{"id":"https://openalex.org/W4404172469","doi":"https://doi.org/10.1145/3686997","title":"Exploring Patient-Generated Annotations to Digital Clinical Symptom Measures for Patient-Centered Communication","display_name":"Exploring Patient-Generated Annotations to Digital Clinical Symptom Measures for Patient-Centered Communication","publication_year":2024,"publication_date":"2024-11-07","ids":{"openalex":"https://openalex.org/W4404172469","doi":"https://doi.org/10.1145/3686997"},"language":"en","primary_location":{"id":"doi:10.1145/3686997","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3686997","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3686997","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3686997","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5015228589","display_name":"Eunkyung Jo","orcid":"https://orcid.org/0000-0002-6494-3396"},"institutions":[{"id":"https://openalex.org/I204250578","display_name":"University of California, Irvine","ror":"https://ror.org/04gyf1771","country_code":"US","type":"education","lineage":["https://openalex.org/I204250578"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eunkyung Jo","raw_affiliation_strings":["University of California, Irvine, Irvine, CA, USA"],"raw_orcid":"https://orcid.org/0000-0002-6494-3396","affiliations":[{"raw_affiliation_string":"University of California, Irvine, Irvine, CA, USA","institution_ids":["https://openalex.org/I204250578"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5054000534","display_name":"Rachael Zehrung","orcid":"https://orcid.org/0000-0003-1617-9079"},"institutions":[{"id":"https://openalex.org/I204250578","display_name":"University of California, Irvine","ror":"https://ror.org/04gyf1771","country_code":"US","type":"education","lineage":["https://openalex.org/I204250578"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Rachael Zehrung","raw_affiliation_strings":["University of California, Irvine, Irvine, CA, USA"],"raw_orcid":"https://orcid.org/0000-0003-1617-9079","affiliations":[{"raw_affiliation_string":"University of California, Irvine, Irvine, CA, USA","institution_ids":["https://openalex.org/I204250578"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071550805","display_name":"Katherine E Genuario","orcid":null},"institutions":[{"id":"https://openalex.org/I204250578","display_name":"University of California, Irvine","ror":"https://ror.org/04gyf1771","country_code":"US","type":"education","lineage":["https://openalex.org/I204250578"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Katherine Genuario","raw_affiliation_strings":["University of California, Irvine, Irvine, CA, USA"],"raw_orcid":"https://orcid.org/0009-0007-4311-4314","affiliations":[{"raw_affiliation_string":"University of California, Irvine, Irvine, CA, USA","institution_ids":["https://openalex.org/I204250578"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5060515739","display_name":"Alexandra Papoutsaki","orcid":"https://orcid.org/0000-0003-1041-4760"},"institutions":[{"id":"https://openalex.org/I177881444","display_name":"Pomona College","ror":"https://ror.org/0074grg94","country_code":"US","type":"education","lineage":["https://openalex.org/I177881444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Alexandra Papoutsaki","raw_affiliation_strings":["Pomona College, Claremont, CA, USA"],"raw_orcid":"https://orcid.org/0000-0003-1041-4760","affiliations":[{"raw_affiliation_string":"Pomona College, Claremont, CA, USA","institution_ids":["https://openalex.org/I177881444"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5088906729","display_name":"Daniel A. Epstein","orcid":"https://orcid.org/0000-0002-2657-6345"},"institutions":[{"id":"https://openalex.org/I204250578","display_name":"University of California, Irvine","ror":"https://ror.org/04gyf1771","country_code":"US","type":"education","lineage":["https://openalex.org/I204250578"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Daniel A. Epstein","raw_affiliation_strings":["University of California, Irvine, Irvine, CA, USA"],"raw_orcid":"https://orcid.org/0000-0002-2657-6345","affiliations":[{"raw_affiliation_string":"University of California, Irvine, Irvine, CA, USA","institution_ids":["https://openalex.org/I204250578"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":1.6726,"has_fulltext":false,"cited_by_count":6,"citation_normalized_percentile":{"value":0.84298325,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":97,"max":98},"biblio":{"volume":"8","issue":"CSCW2","first_page":"1","last_page":"26"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13155","display_name":"Digital Communication and Language","score":0.9991999864578247,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T13155","display_name":"Digital Communication and Language","score":0.9991999864578247,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T12488","display_name":"Mental Health via Writing","score":0.963100016117096,"subfield":{"id":"https://openalex.org/subfields/3207","display_name":"Social Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10465","display_name":"Neurobiology of Language and Bilingualism","score":0.9254000186920166,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4556463360786438},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"Patient-centered care","score":0.41772839426994324},{"id":"https://openalex.org/keywords/human\u2013computer-interaction","display_name":"Human\u2013computer interaction","score":0.40174373984336853},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3656013607978821},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.3446831703186035},{"id":"https://openalex.org/keywords/medline","display_name":"MEDLINE","score":0.31341463327407837},{"id":"https://openalex.org/keywords/biology","display_name":"Biology","score":0.0774434506893158}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4556463360786438},{"id":"https://openalex.org/C2780860654","wikidata":"https://www.wikidata.org/wiki/Q7144993","display_name":"Patient-centered care","level":3,"score":0.41772839426994324},{"id":"https://openalex.org/C107457646","wikidata":"https://www.wikidata.org/wiki/Q207434","display_name":"Human\u2013computer interaction","level":1,"score":0.40174373984336853},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3656013607978821},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3446831703186035},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.31341463327407837},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0774434506893158},{"id":"https://openalex.org/C55493867","wikidata":"https://www.wikidata.org/wiki/Q7094","display_name":"Biochemistry","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3686997","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3686997","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3686997","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1145/3686997","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3686997","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3686997","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/4","display_name":"Quality Education","score":0.4699999988079071}],"awards":[{"id":"https://openalex.org/G4231807186","display_name":null,"funder_award_id":"UL1 TR001414","funder_id":"https://openalex.org/F4320323817","funder_display_name":"Universitas Brawijaya"},{"id":"https://openalex.org/G4634597539","display_name":null,"funder_award_id":"IIS-2237389","funder_id":"https://openalex.org/F4320323817","funder_display_name":"Universitas Brawijaya"}],"funders":[{"id":"https://openalex.org/F4320323817","display_name":"Universitas Brawijaya","ror":"https://ror.org/01wk3d929"}],"has_content":{"pdf":true,"grobid_xml":false},"content_urls":{"pdf":"https://content.openalex.org/works/W4404172469.pdf"},"referenced_works_count":81,"referenced_works":["https://openalex.org/W1977968405","https://openalex.org/W1979290264","https://openalex.org/W2025745524","https://openalex.org/W2035924151","https://openalex.org/W2054265302","https://openalex.org/W2056884892","https://openalex.org/W2067495470","https://openalex.org/W2072812692","https://openalex.org/W2078339310","https://openalex.org/W2079938188","https://openalex.org/W2084728935","https://openalex.org/W2089391498","https://openalex.org/W2090771594","https://openalex.org/W2094233855","https://openalex.org/W2099634048","https://openalex.org/W2114293474","https://openalex.org/W2114613490","https://openalex.org/W2123508139","https://openalex.org/W2128559207","https://openalex.org/W2140746866","https://openalex.org/W2144673707","https://openalex.org/W2160599403","https://openalex.org/W2261289103","https://openalex.org/W2290835535","https://openalex.org/W2320909684","https://openalex.org/W2397449020","https://openalex.org/W2406020846","https://openalex.org/W2408767583","https://openalex.org/W2510632587","https://openalex.org/W2518630504","https://openalex.org/W2520316485","https://openalex.org/W2560032742","https://openalex.org/W2587897132","https://openalex.org/W2588153309","https://openalex.org/W2589021616","https://openalex.org/W2610373936","https://openalex.org/W2610811975","https://openalex.org/W2611285602","https://openalex.org/W2611659823","https://openalex.org/W2611962417","https://openalex.org/W2623775650","https://openalex.org/W2773977003","https://openalex.org/W2775469924","https://openalex.org/W2782587427","https://openalex.org/W2795595430","https://openalex.org/W2795847858","https://openalex.org/W2796077206","https://openalex.org/W2796300011","https://openalex.org/W2796354040","https://openalex.org/W2806790293","https://openalex.org/W2884123529","https://openalex.org/W2891016433","https://openalex.org/W2899139571","https://openalex.org/W2919124707","https://openalex.org/W2925512010","https://openalex.org/W2941802617","https://openalex.org/W2942198026","https://openalex.org/W2942335051","https://openalex.org/W2980701516","https://openalex.org/W2989911287","https://openalex.org/W3004219043","https://openalex.org/W3006990847","https://openalex.org/W3017319377","https://openalex.org/W3024267266","https://openalex.org/W3028851948","https://openalex.org/W3030645702","https://openalex.org/W3033083301","https://openalex.org/W3040943896","https://openalex.org/W3120518885","https://openalex.org/W3121068758","https://openalex.org/W3137004684","https://openalex.org/W3162302737","https://openalex.org/W3174410182","https://openalex.org/W3205879657","https://openalex.org/W3206284518","https://openalex.org/W3207087635","https://openalex.org/W4200110929","https://openalex.org/W4225092361","https://openalex.org/W4281564584","https://openalex.org/W4285722314","https://openalex.org/W4309617586"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W3108674512","https://openalex.org/W1506200166"],"abstract_inverted_index":{"Patients'":[0],"self-reports":[1],"are":[2],"crucial":[3],"for":[4,142,157],"effective":[5],"care":[6],"management":[7],"of":[8,25,61,73,91,117,135],"clinical":[9,43,55,66,101,151],"conditions":[10],"involving":[11],"subjective":[12],"symptoms.":[13],"While":[14],"patients":[15,80],"often":[16,34],"value":[17],"the":[18,59,71,89,112,130],"ability":[19],"to":[20,28,36,64,87,99,106,144],"bring":[21],"in":[22,42,50,54,70,126],"different":[23],"forms":[24],"self-report":[26,67,108],"data":[27,39],"convey":[29],"their":[30,38],"lived":[31],"experiences,":[32],"they":[33],"struggle":[35],"make":[37],"practically":[40],"usable":[41],"settings.":[44],"To":[45],"better":[46],"center":[47],"patient":[48,62],"needs":[49],"communicating":[51],"illness":[52],"experiences":[53],"contexts,":[56],"we":[57,93],"explore":[58],"idea":[60],"annotations":[63,98,143],"digital":[65,85,100],"measures,":[68],"specifically":[69],"context":[72],"discontinuing":[74],"antidepressants.":[75],"Through":[76],"interviews":[77],"with":[78,81,150],"20":[79],"AT":[82],"Annotator,":[83],"a":[84,104],"aid":[86],"introduce":[88],"concept":[90],"annotations,":[92],"found":[94],"that":[95],"participants":[96],"perceived":[97],"measures":[102,109],"as":[103],"means":[105],"enrich":[107],"and":[110,114,129,132,153],"reduce":[111],"cognitive":[113],"emotional":[115],"burden":[116],"logging.":[118],"However,":[119],"concerns":[120],"were":[121],"raised":[122],"regarding":[123],"potential":[124],"disruptions":[125],"patient-provider":[127],"relationships":[128],"sensitive":[131],"complex":[133],"nature":[134],"mental":[136],"health":[137],"contexts.":[138],"We":[139],"discuss":[140],"opportunities":[141],"promote":[145],"patient-centered":[146],"communication":[147,159],"by":[148],"balancing":[149],"practicality":[152],"incorporating":[154],"customization":[155],"support":[156],"patients'":[158],"needs.":[160]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":4}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}