org/W2915118821","https://openalex.org/W2925032854","https://openalex.org/W2953482752","https://openalex.org/W2967455432","https://openalex.org/W2972549187","https://openalex.org/W2972811832","https://openalex.org/W2973432378","https://openalex.org/W2979116678","https://openalex.org/W3001351446","https://openalex.org/W3005151582","https://openalex.org/W3109009299","https://openalex.org/W3111579354","https://openalex.org/W3122287309","https://openalex.org/W3139436927","https://openalex.org/W3150576785","https://openalex.org/W3165752191","https://openalex.org/W3166096956","https://openalex.org/W3171995498","https://openalex.org/W3173863723","https://openalex.org/W3194343069","https://openalex.org/W3202801741"],"related_works":["https://openalex.org/W3176177457","https://openalex.org/W4245730406","https://openalex.org/W4399760501","https://openalex.org/W3118596070","https://openalex.org/W2528057036","https://openalex.org/W2967384228","https://openalex.org/W4390466208","https://openalex.org/W2589285783","https://openalex.org/W317272953","https://openalex.org/W2108730513"],"abstract_inverted_index":{"Boosted":[0],"by":[1],"the":[2,8,17,68,88,105,140,146],"COVID-19":[3],"pandemic,":[4],"as":[5,7,78,80],"well":[6,79],"tightened":[9],"General":[10],"Data":[11],"Protection":[12],"Regulation":[13],"(GDPR)":[14],"legislation":[15],"within":[16],"European":[18],"Union":[19],"(EU),":[20],"individuals":[21,35,93,130],"have":[22],"become":[23],"increasingly":[24],"concerned":[25],"about":[26,131],"privacy.":[27],"This":[28],"is":[29],"also":[30],"reflected":[31],"in":[32,59,82],"how":[33,67],"willing":[34,94,110,119],"are":[36],"to":[37,39,57,61,74,76,97,99,111,120,127,138,145,148],"consent":[38,58,98,121],"sharing":[40,100],"personal":[41],"data,":[42],"including":[43],"their":[44,101],"health":[45,133],"data.":[46,63,103,151],"To":[47],"understand":[48],"this":[49,52],"behaviour":[50],"better,":[51],"study":[53,65],"focuses":[54],"on":[55],"willingness":[56,75],"relation":[60],"genomic":[62,102,150],"The":[64],"explores":[66],"provision":[69],"of":[70],"educational":[71,115],"information":[72,85,116],"relates":[73],"consent,":[77,112],"differences":[81],"privacy":[83],"concerns,":[84],"sensitivity":[86],"and":[87,122],"perceived":[89],"trade-off":[90],"value":[91],"between":[92],"versus":[95],"unwilling":[96,126],"Of":[104],"respondents,":[106],"65%":[107],"were":[108,118],"initially":[109],"but":[113],"after":[114],"89%":[117],"only":[123],"11%":[124],"remained":[125],"consent.":[128],"Educating":[129],"potential":[132],"benefits":[134],"can":[135],"thus":[136],"help":[137],"correct":[139],"beliefs":[141],"that":[142],"originally":[143],"led":[144],"unwillingness":[147],"share":[149]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":7},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":4}],"updated_date":"2026-05-08T15:41:06.802602","created_date":"2025-10-10T00:00:00"}
