{"id":"https://openalex.org/W3205879657","doi":"https://doi.org/10.1145/3479564","title":"Understanding Delivery of Collectively Built Protocols in an Online Health Community for Discontinuation of Psychiatric Drugs","display_name":"Understanding Delivery of Collectively Built Protocols in an Online Health Community for Discontinuation of Psychiatric Drugs","publication_year":2021,"publication_date":"2021-10-13","ids":{"openalex":"https://openalex.org/W3205879657","doi":"https://doi.org/10.1145/3479564","mag":"3205879657"},"language":"en","primary_location":{"id":"doi:10.1145/3479564","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3479564","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3479564","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3479564","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5060515739","display_name":"Alexandra Papoutsaki","orcid":"https://orcid.org/0000-0003-1041-4760"},"institutions":[{"id":"https://openalex.org/I177881444","display_name":"Pomona College","ror":"https://ror.org/0074grg94","country_code":"US","type":"education","lineage":["https://openalex.org/I177881444"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Alexandra Papoutsaki","raw_affiliation_strings":["Pomona College, Irvine, CA, USA"],"affiliations":[{"raw_affiliation_string":"Pomona College, Irvine, CA, USA","institution_ids":["https://openalex.org/I177881444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018957158","display_name":"Samuel So","orcid":"https://orcid.org/0000-0001-9886-1332"},"institutions":[{"id":"https://openalex.org/I177881444","display_name":"Pomona College","ror":"https://ror.org/0074grg94","country_code":"US","type":"education","lineage":["https://openalex.org/I177881444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Samuel So","raw_affiliation_strings":["Pomona College, Claremont, CA, USA"],"affiliations":[{"raw_affiliation_string":"Pomona College, Claremont, CA, USA","institution_ids":["https://openalex.org/I177881444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081947553","display_name":"Georgia Kenderova","orcid":"https://orcid.org/0000-0001-5061-2273"},"institutions":[{"id":"https://openalex.org/I177881444","display_name":"Pomona College","ror":"https://ror.org/0074grg94","country_code":"US","type":"education","lineage":["https://openalex.org/I177881444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Georgia Kenderova","raw_affiliation_strings":["Pomona College, Claremont, CA, USA"],"affiliations":[{"raw_affiliation_string":"Pomona College, Claremont, CA, USA","institution_ids":["https://openalex.org/I177881444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076908901","display_name":"Bryan Shapiro","orcid":null},"institutions":[{"id":"https://openalex.org/I4210096636","display_name":"University of California, Irvine Medical Center","ror":"https://ror.org/00cm8nm15","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210096636","https://openalex.org/I4210137750"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Bryan Shapiro","raw_affiliation_strings":["University of California Irvine Medical Center, Irvine, CA, USA"],"affiliations":[{"raw_affiliation_string":"University of California Irvine Medical Center, Irvine, CA, USA","institution_ids":["https://openalex.org/I4210096636"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5088906729","display_name":"Daniel A. Epstein","orcid":"https://orcid.org/0000-0002-2657-6345"},"institutions":[{"id":"https://openalex.org/I204250578","display_name":"University of California, Irvine","ror":"https://ror.org/04gyf1771","country_code":"US","type":"education","lineage":["https://openalex.org/I204250578"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Daniel A. Epstein","raw_affiliation_strings":["University of California, Irvine, Irvine, CA, USA"],"affiliations":[{"raw_affiliation_string":"University of California, Irvine, Irvine, CA, USA","institution_ids":["https://openalex.org/I204250578"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5060515739"],"corresponding_institution_ids":["https://openalex.org/I177881444"],"apc_list":null,"apc_paid":null,"fwci":1.8406,"has_fulltext":true,"cited_by_count":19,"citation_normalized_percentile":{"value":0.85158649,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"5","issue":"CSCW2","first_page":"1","last_page":"29"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9934999942779541,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9934999942779541,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13283","display_name":"Mental Health Research Topics","score":0.9828000068664551,"subfield":{"id":"https://openalex.org/subfields/3205","display_name":"Experimental and Cognitive Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.9733999967575073,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/distrust","display_name":"Distrust","score":0.7816540002822876},{"id":"https://openalex.org/keywords/discontinuation","display_name":"Discontinuation","score":0.7403278350830078},{"id":"https://openalex.org/keywords/mental-health","display_name":"Mental health","score":0.5016195774078369},{"id":"https://openalex.org/keywords/medical-advice","display_name":"Medical advice","score":0.4675171673297882},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.4495224356651306},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.4173160195350647},{"id":"https://openalex.org/keywords/psychiatry","display_name":"Psychiatry","score":0.3747962713241577},{"id":"https://openalex.org/keywords/psychotherapist","display_name":"Psychotherapist","score":0.21655401587486267}],"concepts":[{"id":"https://openalex.org/C2778321746","wikidata":"https://www.wikidata.org/wiki/Q621922","display_name":"Distrust","level":2,"score":0.7816540002822876},{"id":"https://openalex.org/C2778715236","wikidata":"https://www.wikidata.org/wiki/Q55622662","display_name":"Discontinuation","level":2,"score":0.7403278350830078},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.5016195774078369},{"id":"https://openalex.org/C2776510742","wikidata":"https://www.wikidata.org/wiki/Q6806456","display_name":"Medical advice","level":2,"score":0.4675171673297882},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4495224356651306},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4173160195350647},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.3747962713241577},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.21655401587486267}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3479564","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3479564","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3479564","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1145/3479564","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3479564","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3479564","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.5}],"awards":[{"id":"https://openalex.org/G6154263935","display_name":"CRII: CHS: Examining a Multimodal Approach to Lowering the Burden of Food Journaling","funder_award_id":"1850389","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"},{"id":"https://openalex.org/G7664593212","display_name":null,"funder_award_id":"IIS-1850389","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"},{"id":"https://openalex.org/G8350824409","display_name":null,"funder_award_id":"IS-1850389","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"},{"id":"https://openalex.org/G848032724","display_name":null,"funder_award_id":"Science","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"}],"funders":[{"id":"https://openalex.org/F4320306076","display_name":"National Science Foundation","ror":"https://ror.org/021nxhr62"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3205879657.pdf","grobid_xml":"https://content.openalex.org/works/W3205879657.grobid-xml"},"referenced_works_count":101,"referenced_works":["https://openalex.org/W71868372","https://openalex.org/W1615506555","https://openalex.org/W1885665464","https://openalex.org/W1953729342","https://openalex.org/W1977708183","https://openalex.org/W1986210793","https://openalex.org/W1989618719","https://openalex.org/W2000161997","https://openalex.org/W2001284148","https://openalex.org/W2004434828","https://openalex.org/W2007618925","https://openalex.org/W2011026344","https://openalex.org/W2023136091","https://openalex.org/W2034781998","https://openalex.org/W2063206732","https://openalex.org/W2066770086","https://openalex.org/W2076393877","https://openalex.org/W2080402607","https://openalex.org/W2083835886","https://openalex.org/W2084924129","https://openalex.org/W2094233855","https://openalex.org/W2094649224","https://openalex.org/W2099634048","https://openalex.org/W2106212012","https://openalex.org/W2114293474","https://openalex.org/W2116728892","https://openalex.org/W2118716638","https://openalex.org/W2120515302","https://openalex.org/W2122176511","https://openalex.org/W2124211545","https://openalex.org/W2125103779","https://openalex.org/W2127932170","https://openalex.org/W2128043538","https://openalex.org/W2131319384","https://openalex.org/W2131567188","https://openalex.org/W2133554056","https://openalex.org/W2140746866","https://openalex.org/W2141085468","https://openalex.org/W2151429019","https://openalex.org/W2154013831","https://openalex.org/W2154563792","https://openalex.org/W2160599403","https://openalex.org/W2162051395","https://openalex.org/W2250088909","https://openalex.org/W2290835535","https://openalex.org/W2318037596","https://openalex.org/W2400383823","https://openalex.org/W2413403283","https://openalex.org/W2515282779","https://openalex.org/W2534580099","https://openalex.org/W2560866543","https://openalex.org/W2561017480","https://openalex.org/W2565735533","https://openalex.org/W2587766627","https://openalex.org/W2588355074","https://openalex.org/W2589022383","https://openalex.org/W2603861002","https://openalex.org/W2605217828","https://openalex.org/W2610332548","https://openalex.org/W2610811975","https://openalex.org/W2611692589","https://openalex.org/W2753144265","https://openalex.org/W2766713775","https://openalex.org/W2772743714","https://openalex.org/W2774130860","https://openalex.org/W2783757738","https://openalex.org/W2788337440","https://openalex.org/W2796138444","https://openalex.org/W2799697481","https://openalex.org/W2806790293","https://openalex.org/W2808973258","https://openalex.org/W2809772825","https://openalex.org/W2885170963","https://openalex.org/W2887710241","https://openalex.org/W2888802753","https://openalex.org/W2890747653","https://openalex.org/W2891016433","https://openalex.org/W2898785285","https://openalex.org/W2899052597","https://openalex.org/W2899086929","https://openalex.org/W2919124707","https://openalex.org/W2923120973","https://openalex.org/W2925512010","https://openalex.org/W2931981991","https://openalex.org/W2941062144","https://openalex.org/W2941349974","https://openalex.org/W2941915841","https://openalex.org/W2942199679","https://openalex.org/W2946581318","https://openalex.org/W2953417263","https://openalex.org/W2970171902","https://openalex.org/W2972853013","https://openalex.org/W2980763898","https://openalex.org/W3009645692","https://openalex.org/W3037724900","https://openalex.org/W3040894952","https://openalex.org/W3112695252","https://openalex.org/W3115093202","https://openalex.org/W3137004684","https://openalex.org/W3179391229","https://openalex.org/W4292338862"],"related_works":["https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W2466043692","https://openalex.org/W2811173385","https://openalex.org/W4229820185","https://openalex.org/W2000755973","https://openalex.org/W2158460836","https://openalex.org/W4362559955","https://openalex.org/W2546703798","https://openalex.org/W2003267312"],"abstract_inverted_index":{"People":[0],"often":[1],"turn":[2,128],"to":[3,49,78,98,129,210],"online":[4],"health":[5,101],"communities":[6],"(OHCs)":[7],"for":[8,131,202],"peer":[9],"support":[10,164,216],"on":[11,168],"their":[12,59,62,176],"specific":[13],"medical":[14,31,124,139,171,180,197,220],"conditions":[15,32],"and":[16,126,141,165,182,199,214],"health-related":[17],"concerns.":[18],"Over":[19],"time,":[20],"core":[21,63],"members":[22,64,150,161],"in":[23,44,67,85,104,144],"OHCs":[24,57,130,191,204],"build":[25],"a":[26,145],"shared":[27],"understanding":[28],"of":[29,89,155,178,190,195],"the":[30,86,152,170,179,188,196],"they":[33],"support.":[34,132,157],"Although":[35],"prior":[36],"work":[37],"has":[38],"studied":[39],"how":[40,56,80,203],"individuals":[41],"function":[42],"differently":[43],"active":[45],"sensemaking":[46],"mode":[47],"compared":[48],"habitual":[50,68],"mode,":[51],"little":[52],"is":[53],"known":[54],"about":[55],"disseminate":[58],"advice":[60,140,167,193],"once":[61],"operate":[65],"primarily":[66],"mode.":[69],"We":[70,133,185],"qualitatively":[71],"observe":[72],"one":[73],"such":[74],"OHC,":[75],"'Surviving":[76],"Antidepressants',":[77],"understand":[79],"collectively-built":[81,136],"protocols":[82,137],"are":[83,95,142],"disseminated":[84],"important":[87],"domain":[88],"discontinuing":[90],"psychiatric":[91],"drugs.":[92],"Psychiatric":[93],"drugs":[94],"widely":[96],"prescribed":[97],"treat":[99],"mental":[100],"diagnoses,":[102],"but,":[103],"certain":[105],"cases,":[106],"discontinuation":[107],"might":[108],"be":[109],"clinically":[110],"advisable.":[111],"Unfortunately,":[112],"some":[113],"people":[114,217],"experience":[115],"severe":[116],"withdrawal":[117],"symptoms":[118],"upon":[119],"discontinuation,":[120],"even":[121],"when":[122],"following":[123],"advice,":[125],"thus":[127],"find":[134],"that":[135],"resemble":[138],"delivered":[143],"top-down":[146],"fashion,":[147],"with":[148,207,219],"staff":[149],"being":[151],"primary":[153],"source":[154],"informational":[156],"In":[158],"contrast,":[159],"all":[160],"provide":[162],"emotional":[163],"exchange":[166],"navigating":[169],"system,":[172],"while":[173],"many":[174],"express":[175],"distrust":[177],"community":[181],"pharmaceutical":[183],"companies.":[184],"also":[186],"discuss":[187],"implications":[189],"offering":[192],"outside":[194],"system":[198],"offer":[200],"suggestions":[201],"can":[205],"collaborate":[206],"healthcare":[208],"providers":[209],"advance":[211],"scientific":[212],"knowledge":[213],"better":[215],"living":[218],"conditions.":[221]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":7},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":1}],"updated_date":"2026-04-15T08:11:43.952461","created_date":"2025-10-10T00:00:00"}
