{"id":"https://openalex.org/W4392198857","doi":"https://doi.org/10.1145/3649454","title":"Exploring the Strategies People with Parkinson's Disease Use to Self-track Symptoms and Medications","display_name":"Exploring the Strategies People with Parkinson's Disease Use to Self-track Symptoms and Medications","publication_year":2024,"publication_date":"2024-02-27","ids":{"openalex":"https://openalex.org/W4392198857","doi":"https://doi.org/10.1145/3649454"},"language":"en","primary_location":{"id":"doi:10.1145/3649454","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3649454","pdf_url":null,"source":{"id":"https://openalex.org/S79551877","display_name":"ACM Transactions on Accessible Computing","issn_l":"1936-7228","issn":["1936-7228","1936-7236"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"ACM Transactions on Accessible Computing","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5077934279","display_name":"Charlotte Tang","orcid":"https://orcid.org/0000-0002-3518-9929"},"institutions":[{"id":"https://openalex.org/I4210092198","display_name":"University of Michigan\u2013Flint","ror":"https://ror.org/01c3xc117","country_code":"US","type":"education","lineage":["https://openalex.org/I4210092198"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Charlotte Tang","raw_affiliation_strings":["University of Michigan-Flint, Flint, USA"],"raw_orcid":"https://orcid.org/0000-0002-3518-9929","affiliations":[{"raw_affiliation_string":"University of Michigan-Flint, Flint, USA","institution_ids":["https://openalex.org/I4210092198"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5094013124","display_name":"Imrul K. Shuva","orcid":"https://orcid.org/0009-0005-7221-6040"},"institutions":[{"id":"https://openalex.org/I4210092198","display_name":"University of Michigan\u2013Flint","ror":"https://ror.org/01c3xc117","country_code":"US","type":"education","lineage":["https://openalex.org/I4210092198"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Imrul K. Shuva","raw_affiliation_strings":["University of Michigan-Flint, Flint, USA"],"raw_orcid":"https://orcid.org/0009-0005-7221-6040","affiliations":[{"raw_affiliation_string":"University of Michigan-Flint, Flint, USA","institution_ids":["https://openalex.org/I4210092198"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049945198","display_name":"Matthew Thelen","orcid":"https://orcid.org/0009-0005-4736-3233"},"institutions":[{"id":"https://openalex.org/I4210092198","display_name":"University of Michigan\u2013Flint","ror":"https://ror.org/01c3xc117","country_code":"US","type":"education","lineage":["https://openalex.org/I4210092198"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Matthew Thelen","raw_affiliation_strings":["University of Michigan-Flint, Flint, USA"],"raw_orcid":"https://orcid.org/0009-0005-4736-3233","affiliations":[{"raw_affiliation_string":"University of Michigan-Flint, Flint, USA","institution_ids":["https://openalex.org/I4210092198"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5016255917","display_name":"Na Zhu","orcid":"https://orcid.org/0000-0002-9794-3130"},"institutions":[{"id":"https://openalex.org/I4210092198","display_name":"University of Michigan\u2013Flint","ror":"https://ror.org/01c3xc117","country_code":"US","type":"education","lineage":["https://openalex.org/I4210092198"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Linda Zhu","raw_affiliation_strings":["University of Michigan-Flint, Flint, USA"],"raw_orcid":"https://orcid.org/0000-0002-9794-3130","affiliations":[{"raw_affiliation_string":"University of Michigan-Flint, Flint, USA","institution_ids":["https://openalex.org/I4210092198"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5087934203","display_name":"Nathaniel S. Miller","orcid":"https://orcid.org/0000-0002-7967-3835"},"institutions":[{"id":"https://openalex.org/I4210092198","display_name":"University of Michigan\u2013Flint","ror":"https://ror.org/01c3xc117","country_code":"US","type":"education","lineage":["https://openalex.org/I4210092198"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nathaniel S. Miller","raw_affiliation_strings":["University of Michigan-Flint, Flint, USA"],"raw_orcid":"https://orcid.org/0000-0002-7967-3835","affiliations":[{"raw_affiliation_string":"University of Michigan-Flint, Flint, USA","institution_ids":["https://openalex.org/I4210092198"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I4210092198"],"apc_list":null,"apc_paid":null,"fwci":3.0218,"has_fulltext":false,"cited_by_count":10,"citation_normalized_percentile":{"value":0.91458278,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":99},"biblio":{"volume":"17","issue":"1","first_page":"1","last_page":"21"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10085","display_name":"Parkinson's Disease Mechanisms and Treatments","score":0.9998999834060669,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10085","display_name":"Parkinson's Disease Mechanisms and Treatments","score":0.9998999834060669,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10919","display_name":"Neurological disorders and treatments","score":0.9909999966621399,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10106","display_name":"Autism Spectrum Disorder Research","score":0.9818999767303467,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/parkinsons-disease","display_name":"Parkinson's disease","score":0.6586613059043884},{"id":"https://openalex.org/keywords/disease","display_name":"Disease","score":0.4937675893306732},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.4857521653175354},{"id":"https://openalex.org/keywords/physical-medicine-and-rehabilitation","display_name":"Physical medicine and rehabilitation","score":0.4728192090988159},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.42857807874679565},{"id":"https://openalex.org/keywords/track","display_name":"Track (disk drive)","score":0.4218069612979889},{"id":"https://openalex.org/keywords/psychiatry","display_name":"Psychiatry","score":0.36774733662605286},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.19314143061637878},{"id":"https://openalex.org/keywords/internal-medicine","display_name":"Internal medicine","score":0.11258018016815186}],"concepts":[{"id":"https://openalex.org/C2779734285","wikidata":"https://www.wikidata.org/wiki/Q11085","display_name":"Parkinson's disease","level":3,"score":0.6586613059043884},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.4937675893306732},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4857521653175354},{"id":"https://openalex.org/C99508421","wikidata":"https://www.wikidata.org/wiki/Q2678675","display_name":"Physical medicine and rehabilitation","level":1,"score":0.4728192090988159},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.42857807874679565},{"id":"https://openalex.org/C89992363","wikidata":"https://www.wikidata.org/wiki/Q5961558","display_name":"Track (disk drive)","level":2,"score":0.4218069612979889},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.36774733662605286},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.19314143061637878},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.11258018016815186},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3649454","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3649454","pdf_url":null,"source":{"id":"https://openalex.org/S79551877","display_name":"ACM Transactions on Accessible Computing","issn_l":"1936-7228","issn":["1936-7228","1936-7236"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"ACM Transactions on Accessible Computing","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":55,"referenced_works":["https://openalex.org/W1492061961","https://openalex.org/W1530898409","https://openalex.org/W1561072761","https://openalex.org/W1614899389","https://openalex.org/W1965386712","https://openalex.org/W1983802226","https://openalex.org/W2014583561","https://openalex.org/W2083588517","https://openalex.org/W2093973716","https://openalex.org/W2100471939","https://openalex.org/W2103777983","https://openalex.org/W2104953067","https://openalex.org/W2116241811","https://openalex.org/W2116414327","https://openalex.org/W2128892560","https://openalex.org/W2129428238","https://openalex.org/W2134886133","https://openalex.org/W2141145756","https://openalex.org/W2144892760","https://openalex.org/W2185515204","https://openalex.org/W2296350496","https://openalex.org/W2343290709","https://openalex.org/W2460422012","https://openalex.org/W2565522107","https://openalex.org/W2570851969","https://openalex.org/W2614914845","https://openalex.org/W2758953274","https://openalex.org/W2765166666","https://openalex.org/W2766597378","https://openalex.org/W2769742875","https://openalex.org/W2783539613","https://openalex.org/W2791600159","https://openalex.org/W2811255424","https://openalex.org/W2900619723","https://openalex.org/W2911930170","https://openalex.org/W2914783728","https://openalex.org/W2954539192","https://openalex.org/W2970532006","https://openalex.org/W2989725486","https://openalex.org/W2999310244","https://openalex.org/W3004219043","https://openalex.org/W3040472729","https://openalex.org/W3159383621","https://openalex.org/W4210784793","https://openalex.org/W4211151576","https://openalex.org/W4225095655","https://openalex.org/W4231109226","https://openalex.org/W4249888301","https://openalex.org/W4282944655","https://openalex.org/W4283765856","https://openalex.org/W4302382411","https://openalex.org/W4319589150","https://openalex.org/W4321054308","https://openalex.org/W4323925513","https://openalex.org/W6622543870"],"related_works":["https://openalex.org/W2789518417","https://openalex.org/W4213217485","https://openalex.org/W2566545183","https://openalex.org/W3134596587","https://openalex.org/W3216329096","https://openalex.org/W2416973532","https://openalex.org/W3116665257","https://openalex.org/W2011324577","https://openalex.org/W2066174631","https://openalex.org/W2791159354"],"abstract_inverted_index":{"Self-tracking":[0,56],"has":[1],"great":[2],"potential":[3],"in":[4,11],"empowering":[5],"individuals":[6],"with":[7,45,54,62,76,79,98,115,154],"a":[8,19,31,92],"chronic":[9],"illness":[10],"managing":[12],"their":[13,66,96],"condition.":[14],"Parkinson's":[15],"Disease":[16],"(PD)":[17],"is":[18],"common":[20],"neurodegenerative":[21],"disease":[22],"that":[23,39],"affects":[24],"millions":[25],"of":[26,34,95,103,143,146,149,158,176],"people":[27,53,61,78],"worldwide.":[28],"PD":[29,80],"presents":[30],"broad":[32],"range":[33],"motor":[35],"and":[36,68,85,101,121,156,168],"non-motor":[37],"symptoms":[38,134],"are":[40],"unique":[41,49],"to":[42,70,90,140,165,171],"each":[43],"person":[44],"PD,":[46,63],"thus":[47],"requiring":[48],"intervention":[50],"needs":[51],"for":[52,60,179],"PD.":[55,180],"can":[57],"aid":[58],"treatment":[59],"by":[64,123],"recording":[65],"experiences":[67,97],"responses":[69],"intervention.":[71],"We":[72,125],"conducted":[73],"semi-structured":[74],"interviews":[75],"26":[77],"(PwPD),":[81],"six":[82],"caregivers":[83],"(CGs),":[84],"three":[86],"healthcare":[87],"providers":[88],"(HPs)":[89],"acquire":[91],"better":[93],"understanding":[94],"the":[99,173],"strategies":[100,107],"challenges":[102,128],"self-tracking.":[104],"Five":[105],"tracking":[106,114,122,160],"were":[108],"identified:":[109],"mental":[110],"tracking,":[111,113,120,144],"analog":[112],"general-purpose":[116],"technology,":[117,155],"specialized":[118],"technology":[119],"proxy.":[124],"also":[126],"uncovered":[127],"experienced":[129],"during":[130],"self-tracking,":[131],"such":[132],"as":[133],"not":[135],"always":[136],"distinctive":[137],"or":[138],"easy":[139],"describe,":[141],"inaccuracy":[142],"lack":[145,157],"perceived":[147],"usefulness":[148],"tracked":[150],"data,":[151],"interaction":[152],"barriers":[153],"proper":[159],"tools.":[161],"Our":[162],"findings":[163],"contribute":[164],"existing":[166],"literature":[167],"yield":[169],"insights":[170],"guide":[172],"inclusive":[174],"design":[175],"self-tracking":[177],"tools":[178]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":2}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}