{"id":"https://openalex.org/W4399428249","doi":"https://doi.org/10.1145/3639701.3656304","title":"Negotiating Neutrality: Designing a Responsive Video to Support Fertility Preservation Decision-making by Cancer-diagnosed Young Female Patients","display_name":"Negotiating Neutrality: Designing a Responsive Video to Support Fertility Preservation Decision-making by Cancer-diagnosed Young Female Patients","publication_year":2024,"publication_date":"2024-06-07","ids":{"openalex":"https://openalex.org/W4399428249","doi":"https://doi.org/10.1145/3639701.3656304"},"language":"en","primary_location":{"id":"doi:10.1145/3639701.3656304","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3639701.3656304","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3639701.3656304","source":{"id":"https://openalex.org/S4363608453","display_name":"ACM International Conference on Interactive Media Experiences","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"conference"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"ACM International Conference on Interactive Media Experiences","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3639701.3656304","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5021207046","display_name":"Simona Manni","orcid":"https://orcid.org/0000-0002-8015-8136"},"institutions":[{"id":"https://openalex.org/I52099693","display_name":"University of York","ror":"https://ror.org/04m01e293","country_code":"GB","type":"education","lineage":["https://openalex.org/I52099693"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Simona Manni","raw_affiliation_strings":["Health Sciences, University of York, United Kingdom"],"affiliations":[{"raw_affiliation_string":"Health Sciences, University of York, United Kingdom","institution_ids":["https://openalex.org/I52099693"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058186330","display_name":"Bob Phillips","orcid":"https://orcid.org/0000-0002-4938-9673"},"institutions":[{"id":"https://openalex.org/I52099693","display_name":"University of York","ror":"https://ror.org/04m01e293","country_code":"GB","type":"education","lineage":["https://openalex.org/I52099693"]},{"id":"https://openalex.org/I69768126","display_name":"Hull York Medical School","ror":"https://ror.org/0003e4m70","country_code":"GB","type":"education","lineage":["https://openalex.org/I69768126"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Bob Phillips","raw_affiliation_strings":["Centre for Reviews and Dissemination, The Hull York Medical School, University of York, United Kingdom"],"affiliations":[{"raw_affiliation_string":"Centre for Reviews and Dissemination, The Hull York Medical School, University of York, United Kingdom","institution_ids":["https://openalex.org/I69768126","https://openalex.org/I52099693"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5099047068","display_name":"Zulfiya Hamzaki","orcid":"https://orcid.org/0009-0004-2064-7810"},"institutions":[{"id":"https://openalex.org/I52099693","display_name":"University of York","ror":"https://ror.org/04m01e293","country_code":"GB","type":"education","lineage":["https://openalex.org/I52099693"]},{"id":"https://openalex.org/I65106266","display_name":"University for the Creative Arts","ror":"https://ror.org/04r0ks517","country_code":"GB","type":"education","lineage":["https://openalex.org/I65106266"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Zulfiya Hamzaki","raw_affiliation_strings":["School of Arts and Creative Technologies, University of York, United Kingdom"],"affiliations":[{"raw_affiliation_string":"School of Arts and Creative Technologies, University of York, United Kingdom","institution_ids":["https://openalex.org/I65106266","https://openalex.org/I52099693"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048326596","display_name":"Sherzah Jamal","orcid":"https://orcid.org/0000-0003-3563-9771"},"institutions":[{"id":"https://openalex.org/I7882870","display_name":"University of Glasgow","ror":"https://ror.org/00vtgdb53","country_code":"GB","type":"education","lineage":["https://openalex.org/I7882870"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Sherzah Jamal","raw_affiliation_strings":["School of Medicine, Dentistry & Nursing, University of Glasgow, United Kingdom"],"affiliations":[{"raw_affiliation_string":"School of Medicine, Dentistry & Nursing, University of Glasgow, United Kingdom","institution_ids":["https://openalex.org/I7882870"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5088291232","display_name":"Jonathan Hook","orcid":"https://orcid.org/0000-0002-0588-7013"},"institutions":[{"id":"https://openalex.org/I52099693","display_name":"University of York","ror":"https://ror.org/04m01e293","country_code":"GB","type":"education","lineage":["https://openalex.org/I52099693"]},{"id":"https://openalex.org/I65106266","display_name":"University for the Creative Arts","ror":"https://ror.org/04r0ks517","country_code":"GB","type":"education","lineage":["https://openalex.org/I65106266"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Jonathan Hook","raw_affiliation_strings":["School of Arts and Creative Technologies, University of York, United Kingdom"],"affiliations":[{"raw_affiliation_string":"School of Arts and Creative Technologies, University of York, United Kingdom","institution_ids":["https://openalex.org/I65106266","https://openalex.org/I52099693"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5021207046"],"corresponding_institution_ids":["https://openalex.org/I52099693"],"apc_list":null,"apc_paid":null,"fwci":2.6434,"has_fulltext":true,"cited_by_count":3,"citation_normalized_percentile":{"value":0.90876777,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":98},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"16"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.9905999898910522,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.9905999898910522,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11156","display_name":"Reproductive Health and Technologies","score":0.9869999885559082,"subfield":{"id":"https://openalex.org/subfields/2743","display_name":"Reproductive Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10364","display_name":"Reproductive Biology and Fertility","score":0.9178000092506409,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/interactivity","display_name":"Interactivity","score":0.7822470664978027},{"id":"https://openalex.org/keywords/negotiation","display_name":"Negotiation","score":0.648102343082428},{"id":"https://openalex.org/keywords/stakeholder","display_name":"Stakeholder","score":0.5397051572799683},{"id":"https://openalex.org/keywords/fertility-preservation","display_name":"Fertility preservation","score":0.5318607687950134},{"id":"https://openalex.org/keywords/leverage","display_name":"Leverage (statistics)","score":0.5300319790840149},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5223363637924194},{"id":"https://openalex.org/keywords/personalization","display_name":"Personalization","score":0.4555264115333557},{"id":"https://openalex.org/keywords/narrative","display_name":"Narrative","score":0.4122001528739929},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.39271706342697144},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.37501218914985657},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.3738095462322235},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.3674085736274719},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.3173099756240845},{"id":"https://openalex.org/keywords/fertility","display_name":"Fertility","score":0.2879185676574707},{"id":"https://openalex.org/keywords/multimedia","display_name":"Multimedia","score":0.2866267263889313},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.22606617212295532},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.15331774950027466},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.14313900470733643},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.12594765424728394}],"concepts":[{"id":"https://openalex.org/C144430266","wikidata":"https://www.wikidata.org/wiki/Q839721","display_name":"Interactivity","level":2,"score":0.7822470664978027},{"id":"https://openalex.org/C199776023","wikidata":"https://www.wikidata.org/wiki/Q202875","display_name":"Negotiation","level":2,"score":0.648102343082428},{"id":"https://openalex.org/C201305675","wikidata":"https://www.wikidata.org/wiki/Q852998","display_name":"Stakeholder","level":2,"score":0.5397051572799683},{"id":"https://openalex.org/C2777904497","wikidata":"https://www.wikidata.org/wiki/Q5445580","display_name":"Fertility preservation","level":4,"score":0.5318607687950134},{"id":"https://openalex.org/C153083717","wikidata":"https://www.wikidata.org/wiki/Q6535263","display_name":"Leverage (statistics)","level":2,"score":0.5300319790840149},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5223363637924194},{"id":"https://openalex.org/C183003079","wikidata":"https://www.wikidata.org/wiki/Q1000371","display_name":"Personalization","level":2,"score":0.4555264115333557},{"id":"https://openalex.org/C199033989","wikidata":"https://www.wikidata.org/wiki/Q1318295","display_name":"Narrative","level":2,"score":0.4122001528739929},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.39271706342697144},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.37501218914985657},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3738095462322235},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.3674085736274719},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3173099756240845},{"id":"https://openalex.org/C518429986","wikidata":"https://www.wikidata.org/wiki/Q964401","display_name":"Fertility","level":3,"score":0.2879185676574707},{"id":"https://openalex.org/C49774154","wikidata":"https://www.wikidata.org/wiki/Q131765","display_name":"Multimedia","level":1,"score":0.2866267263889313},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.22606617212295532},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.15331774950027466},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.14313900470733643},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.12594765424728394},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1145/3639701.3656304","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3639701.3656304","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3639701.3656304","source":{"id":"https://openalex.org/S4363608453","display_name":"ACM International Conference on Interactive Media Experiences","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"conference"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"ACM International Conference on Interactive Media Experiences","raw_type":"proceedings-article"},{"id":"pmh:oai:eprints.whiterose.ac.uk:212081","is_oa":true,"landing_page_url":"https://orcid.org/0000-0002-8015-8136>,","pdf_url":"https://eprints.whiterose.ac.uk/id/eprint/212081/1/negotiatingneutrality_preprint.pdf","source":{"id":"https://openalex.org/S4306400854","display_name":"White Rose Research Online (University of Leeds, The University of Sheffield, University of York)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I2800616092","host_organization_name":"White Rose University Consortium","host_organization_lineage":["https://openalex.org/I2800616092"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"NonPeerReviewed"}],"best_oa_location":{"id":"doi:10.1145/3639701.3656304","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3639701.3656304","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3639701.3656304","source":{"id":"https://openalex.org/S4363608453","display_name":"ACM International Conference on Interactive Media Experiences","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"conference"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"ACM International Conference on Interactive Media Experiences","raw_type":"proceedings-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/5","score":0.7099999785423279,"display_name":"Gender equality"}],"awards":[{"id":"https://openalex.org/G7888495841","display_name":null,"funder_award_id":"Internally Distributed Funding","funder_id":"https://openalex.org/F4320323817","funder_display_name":"Universitas Brawijaya"}],"funders":[{"id":"https://openalex.org/F4320323817","display_name":"Universitas Brawijaya","ror":"https://ror.org/01wk3d929"}],"has_content":{"grobid_xml":false,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4399428249.pdf"},"referenced_works_count":43,"referenced_works":["https://openalex.org/W1499458641","https://openalex.org/W1557267326","https://openalex.org/W1897906499","https://openalex.org/W1943745580","https://openalex.org/W1998793840","https://openalex.org/W2005217766","https://openalex.org/W2013901211","https://openalex.org/W2035863649","https://openalex.org/W2036314956","https://openalex.org/W2056288999","https://openalex.org/W2064114941","https://openalex.org/W2064446388","https://openalex.org/W2091233575","https://openalex.org/W2101853614","https://openalex.org/W2113239364","https://openalex.org/W2115001570","https://openalex.org/W2117416588","https://openalex.org/W2132202888","https://openalex.org/W2133989659","https://openalex.org/W2138159779","https://openalex.org/W2153207369","https://openalex.org/W2196236374","https://openalex.org/W2259181940","https://openalex.org/W2596697447","https://openalex.org/W2740478659","https://openalex.org/W2767645605","https://openalex.org/W2888154793","https://openalex.org/W2888718859","https://openalex.org/W2903824477","https://openalex.org/W2911494200","https://openalex.org/W2918120131","https://openalex.org/W2967703288","https://openalex.org/W2982535925","https://openalex.org/W3030048792","https://openalex.org/W3128615192","https://openalex.org/W3139243053","https://openalex.org/W3175840800","https://openalex.org/W3200637151","https://openalex.org/W4283714753","https://openalex.org/W4366548814","https://openalex.org/W4366591165","https://openalex.org/W4390821068","https://openalex.org/W6759792126"],"related_works":["https://openalex.org/W2319020389","https://openalex.org/W2001821990","https://openalex.org/W2272707781","https://openalex.org/W2747851897","https://openalex.org/W1975913006","https://openalex.org/W1513662110","https://openalex.org/W2063506784","https://openalex.org/W4240086805","https://openalex.org/W2521348551","https://openalex.org/W2013411520"],"abstract_inverted_index":{"This":[0],"paper":[1],"explores":[2],"how":[3],"novel":[4],"possibilities":[5],"for":[6,100],"personalisation":[7,106],"and":[8,34,57,80,94,107,113,119,122,138],"interactivity":[9,108],"in":[10,16,55,133],"video":[11,18,48],"media,":[12],"posed":[13],"by":[14],"developments":[15],"responsive":[17,47],"technology,":[19],"can":[20,125],"be":[21],"applied":[22],"to":[23,50,64,109,129,140],"support":[24,51,115],"patients":[25,54],"as":[26],"they":[27],"make":[28],"complex":[29,144],"decisions":[30],"about":[31],"their":[32],"health":[33,92,102],"care.":[35],"We":[36],"present":[37],"the":[38,59,76,86,141],"stakeholder-centred":[39],"design":[40],"of":[41,78,88,117,143],"Exploring":[42,82],"Your":[43,83],"Options,":[44],"a":[45,67],"narrative-based":[46],"developed":[49],"young":[52,90],"female":[53],"understanding":[56],"negotiating":[58],"fertility":[60],"preservation":[61],"options":[62],"available":[63],"them":[65],"following":[66],"cancer":[68],"diagnosis.":[69],"By":[70],"reflecting":[71],"on":[72],"findings":[73],"resulting":[74],"from":[75],"process":[77],"designing":[79,101],"analysing":[81],"Options":[84],"with":[85],"involvement":[87],"cancer-experienced":[89],"people,":[91],"professionals":[93],"related":[95],"stakeholders,":[96],"we":[97],"reveal":[98],"opportunities":[99,132],"information":[103],"videos":[104],"leveraging":[105],"meet":[110],"both":[111],"informational":[112],"emotional":[114],"needs":[116],"patients,":[118],"highlight":[120],"insights":[121],"considerations":[123],"that":[124,135],"guide":[126],"designers":[127],"seeking":[128],"leverage":[130],"these":[131],"ways":[134],"are":[136],"sensitive":[137],"appropriate":[139],"demands":[142],"healthcare":[145],"contexts.":[146]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1}],"updated_date":"2026-04-09T08:11:56.329763","created_date":"2025-10-10T00:00:00"}