{"id":"https://openalex.org/W3030588927","doi":"https://doi.org/10.1145/3313831.3376627","title":"Relational, Flexible, Everyday: Learning from Ethics in Dementia Research","display_name":"Relational, Flexible, Everyday: Learning from Ethics in Dementia Research","publication_year":2020,"publication_date":"2020-04-21","ids":{"openalex":"https://openalex.org/W3030588927","doi":"https://doi.org/10.1145/3313831.3376627","mag":"3030588927","pmid":"https://pubmed.ncbi.nlm.nih.gov/32705092"},"language":"en","primary_location":{"id":"doi:10.1145/3313831.3376627","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3313831.3376627","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3313831.3376627","source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://dl.acm.org/doi/pdf/10.1145/3313831.3376627","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5059727553","display_name":"James Hodge","orcid":"https://orcid.org/0000-0001-6988-5730"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"James Hodge","raw_affiliation_strings":["Newcastle University, Newcastle upon Tyne, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Newcastle University, Newcastle upon Tyne, United Kingdom","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039708488","display_name":"Sarah Foley","orcid":"https://orcid.org/0000-0003-3450-148X"},"institutions":[{"id":"https://openalex.org/I27577105","display_name":"University College Cork","ror":"https://ror.org/03265fv13","country_code":"IE","type":"education","lineage":["https://openalex.org/I27577105"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Sarah Foley","raw_affiliation_strings":["University College Cork, Cork, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University College Cork, Cork, Ireland","institution_ids":["https://openalex.org/I27577105"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082712655","display_name":"Rens Brankaert","orcid":"https://orcid.org/0000-0002-0526-9370"},"institutions":[{"id":"https://openalex.org/I21516984","display_name":"Fontys University of Applied Sciences","ror":"https://ror.org/01jwcme05","country_code":"NL","type":"education","lineage":["https://openalex.org/I21516984"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Rens Brankaert","raw_affiliation_strings":["Fontys University of Applied Sciences, Eindhoven, Noord Brabant, Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Fontys University of Applied Sciences, Eindhoven, Noord Brabant, Netherlands","institution_ids":["https://openalex.org/I21516984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056947942","display_name":"Gail Kenning","orcid":"https://orcid.org/0000-0002-3379-9088"},"institutions":[{"id":"https://openalex.org/I114017466","display_name":"University of Technology Sydney","ror":"https://ror.org/03f0f6041","country_code":"AU","type":"education","lineage":["https://openalex.org/I114017466"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Gail Kenning","raw_affiliation_strings":["University of Technology Sydney, Sydney, NSW, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Technology Sydney, Sydney, NSW, Australia","institution_ids":["https://openalex.org/I114017466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5014790341","display_name":"Amanda Lazar","orcid":"https://orcid.org/0000-0001-8110-4239"},"institutions":[{"id":"https://openalex.org/I66946132","display_name":"University of Maryland, College Park","ror":"https://ror.org/047s2c258","country_code":"US","type":"education","lineage":["https://openalex.org/I66946132"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Amanda Lazar","raw_affiliation_strings":["University of Maryland, College Park, MD, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Maryland, College Park, MD, USA","institution_ids":["https://openalex.org/I66946132"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026670327","display_name":"Jennifer Boger","orcid":"https://orcid.org/0000-0001-6150-151X"},"institutions":[{"id":"https://openalex.org/I151746483","display_name":"University of Waterloo","ror":"https://ror.org/01aff2v68","country_code":"CA","type":"education","lineage":["https://openalex.org/I151746483"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Jennifer Boger","raw_affiliation_strings":["University of Waterloo, Waterloo, ON, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Waterloo, Waterloo, ON, Canada","institution_ids":["https://openalex.org/I151746483"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5057143988","display_name":"Kellie Morrissey","orcid":"https://orcid.org/0000-0002-6962-6920"},"institutions":[{"id":"https://openalex.org/I230495080","display_name":"University of Limerick","ror":"https://ror.org/00a0n9e72","country_code":"IE","type":"education","lineage":["https://openalex.org/I230495080"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Kellie Morrissey","raw_affiliation_strings":["University of Limerick, Limerick, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Limerick, Limerick, Ireland","institution_ids":["https://openalex.org/I230495080"]}]}],"institutions":[],"countries_distinct_count":6,"institutions_distinct_count":7,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":6.9596,"has_fulltext":true,"cited_by_count":44,"citation_normalized_percentile":{"value":0.97209961,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":99},"biblio":{"volume":"2020","issue":null,"first_page":"1","last_page":"16"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.9973999857902527,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.9973999857902527,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9955000281333923,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T14173","display_name":"Education, Healthcare and Sociology Research","score":0.9822999835014343,"subfield":{"id":"https://openalex.org/subfields/3207","display_name":"Social Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/dementia","display_name":"Dementia","score":0.6974203586578369},{"id":"https://openalex.org/keywords/informed-consent","display_name":"Informed consent","score":0.5856226682662964},{"id":"https://openalex.org/keywords/research-ethics","display_name":"Research ethics","score":0.5546436309814453},{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.5510464906692505},{"id":"https://openalex.org/keywords/participatory-action-research","display_name":"Participatory action research","score":0.5073499083518982},{"id":"https://openalex.org/keywords/qualitative-research","display_name":"Qualitative research","score":0.5010964870452881},{"id":"https://openalex.org/keywords/ethics-of-care","display_name":"Ethics of care","score":0.49495929479599},{"id":"https://openalex.org/keywords/engineering-ethics","display_name":"Engineering ethics","score":0.48060867190361023},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.4588589668273926},{"id":"https://openalex.org/keywords/citizen-journalism","display_name":"Citizen journalism","score":0.4536133110523224},{"id":"https://openalex.org/keywords/focus-group","display_name":"Focus group","score":0.4273717403411865},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.34164106845855713},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.3258814215660095},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.20426267385482788},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.20305845141410828},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.13288068771362305},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.10589128732681274},{"id":"https://openalex.org/keywords/social-science","display_name":"Social science","score":0.08886712789535522}],"concepts":[{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.6974203586578369},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.5856226682662964},{"id":"https://openalex.org/C153997805","wikidata":"https://www.wikidata.org/wiki/Q42240","display_name":"Research ethics","level":2,"score":0.5546436309814453},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.5510464906692505},{"id":"https://openalex.org/C140988679","wikidata":"https://www.wikidata.org/wiki/Q7140444","display_name":"Participatory action research","level":2,"score":0.5073499083518982},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5010964870452881},{"id":"https://openalex.org/C2775877427","wikidata":"https://www.wikidata.org/wiki/Q1035845","display_name":"Ethics of care","level":2,"score":0.49495929479599},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.48060867190361023},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4588589668273926},{"id":"https://openalex.org/C203663800","wikidata":"https://www.wikidata.org/wiki/Q848979","display_name":"Citizen journalism","level":2,"score":0.4536133110523224},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.4273717403411865},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.34164106845855713},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.3258814215660095},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.20426267385482788},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.20305845141410828},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.13288068771362305},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.10589128732681274},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.08886712789535522},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.0},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0}],"mesh":[],"locations_count":5,"locations":[{"id":"doi:10.1145/3313831.3376627","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3313831.3376627","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3313831.3376627","source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},{"id":"pmid:32705092","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/32705092","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference","raw_type":null},{"id":"pmh:oai:opus.lib.uts.edu.au:10453/147830","is_oa":false,"landing_page_url":"http://hdl.handle.net/10453/147830","pdf_url":null,"source":{"id":"https://openalex.org/S4306401357","display_name":"UTS ePRESS (University of Technology Sydney)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I114017466","host_organization_name":"University of Technology Sydney","host_organization_lineage":["https://openalex.org/I114017466"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Conference Proceeding"},{"id":"pmh:oai:pubmedcentral.nih.gov:7377302","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7377302","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Proc SIGCHI Conf Hum Factor Comput Syst","raw_type":"Text"},{"id":"pmh:oai:unsworks.library.unsw.edu.au:1959.4/unsworks_73499","is_oa":true,"landing_page_url":"http://hdl.handle.net/1959.4/unsworks_73499","pdf_url":null,"source":{"id":"https://openalex.org/S4306401737","display_name":"UNSWorks (University of New South Wales, Sydney, Australia)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I40053085","host_organization_name":"Australian Defence Force Academy","host_organization_lineage":["https://openalex.org/I40053085"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems, ELECTR NETWORK, 2020-04-25 - 2020-04-30","raw_type":"http://purl.org/coar/resource_type/c_5794"}],"best_oa_location":{"id":"doi:10.1145/3313831.3376627","is_oa":true,"landing_page_url":"https://doi.org/10.1145/3313831.3376627","pdf_url":"https://dl.acm.org/doi/pdf/10.1145/3313831.3376627","source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/16","score":0.46000000834465027,"display_name":"Peace, Justice and strong institutions"}],"awards":[{"id":"https://openalex.org/G1361135728","display_name":"EPSRC Centre for Doctoral Training in Digital Civics","funder_award_id":"EP/L016176/1","funder_id":"https://openalex.org/F4320334627","funder_display_name":"Engineering and Physical Sciences Research Council"},{"id":"https://openalex.org/G5039539820","display_name":null,"funder_award_id":"90REGE0008","funder_id":"https://openalex.org/F4320337604","funder_display_name":"National Institute on Disability, Independent Living, and Rehabilitation Research"},{"id":"https://openalex.org/G5512503095","display_name":null,"funder_award_id":"016.128.303","funder_id":"https://openalex.org/F4320321800","funder_display_name":"Nederlandse Organisatie voor Wetenschappelijk Onderzoek"},{"id":"https://openalex.org/G5718786378","display_name":null,"funder_award_id":"90REGE0008","funder_id":"https://openalex.org/F4320332398","funder_display_name":"Administration for Community Living"}],"funders":[{"id":"https://openalex.org/F4320321800","display_name":"Nederlandse Organisatie voor Wetenschappelijk Onderzoek","ror":"https://ror.org/04jsz6e67"},{"id":"https://openalex.org/F4320332398","display_name":"Administration for Community Living","ror":"https://ror.org/00vf4jm23"},{"id":"https://openalex.org/F4320334627","display_name":"Engineering and Physical Sciences Research Council","ror":"https://ror.org/0439y7842"},{"id":"https://openalex.org/F4320337604","display_name":"National Institute on Disability, Independent Living, and Rehabilitation Research","ror":"https://ror.org/033jnv181"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3030588927.pdf","grobid_xml":"https://content.openalex.org/works/W3030588927.grobid-xml"},"referenced_works_count":97,"referenced_works":["https://openalex.org/W22871372","https://openalex.org/W53262335","https://openalex.org/W169850822","https://openalex.org/W1503010809","https://openalex.org/W1510230528","https://openalex.org/W1517190443","https://openalex.org/W1544484417","https://openalex.org/W1589818830","https://openalex.org/W1820505434","https://openalex.org/W1950901984","https://openalex.org/W1963947721","https://openalex.org/W1967879222","https://openalex.org/W1968928588","https://openalex.org/W1976129032","https://openalex.org/W1979290264","https://openalex.org/W1982103347","https://openalex.org/W1982869590","https://openalex.org/W1992156462","https://openalex.org/W1992215773","https://openalex.org/W1993527056","https://openalex.org/W1997772859","https://openalex.org/W2011375675","https://openalex.org/W2016780159","https://openalex.org/W2017398389","https://openalex.org/W2023668805","https://openalex.org/W2034815395","https://openalex.org/W2038775612","https://openalex.org/W2041563435","https://openalex.org/W2049124404","https://openalex.org/W2055165995","https://openalex.org/W2063948462","https://openalex.org/W2072753633","https://openalex.org/W2074551539","https://openalex.org/W2077787637","https://openalex.org/W2080965661","https://openalex.org/W2091835639","https://openalex.org/W2092160079","https://openalex.org/W2110653810","https://openalex.org/W2118890224","https://openalex.org/W2128512960","https://openalex.org/W2128661486","https://openalex.org/W2134422067","https://openalex.org/W2139218230","https://openalex.org/W2142932379","https://openalex.org/W2143280167","https://openalex.org/W2154658393","https://openalex.org/W2167644634","https://openalex.org/W2172271285","https://openalex.org/W2199261925","https://openalex.org/W2239306219","https://openalex.org/W2271326956","https://openalex.org/W2274898047","https://openalex.org/W2295256688","https://openalex.org/W2297265363","https://openalex.org/W2323750053","https://openalex.org/W2328433337","https://openalex.org/W2334548855","https://openalex.org/W2343410558","https://openalex.org/W2414913152","https://openalex.org/W2415462487","https://openalex.org/W2489670669","https://openalex.org/W2526085503","https://openalex.org/W2530685596","https://openalex.org/W2552653476","https://openalex.org/W2588252521","https://openalex.org/W2600241598","https://openalex.org/W2607118446","https://openalex.org/W2610215278","https://openalex.org/W2610506029","https://openalex.org/W2610755883","https://openalex.org/W2611667142","https://openalex.org/W2611824095","https://openalex.org/W2732757946","https://openalex.org/W2763766763","https://openalex.org/W2780420505","https://openalex.org/W2790358827","https://openalex.org/W2796144649","https://openalex.org/W2796222635","https://openalex.org/W2796428935","https://openalex.org/W2808525331","https://openalex.org/W2897609641","https://openalex.org/W2899472013","https://openalex.org/W2933982937","https://openalex.org/W2941789423","https://openalex.org/W2942061519","https://openalex.org/W2942170395","https://openalex.org/W2943585600","https://openalex.org/W2950456992","https://openalex.org/W2952224076","https://openalex.org/W2984508446","https://openalex.org/W2985200003","https://openalex.org/W2995194877","https://openalex.org/W3122197749","https://openalex.org/W3155365442","https://openalex.org/W4229648554","https://openalex.org/W4238030558","https://openalex.org/W4292199645"],"related_works":["https://openalex.org/W2376604200","https://openalex.org/W4200420161","https://openalex.org/W4403245454","https://openalex.org/W2744989144","https://openalex.org/W4200091930","https://openalex.org/W1999517643","https://openalex.org/W4241050114","https://openalex.org/W2756318640","https://openalex.org/W3203993952","https://openalex.org/W1982172401"],"abstract_inverted_index":{"Engaging":[0],"in":[1,4,21,31,80,101,119,140],"participatory":[2],"research":[3,63,97,121],"HCI":[5,19,75,143],"raises":[6],"numerous":[7],"ethical":[8,36,57,102,138],"complexities":[9],"such":[10,90],"as":[11,91],"consent,":[12],"researcher":[13],"relationships,":[14],"and":[15,29,46,69,99,114,133],"participant":[16],"compensation.":[17],"Doing":[18],"work":[20],"the":[22,54,94,108,125],"area":[23,33],"of":[24,56,93,110,127],"dementia":[25,68,81,120,132],"amplifies":[26],"these":[27],"issues,":[28],"researchers":[30,76],"this":[32],"are":[34],"modelling":[35],"stances":[37],"to":[38],"ensure":[39],"researcher-participant":[40],"relationships":[41],"focus":[42],"on":[43],"meaningful":[44],"engagement":[45],"care.":[47],"This":[48],"paper":[49],"presents":[50],"an":[51],"insight":[52],"into":[53],"kinds":[55],"foci":[58],"required":[59],"when":[60],"doing":[61],"design":[62],"with":[64,67,77,129,131],"people":[65,130],"living":[66],"their":[70],"carers.":[71],"We":[72],"interviewed":[73],"22":[74],"experience":[78],"working":[79,128],"care":[82],"contexts.":[83],"Our":[84],"qualitative":[85],"analysis":[86],"outlines":[87],"subsequent":[88],"lessons-learned,":[89],"recognition":[92],"participants,":[95],"self-care,":[96],"impact,":[98],"subjectivity":[100],"review":[103],"boards.":[104],"Furthermore,":[105],"we":[106],"found":[107],"complexity":[109],"navigating":[111],"both":[112],"\"everyday\"":[113],"more":[115],"formal,":[116],"institutional":[117],"ethics":[118],"has":[122],"implications":[123],"beyond":[124],"context":[126],"outline":[134],"key":[135],"considerations":[136],"for":[137],"practices":[139],"socially":[141],"orientated":[142],"research.":[144]},"counts_by_year":[{"year":2026,"cited_by_count":4},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":8},{"year":2023,"cited_by_count":7},{"year":2022,"cited_by_count":11},{"year":2021,"cited_by_count":6},{"year":2020,"cited_by_count":2}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}
