{"id":"https://openalex.org/W4396832640","doi":"https://doi.org/10.1145/3613904.3642851","title":"My Data, My Choice, My Insights: Women's Requirements when Collecting, Interpreting and Sharing their Personal Health Data","display_name":"My Data, My Choice, My Insights: Women's Requirements when Collecting, Interpreting and Sharing their Personal Health Data","publication_year":2024,"publication_date":"2024-05-11","ids":{"openalex":"https://openalex.org/W4396832640","doi":"https://doi.org/10.1145/3613904.3642851"},"language":"en","primary_location":{"id":"doi:10.1145/3613904.3642851","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3613904.3642851","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642851","source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642851","any_repository_has_fulltext":null},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5033382547","display_name":"Sophie Grimme","orcid":"https://orcid.org/0000-0003-3422-4160"},"institutions":[{"id":"https://openalex.org/I202367325","display_name":"Oldenburger Institut f\u00fcr Informatik","ror":"https://ror.org/003sav189","country_code":"DE","type":"facility","lineage":["https://openalex.org/I202367325"]}],"countries":["DE"],"is_corresponding":true,"raw_author_name":"Sophie Grimme","raw_affiliation_strings":["OFFIS - Institute for Information Technology, Germany"],"affiliations":[{"raw_affiliation_string":"OFFIS - Institute for Information Technology, Germany","institution_ids":["https://openalex.org/I202367325"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5097633154","display_name":"Susanna Marie Spoerl","orcid":"https://orcid.org/0009-0004-8204-3801"},"institutions":[{"id":"https://openalex.org/I202367325","display_name":"Oldenburger Institut f\u00fcr Informatik","ror":"https://ror.org/003sav189","country_code":"DE","type":"facility","lineage":["https://openalex.org/I202367325"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Susanna Marie Spoerl","raw_affiliation_strings":["OFFIS - Institute for Information Technology, Germany"],"affiliations":[{"raw_affiliation_string":"OFFIS - Institute for Information Technology, Germany","institution_ids":["https://openalex.org/I202367325"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029358314","display_name":"Susanne Boll","orcid":"https://orcid.org/0000-0003-4293-1623"},"institutions":[{"id":"https://openalex.org/I129877168","display_name":"Carl von Ossietzky Universit\u00e4t Oldenburg","ror":"https://ror.org/033n9gh91","country_code":"DE","type":"education","lineage":["https://openalex.org/I129877168"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Susanne Boll","raw_affiliation_strings":["University of Oldenburg, Germany"],"affiliations":[{"raw_affiliation_string":"University of Oldenburg, Germany","institution_ids":["https://openalex.org/I129877168"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5078433185","display_name":"Marion Koelle","orcid":"https://orcid.org/0000-0002-5931-3218"},"institutions":[{"id":"https://openalex.org/I202367325","display_name":"Oldenburger Institut f\u00fcr Informatik","ror":"https://ror.org/003sav189","country_code":"DE","type":"facility","lineage":["https://openalex.org/I202367325"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Marion Koelle","raw_affiliation_strings":["OFFIS - Institute for Information Technology, Germany"],"affiliations":[{"raw_affiliation_string":"OFFIS - Institute for Information Technology, Germany","institution_ids":["https://openalex.org/I202367325"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5033382547"],"corresponding_institution_ids":["https://openalex.org/I202367325"],"apc_list":null,"apc_paid":null,"fwci":5.5844,"has_fulltext":false,"cited_by_count":16,"citation_normalized_percentile":{"value":0.96133317,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":100},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"18"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9998999834060669,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9998999834060669,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11977","display_name":"Technology Use by Older Adults","score":0.9962000250816345,"subfield":{"id":"https://openalex.org/subfields/3317","display_name":"Demography"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9940999746322632,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/thematic-analysis","display_name":"Thematic analysis","score":0.7210032939910889},{"id":"https://openalex.org/keywords/reflexivity","display_name":"Reflexivity","score":0.6381101608276367},{"id":"https://openalex.org/keywords/data-collection","display_name":"Data collection","score":0.5583730936050415},{"id":"https://openalex.org/keywords/tracking","display_name":"Tracking (education)","score":0.5409657955169678},{"id":"https://openalex.org/keywords/mental-health","display_name":"Mental health","score":0.5235261917114258},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.5077029466629028},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.43545955419540405},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.4233327805995941},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4012686610221863},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.39973774552345276},{"id":"https://openalex.org/keywords/applied-psychology","display_name":"Applied psychology","score":0.38494420051574707},{"id":"https://openalex.org/keywords/qualitative-research","display_name":"Qualitative research","score":0.3013704717159271},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.22651618719100952},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.199233740568161},{"id":"https://openalex.org/keywords/alternative-medicine","display_name":"Alternative medicine","score":0.1296287477016449},{"id":"https://openalex.org/keywords/psychotherapist","display_name":"Psychotherapist","score":0.09386345744132996}],"concepts":[{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.7210032939910889},{"id":"https://openalex.org/C13200473","wikidata":"https://www.wikidata.org/wiki/Q2747831","display_name":"Reflexivity","level":2,"score":0.6381101608276367},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.5583730936050415},{"id":"https://openalex.org/C2775936607","wikidata":"https://www.wikidata.org/wiki/Q466845","display_name":"Tracking (education)","level":2,"score":0.5409657955169678},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.5235261917114258},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.5077029466629028},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.43545955419540405},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.4233327805995941},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4012686610221863},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.39973774552345276},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.38494420051574707},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.3013704717159271},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.22651618719100952},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.199233740568161},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.1296287477016449},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.09386345744132996},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C19417346","wikidata":"https://www.wikidata.org/wiki/Q7922","display_name":"Pedagogy","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3613904.3642851","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3613904.3642851","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642851","source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"}],"best_oa_location":{"id":"doi:10.1145/3613904.3642851","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3613904.3642851","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642851","source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"sustainable_development_goals":[{"score":0.7099999785423279,"id":"https://metadata.un.org/sdg/5","display_name":"Gender equality"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4396832640.pdf"},"referenced_works_count":95,"referenced_works":["https://openalex.org/W591589697","https://openalex.org/W1505389304","https://openalex.org/W1967578323","https://openalex.org/W1967665153","https://openalex.org/W1997772859","https://openalex.org/W2007359876","https://openalex.org/W2009455282","https://openalex.org/W2010875089","https://openalex.org/W2011018590","https://openalex.org/W2018904005","https://openalex.org/W2023570407","https://openalex.org/W2045484620","https://openalex.org/W2052918485","https://openalex.org/W2062767017","https://openalex.org/W2064886003","https://openalex.org/W2070372228","https://openalex.org/W2082357005","https://openalex.org/W2089568219","https://openalex.org/W2093848374","https://openalex.org/W2107177524","https://openalex.org/W2109394571","https://openalex.org/W2128608692","https://openalex.org/W2140420369","https://openalex.org/W2143512323","https://openalex.org/W2154835689","https://openalex.org/W2161842835","https://openalex.org/W2161903977","https://openalex.org/W2163416454","https://openalex.org/W2166323020","https://openalex.org/W2170068976","https://openalex.org/W2266122639","https://openalex.org/W2295080523","https://openalex.org/W2329878430","https://openalex.org/W2337116379","https://openalex.org/W2396647730","https://openalex.org/W2402642969","https://openalex.org/W2404696582","https://openalex.org/W2504237841","https://openalex.org/W2538716555","https://openalex.org/W2574114631","https://openalex.org/W2606908707","https://openalex.org/W2610320177","https://openalex.org/W2610339637","https://openalex.org/W2611061514","https://openalex.org/W2611962417","https://openalex.org/W2766721788","https://openalex.org/W2772743714","https://openalex.org/W2780619615","https://openalex.org/W2794303701","https://openalex.org/W2796138444","https://openalex.org/W2796181855","https://openalex.org/W2855821618","https://openalex.org/W2899086929","https://openalex.org/W2899360608","https://openalex.org/W2903847175","https://openalex.org/W2916208751","https://openalex.org/W2937976438","https://openalex.org/W2940866906","https://openalex.org/W2941088806","https://openalex.org/W2941928504","https://openalex.org/W2942529412","https://openalex.org/W2943166540","https://openalex.org/W2943608867","https://openalex.org/W2947685147","https://openalex.org/W2950504429","https://openalex.org/W2951370690","https://openalex.org/W2971722175","https://openalex.org/W2977991079","https://openalex.org/W3001687002","https://openalex.org/W3012351828","https://openalex.org/W3015698581","https://openalex.org/W3040978873","https://openalex.org/W3081819535","https://openalex.org/W3082765662","https://openalex.org/W3087527158","https://openalex.org/W3107525168","https://openalex.org/W3144524155","https://openalex.org/W3159301642","https://openalex.org/W3161258441","https://openalex.org/W3163252847","https://openalex.org/W3163850179","https://openalex.org/W3177279645","https://openalex.org/W3185595804","https://openalex.org/W3194949488","https://openalex.org/W3195519068","https://openalex.org/W3206094771","https://openalex.org/W4220982766","https://openalex.org/W4225000207","https://openalex.org/W4253165656","https://openalex.org/W4293145863","https://openalex.org/W4297659087","https://openalex.org/W4320519549","https://openalex.org/W4366549502","https://openalex.org/W4366590346","https://openalex.org/W6922094438"],"related_works":["https://openalex.org/W4293241344","https://openalex.org/W2361927408","https://openalex.org/W3215481272","https://openalex.org/W3216203496","https://openalex.org/W3217021367","https://openalex.org/W3001001525","https://openalex.org/W2095962685","https://openalex.org/W3031528029","https://openalex.org/W2941133393","https://openalex.org/W2043150244"],"abstract_inverted_index":{"HCI":[0],"research":[1],"has":[2],"been":[3],"instrumental":[4],"in":[5],"enabling":[6],"self-directed":[7,84,120],"health":[8,23,70,90,149],"tracking.":[9],"Despite":[10],"a":[11,29,104],"plethora":[12],"of":[13,20,83,122,130],"devices":[14],"and":[15,36,39,64,75,81,87,116,136,146],"data,":[16,91],"however,":[17],"users\u2019":[18],"views":[19],"their":[21,144],"own":[22],"are":[24,41],"often":[25,72],"fragmented.":[26],"This":[27],"is":[28],"problem":[30],"for":[31,118,132],"women\u2019s":[32,69,89],"health,":[33],"where":[34],"physical":[35],"mental":[37],"observations":[38],"symptoms":[40],"strongly":[42],"intertwined.":[43],"An":[44],"integrated":[45],"view":[46],"throughout":[47],"different":[48],"life":[49],"stages":[50],"could":[51],"help":[52],"to":[53,108,141],"better":[54,142],"understand":[55,143],"these":[56],"connections,":[57],"facilitate":[58],"symptom":[59],"alleviation":[60],"through":[61],"life-style":[62],"changes,":[63],"support":[65],"timely":[66],"diagnosis:":[67],"currently,":[68],"issues":[71],"go":[73],"under-researched":[74],"under-diagnosed.":[76],"To":[77],"capture":[78],"the":[79,128],"needs":[80],"worries":[82],"tracking,":[85],"interpreting":[86],"sharing":[88,137],"we":[92,102],"held":[93],"workshops":[94],"with":[95],"28":[96],"women.":[97],"Drawing":[98],"upon":[99],"feminist":[100],"methods,":[101],"conducted":[103],"Reflexive":[105],"Thematic":[106],"Analysis":[107],"identify":[109],"six":[110],"central":[111],"themes":[112,126],"that":[113,138],"ground":[114],"opportunities":[115],"challenges":[117],"life-long,":[119],"tracking":[121],"intimate":[123],"data.":[124],"These":[125],"inform":[127],"design":[129],"tools":[131],"data":[133],"collection,":[134],"analysis":[135],"empower":[139],"women":[140],"bodies":[145],"demand":[147],"adequate":[148],"services.":[150]},"counts_by_year":[{"year":2026,"cited_by_count":8},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":2}],"updated_date":"2026-04-14T08:04:32.555800","created_date":"2025-10-10T00:00:00"}
