{"id":"https://openalex.org/W2988148786","doi":"https://doi.org/10.1145/3359255","title":"Balancing Tensions between Caregiving and Parenting Responsibilities in Pediatric Patient Care","display_name":"Balancing Tensions between Caregiving and Parenting Responsibilities in Pediatric Patient Care","publication_year":2019,"publication_date":"2019-11-07","ids":{"openalex":"https://openalex.org/W2988148786","doi":"https://doi.org/10.1145/3359255","mag":"2988148786"},"language":"en","primary_location":{"id":"doi:10.1145/3359255","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3359255","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3359255","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3359255","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5068796595","display_name":"Woosuk Seo","orcid":"https://orcid.org/0000-0002-1316-4341"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Woosuk Seo","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006502841","display_name":"Andrew Berry","orcid":"https://orcid.org/0000-0002-3167-4716"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Andrew B.L. Berry","raw_affiliation_strings":["University of Washington, Seattle, WA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Washington, Seattle, WA, USA","institution_ids":["https://openalex.org/I201448701"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046072330","display_name":"Prachi Bhagane","orcid":null},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Prachi Bhagane","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059651113","display_name":"Sung Won Choi","orcid":"https://orcid.org/0000-0002-6321-3834"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sung Won Choi","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043178208","display_name":"Ay\u015fe G. B\u00fcy\u00fckt\u00fcr","orcid":"https://orcid.org/0009-0001-4859-9521"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ayse G. Buyuktur","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5100399011","display_name":"Sun Young Park","orcid":"https://orcid.org/0000-0002-2784-513X"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sun Young Park","raw_affiliation_strings":["University of Michigan, Ann Arbor, MI, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Michigan, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.9294,"has_fulltext":true,"cited_by_count":27,"citation_normalized_percentile":{"value":0.91002305,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"3","issue":"CSCW","first_page":"1","last_page":"24"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11060","display_name":"Infant Development and Preterm Care","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11060","display_name":"Infant Development and Preterm Care","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9940000176429749,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9907000064849854,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/psychosocial","display_name":"Psychosocial","score":0.7508953809738159},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.5620915293693542},{"id":"https://openalex.org/keywords/task","display_name":"Task (project management)","score":0.5317619442939758},{"id":"https://openalex.org/keywords/developmental-psychology","display_name":"Developmental psychology","score":0.4530094563961029},{"id":"https://openalex.org/keywords/pediatric-cancer","display_name":"Pediatric cancer","score":0.4317222237586975},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.4158715307712555},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.37247756123542786},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.31142011284828186},{"id":"https://openalex.org/keywords/psychiatry","display_name":"Psychiatry","score":0.22678783535957336}],"concepts":[{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.7508953809738159},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5620915293693542},{"id":"https://openalex.org/C2780451532","wikidata":"https://www.wikidata.org/wiki/Q759676","display_name":"Task (project management)","level":2,"score":0.5317619442939758},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.4530094563961029},{"id":"https://openalex.org/C2993561819","wikidata":"https://www.wikidata.org/wiki/Q5097977","display_name":"Pediatric cancer","level":3,"score":0.4317222237586975},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4158715307712555},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.37247756123542786},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.31142011284828186},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.22678783535957336},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.0},{"id":"https://openalex.org/C187736073","wikidata":"https://www.wikidata.org/wiki/Q2920921","display_name":"Management","level":1,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3359255","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3359255","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3359255","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1145/3359255","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3359255","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3359255","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1084421867","display_name":"CRII: CHS: Empowering Pediatric Patients as Active Partners with Clinicians and Caregivers in Managing Their Chronic Conditions","funder_award_id":"1657411","funder_id":"https://openalex.org/F4320306076","funder_display_name":"National Science Foundation"}],"funders":[{"id":"https://openalex.org/F4320306076","display_name":"National Science Foundation","ror":"https://ror.org/021nxhr62"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2988148786.pdf","grobid_xml":"https://content.openalex.org/works/W2988148786.grobid-xml"},"referenced_works_count":35,"referenced_works":["https://openalex.org/W1500842519","https://openalex.org/W1591387239","https://openalex.org/W1926993976","https://openalex.org/W1963796315","https://openalex.org/W1979343768","https://openalex.org/W1984910582","https://openalex.org/W1996459090","https://openalex.org/W1998841208","https://openalex.org/W2008032322","https://openalex.org/W2025792756","https://openalex.org/W2035472171","https://openalex.org/W2039996523","https://openalex.org/W2047972994","https://openalex.org/W2053552396","https://openalex.org/W2058063325","https://openalex.org/W2059170206","https://openalex.org/W2069071080","https://openalex.org/W2084278020","https://openalex.org/W2133436107","https://openalex.org/W2153153705","https://openalex.org/W2289107354","https://openalex.org/W2476491805","https://openalex.org/W2494834348","https://openalex.org/W2506490502","https://openalex.org/W2582542549","https://openalex.org/W2588249099","https://openalex.org/W2588312088","https://openalex.org/W2589022383","https://openalex.org/W2605018382","https://openalex.org/W2610373936","https://openalex.org/W2611552472","https://openalex.org/W2795785764","https://openalex.org/W2891701091","https://openalex.org/W4245340011","https://openalex.org/W4255520508"],"related_works":["https://openalex.org/W2511633412","https://openalex.org/W1508468526","https://openalex.org/W2735604125","https://openalex.org/W2163175145","https://openalex.org/W2083246719","https://openalex.org/W2034644254","https://openalex.org/W2032640774","https://openalex.org/W2231638647","https://openalex.org/W4224262767","https://openalex.org/W2278828097"],"abstract_inverted_index":{"In":[0],"pediatric":[1,27],"chronic":[2,31],"care,":[3],"the":[4,10,49,54,63,71,87,108,129,137,149,153,160],"treatment":[5,59,164],"process":[6,174,207],"affects":[7],"not":[8],"just":[9],"child's":[11,55,88,109,130,138,161],"physical":[12],"health,":[13],"but":[14],"his":[15],"or":[16],"her":[17],"psychosocial":[18],"and":[19,58,73,122,132,134,147,155,165,179,183,203],"emotional":[20],"development.":[21],"As":[22],"a":[23,30,38,78,103],"result,":[24],"caring":[25],"for":[26,41,81,197,202],"patients":[28],"with":[29],"illness":[32],"such":[33],"as":[34,118],"cancer":[35],"is":[36],"becoming":[37],"daunting":[39],"task":[40],"parental":[42,98],"caregivers.":[43],"They":[44],"are":[45],"expected":[46],"to":[47,86,136,186,200],"fulfill":[48],"caregiving":[50,123],"needs":[51,65],"of":[52,66,208,211],"managing":[53,107],"health":[56,131],"condition":[57],"while":[60,105],"also":[61,106],"meeting":[62],"parenting":[64,121],"translating":[67],"knowledge,":[68],"communicating":[69],"about":[70],"illness,":[72],"making":[74],"numerous":[75],"decisions":[76],"on":[77,92,101,152],"daily":[79],"basis":[80],"their":[82,181],"sick":[83],"child":[84,104],"due":[85],"young":[89],"age.":[90],"Drawing":[91],"15":[93],"semi-structured":[94],"interviews,":[95],"we":[96],"examined":[97],"caregivers'":[99],"perspectives":[100],"raising":[102],"health.":[110],"We":[111],"identified":[112],"three":[113],"tensions":[114,170],"that":[115],"participants":[116],"encountered":[117],"they":[119],"balanced":[120],"responsibilities:":[124],"(i)":[125],"tension":[126,142,157],"between":[127,143,158],"ensuring":[128],"safety":[133],"attending":[135],"social":[139],"development,":[140],"(ii)":[141],"disclosing":[144],"health-related":[145],"information":[146],"minimizing":[148],"psychological":[150],"burden":[151],"child,":[154],"(iii)":[156],"rewarding":[159],"cooperation":[162],"in":[163],"maintaining":[166],"discipline.":[167],"Together,":[168],"these":[169],"reveal":[171,195],"an":[172],"ongoing":[173],"through":[175],"which":[176],"caregivers":[177],"assess":[178],"interpret":[180],"actions":[182],"responsibilities":[184],"relative":[185],"anticipated":[187],"consequences":[188],"across":[189],"multiple":[190],"time":[191],"scales.":[192],"These":[193],"findings":[194],"opportunities":[196],"sociotechnical":[198],"systems":[199],"account":[201],"support":[204],"this":[205],"active":[206],"iterative":[209],"cycles":[210],"assessment.":[212]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":5},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":6},{"year":2021,"cited_by_count":2}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}