{"id":"https://openalex.org/W3161193377","doi":"https://doi.org/10.1145/3411764.3445707","title":"The Right to Help and the Right Help: Fostering and Regulating Collective Action in a Medical Making Reaction to COVID-19","display_name":"The Right to Help and the Right Help: Fostering and Regulating Collective Action in a Medical Making Reaction to COVID-19","publication_year":2021,"publication_date":"2021-05-06","ids":{"openalex":"https://openalex.org/W3161193377","doi":"https://doi.org/10.1145/3411764.3445707","mag":"3161193377"},"language":"en","primary_location":{"id":"doi:10.1145/3411764.3445707","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3411764.3445707","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5035482300","display_name":"Megan Hofmann","orcid":"https://orcid.org/0000-0003-2283-8587"},"institutions":[{"id":"https://openalex.org/I74973139","display_name":"Carnegie Mellon University","ror":"https://ror.org/05x2bcf33","country_code":"US","type":"education","lineage":["https://openalex.org/I74973139"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Megan Hofmann","raw_affiliation_strings":["Human-Computer Interaction Institute Carnegie Mellon University, United States"],"affiliations":[{"raw_affiliation_string":"Human-Computer Interaction Institute Carnegie Mellon University, United States","institution_ids":["https://openalex.org/I74973139"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045072963","display_name":"U. K. Lakshmi","orcid":"https://orcid.org/0000-0001-5921-2102"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Udaya Lakshmi","raw_affiliation_strings":["School of Interactive Computing Georgia Institute of Technology, United States"],"affiliations":[{"raw_affiliation_string":"School of Interactive Computing Georgia Institute of Technology, United States","institution_ids":["https://openalex.org/I130701444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5050344843","display_name":"Kelly Mack","orcid":"https://orcid.org/0000-0002-6889-0244"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kelly Mack","raw_affiliation_strings":["University of Washington, United States"],"affiliations":[{"raw_affiliation_string":"University of Washington, United States","institution_ids":["https://openalex.org/I201448701"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039238746","display_name":"Scott E. Hudson","orcid":"https://orcid.org/0000-0002-0948-3251"},"institutions":[{"id":"https://openalex.org/I74973139","display_name":"Carnegie Mellon University","ror":"https://ror.org/05x2bcf33","country_code":"US","type":"education","lineage":["https://openalex.org/I74973139"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Scott E Hudson","raw_affiliation_strings":["Human-Computer Interaction Institute Carnegie Mellon University, United States"],"affiliations":[{"raw_affiliation_string":"Human-Computer Interaction Institute Carnegie Mellon University, United States","institution_ids":["https://openalex.org/I74973139"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091262280","display_name":"Rosa I. Arriaga","orcid":"https://orcid.org/0000-0002-8642-7245"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Rosa I. Arriaga","raw_affiliation_strings":["Interactive Computing Georgia Institute of Technology, United States"],"affiliations":[{"raw_affiliation_string":"Interactive Computing Georgia Institute of Technology, United States","institution_ids":["https://openalex.org/I130701444"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5040915036","display_name":"Jennifer Mankoff","orcid":"https://orcid.org/0000-0001-9235-5324"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]},{"id":"https://openalex.org/I19434645","display_name":"Allen University","ror":"https://ror.org/02h7s7a86","country_code":"US","type":"education","lineage":["https://openalex.org/I19434645"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jennifer Mankoff","raw_affiliation_strings":["Allen School of Computer Science and Engineering University of Washington, United States"],"affiliations":[{"raw_affiliation_string":"Allen School of Computer Science and Engineering University of Washington, United States","institution_ids":["https://openalex.org/I19434645","https://openalex.org/I201448701"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":6,"corresponding_author_ids":["https://openalex.org/A5035482300"],"corresponding_institution_ids":["https://openalex.org/I74973139"],"apc_list":null,"apc_paid":null,"fwci":2.2338,"has_fulltext":false,"cited_by_count":22,"citation_normalized_percentile":{"value":0.88757734,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"13"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10883","display_name":"Ethics and Social Impacts of AI","score":0.9750000238418579,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10883","display_name":"Ethics and Social Impacts of AI","score":0.9750000238418579,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12943","display_name":"COVID-19 Digital Contact Tracing","score":0.95660001039505,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9185000061988831,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/misinformation","display_name":"Misinformation","score":0.7054538130760193},{"id":"https://openalex.org/keywords/action","display_name":"Action (physics)","score":0.5916222929954529},{"id":"https://openalex.org/keywords/collective-action","display_name":"Collective action","score":0.5904701948165894},{"id":"https://openalex.org/keywords/harm","display_name":"Harm","score":0.5873466730117798},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.5665888786315918},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.5253954529762268},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.5056064128875732},{"id":"https://openalex.org/keywords/agency","display_name":"Agency (philosophy)","score":0.5028817057609558},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.46474239230155945},{"id":"https://openalex.org/keywords/coronavirus-disease-2019","display_name":"Coronavirus disease 2019 (COVID-19)","score":0.4545142650604248},{"id":"https://openalex.org/keywords/limiting","display_name":"Limiting","score":0.44723325967788696},{"id":"https://openalex.org/keywords/value","display_name":"Value (mathematics)","score":0.4171910285949707},{"id":"https://openalex.org/keywords/computer-security","display_name":"Computer security","score":0.3116171061992645},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.311014324426651},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.21725952625274658},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.19432929158210754},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.15355882048606873},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.1384023129940033},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.09596189856529236}],"concepts":[{"id":"https://openalex.org/C2776990098","wikidata":"https://www.wikidata.org/wiki/Q13579947","display_name":"Misinformation","level":2,"score":0.7054538130760193},{"id":"https://openalex.org/C2780791683","wikidata":"https://www.wikidata.org/wiki/Q846785","display_name":"Action (physics)","level":2,"score":0.5916222929954529},{"id":"https://openalex.org/C2777932401","wikidata":"https://www.wikidata.org/wiki/Q1471594","display_name":"Collective action","level":3,"score":0.5904701948165894},{"id":"https://openalex.org/C2777363581","wikidata":"https://www.wikidata.org/wiki/Q15098235","display_name":"Harm","level":2,"score":0.5873466730117798},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.5665888786315918},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.5253954529762268},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.5056064128875732},{"id":"https://openalex.org/C108170787","wikidata":"https://www.wikidata.org/wiki/Q3951828","display_name":"Agency (philosophy)","level":2,"score":0.5028817057609558},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.46474239230155945},{"id":"https://openalex.org/C3008058167","wikidata":"https://www.wikidata.org/wiki/Q84263196","display_name":"Coronavirus disease 2019 (COVID-19)","level":4,"score":0.4545142650604248},{"id":"https://openalex.org/C188198153","wikidata":"https://www.wikidata.org/wiki/Q1613840","display_name":"Limiting","level":2,"score":0.44723325967788696},{"id":"https://openalex.org/C2776291640","wikidata":"https://www.wikidata.org/wiki/Q2912517","display_name":"Value (mathematics)","level":2,"score":0.4171910285949707},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.3116171061992645},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.311014324426651},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.21725952625274658},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.19432929158210754},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.15355882048606873},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.1384023129940033},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.09596189856529236},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C94625758","wikidata":"https://www.wikidata.org/wiki/Q7163","display_name":"Politics","level":2,"score":0.0},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C524204448","wikidata":"https://www.wikidata.org/wiki/Q788926","display_name":"Infectious disease (medical specialty)","level":3,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3411764.3445707","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3411764.3445707","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G3862479140","display_name":null,"funder_award_id":"IIS-1907337, and 2031801","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"}],"funders":[{"id":"https://openalex.org/F4320306076","display_name":"National Science Foundation","ror":"https://ror.org/021nxhr62"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":37,"referenced_works":["https://openalex.org/W323338930","https://openalex.org/W1915652073","https://openalex.org/W1965153126","https://openalex.org/W1968794558","https://openalex.org/W1987581944","https://openalex.org/W2055729180","https://openalex.org/W2071620178","https://openalex.org/W2083841373","https://openalex.org/W2085933460","https://openalex.org/W2088903106","https://openalex.org/W2110636172","https://openalex.org/W2124100711","https://openalex.org/W2125898659","https://openalex.org/W2129622394","https://openalex.org/W2136944876","https://openalex.org/W2149868499","https://openalex.org/W2169898191","https://openalex.org/W2305410875","https://openalex.org/W2395678419","https://openalex.org/W2532281542","https://openalex.org/W2534395284","https://openalex.org/W2551254415","https://openalex.org/W2583354877","https://openalex.org/W2610629746","https://openalex.org/W2773936206","https://openalex.org/W2795673640","https://openalex.org/W2796334866","https://openalex.org/W2808356197","https://openalex.org/W2940872146","https://openalex.org/W2941349974","https://openalex.org/W2941482178","https://openalex.org/W2984949577","https://openalex.org/W2988120509","https://openalex.org/W2992488714","https://openalex.org/W2993547061","https://openalex.org/W3030348072","https://openalex.org/W4292807893"],"related_works":["https://openalex.org/W3197131596","https://openalex.org/W4390616380","https://openalex.org/W4388666321","https://openalex.org/W4205914924","https://openalex.org/W4225301003","https://openalex.org/W4229014887","https://openalex.org/W3123020258","https://openalex.org/W1501661849","https://openalex.org/W4205163684","https://openalex.org/W2410107133"],"abstract_inverted_index":{"Medical":[0],"making":[1],"intersects":[2],"opposing":[3],"value":[4],"systems":[5],"of":[6,51,122,136],"a":[7,47],"medical":[8,37],"\u201cdo":[9],"no":[10],"harm\u201d":[11],"ethos":[12],"and":[13,29,35,95,124],"makers\u2019":[14],"drive":[15],"to":[16,26,40,66,107,114,126,129],"innovate.":[17],"Since":[18],"March":[19],"2020,":[20],"online":[21,70,112],"maker":[22,53],"communities":[23,80,116],"have":[24,56],"formed":[25],"design,":[27],"manufacture,":[28],"distribute":[30,130],"personal":[31],"protective":[32],"equipment":[33],"(PPE)":[34],"other":[36],"devices":[38],"needed":[39],"fight":[41],"the":[42,120,134],"COVID-19":[43],"pandemic.":[44],"We":[45],"present":[46],"participant":[48],"observation":[49],"study":[50],"14":[52],"communities,":[54],"which":[55],"developed":[57],"differing":[58],"driving":[59],"principles":[60],"for":[61],"efforts":[62],"with":[63,110],"varied":[64],"access":[65],"interdisciplinary":[67],"expertise":[68],"on":[69],"platforms":[71,113],"that":[72],"mutually":[73],"shape":[74],"collective":[75],"action.":[76],"Over":[77],"time,":[78],"these":[79],"unintentionally":[81],"align":[82],"towards":[83],"action-oriented":[84],"or":[85],"regulated":[86],"practices":[87],"because":[88],"they":[89],"often":[90],"lack":[91],"higher":[92],"level":[93],"insight":[94],"agency":[96],"in":[97],"choosing":[98],"communication":[99],"platforms.":[100],"In":[101],"response,":[102],"we":[103],"recommend:":[104],"regulatory":[105],"bodies":[106],"build":[108],"coalitions":[109],"makers,":[111],"give":[115],"more":[117],"control":[118],"over":[119],"presentation":[121],"information,":[123],"repositories":[125],"balance":[127],"needs":[128],"information":[131],"while":[132],"limiting":[133],"spread":[135],"misinformation.":[137]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":11},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":1}],"updated_date":"2026-04-14T08:04:32.555800","created_date":"2025-10-10T00:00:00"}