{"id":"https://openalex.org/W4366586191","doi":"https://doi.org/10.1145/3544548.3580949","title":"Understanding Contexts and Challenges of Information Management for Epilepsy Care","display_name":"Understanding Contexts and Challenges of Information Management for Epilepsy Care","publication_year":2023,"publication_date":"2023-04-19","ids":{"openalex":"https://openalex.org/W4366586191","doi":"https://doi.org/10.1145/3544548.3580949","pmid":"https://pubmed.ncbi.nlm.nih.gov/37786774"},"language":"en","primary_location":{"id":"doi:10.1145/3544548.3580949","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3544548.3580949","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://escholarship.org/content/qt2210z9vj/qt2210z9vj.pdf?t=s2m80d","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5001010045","display_name":"Aehong Min","orcid":"https://orcid.org/0000-0002-3790-2126"},"institutions":[{"id":"https://openalex.org/I4210119109","display_name":"Indiana University Bloomington","ror":"https://ror.org/02k40bc56","country_code":"US","type":"education","lineage":["https://openalex.org/I4210119109","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Aehong Min","raw_affiliation_strings":["Department of Informatics, Indiana University Bloomington, United States"],"raw_orcid":"https://orcid.org/0000-0002-3790-2126","affiliations":[{"raw_affiliation_string":"Department of Informatics, Indiana University Bloomington, United States","institution_ids":["https://openalex.org/I4210119109"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072832833","display_name":"Wendy R. Miller","orcid":"https://orcid.org/0000-0003-1779-7290"},"institutions":[{"id":"https://openalex.org/I592451","display_name":"Indiana University","ror":"https://ror.org/01kg8sb98","country_code":"US","type":"education","lineage":["https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Wendy R. Miller","raw_affiliation_strings":["School of Nursing, Indiana University, United States"],"raw_orcid":"https://orcid.org/0000-0003-1779-7290","affiliations":[{"raw_affiliation_string":"School of Nursing, Indiana University, United States","institution_ids":["https://openalex.org/I592451"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065682719","display_name":"Lu\u00eds M. Rocha","orcid":"https://orcid.org/0000-0001-9402-887X"},"institutions":[{"id":"https://openalex.org/I123946342","display_name":"Binghamton University","ror":"https://ror.org/008rmbt77","country_code":"US","type":"education","lineage":["https://openalex.org/I123946342"]},{"id":"https://openalex.org/I48057805","display_name":"Instituto Gulbenkian de Ci\u00eancia","ror":"https://ror.org/04b08hq31","country_code":"PT","type":"education","lineage":["https://openalex.org/I48057805"]}],"countries":["PT","US"],"is_corresponding":false,"raw_author_name":"Luis M. Rocha","raw_affiliation_strings":["Department of Systems Science and Industrial Engineering, Binghamton University, United States and Instituto Gulbenkian de Ci\u00eancia, Portugal"],"raw_orcid":"https://orcid.org/0000-0001-9402-887X","affiliations":[{"raw_affiliation_string":"Department of Systems Science and Industrial Engineering, Binghamton University, United States and Instituto Gulbenkian de Ci\u00eancia, Portugal","institution_ids":["https://openalex.org/I48057805","https://openalex.org/I123946342"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068784452","display_name":"Katy B\u00f6rner","orcid":"https://orcid.org/0000-0002-3321-6137"},"institutions":[{"id":"https://openalex.org/I4210119109","display_name":"Indiana University Bloomington","ror":"https://ror.org/02k40bc56","country_code":"US","type":"education","lineage":["https://openalex.org/I4210119109","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Katy B\u00f6rner","raw_affiliation_strings":["Indiana University Bloomington, United States"],"raw_orcid":"https://orcid.org/0000-0002-3321-6137","affiliations":[{"raw_affiliation_string":"Indiana University Bloomington, United States","institution_ids":["https://openalex.org/I4210119109"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056777216","display_name":"Rion Brattig Correia","orcid":"https://orcid.org/0000-0001-5460-9397"},"institutions":[{"id":"https://openalex.org/I123946342","display_name":"Binghamton University","ror":"https://ror.org/008rmbt77","country_code":"US","type":"education","lineage":["https://openalex.org/I123946342"]},{"id":"https://openalex.org/I48057805","display_name":"Instituto Gulbenkian de Ci\u00eancia","ror":"https://ror.org/04b08hq31","country_code":"PT","type":"education","lineage":["https://openalex.org/I48057805"]}],"countries":["PT","US"],"is_corresponding":false,"raw_author_name":"Rion Brattig Correia","raw_affiliation_strings":["Instituto Gulbenkian de Ci\u00eancia, Portugal and Binghamton University, USA"],"raw_orcid":"https://orcid.org/0000-0001-5460-9397","affiliations":[{"raw_affiliation_string":"Instituto Gulbenkian de Ci\u00eancia, Portugal and Binghamton University, USA","institution_ids":["https://openalex.org/I48057805","https://openalex.org/I123946342"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5015350727","display_name":"Patrick C. Shih","orcid":"https://orcid.org/0000-0003-2460-0468"},"institutions":[{"id":"https://openalex.org/I4210119109","display_name":"Indiana University Bloomington","ror":"https://ror.org/02k40bc56","country_code":"US","type":"education","lineage":["https://openalex.org/I4210119109","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Patrick C. Shih","raw_affiliation_strings":["Department of Informatics, Indiana University Bloomington, United States"],"raw_orcid":"https://orcid.org/0000-0003-2460-0468","affiliations":[{"raw_affiliation_string":"Department of Informatics, Indiana University Bloomington, United States","institution_ids":["https://openalex.org/I4210119109"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.6481,"has_fulltext":true,"cited_by_count":14,"citation_normalized_percentile":{"value":0.90121225,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":95,"max":99},"biblio":{"volume":"2023","issue":null,"first_page":"1","last_page":"15"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10094","display_name":"Epilepsy research and treatment","score":0.996999979019165,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10094","display_name":"Epilepsy research and treatment","score":0.996999979019165,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9797999858856201,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.9672999978065491,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/epilepsy","display_name":"Epilepsy","score":0.6143040657043457},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.5592676997184753},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.5116801261901855},{"id":"https://openalex.org/keywords/information-management","display_name":"Information management","score":0.46928226947784424},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.403095006942749},{"id":"https://openalex.org/keywords/process-management","display_name":"Process management","score":0.3232693076133728},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.30374935269355774},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.1828453540802002},{"id":"https://openalex.org/keywords/neuroscience","display_name":"Neuroscience","score":0.12544989585876465}],"concepts":[{"id":"https://openalex.org/C2778186239","wikidata":"https://www.wikidata.org/wiki/Q41571","display_name":"Epilepsy","level":2,"score":0.6143040657043457},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5592676997184753},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.5116801261901855},{"id":"https://openalex.org/C128487930","wikidata":"https://www.wikidata.org/wiki/Q579488","display_name":"Information management","level":2,"score":0.46928226947784424},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.403095006942749},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.3232693076133728},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.30374935269355774},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.1828453540802002},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.12544989585876465}],"mesh":[],"locations_count":4,"locations":[{"id":"doi:10.1145/3544548.3580949","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3544548.3580949","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},{"id":"pmid:37786774","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/37786774","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference","raw_type":null},{"id":"pmh:oai:escholarship.org:ark:/13030/qt2210z9vj","is_oa":true,"landing_page_url":"https://escholarship.org/uc/item/2210z9vj","pdf_url":"https://escholarship.org/content/qt2210z9vj/qt2210z9vj.pdf?t=s2m80d","source":{"id":"https://openalex.org/S4306400115","display_name":"eScholarship (California Digital Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I2801248553","host_organization_name":"California Digital Library","host_organization_lineage":["https://openalex.org/I2801248553"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"PROCEEDINGS OF THE 2023 CHI CONFERENCE ON HUMAN FACTORS IN COMPUTING SYSTEMS, CHI 2023, vol 2023","raw_type":"article"},{"id":"pmh:oai:pubmedcentral.nih.gov:10544776","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/10544776","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10544776/pdf/nihms-1933362.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Proc SIGCHI Conf Hum Factor Comput Syst","raw_type":"Text"}],"best_oa_location":{"id":"pmh:oai:escholarship.org:ark:/13030/qt2210z9vj","is_oa":true,"landing_page_url":"https://escholarship.org/uc/item/2210z9vj","pdf_url":"https://escholarship.org/content/qt2210z9vj/qt2210z9vj.pdf?t=s2m80d","source":{"id":"https://openalex.org/S4306400115","display_name":"eScholarship (California Digital Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I2801248553","host_organization_name":"California Digital Library","host_organization_lineage":["https://openalex.org/I2801248553"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"PROCEEDINGS OF THE 2023 CHI CONFERENCE ON HUMAN FACTORS IN COMPUTING SYSTEMS, CHI 2023, vol 2023","raw_type":"article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G2768791842","display_name":null,"funder_award_id":"R01LM012832","funder_id":"https://openalex.org/F4320337372","funder_display_name":"U.S. National Library of Medicine"},{"id":"https://openalex.org/G5124343421","display_name":null,"funder_award_id":"R01LM012832","funder_id":"https://openalex.org/F4320332161","funder_display_name":"National Institutes of Health"},{"id":"https://openalex.org/G5720198044","display_name":"NRT: Interdisciplinary Training in Complex Networks and Systems","funder_award_id":"1735095","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"},{"id":"https://openalex.org/G6560649655","display_name":null,"funder_award_id":"R01 LM012832","funder_id":"https://openalex.org/F4320337372","funder_display_name":"U.S. National Library of Medicine"}],"funders":[{"id":"https://openalex.org/F4320306076","display_name":"National Science Foundation","ror":"https://ror.org/021nxhr62"},{"id":"https://openalex.org/F4320320177","display_name":"US-UK Fulbright Commission","ror":"https://ror.org/037nbwt68"},{"id":"https://openalex.org/F4320321837","display_name":"Ministerio de Econom\u00eda y Competitividad","ror":"https://ror.org/034900433"},{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337372","display_name":"U.S. National Library of Medicine","ror":"https://ror.org/0060t0j89"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4366586191.pdf","grobid_xml":"https://content.openalex.org/works/W4366586191.grobid-xml"},"referenced_works_count":120,"referenced_works":["https://openalex.org/W147198365","https://openalex.org/W1482460708","https://openalex.org/W1500842519","https://openalex.org/W1581046150","https://openalex.org/W1974281166","https://openalex.org/W1974809694","https://openalex.org/W1986557682","https://openalex.org/W1989808720","https://openalex.org/W2001522061","https://openalex.org/W2005767994","https://openalex.org/W2008032322","https://openalex.org/W2011397793","https://openalex.org/W2011685732","https://openalex.org/W2014747949","https://openalex.org/W2015090542","https://openalex.org/W2017422058","https://openalex.org/W2021017853","https://openalex.org/W2026856620","https://openalex.org/W2027365236","https://openalex.org/W2027400005","https://openalex.org/W2037646636","https://openalex.org/W2045338935","https://openalex.org/W2051662206","https://openalex.org/W2053285654","https://openalex.org/W2064064788","https://openalex.org/W2065332025","https://openalex.org/W2080579615","https://openalex.org/W2083835886","https://openalex.org/W2084779920","https://openalex.org/W2086548657","https://openalex.org/W2086797813","https://openalex.org/W2093934756","https://openalex.org/W2100118656","https://openalex.org/W2100862552","https://openalex.org/W2101000119","https://openalex.org/W2105109807","https://openalex.org/W2111322838","https://openalex.org/W2111814093","https://openalex.org/W2133268605","https://openalex.org/W2135498674","https://openalex.org/W2143337123","https://openalex.org/W2144257333","https://openalex.org/W2150902303","https://openalex.org/W2153153705","https://openalex.org/W2161788636","https://openalex.org/W2231873758","https://openalex.org/W2252323562","https://openalex.org/W2263831767","https://openalex.org/W2293041047","https://openalex.org/W2293888586","https://openalex.org/W2344333698","https://openalex.org/W2401100650","https://openalex.org/W2418807401","https://openalex.org/W2461945904","https://openalex.org/W2529982861","https://openalex.org/W2531027421","https://openalex.org/W2541948427","https://openalex.org/W2562745534","https://openalex.org/W2578325050","https://openalex.org/W2578866211","https://openalex.org/W2587897132","https://openalex.org/W2588564103","https://openalex.org/W2590855686","https://openalex.org/W2592509339","https://openalex.org/W2595038737","https://openalex.org/W2610752890","https://openalex.org/W2610892364","https://openalex.org/W2673241865","https://openalex.org/W2743692336","https://openalex.org/W2763452490","https://openalex.org/W2768249236","https://openalex.org/W2774223171","https://openalex.org/W2783286845","https://openalex.org/W2791281264","https://openalex.org/W2795125940","https://openalex.org/W2795515950","https://openalex.org/W2795785764","https://openalex.org/W2796130359","https://openalex.org/W2811392751","https://openalex.org/W2886191966","https://openalex.org/W2886878509","https://openalex.org/W2888093627","https://openalex.org/W2888577671","https://openalex.org/W2898671543","https://openalex.org/W2898851992","https://openalex.org/W2912174986","https://openalex.org/W2915149867","https://openalex.org/W2940896800","https://openalex.org/W2945606717","https://openalex.org/W2945822067","https://openalex.org/W2960303400","https://openalex.org/W2962387215","https://openalex.org/W2963879621","https://openalex.org/W2967143265","https://openalex.org/W2981449178","https://openalex.org/W2986450498","https://openalex.org/W2990564147","https://openalex.org/W2996402732","https://openalex.org/W3012096184","https://openalex.org/W3034945518","https://openalex.org/W3035511470","https://openalex.org/W3037625151","https://openalex.org/W3037848759","https://openalex.org/W3049392427","https://openalex.org/W3087629101","https://openalex.org/W3094211126","https://openalex.org/W3099984696","https://openalex.org/W3119029619","https://openalex.org/W3120977904","https://openalex.org/W3127448026","https://openalex.org/W3135047565","https://openalex.org/W3135626372","https://openalex.org/W3158594735","https://openalex.org/W3160198162","https://openalex.org/W3163923971","https://openalex.org/W4200280970","https://openalex.org/W4210242162","https://openalex.org/W4226461837","https://openalex.org/W4239642072","https://openalex.org/W4241136696"],"related_works":["https://openalex.org/W2395385109","https://openalex.org/W2773633178","https://openalex.org/W2080101436","https://openalex.org/W2802335767","https://openalex.org/W2356350882","https://openalex.org/W4388090985","https://openalex.org/W1545074592","https://openalex.org/W2275559830","https://openalex.org/W351867064","https://openalex.org/W2383036938"],"abstract_inverted_index":{"Epilepsy":[0],"is":[1],"a":[2,97],"common":[3],"chronic":[4],"neurological":[5],"disease.":[6],"People":[7],"with":[8,58],"epilepsy":[9,20,44,105,126],"(PWE)":[10],"and":[11,30,41,61,71,88,91,107,112,124,129],"their":[12,19],"caregivers":[13,63],"face":[14],"several":[15],"challenges":[16,42,73,79,123],"related":[17],"to":[18,64,120],"management,":[21],"including":[22],"quality":[23],"of":[24,36,80,86],"care,":[25],"care":[26,45,130],"coordination,":[27],"side":[28],"effects,":[29],"stigma":[31],"management.":[32,52],"The":[33],"sociotechnical":[34],"issues":[35,77],"the":[37,72,82],"information":[38,51,70,93,110,127],"management":[39,128],"contexts":[40],"for":[43],"may":[46],"be":[47],"mitigated":[48],"through":[49],"effective":[50],"We":[53,95,115],"conducted":[54],"4":[55],"focus":[56],"groups":[57],"5":[59],"PWE":[60],"7":[62],"explore":[65],"how":[66],"they":[67,74],"manage":[68],"epilepsy-related":[69],"encountered.":[75],"Primary":[76],"include":[78],"finding":[81],"right":[83],"information,":[84],"complexities":[85],"tracking":[87],"monitoring":[89],"data,":[90],"limited":[92],"sharing.":[94],"provide":[96],"framework":[98],"that":[99],"encompasses":[100],"three":[101],"attributes":[102],"-":[103],"individual":[104],"symptoms":[106],"health":[108],"conditions,":[109],"complexity,":[111],"circumstantial":[113],"constraints.":[114],"suggest":[116],"future":[117],"design":[118],"implications":[119],"mitigate":[121],"these":[122],"improve":[125],"coordination.":[131]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":5},{"year":2024,"cited_by_count":8}],"updated_date":"2026-07-04T07:58:01.006859","created_date":"2025-10-10T00:00:00"}
