{"id":"https://openalex.org/W3157284771","doi":"https://doi.org/10.1145/3449184","title":"Challenges in the Parent-Child Communication of Health-related Information in Pediatric Cancer Care","display_name":"Challenges in the Parent-Child Communication of Health-related Information in Pediatric Cancer Care","publication_year":2021,"publication_date":"2021-04-13","ids":{"openalex":"https://openalex.org/W3157284771","doi":"https://doi.org/10.1145/3449184","mag":"3157284771"},"language":"en","primary_location":{"id":"doi:10.1145/3449184","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3449184","pdf_url":null,"source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5068796595","display_name":"Woosuk Seo","orcid":"https://orcid.org/0000-0002-1316-4341"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Woosuk Seo","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043178208","display_name":"Ay\u015fe G. B\u00fcy\u00fckt\u00fcr","orcid":"https://orcid.org/0009-0001-4859-9521"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ayse G. Buyuktur","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059651113","display_name":"Sung Won Choi","orcid":"https://orcid.org/0000-0002-6321-3834"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sung Won Choi","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066710519","display_name":"Laura Sedig","orcid":"https://orcid.org/0000-0003-2612-2236"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Laura Sedig","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5100399005","display_name":"Sun Young Park","orcid":"https://orcid.org/0000-0001-5065-1686"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sun Young Park","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I27837315"],"apc_list":null,"apc_paid":null,"fwci":6.4047,"has_fulltext":false,"cited_by_count":31,"citation_normalized_percentile":{"value":0.96565265,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":97,"max":99},"biblio":{"volume":"5","issue":"CSCW1","first_page":"1","last_page":"24"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11060","display_name":"Infant Development and Preterm Care","score":0.9945999979972839,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11060","display_name":"Infant Development and Preterm Care","score":0.9945999979972839,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9936000108718872,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12860","display_name":"Family and Patient Care in Intensive Care Units","score":0.9768999814987183,"subfield":{"id":"https://openalex.org/subfields/3614","display_name":"Radiological and Ultrasound Technology"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/coping","display_name":"Coping (psychology)","score":0.6211264729499817},{"id":"https://openalex.org/keywords/salient","display_name":"Salient","score":0.6123418211936951},{"id":"https://openalex.org/keywords/perception","display_name":"Perception","score":0.5919620990753174},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.5569799542427063},{"id":"https://openalex.org/keywords/developmental-psychology","display_name":"Developmental psychology","score":0.4857626259326935},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.4211244583129883},{"id":"https://openalex.org/keywords/clinical-psychology","display_name":"Clinical psychology","score":0.2665517330169678},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.10493063926696777}],"concepts":[{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.6211264729499817},{"id":"https://openalex.org/C2780719617","wikidata":"https://www.wikidata.org/wiki/Q1030752","display_name":"Salient","level":2,"score":0.6123418211936951},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.5919620990753174},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5569799542427063},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.4857626259326935},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4211244583129883},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.2665517330169678},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.10493063926696777},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3449184","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3449184","pdf_url":null,"source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/4","display_name":"Quality Education","score":0.7099999785423279}],"awards":[{"id":"https://openalex.org/G6641741683","display_name":"CAREER: Advancing Pediatric Patient-Provider Communication through Collaborative Tracking and Data Sharing","funder_award_id":"1942547","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"}],"funders":[{"id":"https://openalex.org/F4320306076","display_name":"National Science Foundation","ror":"https://ror.org/021nxhr62"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":35,"referenced_works":["https://openalex.org/W1500842519","https://openalex.org/W1976740897","https://openalex.org/W1984910582","https://openalex.org/W1993986333","https://openalex.org/W2016984538","https://openalex.org/W2029004998","https://openalex.org/W2035472171","https://openalex.org/W2039996523","https://openalex.org/W2053552396","https://openalex.org/W2080130126","https://openalex.org/W2087038954","https://openalex.org/W2089997524","https://openalex.org/W2097578749","https://openalex.org/W2124076451","https://openalex.org/W2133436107","https://openalex.org/W2138385780","https://openalex.org/W2142838030","https://openalex.org/W2155555656","https://openalex.org/W2171187701","https://openalex.org/W2289107354","https://openalex.org/W2408196857","https://openalex.org/W2506490502","https://openalex.org/W2588312088","https://openalex.org/W2603021893","https://openalex.org/W2744553166","https://openalex.org/W2765202326","https://openalex.org/W2795970835","https://openalex.org/W2796021005","https://openalex.org/W2883802233","https://openalex.org/W2970372776","https://openalex.org/W3028851948","https://openalex.org/W3030653659","https://openalex.org/W4231369767","https://openalex.org/W4246257300","https://openalex.org/W4255520508"],"related_works":["https://openalex.org/W2329500892","https://openalex.org/W28991112","https://openalex.org/W2370726991","https://openalex.org/W2369710579","https://openalex.org/W4327728159","https://openalex.org/W4394266730","https://openalex.org/W1990856605","https://openalex.org/W2053783616","https://openalex.org/W2545348020","https://openalex.org/W2912751582"],"abstract_inverted_index":{"Previous":[0],"works":[1],"have":[2,35],"shown":[3],"that":[4,57,97,117],"effective":[5],"communication":[6,78,122],"between":[7],"parental":[8,39,59],"caregivers":[9,40,60],"and":[10,24,67,80,128,136],"child":[11],"patients":[12],"has":[13],"many":[14],"benefits":[15],"to":[16,69],"the":[17,37,58,101,105,119,125,133],"children,":[18],"such":[19],"as":[20],"providing":[21],"emotional":[22],"support":[23],"coping":[25],"skills":[26],"for":[27,113],"health":[28],"management.":[29,53],"Drawing":[30],"on":[31,88],"semi-structured":[32],"interviews,":[33],"we":[34,91],"identified":[36],"challenges":[38,56],"face":[41],"when":[42],"communicating":[43],"with":[44],"their":[45,83],"children":[46,98],"about":[47],"health-related":[48],"information":[49],"in":[50],"daily":[51],"illness":[52,102,134],"Three":[54],"salient":[55],"encountered":[61],"include:":[62],"(i)":[63],"acknowledging":[64],"different":[65],"perceptions":[66],"approaches":[68],"being":[70],"a":[71,114],"cancer":[72],"patient,":[73],"(ii)":[74],"choosing":[75],"an":[76],"appropriate":[77],"method,":[79],"(iii)":[81],"understanding":[82],"child's":[84,126],"uncommunicated":[85],"emotions.":[86],"Based":[87],"these":[89],"challenges,":[90],"recognize":[92],"distinctive,":[93],"yet":[94],"implicit,":[95],"needs":[96,131],"develop":[99],"during":[100],"trajectory,":[103],"affecting":[104],"parent-child":[106,120],"dyadic":[107,121],"relationship.":[108],"We":[109],"discuss":[110],"design":[111],"opportunities":[112],"collaborative":[115],"system":[116],"enhances":[118],"by":[123],"supporting":[124],"implicit":[127],"dynamically":[129],"changing":[130],"throughout":[132],"trajectory":[135],"beyond.":[137]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":9},{"year":2024,"cited_by_count":9},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":5}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}
