{"id":"https://openalex.org/W3032492348","doi":"https://doi.org/10.1145/3313831.3376800","title":"\"I'm hoping they're an ethical company that won't do anything that I'll regret\"","display_name":"\"I'm hoping they're an ethical company that won't do anything that I'll regret\"","publication_year":2020,"publication_date":"2020-04-21","ids":{"openalex":"https://openalex.org/W3032492348","doi":"https://doi.org/10.1145/3313831.3376800","mag":"3032492348"},"language":"en","primary_location":{"id":"doi:10.1145/3313831.3376800","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3313831.3376800","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5034226193","display_name":"Khadija Baig","orcid":null},"institutions":[{"id":"https://openalex.org/I67031392","display_name":"Carleton University","ror":"https://ror.org/02qtvee93","country_code":"CA","type":"education","lineage":["https://openalex.org/I67031392"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"Khadija Baig","raw_affiliation_strings":["Carleton University, Ottawa, ON, Canada"],"affiliations":[{"raw_affiliation_string":"Carleton University, Ottawa, ON, Canada","institution_ids":["https://openalex.org/I67031392"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110574032","display_name":"Reham Mohamed","orcid":null},"institutions":[{"id":"https://openalex.org/I67031392","display_name":"Carleton University","ror":"https://ror.org/02qtvee93","country_code":"CA","type":"education","lineage":["https://openalex.org/I67031392"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Reham Mohamed","raw_affiliation_strings":["Carleton University, Ottawa, ON, Canada"],"affiliations":[{"raw_affiliation_string":"Carleton University, Ottawa, ON, Canada","institution_ids":["https://openalex.org/I67031392"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045724018","display_name":"Anna-Lena Theus","orcid":"https://orcid.org/0009-0006-4894-1661"},"institutions":[{"id":"https://openalex.org/I67031392","display_name":"Carleton University","ror":"https://ror.org/02qtvee93","country_code":"CA","type":"education","lineage":["https://openalex.org/I67031392"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Anna-Lena Theus","raw_affiliation_strings":["Carleton University, Ottawa, ON, Canada"],"affiliations":[{"raw_affiliation_string":"Carleton University, Ottawa, ON, Canada","institution_ids":["https://openalex.org/I67031392"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5048641215","display_name":"Sonia Chiasson","orcid":"https://orcid.org/0000-0001-7314-2198"},"institutions":[{"id":"https://openalex.org/I67031392","display_name":"Carleton University","ror":"https://ror.org/02qtvee93","country_code":"CA","type":"education","lineage":["https://openalex.org/I67031392"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Sonia Chiasson","raw_affiliation_strings":["Carleton University, Ottawa, ON, Canada"],"affiliations":[{"raw_affiliation_string":"Carleton University, Ottawa, ON, Canada","institution_ids":["https://openalex.org/I67031392"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5034226193"],"corresponding_institution_ids":["https://openalex.org/I67031392"],"apc_list":null,"apc_paid":null,"fwci":4.0008,"has_fulltext":false,"cited_by_count":27,"citation_normalized_percentile":{"value":0.94405461,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":99},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"13"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9962000250816345,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9962000250816345,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10883","display_name":"Ethics and Social Impacts of AI","score":0.9897000193595886,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11045","display_name":"Privacy, Security, and Data Protection","score":0.98580002784729,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/regret","display_name":"Regret","score":0.7537000775337219},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.7310977578163147},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.5599854588508606},{"id":"https://openalex.org/keywords/mental-health","display_name":"Mental health","score":0.5100601315498352},{"id":"https://openalex.org/keywords/qualitative-property","display_name":"Qualitative property","score":0.4921845495700836},{"id":"https://openalex.org/keywords/information-privacy","display_name":"Information privacy","score":0.4719107449054718},{"id":"https://openalex.org/keywords/social-media","display_name":"Social media","score":0.4367721974849701},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4201778471469879},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.4147687554359436},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.3988872468471527},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.3327697515487671},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.33100590109825134},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.32124805450439453},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.28077563643455505},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.1512955129146576},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.1327533721923828},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.10958936810493469}],"concepts":[{"id":"https://openalex.org/C50817715","wikidata":"https://www.wikidata.org/wiki/Q79895177","display_name":"Regret","level":2,"score":0.7537000775337219},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.7310977578163147},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.5599854588508606},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.5100601315498352},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.4921845495700836},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.4719107449054718},{"id":"https://openalex.org/C518677369","wikidata":"https://www.wikidata.org/wiki/Q202833","display_name":"Social media","level":2,"score":0.4367721974849701},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4201778471469879},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.4147687554359436},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3988872468471527},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3327697515487671},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.33100590109825134},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.32124805450439453},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.28077563643455505},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.1512955129146576},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.1327533721923828},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.10958936810493469},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3313831.3376800","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3313831.3376800","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1434976187","display_name":null,"funder_award_id":"RGPIN 06273-2017","funder_id":"https://openalex.org/F4320321487","funder_display_name":"Canadian Network for Research and Innovation in Machining Technology, Natural Sciences and Engineering Research Council of Canada"},{"id":"https://openalex.org/G5105997831","display_name":null,"funder_award_id":"950-231002-2016","funder_id":"https://openalex.org/F4320320994","funder_display_name":"Canada Research Chairs"}],"funders":[{"id":"https://openalex.org/F4320320994","display_name":"Canada Research Chairs","ror":"https://ror.org/0517h6h17"},{"id":"https://openalex.org/F4320321487","display_name":"Canadian Network for Research and Innovation in Machining Technology, Natural Sciences and Engineering Research Council of Canada","ror":"https://ror.org/01h531d29"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":38,"referenced_works":["https://openalex.org/W85417550","https://openalex.org/W180232860","https://openalex.org/W951697242","https://openalex.org/W1005350190","https://openalex.org/W1648747290","https://openalex.org/W1668412452","https://openalex.org/W1803530966","https://openalex.org/W1920407135","https://openalex.org/W1987251356","https://openalex.org/W1993722065","https://openalex.org/W2004336053","https://openalex.org/W2005943689","https://openalex.org/W2007601555","https://openalex.org/W2024402193","https://openalex.org/W2027602923","https://openalex.org/W2050501147","https://openalex.org/W2059439034","https://openalex.org/W2067404301","https://openalex.org/W2103806120","https://openalex.org/W2155071529","https://openalex.org/W2289796130","https://openalex.org/W2301163450","https://openalex.org/W2394706615","https://openalex.org/W2519001210","https://openalex.org/W2527873759","https://openalex.org/W2564383306","https://openalex.org/W2598388227","https://openalex.org/W2756165370","https://openalex.org/W2757691188","https://openalex.org/W2794874662","https://openalex.org/W2809531016","https://openalex.org/W2895917461","https://openalex.org/W2951130331","https://openalex.org/W2999221213","https://openalex.org/W3006887636","https://openalex.org/W3123524643","https://openalex.org/W4229639082","https://openalex.org/W4385736861"],"related_works":["https://openalex.org/W4376155396","https://openalex.org/W2971351794","https://openalex.org/W1947085858","https://openalex.org/W2101991911","https://openalex.org/W2174986909","https://openalex.org/W2527791220","https://openalex.org/W4200529402","https://openalex.org/W4207074814","https://openalex.org/W2809809464","https://openalex.org/W4239684875"],"abstract_inverted_index":{"At-home":[0],"DNA":[1,67,105],"testing":[2,68],"has":[3],"become":[4],"increasingly":[5],"popular":[6],"due":[7],"to":[8,11,14,107],"the":[9,53],"ability":[10],"be":[12],"able":[13],"gain":[15],"both":[16],"ancestry":[17],"and":[18,47,55,74,86,102,148],"health":[19,120],"information,":[20],"as":[21,23,52,115],"well":[22],"connect":[24],"with":[25,62,111],"others":[26],"who":[27],"share":[28],"your":[29],"DNA.":[30],"Do":[31,42],"users":[32,43,64,95],"have":[33,44,96],"reasonable":[34],"mental":[35,100],"models":[36,101],"of":[37,65,127],"how":[38],"these":[39],"systems":[40],"work?":[41],"privacy":[45,128,140],"concerns":[46,129],"what":[48],"do":[49],"they":[50,136],"understand":[51],"benefits":[54],"risks":[56],"involved?":[57],"We":[58,144],"conducted":[59],"27":[60],"interviews":[61,71],"Canadian":[63],"at-home":[66],"companies.":[69],"Our":[70,89],"covered":[72],"perceived":[73],"desired":[75],"data":[76,78,80,106,109],"use,":[77],"management,":[79],"sharing":[81],"practices,":[82],"control":[83],"over":[84],"data,":[85],"any":[87],"regrets.":[88],"qualitative":[90],"analysis":[91],"revealed":[92],"that":[93],"many":[94],"inconsistencies":[97],"in":[98,141,153],"their":[99,104,108,133,142],"liken":[103],"stored":[110],"existing":[112],"technologies,":[113],"such":[114],"social":[116],"media,":[117],"rather":[118],"than":[119],"data.":[121],"They":[122],"are":[123],"generally":[124],"either":[125],"dismissive":[126],"towards":[130],"themselves":[131],"or":[132,135],"relatives":[134],"had":[137],"not":[138],"considered":[139],"choice.":[143],"discuss":[145],"our":[146],"findings":[147],"propose":[149],"possible":[150],"future":[151],"work":[152],"this":[154],"area.":[155]},"counts_by_year":[{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":8},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":4}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}