{"id":"https://openalex.org/W4308426649","doi":"https://doi.org/10.1145/3500868.3559466","title":"\"I feel like I need to split myself in half\": Using Role Theory to Design for Parents as Caregiving Teams in the Children's Hospital","display_name":"\"I feel like I need to split myself in half\": Using Role Theory to Design for Parents as Caregiving Teams in the Children's Hospital","publication_year":2022,"publication_date":"2022-11-07","ids":{"openalex":"https://openalex.org/W4308426649","doi":"https://doi.org/10.1145/3500868.3559466"},"language":"en","primary_location":{"id":"doi:10.1145/3500868.3559466","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3500868.3559466","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Companion Publication of the 2022 Conference on Computer Supported Cooperative Work and Social Computing","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5054358766","display_name":"Sarah Nikkhah","orcid":"https://orcid.org/0000-0002-5956-1027"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Sarah Nikkhah","raw_affiliation_strings":["Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States"],"raw_orcid":"https://orcid.org/0000-0002-5956-1027","affiliations":[{"raw_affiliation_string":"Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5010547488","display_name":"Akash Uday Rode","orcid":"https://orcid.org/0000-0003-3288-4093"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Akash Uday Rode","raw_affiliation_strings":["School of Informatics &amp; Computing, IU School of Informatics and Computing at IUPUI, United States"],"raw_orcid":"https://orcid.org/0000-0003-3288-4093","affiliations":[{"raw_affiliation_string":"School of Informatics &amp; Computing, IU School of Informatics and Computing at IUPUI, United States","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026170006","display_name":"Priyanjali Mittal","orcid":"https://orcid.org/0000-0002-2057-7128"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Priyanjali Mittal","raw_affiliation_strings":["Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States"],"raw_orcid":"https://orcid.org/0000-0002-2057-7128","affiliations":[{"raw_affiliation_string":"Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058946135","display_name":"Neha Keshav Kulkarni","orcid":"https://orcid.org/0000-0002-0754-9042"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Neha K. Kulkarni","raw_affiliation_strings":["Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States"],"raw_orcid":"https://orcid.org/0000-0002-0754-9042","affiliations":[{"raw_affiliation_string":"Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003304584","display_name":"Salonee Nadkarni","orcid":"https://orcid.org/0000-0001-7535-8478"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Salonee Nadkarni","raw_affiliation_strings":["Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States"],"raw_orcid":"https://orcid.org/0000-0001-7535-8478","affiliations":[{"raw_affiliation_string":"Department of Human Centered Computing, IU School of Informatics and Computing at IUPUI, United States","institution_ids":["https://openalex.org/I55769427"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038712998","display_name":"Emily L. Mueller","orcid":"https://orcid.org/0000-0001-6195-4367"},"institutions":[{"id":"https://openalex.org/I4210153792","display_name":"University School","ror":"https://ror.org/05ap66461","country_code":"US","type":"education","lineage":["https://openalex.org/I4210153792"]},{"id":"https://openalex.org/I4394709130","display_name":"Indiana University School of Medicine","ror":"https://ror.org/02ets8c94","country_code":null,"type":"education","lineage":["https://openalex.org/I4394709130","https://openalex.org/I592451"]},{"id":"https://openalex.org/I592451","display_name":"Indiana University","ror":"https://ror.org/01kg8sb98","country_code":"US","type":"education","lineage":["https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Emily L. Mueller","raw_affiliation_strings":["Indiana University School of Medicine, United States"],"raw_orcid":"https://orcid.org/0000-0001-6195-4367","affiliations":[{"raw_affiliation_string":"Indiana University School of Medicine, United States","institution_ids":["https://openalex.org/I592451","https://openalex.org/I4210153792","https://openalex.org/I4394709130"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5027248126","display_name":"Andrew Miller","orcid":"https://orcid.org/0000-0002-6152-6968"},"institutions":[{"id":"https://openalex.org/I55769427","display_name":"Indiana University \u2013 Purdue University Indianapolis","ror":"https://ror.org/05gxnyn08","country_code":"US","type":"education","lineage":["https://openalex.org/I55769427","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Andrew D. Miller","raw_affiliation_strings":["Department of Human Centered Computing, School of Informatics and Computing, IU School of Informatics and Computing at IUPUI, United States"],"raw_orcid":"https://orcid.org/0000-0002-6152-6968","affiliations":[{"raw_affiliation_string":"Department of Human Centered Computing, School of Informatics and Computing, IU School of Informatics and Computing at IUPUI, United States","institution_ids":["https://openalex.org/I55769427"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5054358766"],"corresponding_institution_ids":["https://openalex.org/I55769427"],"apc_list":null,"apc_paid":null,"fwci":6.8254,"has_fulltext":false,"cited_by_count":14,"citation_normalized_percentile":{"value":0.97118012,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":98},"biblio":{"volume":null,"issue":null,"first_page":"115","last_page":"120"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11977","display_name":"Technology Use by Older Adults","score":0.9927999973297119,"subfield":{"id":"https://openalex.org/subfields/3317","display_name":"Demography"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11977","display_name":"Technology Use by Older Adults","score":0.9927999973297119,"subfield":{"id":"https://openalex.org/subfields/3317","display_name":"Demography"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T14147","display_name":"Innovative Approaches in Technology and Social Development","score":0.9853000044822693,"subfield":{"id":"https://openalex.org/subfields/1405","display_name":"Management of Technology and Innovation"},"field":{"id":"https://openalex.org/fields/14","display_name":"Business, Management and Accounting"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9839000105857849,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/computer-supported-cooperative-work","display_name":"Computer-supported cooperative work","score":0.5822737216949463},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.5183275938034058},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.4716574251651764},{"id":"https://openalex.org/keywords/social-support","display_name":"Social support","score":0.4242756962776184},{"id":"https://openalex.org/keywords/developmental-psychology","display_name":"Developmental psychology","score":0.35559046268463135},{"id":"https://openalex.org/keywords/social-psychology","display_name":"Social psychology","score":0.2551638185977936},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.10077106952667236}],"concepts":[{"id":"https://openalex.org/C198439703","wikidata":"https://www.wikidata.org/wiki/Q1461602","display_name":"Computer-supported cooperative work","level":3,"score":0.5822737216949463},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5183275938034058},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.4716574251651764},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.4242756962776184},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.35559046268463135},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.2551638185977936},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.10077106952667236},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3500868.3559466","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3500868.3559466","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Companion Publication of the 2022 Conference on Computer Supported Cooperative Work and Social Computing","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.5299999713897705,"display_name":"Gender equality","id":"https://metadata.un.org/sdg/5"}],"awards":[{"id":"https://openalex.org/G22479649","display_name":null,"funder_award_id":"IIS-2047432","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"},{"id":"https://openalex.org/G8697180273","display_name":null,"funder_award_id":"IIS- 1850273","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"}],"funders":[{"id":"https://openalex.org/F4320306076","display_name":"National Science Foundation","ror":"https://ror.org/021nxhr62"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":31,"referenced_works":["https://openalex.org/W1963796315","https://openalex.org/W1979290264","https://openalex.org/W1999953562","https://openalex.org/W2014267373","https://openalex.org/W2033038772","https://openalex.org/W2035472171","https://openalex.org/W2048045278","https://openalex.org/W2058063325","https://openalex.org/W2081218771","https://openalex.org/W2098364951","https://openalex.org/W2121410158","https://openalex.org/W2139861592","https://openalex.org/W2145848723","https://openalex.org/W2153153705","https://openalex.org/W2197226128","https://openalex.org/W2289107354","https://openalex.org/W2518412339","https://openalex.org/W2610332548","https://openalex.org/W2611552472","https://openalex.org/W2911147421","https://openalex.org/W2941915841","https://openalex.org/W2980178798","https://openalex.org/W3030957344","https://openalex.org/W3119065402","https://openalex.org/W3143324116","https://openalex.org/W3207980606","https://openalex.org/W3210409499","https://openalex.org/W4211033381","https://openalex.org/W4220798022","https://openalex.org/W4225110346","https://openalex.org/W4247233518"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2748952813","https://openalex.org/W2095908156","https://openalex.org/W2588090758","https://openalex.org/W92477206","https://openalex.org/W2377445966","https://openalex.org/W1599396350","https://openalex.org/W1504044589","https://openalex.org/W2098399563","https://openalex.org/W2094477701"],"abstract_inverted_index":{"When":[0],"their":[1,14,54],"child":[2],"is":[3,33],"hospitalized,":[4],"parents":[5,42,68,88,111],"take":[6],"on":[7],"new":[8,50],"caregiving":[9,92,120,135,141],"roles,":[10],"in":[11,53,143],"addition":[12],"to":[13,35,85,104,118,138],"existing":[15],"home":[16],"and":[17,43,90,96,122],"work-related":[18],"responsibilities.":[19],"Previous":[20],"CSCW":[21],"research":[22,32],"has":[23],"shown":[24],"how":[25,38,87,110],"technologies":[26,137],"can":[27],"support":[28,41,140],"caregiving,":[29],"but":[30],"more":[31],"needed":[34],"systematically":[36],"understand":[37],"technology":[39],"could":[40],"other":[44],"family":[45],"caregivers":[46],"as":[47,101,115],"they":[48,99,102,116],"adopt":[49,89],"coordination":[51,136],"roles":[52,93,142],"collaborations":[55],"with":[56,67],"each":[57],"other.":[58],"This":[59],"paper":[60],"reports":[61],"findings":[62],"from":[63,81],"an":[64],"interview":[65],"study":[66],"of":[69,126],"children":[70],"hospitalized":[71],"for":[72,134],"cancer":[73],"treatment.":[74],"We":[75,108,130],"used":[76],"the":[77,82,97,124],"Role":[78],"Theory":[79],"framework":[80],"social":[83],"sciences":[84],"show":[86,109],"enact":[91],"during":[94],"hospitalization":[95],"challenges":[98],"experience":[100,112],"adapt":[103],"this":[105],"stressful":[106],"situation.":[107],"'role":[113],"strain'":[114],"attempt":[117],"divide":[119],"work":[121],"introduce":[123],"concept":[125],"'inter-caregiver":[127],"information":[128],"disparity.'":[129],"propose":[131],"design":[132],"opportunities":[133],"better":[139],"multi-caregiver":[144],"teams.":[145]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":5},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":2}],"updated_date":"2026-05-04T08:30:34.212998","created_date":"2025-10-10T00:00:00"}
