{"id":"https://openalex.org/W3205981694","doi":"https://doi.org/10.1145/3479527","title":"Bodily Experiences of Illness and Treatment as Information Work: The Case of Chronic Kidney Disease","display_name":"Bodily Experiences of Illness and Treatment as Information Work: The Case of Chronic Kidney Disease","publication_year":2021,"publication_date":"2021-10-13","ids":{"openalex":"https://openalex.org/W3205981694","doi":"https://doi.org/10.1145/3479527","mag":"3205981694"},"language":"en","primary_location":{"id":"doi:10.1145/3479527","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3479527","pdf_url":null,"source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5058808034","display_name":"Samantha A. Whitman","orcid":"https://orcid.org/0000-0002-0301-1982"},"institutions":[{"id":"https://openalex.org/I55732556","display_name":"Arizona State University","ror":"https://ror.org/03efmqc40","country_code":"US","type":"education","lineage":["https://openalex.org/I55732556"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Samantha A. Whitman","raw_affiliation_strings":["Arizona State University, Tempe, AZ, USA"],"affiliations":[{"raw_affiliation_string":"Arizona State University, Tempe, AZ, USA","institution_ids":["https://openalex.org/I55732556"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077906774","display_name":"Kathleen H. Pine","orcid":"https://orcid.org/0000-0002-2172-8100"},"institutions":[{"id":"https://openalex.org/I55732556","display_name":"Arizona State University","ror":"https://ror.org/03efmqc40","country_code":"US","type":"education","lineage":["https://openalex.org/I55732556"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kathleen H. Pine","raw_affiliation_strings":["Arizona State University, Tempe, AZ, USA"],"affiliations":[{"raw_affiliation_string":"Arizona State University, Tempe, AZ, USA","institution_ids":["https://openalex.org/I55732556"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5109132939","display_name":"Bj\u00f6rg Thorsteinsdottir","orcid":null},"institutions":[{"id":"https://openalex.org/I4210125099","display_name":"Mayo Clinic in Arizona","ror":"https://ror.org/03jp40720","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723","https://openalex.org/I4210125099"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Bjorg Thorsteinsdottir","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, USA"],"affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, USA","institution_ids":["https://openalex.org/I4210125099"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5069828232","display_name":"Paige Organick-Lee","orcid":null},"institutions":[{"id":"https://openalex.org/I4210125099","display_name":"Mayo Clinic in Arizona","ror":"https://ror.org/03jp40720","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723","https://openalex.org/I4210125099"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Paige Organick-Lee","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, USA"],"affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, USA","institution_ids":["https://openalex.org/I4210125099"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5108746188","display_name":"Anjali Thota","orcid":null},"institutions":[{"id":"https://openalex.org/I4210125099","display_name":"Mayo Clinic in Arizona","ror":"https://ror.org/03jp40720","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723","https://openalex.org/I4210125099"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Anjali Thota","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, USA"],"affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, USA","institution_ids":["https://openalex.org/I4210125099"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035316838","display_name":"Nataly R. Espinoza Su\u00e1rez","orcid":"https://orcid.org/0000-0003-4644-5809"},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"funder","lineage":["https://openalex.org/I1330342723"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nataly R. Espinoza Suarez","raw_affiliation_strings":["Mayo Clinic &amp; Laval University, Rochester, MN, USA"],"affiliations":[{"raw_affiliation_string":"Mayo Clinic &amp; Laval University, Rochester, MN, USA","institution_ids":["https://openalex.org/I1330342723"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052560647","display_name":"Erik Johnston","orcid":null},"institutions":[{"id":"https://openalex.org/I55732556","display_name":"Arizona State University","ror":"https://ror.org/03efmqc40","country_code":"US","type":"education","lineage":["https://openalex.org/I55732556"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Erik W. Johnston","raw_affiliation_strings":["Arizona State University, Tempe, AZ, USA"],"affiliations":[{"raw_affiliation_string":"Arizona State University, Tempe, AZ, USA","institution_ids":["https://openalex.org/I55732556"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5086538334","display_name":"Kasey R. Boehmer","orcid":"https://orcid.org/0000-0002-5637-6803"},"institutions":[{"id":"https://openalex.org/I4210125099","display_name":"Mayo Clinic in Arizona","ror":"https://ror.org/03jp40720","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723","https://openalex.org/I4210125099"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kasey R. Boehmer","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, USA"],"affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, USA","institution_ids":["https://openalex.org/I4210125099"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":8,"corresponding_author_ids":["https://openalex.org/A5058808034"],"corresponding_institution_ids":["https://openalex.org/I55732556"],"apc_list":null,"apc_paid":null,"fwci":0.9602,"has_fulltext":false,"cited_by_count":11,"citation_normalized_percentile":{"value":0.75486381,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"5","issue":"CSCW2","first_page":"1","last_page":"28"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9868999719619751,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9868999719619751,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9818000197410583,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T12663","display_name":"Body Image and Dysmorphia Studies","score":0.968500018119812,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/experiential-learning","display_name":"Experiential learning","score":0.5795644521713257},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.5464800596237183},{"id":"https://openalex.org/keywords/qualitative-research","display_name":"Qualitative research","score":0.5432946681976318},{"id":"https://openalex.org/keywords/kidney-disease","display_name":"Kidney disease","score":0.4536901116371155},{"id":"https://openalex.org/keywords/experiential-knowledge","display_name":"Experiential knowledge","score":0.44529277086257935},{"id":"https://openalex.org/keywords/meaning","display_name":"Meaning (existential)","score":0.44495031237602234},{"id":"https://openalex.org/keywords/disease","display_name":"Disease","score":0.42075788974761963},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.36671286821365356},{"id":"https://openalex.org/keywords/psychotherapist","display_name":"Psychotherapist","score":0.33771252632141113},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.12844577431678772},{"id":"https://openalex.org/keywords/pedagogy","display_name":"Pedagogy","score":0.12123438715934753}],"concepts":[{"id":"https://openalex.org/C37228920","wikidata":"https://www.wikidata.org/wiki/Q1307600","display_name":"Experiential learning","level":2,"score":0.5795644521713257},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5464800596237183},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5432946681976318},{"id":"https://openalex.org/C2778653478","wikidata":"https://www.wikidata.org/wiki/Q1054718","display_name":"Kidney disease","level":2,"score":0.4536901116371155},{"id":"https://openalex.org/C123353603","wikidata":"https://www.wikidata.org/wiki/Q5421070","display_name":"Experiential knowledge","level":2,"score":0.44529277086257935},{"id":"https://openalex.org/C2780876879","wikidata":"https://www.wikidata.org/wiki/Q3054749","display_name":"Meaning (existential)","level":2,"score":0.44495031237602234},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.42075788974761963},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.36671286821365356},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.33771252632141113},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.12844577431678772},{"id":"https://openalex.org/C19417346","wikidata":"https://www.wikidata.org/wiki/Q7922","display_name":"Pedagogy","level":1,"score":0.12123438715934753},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3479527","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3479527","pdf_url":null,"source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":137,"referenced_works":["https://openalex.org/W138768472","https://openalex.org/W590173024","https://openalex.org/W1482460708","https://openalex.org/W1530898409","https://openalex.org/W1563253099","https://openalex.org/W1615506555","https://openalex.org/W1773017447","https://openalex.org/W1839239336","https://openalex.org/W1937712996","https://openalex.org/W1963796315","https://openalex.org/W1965881875","https://openalex.org/W1968881000","https://openalex.org/W1978339457","https://openalex.org/W1980168003","https://openalex.org/W1981921404","https://openalex.org/W1982165104","https://openalex.org/W1982281708","https://openalex.org/W1985222502","https://openalex.org/W1987864212","https://openalex.org/W1992284849","https://openalex.org/W1993673397","https://openalex.org/W2007959395","https://openalex.org/W2010140255","https://openalex.org/W2014267373","https://openalex.org/W2016256463","https://openalex.org/W2021403548","https://openalex.org/W2023874001","https://openalex.org/W2025745524","https://openalex.org/W2026821683","https://openalex.org/W2026856620","https://openalex.org/W2027910955","https://openalex.org/W2029984336","https://openalex.org/W2030568422","https://openalex.org/W2037566012","https://openalex.org/W2043855558","https://openalex.org/W2044718137","https://openalex.org/W2053552396","https://openalex.org/W2058063325","https://openalex.org/W2058718894","https://openalex.org/W2065603324","https://openalex.org/W2071678553","https://openalex.org/W2074151142","https://openalex.org/W2074329152","https://openalex.org/W2076406125","https://openalex.org/W2076471242","https://openalex.org/W2080292505","https://openalex.org/W2087774440","https://openalex.org/W2090771594","https://openalex.org/W2091643853","https://openalex.org/W2094649590","https://openalex.org/W2094745681","https://openalex.org/W2100052310","https://openalex.org/W2100471939","https://openalex.org/W2104724688","https://openalex.org/W2110551349","https://openalex.org/W2111143102","https://openalex.org/W2111700638","https://openalex.org/W2112665591","https://openalex.org/W2118716638","https://openalex.org/W2119886012","https://openalex.org/W2122424816","https://openalex.org/W2124921277","https://openalex.org/W2128559207","https://openalex.org/W2133922544","https://openalex.org/W2140643548","https://openalex.org/W2154563792","https://openalex.org/W2160123744","https://openalex.org/W2165497291","https://openalex.org/W2167534356","https://openalex.org/W2169436677","https://openalex.org/W2177156209","https://openalex.org/W2201264930","https://openalex.org/W2262428346","https://openalex.org/W2265984634","https://openalex.org/W2274468092","https://openalex.org/W2290835535","https://openalex.org/W2293888586","https://openalex.org/W2312917205","https://openalex.org/W2408669075","https://openalex.org/W2408767583","https://openalex.org/W2515282779","https://openalex.org/W2521785266","https://openalex.org/W2554245848","https://openalex.org/W2566192030","https://openalex.org/W2571697653","https://openalex.org/W2587897132","https://openalex.org/W2588312088","https://openalex.org/W2588678436","https://openalex.org/W2589021616","https://openalex.org/W2589901338","https://openalex.org/W2600881429","https://openalex.org/W2611962417","https://openalex.org/W2612353927","https://openalex.org/W2620191542","https://openalex.org/W2729443303","https://openalex.org/W2759923953","https://openalex.org/W2762291184","https://openalex.org/W2763507114","https://openalex.org/W2769873857","https://openalex.org/W2773977003","https://openalex.org/W2775469924","https://openalex.org/W2791052844","https://openalex.org/W2795847858","https://openalex.org/W2800505962","https://openalex.org/W2801147243","https://openalex.org/W2884498786","https://openalex.org/W2887851413","https://openalex.org/W2898671543","https://openalex.org/W2898917047","https://openalex.org/W2899052597","https://openalex.org/W2899086929","https://openalex.org/W2899470425","https://openalex.org/W2911864944","https://openalex.org/W2912136835","https://openalex.org/W2925512010","https://openalex.org/W2940896800","https://openalex.org/W2941062144","https://openalex.org/W2941802617","https://openalex.org/W2941928504","https://openalex.org/W2942211903","https://openalex.org/W2942335051","https://openalex.org/W2945417406","https://openalex.org/W2952115099","https://openalex.org/W2965694416","https://openalex.org/W2978882470","https://openalex.org/W2982804079","https://openalex.org/W2988404405","https://openalex.org/W3001687002","https://openalex.org/W3011656158","https://openalex.org/W3014053655","https://openalex.org/W3022452870","https://openalex.org/W3028851948","https://openalex.org/W3031207103","https://openalex.org/W3033777909","https://openalex.org/W3034082518","https://openalex.org/W4239870940","https://openalex.org/W4285719527"],"related_works":["https://openalex.org/W2693365417","https://openalex.org/W1966385878","https://openalex.org/W2374229278","https://openalex.org/W2361686311","https://openalex.org/W2966019666","https://openalex.org/W1968863977","https://openalex.org/W2091171686","https://openalex.org/W2084593794","https://openalex.org/W3166350029","https://openalex.org/W4251539612"],"abstract_inverted_index":{"CSCW":[0],"has":[1],"previously":[2],"investigated":[3],"the":[4,29,216],"\"information":[5],"work\"":[6],"that":[7,32,221],"patients":[8,35,59,116,149,172,192,224,236],"do":[9,36,225],"in":[10,37,60,119,122],"relation":[11,38,123],"to":[12,21,39,56,70,85,124,177,194],"their":[13,40,71,125],"health,":[14],"illnesses,":[15],"and":[16,49,54,103,140,164,173,196,203,207,226,232],"treatments.":[17],"Our":[18,79,211],"study":[19],"contributes":[20],"this":[22],"ongoing":[23],"stream":[24],"of":[25,74,90,94,218,229],"work":[26,31,68,121,220],"by":[27],"investigating":[28],"information":[30,67,120,219,230],"chronically":[33,222],"ill":[34,223],"physical":[41,134,167],"bodily":[42,72,88,95,101,108,126,159,182,198],"experiences.":[43,109,127],"We":[44],"use":[45],"an":[46],"interpretivist":[47],"approach":[48],"qualitative":[50],"methods":[51],"(semi-structured":[52],"interviews":[53],"observations)":[55],"examine":[57],"how":[58,115],"a":[61,201],"midwestern":[62],"U.S.":[63],"city":[64],"carry":[65],"out":[66],"related":[69,84],"experiences":[73,89,96,168,199],"Chronic":[75],"Kidney":[76],"Disease":[77],"(CKD).":[78],"findings":[80],"highlight":[81],"four":[82],"themes":[83],"such":[86,136,184],"work:":[87],"CKD;":[91],"making":[92],"meaning":[93],"through":[97,200],"experiential":[98],"learning;":[99],"communicating":[100],"experiences;":[102],"attuning":[104],"daily":[105],"life":[106],"around":[107],"In":[110],"so":[111],"doing,":[112],"we":[113,130],"show":[114],"continuously":[117],"engage":[118],"For":[128],"example,":[129],"found":[131],"participants":[132],"experienced":[133],"sensations":[135,160],"as":[137],"pain,":[138],"cramping,":[139],"extreme":[141],"fatigue,":[142],"which":[143],"elicited":[144],"complex":[145],"labor,":[146],"yet":[147],"most":[148],"received":[150],"little":[151],"education":[152],"from":[153],"health":[154],"care":[155,233],"professionals":[156],"about":[157],"what":[158,165],"they":[161],"might":[162,169],"have":[163],"these":[166],"mean.":[170],"While":[171],"clinicians":[174],"worked":[175],"collaboratively":[176],"adjust":[178],"treatment":[179],"based":[180],"on":[181,215],"information,":[183],"collaborative":[185],"adjustment":[186],"often":[187],"did":[188],"not":[189],"occur":[190],"until":[191],"learned":[193],"interpret":[195],"communicate":[197],"difficult":[202],"physically":[204],"painful":[205],"\"trial":[206],"error\"":[208],"learning":[209],"process.":[210],"empirical":[212],"insights":[213],"extend":[214],"literature":[217],"inform":[227],"design":[228],"technologies":[231],"processes":[234],"for":[235],"with":[237],"chronic":[238],"disease.":[239]},"counts_by_year":[{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":4},{"year":2022,"cited_by_count":1}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}
