{"id":"https://openalex.org/W3162489317","doi":"https://doi.org/10.1145/3411764.3445213","title":"Assessing MyData Scenarios: Ethics, Concerns, and the Promise","display_name":"Assessing MyData Scenarios: Ethics, Concerns, and the Promise","publication_year":2021,"publication_date":"2021-05-06","ids":{"openalex":"https://openalex.org/W3162489317","doi":"https://doi.org/10.1145/3411764.3445213","mag":"3162489317"},"language":"en","primary_location":{"id":"doi:10.1145/3411764.3445213","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3411764.3445213","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5011663534","display_name":"Andy Alorwu","orcid":"https://orcid.org/0000-0002-7210-2896"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":true,"raw_author_name":"Andy Alorwu","raw_affiliation_strings":["Center for Ubiquitous Computing University of Oulu, Finland"],"affiliations":[{"raw_affiliation_string":"Center for Ubiquitous Computing University of Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5079361711","display_name":"Saba Kheirinejad","orcid":"https://orcid.org/0000-0002-3998-804X"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Saba Kheirinejad","raw_affiliation_strings":["Center for Ubiquitous Computing University of Oulu, Finland"],"affiliations":[{"raw_affiliation_string":"Center for Ubiquitous Computing University of Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003896144","display_name":"Niels van Berkel","orcid":"https://orcid.org/0000-0001-5106-7692"},"institutions":[{"id":"https://openalex.org/I891191580","display_name":"Aalborg University","ror":"https://ror.org/04m5j1k67","country_code":"DK","type":"education","lineage":["https://openalex.org/I891191580"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Niels van Berkel","raw_affiliation_strings":["Department of Computer Science Aalborg University, Denmark"],"affiliations":[{"raw_affiliation_string":"Department of Computer Science Aalborg University, Denmark","institution_ids":["https://openalex.org/I891191580"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006924897","display_name":"Marianne Kinnula","orcid":"https://orcid.org/0000-0002-1582-8869"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Marianne Kinnula","raw_affiliation_strings":["INTERACT Research Unit University of Oulu, Finland"],"affiliations":[{"raw_affiliation_string":"INTERACT Research Unit University of Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046354027","display_name":"Denzil Ferreira","orcid":"https://orcid.org/0000-0002-2195-0449"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Denzil Ferreira","raw_affiliation_strings":["Center for Ubiquitous Computing Faculty of ITEE, University of Oulu, Finland"],"affiliations":[{"raw_affiliation_string":"Center for Ubiquitous Computing Faculty of ITEE, University of Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5061704516","display_name":"Aku Visuri","orcid":"https://orcid.org/0000-0001-7127-4031"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Aku Visuri","raw_affiliation_strings":["Center for Ubiquitous Computing University of Oulu, Finland"],"affiliations":[{"raw_affiliation_string":"Center for Ubiquitous Computing University of Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5067689431","display_name":"Simo Hosio","orcid":"https://orcid.org/0000-0002-9609-0965"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Simo Hosio","raw_affiliation_strings":["Center for Ubiquitous Computing University of Oulu, Finland"],"affiliations":[{"raw_affiliation_string":"Center for Ubiquitous Computing University of Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5011663534"],"corresponding_institution_ids":["https://openalex.org/I98381234"],"apc_list":null,"apc_paid":null,"fwci":4.1759,"has_fulltext":false,"cited_by_count":14,"citation_normalized_percentile":{"value":0.9409041,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":98},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"11"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11045","display_name":"Privacy, Security, and Data Protection","score":0.9962000250816345,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11045","display_name":"Privacy, Security, and Data Protection","score":0.9962000250816345,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10883","display_name":"Ethics and Social Impacts of AI","score":0.9843999743461609,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9631999731063843,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/engineering-ethics","display_name":"Engineering ethics","score":0.48420289158821106},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4564589858055115},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.18451222777366638}],"concepts":[{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.48420289158821106},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4564589858055115},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.18451222777366638}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1145/3411764.3445213","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3411764.3445213","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},{"id":"pmh:oai:oulu.fi:nbnfi-fe2021052130973","is_oa":false,"landing_page_url":"http://urn.fi/urn:nbn:fi-fe2021052130973","pdf_url":null,"source":{"id":"https://openalex.org/S4306400284","display_name":"University of Oulu Repository (University of Oulu)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I98381234","host_organization_name":"University of Oulu","host_organization_lineage":["https://openalex.org/I98381234"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/conferenceObject"},{"id":"pmh:oai:pure.atira.dk:publications/8dc643d6-d059-442f-9fe4-7709d8496e40","is_oa":false,"landing_page_url":"https://vbn.aau.dk/da/publications/8dc643d6-d059-442f-9fe4-7709d8496e40","pdf_url":null,"source":{"id":"https://openalex.org/S4306401731","display_name":"VBN Forskningsportal (Aalborg Universitet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I891191580","host_organization_name":"Aalborg University","host_organization_lineage":["https://openalex.org/I891191580"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Alorwu , A , Kheirinejad , S , van Berkel , N , Kinnula , M , Ferreira , D , Visuri , A &amp; Hosio , S 2021 , Assessing MyData Scenarios : Ethics, Concerns, and the Promise . in CHI '21 Proceedings of the CHI Conference on Human Factors in Computing Systems . , 209 , Association for Computing Machinery , Conference on Human Factors in Computing Systems - Proceedings , 2021 CHI Conference on Human Factors in Computing Systems: Making Waves, Combining Strengths, CHI 2021 , Virtual, Online , Japan , 08/05/2021 . https://doi.org/10.1145/3411764.3445213","raw_type":"contributionToPeriodical"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1700171570","display_name":null,"funder_award_id":"318930","funder_id":"https://openalex.org/F4320321108","funder_display_name":"Academy of Finland"}],"funders":[{"id":"https://openalex.org/F4320321108","display_name":"Academy of Finland","ror":"https://ror.org/05k73zm37"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":69,"referenced_works":["https://openalex.org/W134093680","https://openalex.org/W436832653","https://openalex.org/W1155382568","https://openalex.org/W1814826358","https://openalex.org/W1852648512","https://openalex.org/W1979290264","https://openalex.org/W1985671776","https://openalex.org/W1991789006","https://openalex.org/W2005426811","https://openalex.org/W2006598149","https://openalex.org/W2040871826","https://openalex.org/W2043213731","https://openalex.org/W2049408522","https://openalex.org/W2058501414","https://openalex.org/W2085818793","https://openalex.org/W2098482696","https://openalex.org/W2123307077","https://openalex.org/W2123390545","https://openalex.org/W2123515278","https://openalex.org/W2131307433","https://openalex.org/W2133674686","https://openalex.org/W2135155571","https://openalex.org/W2136606893","https://openalex.org/W2139247364","https://openalex.org/W2144501061","https://openalex.org/W2150045067","https://openalex.org/W2153325215","https://openalex.org/W2161172863","https://openalex.org/W2339105604","https://openalex.org/W2364221285","https://openalex.org/W2403460219","https://openalex.org/W2507945590","https://openalex.org/W2528320219","https://openalex.org/W2538898996","https://openalex.org/W2584290149","https://openalex.org/W2591860395","https://openalex.org/W2612078462","https://openalex.org/W2622525607","https://openalex.org/W2771525082","https://openalex.org/W2780892379","https://openalex.org/W2791589771","https://openalex.org/W2795543871","https://openalex.org/W2795753043","https://openalex.org/W2798307294","https://openalex.org/W2809399303","https://openalex.org/W2809809918","https://openalex.org/W2810111942","https://openalex.org/W2889432528","https://openalex.org/W2891242909","https://openalex.org/W2898189670","https://openalex.org/W2898554559","https://openalex.org/W2912850266","https://openalex.org/W2942119556","https://openalex.org/W2942871032","https://openalex.org/W2954044748","https://openalex.org/W2957148965","https://openalex.org/W2979864122","https://openalex.org/W2995595888","https://openalex.org/W3000472295","https://openalex.org/W3032604679","https://openalex.org/W3034931939","https://openalex.org/W3043516228","https://openalex.org/W3094943323","https://openalex.org/W3100608601","https://openalex.org/W3121760746","https://openalex.org/W3124701710","https://openalex.org/W4240624566","https://openalex.org/W6639076482","https://openalex.org/W6750056906"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W2390279801","https://openalex.org/W4391913857","https://openalex.org/W2358668433","https://openalex.org/W4396701345","https://openalex.org/W2376932109","https://openalex.org/W2001405890","https://openalex.org/W4396696052"],"abstract_inverted_index":{"Public":[0],"controversies":[1],"around":[2],"the":[3,49,58,81,88,95,111,115,125,129,138],"unethical":[4],"use":[5],"of":[6,19,31,42,54,64,80,97,140],"personal":[7,33],"data":[8,12,44,141],"are":[9],"increasing,":[10],"spotlighting":[11],"ethics":[13],"as":[14],"an":[15,69],"increasingly":[16],"important":[17],"field":[18,96,139],"study.":[20],"MyData":[21,89,126],"is":[22],"a":[23,62,77,84,102],"related":[24],"emerging":[25],"vision":[26,90],"that":[27],"emphasizes":[28],"individuals\u2019":[29],"control":[30],"their":[32],"data.":[34],"In":[35],"this":[36],"paper,":[37],"we":[38,135],"investigate":[39],"people\u2019s":[40],"perceptions":[41],"various":[43],"management":[45],"scenarios":[46,67],"by":[47],"measuring":[48],"perceived":[50,112],"ethicality":[51,113],"and":[52,75,91,114,132],"level":[53],"felt":[55,116],"concern":[56],"concerning":[57],"scenarios.":[59],"We":[60],"deployed":[61],"set":[63],"96":[65],"unique":[66],"to":[68,83,137],"online":[70],"crowdsourcing":[71],"platform":[72],"for":[73],"assessment":[74],"invited":[76],"representative":[78],"sample":[79],"participants":[82],"second-stage":[85],"questionnaire":[86,119],"about":[87],"its":[92],"potential":[93,123],"in":[94,124],"healthcare.":[98],"Our":[99],"results":[100],"provide":[101],"timely":[103],"investigation":[104],"into":[105],"how":[106],"topical":[107],"data-related":[108],"practices":[109],"affect":[110],"concern.":[117],"The":[118],"analysis":[120],"reveals":[121],"great":[122],"vision.":[127],"Through":[128],"combined":[130],"quantitative":[131],"qualitative":[133],"results,":[134],"contribute":[136],"ethics.":[142]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":5}],"updated_date":"2026-04-14T08:04:32.555800","created_date":"2025-10-10T00:00:00"}
