{"id":"https://openalex.org/W2983728903","doi":"https://doi.org/10.1162/dint_a_00032","title":"Distributed Analytics on Sensitive Medical Data: The Personal Health Train","display_name":"Distributed Analytics on Sensitive Medical Data: The Personal Health Train","publication_year":2019,"publication_date":"2019-11-01","ids":{"openalex":"https://openalex.org/W2983728903","doi":"https://doi.org/10.1162/dint_a_00032","mag":"2983728903"},"language":"en","primary_location":{"id":"doi:10.1162/dint_a_00032","is_oa":true,"landing_page_url":"https://doi.org/10.1162/dint_a_00032","pdf_url":"https://www.mitpressjournals.org/doi/pdf/10.1162/dint_a_00032","source":{"id":"https://openalex.org/S4210186383","display_name":"Data Intelligence","issn_l":"2096-7004","issn":["2096-7004","2641-435X"],"is_oa":true,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310315718","host_organization_name":"The MIT Press","host_organization_lineage":["https://openalex.org/P4310315718"],"host_organization_lineage_names":["The MIT Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Data Intelligence","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"https://www.mitpressjournals.org/doi/pdf/10.1162/dint_a_00032","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5067635650","display_name":"Oya Beyan","orcid":"https://orcid.org/0000-0001-7611-3501"},"institutions":[{"id":"https://openalex.org/I4210110507","display_name":"Fraunhofer Institute for Applied Information Technology","ror":"https://ror.org/01ak24c12","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210110507","https://openalex.org/I4923324"]},{"id":"https://openalex.org/I4210163794","display_name":"Data Management (Italy)","ror":"https://ror.org/017j5za44","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210163794"]},{"id":"https://openalex.org/I887968799","display_name":"RWTH Aachen University","ror":"https://ror.org/04xfq0f34","country_code":"DE","type":"education","lineage":["https://openalex.org/I887968799"]}],"countries":["DE","IT"],"is_corresponding":true,"raw_author_name":"Oya Beyan","raw_affiliation_strings":["Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt                         Augustin, Germany","RWTH Aachen University, 52056 Aachen, Germany","Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt\n Augustin, Germany","Oya Beyan is a researcher at Fraunhofer Institute for Applied Information Technology and at the Department of Computer Science at RWTH Aachen University. Her research focuses on methods of data reusability and FAIR data, data-driven transformation and distributed analytics. Her area of expertise is in the semantic Web technologies and application of them in health care and life sciences. She actively contributes to the national and international initiatives to enable the adoption of FAIR principles and develops tools and infrastructures supporting FAIR data. With her interdisciplinary background in informatics, medical informatics and sociology, she developed a focus on societal reflections of data-driven change"],"raw_orcid":"https://orcid.org/0000-0001-7611-3501","affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt                         Augustin, Germany","institution_ids":["https://openalex.org/I4210110507"]},{"raw_affiliation_string":"RWTH Aachen University, 52056 Aachen, Germany","institution_ids":["https://openalex.org/I887968799"]},{"raw_affiliation_string":"Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt\n Augustin, Germany","institution_ids":["https://openalex.org/I4210110507"]},{"raw_affiliation_string":"Oya Beyan is a researcher at Fraunhofer Institute for Applied Information Technology and at the Department of Computer Science at RWTH Aachen University. Her research focuses on methods of data reusability and FAIR data, data-driven transformation and distributed analytics. Her area of expertise is in the semantic Web technologies and application of them in health care and life sciences. She actively contributes to the national and international initiatives to enable the adoption of FAIR principles and develops tools and infrastructures supporting FAIR data. With her interdisciplinary background in informatics, medical informatics and sociology, she developed a focus on societal reflections of data-driven change","institution_ids":["https://openalex.org/I4210163794"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5024986698","display_name":"Ananya Choudhury","orcid":"https://orcid.org/0000-0001-9847-8165"},"institutions":[{"id":"https://openalex.org/I2802849423","display_name":"University Medical Center","ror":"https://ror.org/036pt7h44","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2802849423"]},{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]},{"id":"https://openalex.org/I4210161616","display_name":"Maastro Clinic","ror":"https://ror.org/059wkzj26","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210161616"]},{"id":"https://openalex.org/I4210163794","display_name":"Data Management (Italy)","ror":"https://ror.org/017j5za44","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210163794"]}],"countries":["IT","NL","US"],"is_corresponding":false,"raw_author_name":"Ananya Choudhury","raw_affiliation_strings":["Department of Radiation Oncology (MAASTRO), GROW School for Oncology and                         Developmental Biology, Maastricht University Medical Center, 6200 MD                         Maastricht, The Netherlands","Department of Radiation Oncology (MAASTRO), GROW School for Oncology and\n Developmental Biology, Maastricht University Medical Center, 6200 MD\n Maastricht, The Netherlands","Ananya Choudhury is a researcher and PhD Student at Clinical Data Science Group, Maastro Clinic, Maastricht University. Her research focuses on methods and infrastructure of privacy preserving distributed learning on clinical data, tools and methods for data FAIR-ification and learning models on FAIR data for improving patient care"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Radiation Oncology (MAASTRO), GROW School for Oncology and                         Developmental Biology, Maastricht University Medical Center, 6200 MD                         Maastricht, The Netherlands","institution_ids":["https://openalex.org/I4210161616"]},{"raw_affiliation_string":"Department of Radiation Oncology (MAASTRO), GROW School for Oncology and\n Developmental Biology, Maastricht University Medical Center, 6200 MD\n Maastricht, The Netherlands","institution_ids":["https://openalex.org/I4210161616","https://openalex.org/I2802849423","https://openalex.org/I34352273"]},{"raw_affiliation_string":"Ananya Choudhury is a researcher and PhD Student at Clinical Data Science Group, Maastro Clinic, Maastricht University. Her research focuses on methods and infrastructure of privacy preserving distributed learning on clinical data, tools and methods for data FAIR-ification and learning models on FAIR data for improving patient care","institution_ids":["https://openalex.org/I4210163794"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034589930","display_name":"Johan van Soest","orcid":"https://orcid.org/0000-0003-2548-0330"},"institutions":[{"id":"https://openalex.org/I2802849423","display_name":"University Medical Center","ror":"https://ror.org/036pt7h44","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2802849423"]},{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]},{"id":"https://openalex.org/I4210161616","display_name":"Maastro Clinic","ror":"https://ror.org/059wkzj26","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210161616"]}],"countries":["NL","US"],"is_corresponding":false,"raw_author_name":"Johan van Soest","raw_affiliation_strings":["Department of Radiation Oncology (MAASTRO), GROW School for Oncology and                         Developmental Biology, Maastricht University Medical Center, 6200 MD                         Maastricht, The Netherlands","Institute of Data Science, Maastricht University, Universiteitssingel 60,                         Maastricht 6229 ER, The Netherlands","Johan van Soest holds a PhD from Maastricht University on centralized and distributed learning of prognostic/predictive models in radiation oncology focusing on knowledge representation, methods for validation of existing models and translation into clinical practice. He is currently active as Postdoctoral Researcher in the Department of Radiation Oncology at MAASTRO clinic and the university's Institute of Data Science","Institute of Data Science, Maastricht University, Universiteitssingel 60,\n Maastricht 6229 ER, The Netherlands","Department of Radiation Oncology (MAASTRO), GROW School for Oncology and\n Developmental Biology, Maastricht University Medical Center, 6200 MD\n Maastricht, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Radiation Oncology (MAASTRO), GROW School for Oncology and                         Developmental Biology, Maastricht University Medical Center, 6200 MD                         Maastricht, The Netherlands","institution_ids":["https://openalex.org/I4210161616"]},{"raw_affiliation_string":"Institute of Data Science, Maastricht University, Universiteitssingel 60,                         Maastricht 6229 ER, The Netherlands","institution_ids":["https://openalex.org/I34352273"]},{"raw_affiliation_string":"Johan van Soest holds a PhD from Maastricht University on centralized and distributed learning of prognostic/predictive models in radiation oncology focusing on knowledge representation, methods for validation of existing models and translation into clinical practice. He is currently active as Postdoctoral Researcher in the Department of Radiation Oncology at MAASTRO clinic and the university's Institute of Data Science","institution_ids":["https://openalex.org/I4210161616"]},{"raw_affiliation_string":"Institute of Data Science, Maastricht University, Universiteitssingel 60,\n Maastricht 6229 ER, The Netherlands","institution_ids":["https://openalex.org/I34352273"]},{"raw_affiliation_string":"Department of Radiation Oncology (MAASTRO), GROW School for Oncology and\n Developmental Biology, Maastricht University Medical Center, 6200 MD\n Maastricht, The Netherlands","institution_ids":["https://openalex.org/I4210161616","https://openalex.org/I2802849423","https://openalex.org/I34352273"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5053621010","display_name":"Oliver Kohlbacher","orcid":"https://orcid.org/0000-0003-1739-4598"},"institutions":[{"id":"https://openalex.org/I8087733","display_name":"University of T\u00fcbingen","ror":"https://ror.org/03a1kwz48","country_code":"DE","type":"education","lineage":["https://openalex.org/I8087733"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Oliver Kohlbacher","raw_affiliation_strings":["Center for Bioinformatics, University of T\u00fcbingen, Germany","Department of Computer Science, University of T\u00fcbingen, Tubingen,                         Baden-W\u00fcrttemberg 72076, Germany","Institute for Translational Bioinformatics, University of T\u00fcbingen,                         Tubingen, Baden-W\u00fcrttemberg 72076, Germany","Quantitative Biology Center, University of T\u00fcbingen, Tubingen,                         Baden-W\u00fcrttemberg 72076, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Bioinformatics, University of T\u00fcbingen, Germany","institution_ids":["https://openalex.org/I8087733"]},{"raw_affiliation_string":"Department of Computer Science, University of T\u00fcbingen, Tubingen,                         Baden-W\u00fcrttemberg 72076, Germany","institution_ids":["https://openalex.org/I8087733"]},{"raw_affiliation_string":"Institute for Translational Bioinformatics, University of T\u00fcbingen,                         Tubingen, Baden-W\u00fcrttemberg 72076, Germany","institution_ids":["https://openalex.org/I8087733"]},{"raw_affiliation_string":"Quantitative Biology Center, University of T\u00fcbingen, Tubingen,                         Baden-W\u00fcrttemberg 72076, Germany","institution_ids":["https://openalex.org/I8087733"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045952382","display_name":"Lukas Zimmermann","orcid":"https://orcid.org/0000-0001-8180-9853"},"institutions":[{"id":"https://openalex.org/I8087733","display_name":"University of T\u00fcbingen","ror":"https://ror.org/03a1kwz48","country_code":"DE","type":"education","lineage":["https://openalex.org/I8087733"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Lukas Zimmermann","raw_affiliation_strings":["Institute for Translational Bioinformatics, University of T\u00fcbingen,                         Tubingen, Baden-W\u00fcrttemberg 72076, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute for Translational Bioinformatics, University of T\u00fcbingen,                         Tubingen, Baden-W\u00fcrttemberg 72076, Germany","institution_ids":["https://openalex.org/I8087733"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5054197674","display_name":"Holger Stenzhorn","orcid":"https://orcid.org/0000-0001-9744-174X"},"institutions":[{"id":"https://openalex.org/I8087733","display_name":"University of T\u00fcbingen","ror":"https://ror.org/03a1kwz48","country_code":"DE","type":"education","lineage":["https://openalex.org/I8087733"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Holger Stenzhorn","raw_affiliation_strings":["Institute for Translational Bioinformatics, University of T\u00fcbingen,                         Tubingen, Baden-W\u00fcrttemberg 72076, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute for Translational Bioinformatics, University of T\u00fcbingen,                         Tubingen, Baden-W\u00fcrttemberg 72076, Germany","institution_ids":["https://openalex.org/I8087733"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5114549797","display_name":"Md. Rezaul Karim","orcid":"https://orcid.org/0000-0001-6804-9183"},"institutions":[{"id":"https://openalex.org/I4210110507","display_name":"Fraunhofer Institute for Applied Information Technology","ror":"https://ror.org/01ak24c12","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210110507","https://openalex.org/I4923324"]},{"id":"https://openalex.org/I4210124274","display_name":"Fraunhofer Institute for Integrated Circuits","ror":"https://ror.org/024ape423","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210124274","https://openalex.org/I4923324"]},{"id":"https://openalex.org/I887968799","display_name":"RWTH Aachen University","ror":"https://ror.org/04xfq0f34","country_code":"DE","type":"education","lineage":["https://openalex.org/I887968799"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Md. Rezaul Karim","raw_affiliation_strings":["Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt                         Augustin, Germany","RWTH Aachen University, 52056 Aachen, Germany","Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt\n Augustin, Germany","Md. Rezaul Karim is a researcher at Fraunhofer FIT, Germany and a PhD candidate at RWTH Aachen University, Germany. He is working towards developing a distributed knowledge pipeline with knowledge graphs and neural networks towards making them explainable and interpretable. His research interests include machine learning, knowledge graphs, bioinformatics, and explainable artificial intelligence (XAI)"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt                         Augustin, Germany","institution_ids":["https://openalex.org/I4210110507"]},{"raw_affiliation_string":"RWTH Aachen University, 52056 Aachen, Germany","institution_ids":["https://openalex.org/I887968799"]},{"raw_affiliation_string":"Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt\n Augustin, Germany","institution_ids":["https://openalex.org/I4210110507"]},{"raw_affiliation_string":"Md. Rezaul Karim is a researcher at Fraunhofer FIT, Germany and a PhD candidate at RWTH Aachen University, Germany. He is working towards developing a distributed knowledge pipeline with knowledge graphs and neural networks towards making them explainable and interpretable. His research interests include machine learning, knowledge graphs, bioinformatics, and explainable artificial intelligence (XAI)","institution_ids":["https://openalex.org/I4210124274"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5044836472","display_name":"Michel Dumontier","orcid":"https://orcid.org/0000-0003-4727-9435"},"institutions":[{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]},{"id":"https://openalex.org/I4210163794","display_name":"Data Management (Italy)","ror":"https://ror.org/017j5za44","country_code":"IT","type":"company","lineage":["https://openalex.org/I4210163794"]}],"countries":["IT","NL"],"is_corresponding":false,"raw_author_name":"Michel Dumontier","raw_affiliation_strings":["Institute of Data Science, Maastricht University, Universiteitssingel 60,                         Maastricht 6229 ER, The Netherlands","Michel Dumontier is the Distinguished Professor of Data Science at Maastricht University and co-founder of the FAIR (Findable, Accessible, Interoperable and Reusable) data principles. His research focuses on the development of computational methods for scalable and responsible discovery science. Previously at Stanford University, Dr. Dumontier now leads the interfaculty Institute of Data Science at Maastricht University to develop socio-technological systems for accelerating scientific discovery, improving human health and well-being, and empowering communities with ethical data-driven decision making","Institute of Data Science, Maastricht University, Universiteitssingel 60,\n Maastricht 6229 ER, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Data Science, Maastricht University, Universiteitssingel 60,                         Maastricht 6229 ER, The Netherlands","institution_ids":["https://openalex.org/I34352273"]},{"raw_affiliation_string":"Michel Dumontier is the Distinguished Professor of Data Science at Maastricht University and co-founder of the FAIR (Findable, Accessible, Interoperable and Reusable) data principles. His research focuses on the development of computational methods for scalable and responsible discovery science. Previously at Stanford University, Dr. Dumontier now leads the interfaculty Institute of Data Science at Maastricht University to develop socio-technological systems for accelerating scientific discovery, improving human health and well-being, and empowering communities with ethical data-driven decision making","institution_ids":["https://openalex.org/I4210163794"]},{"raw_affiliation_string":"Institute of Data Science, Maastricht University, Universiteitssingel 60,\n Maastricht 6229 ER, The Netherlands","institution_ids":["https://openalex.org/I34352273"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071104283","display_name":"Stefan Decker","orcid":"https://orcid.org/0000-0001-6324-7164"},"institutions":[{"id":"https://openalex.org/I4210110507","display_name":"Fraunhofer Institute for Applied Information Technology","ror":"https://ror.org/01ak24c12","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210110507","https://openalex.org/I4923324"]},{"id":"https://openalex.org/I4210132567","display_name":"Fraunhofer Institute for Laser Technology","ror":"https://ror.org/03ebbfh95","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210132567","https://openalex.org/I4923324"]},{"id":"https://openalex.org/I887968799","display_name":"RWTH Aachen University","ror":"https://ror.org/04xfq0f34","country_code":"DE","type":"education","lineage":["https://openalex.org/I887968799"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Stefan Decker","raw_affiliation_strings":["Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt                         Augustin, Germany","RWTH Aachen University, 52056 Aachen, Germany","Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt\n Augustin, Germany","Stefan Decker is the director of Fraunhofer FIT, Germany and Professor of Computer Science at RWTH Aachen University, Germany. He was the director of Insight Centre for Data Analytics, and professor of informatics at NUI Galway, Ireland between 2006 and 2015. His research interests include Semantic Web and linked data, knowledge representation, and neural networks"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt                         Augustin, Germany","institution_ids":["https://openalex.org/I4210110507"]},{"raw_affiliation_string":"RWTH Aachen University, 52056 Aachen, Germany","institution_ids":["https://openalex.org/I887968799"]},{"raw_affiliation_string":"Fraunhofer Institute for Applied Information Technology (FIT), 53754 Sankt\n Augustin, Germany","institution_ids":["https://openalex.org/I4210110507"]},{"raw_affiliation_string":"Stefan Decker is the director of Fraunhofer FIT, Germany and Professor of Computer Science at RWTH Aachen University, Germany. He was the director of Insight Centre for Data Analytics, and professor of informatics at NUI Galway, Ireland between 2006 and 2015. His research interests include Semantic Web and linked data, knowledge representation, and neural networks","institution_ids":["https://openalex.org/I4210132567"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5067310105","display_name":"Luiz Olavo Bonino da Silva Santos","orcid":"https://orcid.org/0000-0002-1164-1351"},"institutions":[{"id":"https://openalex.org/I4210121728","display_name":"Care International","ror":"https://ror.org/029ma5383","country_code":"CH","type":"nonprofit","lineage":["https://openalex.org/I4210121728"]}],"countries":["CH"],"is_corresponding":false,"raw_author_name":"Luiz Olavo Bonino da Silva Santos","raw_affiliation_strings":["GO FAIR International Support & Coordination Office (GFISCO), Leiden, The Netherlands","GO FAIR International Support & Coordination Office (GFISCO),\n Leiden, The Netherlands","Luiz Olavo Bonino da Silva Santos is the International Technology Coordinator of the GO FAIR International Support and Coordination Office, and Associate Professor of the BioSemantics group at the Leiden University Medical Centre in Leiden, The Netherlands. His background is in ontology-driven conceptual modelling, semantic interoperability, service-oriented computing, requirements engineering and context-aware computing. In the last five years Luiz has been involved in a number of activities to realize the FAIR principles, including the development of a number of technologies and tools to support making, publishing, indexing, searching and annotating FAIR (meta)data"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"GO FAIR International Support & Coordination Office (GFISCO), Leiden, The Netherlands","institution_ids":[]},{"raw_affiliation_string":"GO FAIR International Support & Coordination Office (GFISCO),\n Leiden, The Netherlands","institution_ids":[]},{"raw_affiliation_string":"Luiz Olavo Bonino da Silva Santos is the International Technology Coordinator of the GO FAIR International Support and Coordination Office, and Associate Professor of the BioSemantics group at the Leiden University Medical Centre in Leiden, The Netherlands. His background is in ontology-driven conceptual modelling, semantic interoperability, service-oriented computing, requirements engineering and context-aware computing. In the last five years Luiz has been involved in a number of activities to realize the FAIR principles, including the development of a number of technologies and tools to support making, publishing, indexing, searching and annotating FAIR (meta)data","institution_ids":["https://openalex.org/I4210121728"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5013513157","display_name":"Andr\u00e9 Dekker","orcid":"https://orcid.org/0000-0002-0422-7996"},"institutions":[{"id":"https://openalex.org/I2800191616","display_name":"Maastricht University Medical Centre","ror":"https://ror.org/02d9ce178","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2800191616"]},{"id":"https://openalex.org/I2802849423","display_name":"University Medical Center","ror":"https://ror.org/036pt7h44","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2802849423"]},{"id":"https://openalex.org/I34352273","display_name":"Maastricht University","ror":"https://ror.org/02jz4aj89","country_code":"NL","type":"education","lineage":["https://openalex.org/I34352273"]},{"id":"https://openalex.org/I4210098262","display_name":"Breakthrough","ror":"https://ror.org/00w4cxg78","country_code":"US","type":"company","lineage":["https://openalex.org/I4210098262"]},{"id":"https://openalex.org/I4210161616","display_name":"Maastro Clinic","ror":"https://ror.org/059wkzj26","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210161616"]}],"countries":["NL","US"],"is_corresponding":false,"raw_author_name":"Andre Dekker","raw_affiliation_strings":["Department of Radiation Oncology (MAASTRO), GROW School for Oncology and                         Developmental Biology, Maastricht University Medical Center, 6200 MD                         Maastricht, The Netherlands","Andre Dekker is a board-certified medical physicist at MAASTRO Clinic and full professor at Maastricht UMC+ and Maastricht University where he holds the chair \"Clinical Data Science\". His research focuses on three main themes: 1) building global FAIR data sharing infrastructures","Department of Radiation Oncology (MAASTRO), GROW School for Oncology and\n Developmental Biology, Maastricht University Medical Center, 6200 MD\n Maastricht, The Netherlands","2) machine learning outcome prediction models from the data","3) applying outcome prediction models to improve lives of patients. The main scientific breakthrough has been the development of a Semantic Web and ontology based data sharing and distributed learning infrastructure that does not require data to leave the hospital. This has reduced many of the ethical and other barriers to share data"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Radiation Oncology (MAASTRO), GROW School for Oncology and                         Developmental Biology, Maastricht University Medical Center, 6200 MD                         Maastricht, The Netherlands","institution_ids":["https://openalex.org/I4210161616"]},{"raw_affiliation_string":"Andre Dekker is a board-certified medical physicist at MAASTRO Clinic and full professor at Maastricht UMC+ and Maastricht University where he holds the chair \"Clinical Data Science\". His research focuses on three main themes: 1) building global FAIR data sharing infrastructures","institution_ids":["https://openalex.org/I4210161616","https://openalex.org/I2800191616","https://openalex.org/I34352273"]},{"raw_affiliation_string":"Department of Radiation Oncology (MAASTRO), GROW School for Oncology and\n Developmental Biology, Maastricht University Medical Center, 6200 MD\n Maastricht, The Netherlands","institution_ids":["https://openalex.org/I4210161616","https://openalex.org/I2802849423","https://openalex.org/I34352273"]},{"raw_affiliation_string":"2) machine learning outcome prediction models from the data","institution_ids":[]},{"raw_affiliation_string":"3) applying outcome prediction models to improve lives of patients. The main scientific breakthrough has been the development of a Semantic Web and ontology based data sharing and distributed learning infrastructure that does not require data to leave the hospital. This has reduced many of the ethical and other barriers to share data","institution_ids":["https://openalex.org/I4210098262"]}]}],"institutions":[],"countries_distinct_count":5,"institutions_distinct_count":11,"corresponding_author_ids":["https://openalex.org/A5067635650"],"corresponding_institution_ids":["https://openalex.org/I4210110507","https://openalex.org/I4210163794","https://openalex.org/I887968799"],"apc_list":null,"apc_paid":null,"fwci":21.865,"has_fulltext":true,"cited_by_count":131,"citation_normalized_percentile":{"value":0.99379473,"is_in_top_1_percent":true,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":97,"max":100},"biblio":{"volume":"2","issue":"1-2","first_page":"96","last_page":"107"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.9968000054359436,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.9968000054359436,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11719","display_name":"Data Quality and Management","score":0.9890999794006348,"subfield":{"id":"https://openalex.org/subfields/1803","display_name":"Management Science and Operations Research"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11986","display_name":"Scientific Computing and Data Management","score":0.9872000217437744,"subfield":{"id":"https://openalex.org/subfields/1802","display_name":"Information Systems and Management"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/analytics","display_name":"Analytics","score":0.7056768536567688},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.6565399765968323},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.6211549639701843},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.560791552066803},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.5564473867416382},{"id":"https://openalex.org/keywords/big-data","display_name":"Big data","score":0.5521489977836609},{"id":"https://openalex.org/keywords/process","display_name":"Process (computing)","score":0.48914340138435364},{"id":"https://openalex.org/keywords/data-analysis","display_name":"Data analysis","score":0.44891270995140076},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.3730149567127228},{"id":"https://openalex.org/keywords/data-mining","display_name":"Data mining","score":0.16550537943840027},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.16498494148254395}],"concepts":[{"id":"https://openalex.org/C79158427","wikidata":"https://www.wikidata.org/wiki/Q485396","display_name":"Analytics","level":2,"score":0.7056768536567688},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.6565399765968323},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.6211549639701843},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.560791552066803},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.5564473867416382},{"id":"https://openalex.org/C75684735","wikidata":"https://www.wikidata.org/wiki/Q858810","display_name":"Big data","level":2,"score":0.5521489977836609},{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.48914340138435364},{"id":"https://openalex.org/C175801342","wikidata":"https://www.wikidata.org/wiki/Q1988917","display_name":"Data analysis","level":2,"score":0.44891270995140076},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.3730149567127228},{"id":"https://openalex.org/C124101348","wikidata":"https://www.wikidata.org/wiki/Q172491","display_name":"Data mining","level":1,"score":0.16550537943840027},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.16498494148254395},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0}],"mesh":[],"locations_count":6,"locations":[{"id":"doi:10.1162/dint_a_00032","is_oa":true,"landing_page_url":"https://doi.org/10.1162/dint_a_00032","pdf_url":"https://www.mitpressjournals.org/doi/pdf/10.1162/dint_a_00032","source":{"id":"https://openalex.org/S4210186383","display_name":"Data Intelligence","issn_l":"2096-7004","issn":["2096-7004","2641-435X"],"is_oa":true,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310315718","host_organization_name":"The MIT Press","host_organization_lineage":["https://openalex.org/P4310315718"],"host_organization_lineage_names":["The MIT Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Data Intelligence","raw_type":"journal-article"},{"id":"pmh:oai:cris.maastrichtuniversity.nl:openaire/44dbd41e-69e7-4a2a-9c9f-cd3293bf6e07","is_oa":true,"landing_page_url":"https://cris.maastrichtuniversity.nl/en/publications/44dbd41e-69e7-4a2a-9c9f-cd3293bf6e07","pdf_url":null,"source":{"id":"https://openalex.org/S4306402616","display_name":"Research Publications (Maastricht University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I34352273","host_organization_name":"Maastricht University","host_organization_lineage":["https://openalex.org/I34352273"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Beyan, O, Choudhury, A, Van Soest, J, Kohlbacher, O, Zimmermann, L, Stenzhorn, H, Karim, M R, Dumontier, M, Decker, S, Da Silva Santos, L O B & Dekker, A 2020, 'Distributed Analytics on Sensitive Medical Data: The Personal Health Train', Data Intelligence, vol. 2, no. 1-2, pp. 96-107. https://doi.org/10.1162/dint_a_00032","raw_type":"info:eu-repo/semantics/publishedVersion"},{"id":"pmh:oai:doaj.org/article:1b3d03484df44c78b584d5dc7e25cd85","is_oa":false,"landing_page_url":"https://doaj.org/article/1b3d03484df44c78b584d5dc7e25cd85","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Data Intelligence, Vol 2, Iss 1-2 (2021)","raw_type":"article"},{"id":"pmh:oai:publica.fraunhofer.de:publica/501235","is_oa":false,"landing_page_url":"https://publica.fraunhofer.de/handle/publica/501235","pdf_url":null,"source":{"id":"https://openalex.org/S4306400318","display_name":"Fraunhofer-Publica (Fraunhofer-Gesellschaft)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4923324","host_organization_name":"Fraunhofer-Gesellschaft","host_organization_lineage":["https://openalex.org/I4923324"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"journal article"},{"id":"pmh:oai:publica.fraunhofer.de:publica/502420","is_oa":false,"landing_page_url":"https://publica.fraunhofer.de/handle/publica/502420","pdf_url":null,"source":{"id":"https://openalex.org/S4306400318","display_name":"Fraunhofer-Publica (Fraunhofer-Gesellschaft)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4923324","host_organization_name":"Fraunhofer-Gesellschaft","host_organization_lineage":["https://openalex.org/I4923324"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"journal article"},{"id":"pmh:oai:publications.rwth-aachen.de:825955","is_oa":true,"landing_page_url":"https://publications.rwth-aachen.de/record/825955","pdf_url":null,"source":{"id":"https://openalex.org/S4306401033","display_name":"RWTH Publications (RWTH Aachen)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I887968799","host_organization_name":"RWTH Aachen University","host_organization_lineage":["https://openalex.org/I887968799"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Data Intelligence 2(1/2), 96-107 (2020). doi:10.1162/dint_a_00032 special issue: \"Special Issue: Emerging FAIR Practices / Issue Editors: Barend Mons, Erik Schultes, Annika Jacobsen\"","raw_type":"info:eu-repo/semantics/publishedVersion"}],"best_oa_location":{"id":"doi:10.1162/dint_a_00032","is_oa":true,"landing_page_url":"https://doi.org/10.1162/dint_a_00032","pdf_url":"https://www.mitpressjournals.org/doi/pdf/10.1162/dint_a_00032","source":{"id":"https://openalex.org/S4210186383","display_name":"Data Intelligence","issn_l":"2096-7004","issn":["2096-7004","2641-435X"],"is_oa":true,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310315718","host_organization_name":"The MIT Press","host_organization_lineage":["https://openalex.org/P4310315718"],"host_organization_lineage_names":["The MIT Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Data Intelligence","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/9","score":0.46000000834465027,"display_name":"Industry, innovation and infrastructure"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2983728903.pdf","grobid_xml":"https://content.openalex.org/works/W2983728903.grobid-xml"},"referenced_works_count":16,"referenced_works":["https://openalex.org/W2105289139","https://openalex.org/W2302501749","https://openalex.org/W2544902556","https://openalex.org/W2588316293","https://openalex.org/W2600664753","https://openalex.org/W2614473624","https://openalex.org/W2773787581","https://openalex.org/W2908349127","https://openalex.org/W2983408043","https://openalex.org/W2984263828","https://openalex.org/W2985058444","https://openalex.org/W2985330168","https://openalex.org/W2986109359","https://openalex.org/W2986399651","https://openalex.org/W2986528126","https://openalex.org/W2988604061"],"related_works":["https://openalex.org/W3215038878","https://openalex.org/W4375840519","https://openalex.org/W2625749796","https://openalex.org/W4226266853","https://openalex.org/W4245701730","https://openalex.org/W4210252074","https://openalex.org/W2511794504","https://openalex.org/W3092201768","https://openalex.org/W2911648135","https://openalex.org/W2886451445"],"abstract_inverted_index":{"In":[0],"recent":[1],"years,":[2],"as":[3],"newer":[4],"technologies":[5],"have":[6,16],"evolved":[7],"around":[8],"the":[9,23,53,57,65,75,79,87,107,127,145,163,168,185,191],"healthcare":[10,31,83,111],"ecosystem,":[11],"more":[12,14],"and":[13,40,42,48,59,72,137,143,180,187,193],"data":[15,24,81,103,114,131,141,156,175],"been":[17],"generated.":[18],"Advanced":[19],"analytics":[20,104],"could":[21],"power":[22],"collected":[25],"from":[26,30,85],"numerous":[27],"sources,":[28],"both":[29],"institutions,":[32],"or":[33],"generated":[34],"by":[35,176],"individuals":[36],"themselves":[37],"via":[38],"apps":[39],"devices,":[41],"lead":[43],"to":[44,56,62,99,154],"innovations":[45],"in":[46,64,117,133,157],"treatment":[47],"diagnosis":[49],"of":[50,78,109,119,126,160,171,190],"diseases;":[51],"improve":[52],"care":[54],"given":[55],"patient;":[58],"empower":[60],"citizens":[61],"participate":[63],"decision-making":[66],"process":[67],"regarding":[68],"their":[69,120,134],"own":[70,121],"health":[71,80],"well-being.":[73],"However,":[74],"sensitive":[76,172],"nature":[77],"prohibits":[82],"organizations":[84],"sharing":[86],"data.":[88,122],"The":[89,123,147],"Personal":[90],"Health":[91],"Train":[92],"(PHT)":[93],"is":[94,129],"a":[95,101,150,158],"novel":[96],"approach,":[97],"aiming":[98],"establish":[100],"distributed":[102,110],"infrastructure":[105],"enabling":[106],"(re)use":[108],"data,":[112],"while":[113],"owners":[115],"stay":[116],"control":[118],"main":[124,188],"principle":[125],"PHT":[128,148,192],"that":[130],"remain":[132],"original":[135],"location,":[136],"analytical":[138],"tasks":[139],"visit":[140],"sources":[142],"execute":[144],"tasks.":[146],"provides":[149],"distributed,":[151],"flexible":[152],"approach":[153],"use":[155,170],"network":[159],"participants,":[161],"incorporating":[162],"FAIR":[164,199],"principles.":[165,200],"It":[166],"facilitates":[167],"responsible":[169],"and/or":[173],"personal":[174],"adopting":[177],"international":[178],"principles":[179],"regulations.":[181],"This":[182],"paper":[183],"presents":[184],"concepts":[186],"components":[189],"demonstrates":[194],"how":[195],"it":[196],"complies":[197],"with":[198]},"counts_by_year":[{"year":2026,"cited_by_count":4},{"year":2025,"cited_by_count":19},{"year":2024,"cited_by_count":27},{"year":2023,"cited_by_count":18},{"year":2022,"cited_by_count":25},{"year":2021,"cited_by_count":22},{"year":2020,"cited_by_count":11},{"year":2019,"cited_by_count":4}],"updated_date":"2026-06-17T08:01:34.144755","created_date":"2025-10-10T00:00:00"}