{"id":"https://openalex.org/W4396827192","doi":"https://doi.org/10.1145/3613904.3642567","title":"Towards Digital Independence: Identifying the Tensions between Autistic Young Adults and Their Support Network When Mediating Social Media","display_name":"Towards Digital Independence: Identifying the Tensions between Autistic Young Adults and Their Support Network When Mediating Social Media","publication_year":2024,"publication_date":"2024-05-11","ids":{"openalex":"https://openalex.org/W4396827192","doi":"https://doi.org/10.1145/3613904.3642567"},"language":"en","primary_location":{"id":"doi:10.1145/3613904.3642567","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3613904.3642567","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642567","source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642567","any_repository_has_fulltext":null},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5023805220","display_name":"Spring Cullen","orcid":"https://orcid.org/0000-0003-0815-7072"},"institutions":[{"id":"https://openalex.org/I100005738","display_name":"Brigham Young University","ror":"https://ror.org/047rhhm47","country_code":"US","type":"education","lineage":["https://openalex.org/I100005738"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Spring Cullen","raw_affiliation_strings":["Department of Computer Science, Brigham Young University, United States"],"affiliations":[{"raw_affiliation_string":"Department of Computer Science, Brigham Young University, United States","institution_ids":["https://openalex.org/I100005738"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Elizabeth S Johnson","orcid":"https://orcid.org/0009-0008-6358-2008"},"institutions":[{"id":"https://openalex.org/I100005738","display_name":"Brigham Young University","ror":"https://ror.org/047rhhm47","country_code":"US","type":"education","lineage":["https://openalex.org/I100005738"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Elizabeth S Johnson","raw_affiliation_strings":["Psychology, Brigham Young Univeristy, United States"],"affiliations":[{"raw_affiliation_string":"Psychology, Brigham Young Univeristy, United States","institution_ids":["https://openalex.org/I100005738"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5032530421","display_name":"Pamela Wi\u015bniewski","orcid":"https://orcid.org/0000-0002-6223-1029"},"institutions":[{"id":"https://openalex.org/I200719446","display_name":"Vanderbilt University","ror":"https://ror.org/02vm5rt34","country_code":"US","type":"education","lineage":["https://openalex.org/I200719446"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Pamela J. Wisniewski","raw_affiliation_strings":["Department of Computer Science, Vanderbilt University, United States"],"affiliations":[{"raw_affiliation_string":"Department of Computer Science, Vanderbilt University, United States","institution_ids":["https://openalex.org/I200719446"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5042554865","display_name":"Xinru Page","orcid":null},"institutions":[{"id":"https://openalex.org/I100005738","display_name":"Brigham Young University","ror":"https://ror.org/047rhhm47","country_code":"US","type":"education","lineage":["https://openalex.org/I100005738"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Xinru Page","raw_affiliation_strings":["Department of Computer Science, Brigham Young University, United States"],"affiliations":[{"raw_affiliation_string":"Department of Computer Science, Brigham Young University, United States","institution_ids":["https://openalex.org/I100005738"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5023805220"],"corresponding_institution_ids":["https://openalex.org/I100005738"],"apc_list":null,"apc_paid":null,"fwci":14.2698,"has_fulltext":false,"cited_by_count":7,"citation_normalized_percentile":{"value":0.98718189,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":99},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"21"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12060","display_name":"Child Development and Digital Technology","score":0.9994000196456909,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12060","display_name":"Child Development and Digital Technology","score":0.9994000196456909,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10355","display_name":"Impact of Technology on Adolescents","score":0.993399977684021,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10106","display_name":"Autism Spectrum Disorder Research","score":0.9933000206947327,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/independence","display_name":"Independence (probability theory)","score":0.6977782845497131},{"id":"https://openalex.org/keywords/autism","display_name":"Autism","score":0.5781711935997009},{"id":"https://openalex.org/keywords/social-media","display_name":"Social media","score":0.5642940402030945},{"id":"https://openalex.org/keywords/digital-media","display_name":"Digital media","score":0.5400503277778625},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.47281232476234436},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.42285722494125366},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.39593976736068726},{"id":"https://openalex.org/keywords/developmental-psychology","display_name":"Developmental psychology","score":0.3310597836971283},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.2121330201625824}],"concepts":[{"id":"https://openalex.org/C35651441","wikidata":"https://www.wikidata.org/wiki/Q625303","display_name":"Independence (probability theory)","level":2,"score":0.6977782845497131},{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.5781711935997009},{"id":"https://openalex.org/C518677369","wikidata":"https://www.wikidata.org/wiki/Q202833","display_name":"Social media","level":2,"score":0.5642940402030945},{"id":"https://openalex.org/C17632256","wikidata":"https://www.wikidata.org/wiki/Q1076968","display_name":"Digital media","level":2,"score":0.5400503277778625},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.47281232476234436},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.42285722494125366},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.39593976736068726},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.3310597836971283},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.2121330201625824},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3613904.3642567","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3613904.3642567","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642567","source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"}],"best_oa_location":{"id":"doi:10.1145/3613904.3642567","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3613904.3642567","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3613904.3642567","source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"sustainable_development_goals":[{"score":0.7900000214576721,"id":"https://metadata.un.org/sdg/4","display_name":"Quality Education"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":false},"content_urls":{"pdf":"https://content.openalex.org/works/W4396827192.pdf"},"referenced_works_count":90,"referenced_works":["https://openalex.org/W561751346","https://openalex.org/W1916379620","https://openalex.org/W1993722065","https://openalex.org/W2006115947","https://openalex.org/W2020250474","https://openalex.org/W2040955219","https://openalex.org/W2046265374","https://openalex.org/W2053638617","https://openalex.org/W2057602069","https://openalex.org/W2073540968","https://openalex.org/W2076201885","https://openalex.org/W2080796520","https://openalex.org/W2082189344","https://openalex.org/W2098030678","https://openalex.org/W2118929601","https://openalex.org/W2120870635","https://openalex.org/W2130714201","https://openalex.org/W2134823012","https://openalex.org/W2134874884","https://openalex.org/W2150394933","https://openalex.org/W2152155693","https://openalex.org/W2162548254","https://openalex.org/W2167072945","https://openalex.org/W2186101238","https://openalex.org/W2200574252","https://openalex.org/W2265955179","https://openalex.org/W2302766628","https://openalex.org/W2336858643","https://openalex.org/W2398425041","https://openalex.org/W2403538530","https://openalex.org/W2404128142","https://openalex.org/W2407175511","https://openalex.org/W2463026360","https://openalex.org/W2489370933","https://openalex.org/W2494524772","https://openalex.org/W2520292803","https://openalex.org/W2535978804","https://openalex.org/W2565578188","https://openalex.org/W2569945015","https://openalex.org/W2580196347","https://openalex.org/W2583123561","https://openalex.org/W2588759517","https://openalex.org/W2612570863","https://openalex.org/W2624875931","https://openalex.org/W2792880735","https://openalex.org/W2793022290","https://openalex.org/W2796419887","https://openalex.org/W2796664773","https://openalex.org/W2807975560","https://openalex.org/W2895256467","https://openalex.org/W2905121151","https://openalex.org/W2909924622","https://openalex.org/W2940765346","https://openalex.org/W2944447691","https://openalex.org/W2970436446","https://openalex.org/W2981605494","https://openalex.org/W2994065492","https://openalex.org/W2996602376","https://openalex.org/W3013050796","https://openalex.org/W3015219049","https://openalex.org/W3017863658","https://openalex.org/W3018300137","https://openalex.org/W3032152500","https://openalex.org/W3033631891","https://openalex.org/W3044396098","https://openalex.org/W3083430053","https://openalex.org/W3096202803","https://openalex.org/W3096503069","https://openalex.org/W3102065963","https://openalex.org/W3120550960","https://openalex.org/W3121659874","https://openalex.org/W3167069681","https://openalex.org/W3197755368","https://openalex.org/W4206528580","https://openalex.org/W4206556033","https://openalex.org/W4210877703","https://openalex.org/W4225001134","https://openalex.org/W4247546338","https://openalex.org/W4285027977","https://openalex.org/W4294631565","https://openalex.org/W4308426230","https://openalex.org/W4317827726","https://openalex.org/W4365999004","https://openalex.org/W4366003009","https://openalex.org/W4366550195","https://openalex.org/W4366771614","https://openalex.org/W4380763704","https://openalex.org/W4387344934","https://openalex.org/W4387793282","https://openalex.org/W4387793578"],"related_works":["https://openalex.org/W2748952813","https://openalex.org/W4280602684","https://openalex.org/W4310092953","https://openalex.org/W2227393071","https://openalex.org/W1995350144","https://openalex.org/W2082102603","https://openalex.org/W2166141227","https://openalex.org/W3133980636","https://openalex.org/W4378085486","https://openalex.org/W4366602711"],"abstract_inverted_index":{"We":[0,37],"conducted":[1],"an":[2],"ethnographically-informed":[3],"study":[4],"with":[5,49,64],"28":[6],"participants":[7],"(9":[8],"autistic":[9,28,40,144],"Young":[10],"Adults":[11],"or":[12],"\"YAs\"":[13],"in":[14,138],"need":[15],"of":[16,136,141],"substantial":[17],"daily":[18],"support,":[19],"6":[20],"parents,":[21],"13":[22],"support":[23,58,69,106],"staff)":[24],"to":[25,60,84,111,125],"understand":[26],"how":[27],"YAs":[29,41,103],"self-regulate":[30],"and":[31,47,78,86,104,134],"receive":[32],"mediation":[33,88],"on":[34,43],"social":[35,66,147],"media.":[36,148],"found":[38],"that":[39],"relied":[42],"blanket":[44],"boundary":[45,98],"rules":[46],"struggled":[48,110],"impulse":[50],"control;":[51],"therefore,":[52],"they":[53,109],"coped":[54],"by":[55,72,130],"asking":[56],"their":[57,105],"network":[59],"help":[61],"them":[62],"deal":[63],"negative":[65],"experiences.":[67],"Their":[68],"networks":[70,107],"responded":[71],"providing":[73,117],"informal":[74],"advice,":[75],"in-the-moment":[76],"instruction,":[77],"formal":[79],"education,":[80],"but":[81],"often":[82],"resorted":[83],"monitoring":[85],"restrictive":[87],"when":[89],"more":[90],"proactive":[91],"approaches":[92],"were":[93],"ineffective.":[94],"Overall,":[95],"we":[96],"saw":[97],"tensions":[99,135],"arise":[100],"between":[101,116],"Autistic":[102],"as":[108],"find":[112],"the":[113,126,132,139],"right":[114],"balance":[115],"oversight":[118],"versus":[119],"promoting":[120],"autonomy.":[121],"This":[122],"work":[123],"contributes":[124],"critical":[127],"disability":[128],"literature":[129],"revealing":[131],"benefits":[133],"allyship":[137],"context":[140],"helping":[142],"young":[143],"adults":[145],"navigate":[146]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":5}],"updated_date":"2026-04-14T08:04:32.555800","created_date":"2025-10-10T00:00:00"}