{"id":"https://openalex.org/W2988784939","doi":"https://doi.org/10.1145/3359223","title":"Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision","display_name":"Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision","publication_year":2019,"publication_date":"2019-11-07","ids":{"openalex":"https://openalex.org/W2988784939","doi":"https://doi.org/10.1145/3359223","mag":"2988784939"},"language":"en","primary_location":{"id":"doi:10.1145/3359223","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3359223","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3359223","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3359223","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5072662999","display_name":"Sunil Rodger","orcid":"https://orcid.org/0000-0001-5610-6208"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Sunil Rodger","raw_affiliation_strings":["Newcastle University, Newcastle upon Tyne, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Newcastle University, Newcastle upon Tyne, United Kingdom","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5064650373","display_name":"Kenton O\u2019Hara","orcid":"https://orcid.org/0000-0001-8915-4572"},"institutions":[{"id":"https://openalex.org/I4210164937","display_name":"Microsoft Research (United Kingdom)","ror":"https://ror.org/05k87vq12","country_code":"GB","type":"company","lineage":["https://openalex.org/I1290206253","https://openalex.org/I4210164937"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Kenton O'Hara","raw_affiliation_strings":["Microsoft Research, Cambridge, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Microsoft Research, Cambridge, United Kingdom","institution_ids":["https://openalex.org/I4210164937"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5072662999"],"corresponding_institution_ids":["https://openalex.org/I84884186"],"apc_list":null,"apc_paid":null,"fwci":0.7011,"has_fulltext":true,"cited_by_count":12,"citation_normalized_percentile":{"value":0.75019421,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"3","issue":"CSCW","first_page":"1","last_page":"26"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.9449999928474426,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13194","display_name":"ICT in Developing Communities","score":0.9002000093460083,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.6919360160827637},{"id":"https://openalex.org/keywords/attendance","display_name":"Attendance","score":0.6243192553520203},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.5494590401649475},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5123063325881958},{"id":"https://openalex.org/keywords/chronic-care","display_name":"Chronic care","score":0.5052772164344788},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.48732051253318787},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.4630925953388214},{"id":"https://openalex.org/keywords/cystic-fibrosis","display_name":"Cystic fibrosis","score":0.4267144203186035},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.3484610915184021},{"id":"https://openalex.org/keywords/chronic-disease","display_name":"Chronic disease","score":0.29645735025405884},{"id":"https://openalex.org/keywords/intensive-care-medicine","display_name":"Intensive care medicine","score":0.2550496459007263},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.11107185482978821}],"concepts":[{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.6919360160827637},{"id":"https://openalex.org/C2778173179","wikidata":"https://www.wikidata.org/wiki/Q25339289","display_name":"Attendance","level":2,"score":0.6243192553520203},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5494590401649475},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5123063325881958},{"id":"https://openalex.org/C2776807786","wikidata":"https://www.wikidata.org/wiki/Q5113964","display_name":"Chronic care","level":3,"score":0.5052772164344788},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.48732051253318787},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.4630925953388214},{"id":"https://openalex.org/C2776938444","wikidata":"https://www.wikidata.org/wiki/Q178194","display_name":"Cystic fibrosis","level":2,"score":0.4267144203186035},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3484610915184021},{"id":"https://openalex.org/C2987552334","wikidata":"https://www.wikidata.org/wiki/Q383126","display_name":"Chronic disease","level":2,"score":0.29645735025405884},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.2550496459007263},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.11107185482978821},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3359223","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3359223","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3359223","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1145/3359223","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3359223","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3359223","source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2988784939.pdf","grobid_xml":"https://content.openalex.org/works/W2988784939.grobid-xml"},"referenced_works_count":68,"referenced_works":["https://openalex.org/W1488126718","https://openalex.org/W1605824561","https://openalex.org/W1615506555","https://openalex.org/W1832517437","https://openalex.org/W1967833059","https://openalex.org/W1969833938","https://openalex.org/W1975909392","https://openalex.org/W1976264709","https://openalex.org/W1983581902","https://openalex.org/W1991313409","https://openalex.org/W1992284849","https://openalex.org/W2000061254","https://openalex.org/W2001550056","https://openalex.org/W2003565118","https://openalex.org/W2010875089","https://openalex.org/W2012295105","https://openalex.org/W2017982262","https://openalex.org/W2028902836","https://openalex.org/W2033250946","https://openalex.org/W2040607890","https://openalex.org/W2049487316","https://openalex.org/W2074714879","https://openalex.org/W2082399144","https://openalex.org/W2090771594","https://openalex.org/W2091177731","https://openalex.org/W2095118384","https://openalex.org/W2099532293","https://openalex.org/W2106250173","https://openalex.org/W2107814742","https://openalex.org/W2119714313","https://openalex.org/W2120026013","https://openalex.org/W2120059261","https://openalex.org/W2131319384","https://openalex.org/W2134224630","https://openalex.org/W2137940381","https://openalex.org/W2143512323","https://openalex.org/W2143961082","https://openalex.org/W2148919233","https://openalex.org/W2151436444","https://openalex.org/W2162965169","https://openalex.org/W2170955636","https://openalex.org/W2201280936","https://openalex.org/W2210324311","https://openalex.org/W2289891234","https://openalex.org/W2290835535","https://openalex.org/W2329395632","https://openalex.org/W2472607788","https://openalex.org/W2497659964","https://openalex.org/W2580119701","https://openalex.org/W2588009171","https://openalex.org/W2588463362","https://openalex.org/W2589021616","https://openalex.org/W2607372457","https://openalex.org/W2621378336","https://openalex.org/W2743657366","https://openalex.org/W2755740704","https://openalex.org/W2761628395","https://openalex.org/W2789607641","https://openalex.org/W2790077231","https://openalex.org/W2801360910","https://openalex.org/W2802851561","https://openalex.org/W2807456165","https://openalex.org/W2896226034","https://openalex.org/W2926647542","https://openalex.org/W3018342640","https://openalex.org/W4210996550","https://openalex.org/W4235278727","https://openalex.org/W4256453935"],"related_works":["https://openalex.org/W2067301453","https://openalex.org/W2334695114","https://openalex.org/W2316367627","https://openalex.org/W795876935","https://openalex.org/W4387746715","https://openalex.org/W3029629814","https://openalex.org/W2073898856","https://openalex.org/W2414453205","https://openalex.org/W2332557720","https://openalex.org/W2582469008"],"abstract_inverted_index":{"Health":[0],"care":[1,31,89,147],"systems":[2],"increasingly":[3],"promote":[4],"self-management":[5,98],"of":[6,10,45,51,66,78,105,140,152],"chronic":[7,146],"conditions":[8],"outside":[9],"traditional":[11],"clinical":[12],"environments,":[13],"often":[14,72,117],"through":[15],"technologies":[16],"which":[17],"help":[18],"to":[19,41,75,131],"support":[20],"patient":[21],"self-care":[22],"and":[23,50,81,99,107,113,120,129,150],"engagement":[24],"with":[25,48,97],"medical":[26],"professionals.":[27],"We":[28],"investigate":[29],"specialist":[30],"provision":[32],"in":[33,68,111,123,133],"cystic":[34],"fibrosis":[35],"(CF),":[36],"a":[37,108],"life-shortening":[38],"genetic":[39],"condition,":[40],"understand":[42],"the":[43,61,64,76,82,85,93,102,138,145],"experiences":[44],"those":[46],"living":[47],"it":[49],"professionals":[52],"who":[53,115],"provide":[54],"such":[55],"care.":[56,125,154],"Our":[57],"work":[58],"highlights":[59],"how":[60],"motivations":[62],"for":[63],"use":[65],"technology":[67,132],"this":[69,134],"context":[70],"are":[71,116],"intrinsically":[73],"linked":[74],"nature":[77],"CF":[79,153],"itself":[80],"constraints":[83],"that":[84],"condition":[86],"imposes":[87],"on":[88],"provision.":[90],"These":[91],"include":[92],"high":[94],"burden":[95],"associated":[96],"clinic":[100],"attendance;":[101],"ever-present":[103],"risk":[104],"infection":[106],"subsequent":[109],"decline":[110],"health;":[112],"patients":[114],"very":[118],"well-informed":[119],"actively":[121],"engaged":[122],"their":[124],"In":[126],"exploring":[127],"enablers":[128],"barriers":[130],"context,":[135],"we":[136],"highlight":[137],"importance":[139],"considering":[141],"its":[142],"integration":[143],"into":[144],"cycles,":[148],"practices,":[149],"structures":[151]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":3},{"year":2020,"cited_by_count":1}],"updated_date":"2026-05-21T06:26:12.895304","created_date":"2025-10-10T00:00:00"}
