{"id":"https://openalex.org/W3028851948","doi":"https://doi.org/10.1145/3313831.3376426","title":"Using Diaries to Probe the Illness Experiences of Adolescent Patients and Parental Caregivers","display_name":"Using Diaries to Probe the Illness Experiences of Adolescent Patients and Parental Caregivers","publication_year":2020,"publication_date":"2020-04-21","ids":{"openalex":"https://openalex.org/W3028851948","doi":"https://doi.org/10.1145/3313831.3376426","mag":"3028851948"},"language":"en","primary_location":{"id":"doi:10.1145/3313831.3376426","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3313831.3376426","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5026263135","display_name":"Matthew Hong","orcid":"https://orcid.org/0000-0002-0727-2848"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Matthew K. Hong","raw_affiliation_strings":["Georgia Institute of Technology, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Georgia Institute of Technology, Atlanta, GA, USA","institution_ids":["https://openalex.org/I130701444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045072963","display_name":"U. K. Lakshmi","orcid":"https://orcid.org/0000-0001-5921-2102"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Udaya Lakshmi","raw_affiliation_strings":["Georgia Institute of Technology, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Georgia Institute of Technology, Atlanta, GA, USA","institution_ids":["https://openalex.org/I130701444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5019545843","display_name":"Kimberly Do","orcid":"https://orcid.org/0000-0002-4945-6477"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kimberly Do","raw_affiliation_strings":["Georgia Institute of Technology, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Georgia Institute of Technology, Atlanta, GA, USA","institution_ids":["https://openalex.org/I130701444"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5017214251","display_name":"Sampath Prahalad","orcid":"https://orcid.org/0000-0003-3489-1756"},"institutions":[{"id":"https://openalex.org/I150468666","display_name":"Emory University","ror":"https://ror.org/03czfpz43","country_code":"US","type":"education","lineage":["https://openalex.org/I150468666"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sampath Prahalad","raw_affiliation_strings":["Emory University School of Medicine, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Emory University School of Medicine, Atlanta, GA, USA","institution_ids":["https://openalex.org/I150468666"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076151504","display_name":"Thomas A. Olson","orcid":"https://orcid.org/0000-0002-6691-5380"},"institutions":[{"id":"https://openalex.org/I4210146983","display_name":"Children's Healthcare of Atlanta","ror":"https://ror.org/050fhx250","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210146983"]},{"id":"https://openalex.org/I150468666","display_name":"Emory University","ror":"https://ror.org/03czfpz43","country_code":"US","type":"education","lineage":["https://openalex.org/I150468666"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Thomas Olson","raw_affiliation_strings":["Children's Healthcare of Atlanta & Emory University School of Medicine, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Children's Healthcare of Atlanta & Emory University School of Medicine, Atlanta, GA, USA","institution_ids":["https://openalex.org/I4210146983","https://openalex.org/I150468666"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091262280","display_name":"Rosa I. Arriaga","orcid":"https://orcid.org/0000-0002-8642-7245"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Rosa I. Arriaga","raw_affiliation_strings":["Georgia Institute of Technology, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Georgia Institute of Technology, Atlanta, GA, USA","institution_ids":["https://openalex.org/I130701444"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5043868130","display_name":"Lauren Wilcox","orcid":"https://orcid.org/0000-0001-6598-1733"},"institutions":[{"id":"https://openalex.org/I130701444","display_name":"Georgia Institute of Technology","ror":"https://ror.org/01zkghx44","country_code":"US","type":"education","lineage":["https://openalex.org/I130701444"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lauren Wilcox","raw_affiliation_strings":["Georgia Institute of Technology, Atlanta, GA, USA"],"affiliations":[{"raw_affiliation_string":"Georgia Institute of Technology, Atlanta, GA, USA","institution_ids":["https://openalex.org/I130701444"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5026263135"],"corresponding_institution_ids":["https://openalex.org/I130701444"],"apc_list":null,"apc_paid":null,"fwci":3.9506,"has_fulltext":false,"cited_by_count":53,"citation_normalized_percentile":{"value":0.93752871,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":100},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"16"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9991000294685364,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9991000294685364,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.9976000189781189,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9973999857902527,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/documentation","display_name":"Documentation","score":0.7192195653915405},{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.6410252451896667},{"id":"https://openalex.org/keywords/software-deployment","display_name":"Software deployment","score":0.6320402026176453},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.5306388735771179},{"id":"https://openalex.org/keywords/applied-psychology","display_name":"Applied psychology","score":0.3726227283477783},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.22151988744735718}],"concepts":[{"id":"https://openalex.org/C56666940","wikidata":"https://www.wikidata.org/wiki/Q788790","display_name":"Documentation","level":2,"score":0.7192195653915405},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.6410252451896667},{"id":"https://openalex.org/C105339364","wikidata":"https://www.wikidata.org/wiki/Q2297740","display_name":"Software deployment","level":2,"score":0.6320402026176453},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5306388735771179},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.3726227283477783},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.22151988744735718},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3313831.3376426","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3313831.3376426","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G3800542182","display_name":null,"funder_award_id":"1652302","funder_id":"https://openalex.org/F4320309856","funder_display_name":"National Youth Science Foundation"}],"funders":[{"id":"https://openalex.org/F4320309856","display_name":"National Youth Science Foundation","ror":"https://ror.org/054yz2f06"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":75,"referenced_works":["https://openalex.org/W169850822","https://openalex.org/W1521151831","https://openalex.org/W1591648444","https://openalex.org/W1935831175","https://openalex.org/W1963796315","https://openalex.org/W1964581558","https://openalex.org/W1969958843","https://openalex.org/W1979290264","https://openalex.org/W1983714945","https://openalex.org/W1987443694","https://openalex.org/W1991376523","https://openalex.org/W1993896529","https://openalex.org/W2004437678","https://openalex.org/W2013587666","https://openalex.org/W2015294601","https://openalex.org/W2025015028","https://openalex.org/W2031342431","https://openalex.org/W2037272442","https://openalex.org/W2053383131","https://openalex.org/W2053552396","https://openalex.org/W2058063325","https://openalex.org/W2064734221","https://openalex.org/W2068380585","https://openalex.org/W2069818276","https://openalex.org/W2075202904","https://openalex.org/W2103267685","https://openalex.org/W2103879113","https://openalex.org/W2110875219","https://openalex.org/W2121327289","https://openalex.org/W2127429008","https://openalex.org/W2129759152","https://openalex.org/W2130626845","https://openalex.org/W2134879037","https://openalex.org/W2136925099","https://openalex.org/W2138113158","https://openalex.org/W2142477234","https://openalex.org/W2142769778","https://openalex.org/W2146120111","https://openalex.org/W2149732035","https://openalex.org/W2150634379","https://openalex.org/W2161419635","https://openalex.org/W2166190112","https://openalex.org/W2205089171","https://openalex.org/W2397358687","https://openalex.org/W2398063731","https://openalex.org/W2401257368","https://openalex.org/W2408196857","https://openalex.org/W2588198824","https://openalex.org/W2588312088","https://openalex.org/W2611285602","https://openalex.org/W2611744155","https://openalex.org/W2622769177","https://openalex.org/W2623775650","https://openalex.org/W2755053899","https://openalex.org/W2776720339","https://openalex.org/W2782587427","https://openalex.org/W2795429875","https://openalex.org/W2796077206","https://openalex.org/W2796212033","https://openalex.org/W2796227045","https://openalex.org/W2796300011","https://openalex.org/W2796354040","https://openalex.org/W2804851507","https://openalex.org/W2808232955","https://openalex.org/W2808284658","https://openalex.org/W2884123529","https://openalex.org/W2890791500","https://openalex.org/W2891420045","https://openalex.org/W2898892074","https://openalex.org/W2898928601","https://openalex.org/W2942198026","https://openalex.org/W2943656881","https://openalex.org/W2948152648","https://openalex.org/W2948323565","https://openalex.org/W2948395637"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2748952813","https://openalex.org/W2770234245","https://openalex.org/W96612179","https://openalex.org/W4229499248","https://openalex.org/W2618286804","https://openalex.org/W2566006169","https://openalex.org/W1567818861","https://openalex.org/W2987774938","https://openalex.org/W4256492088"],"abstract_inverted_index":{"Adolescents":[0],"with":[1,6,39,117],"chronic":[2],"conditions":[3],"must":[4],"work":[5],"family":[7],"caregivers":[8],"to":[9,63,84],"manage":[10],"their":[11,121],"illness":[12,58],"experiences.":[13,92],"To":[14],"explore":[15],"how":[16,53],"technology":[17,54],"can":[18,55],"support":[19,56],"collaborative":[20],"documentation":[21],"of":[22,72,113],"these":[23,102],"experiences,":[24],"we":[25],"designed":[26],"and":[27,66,81,90,104,111,120],"distributed":[28],"a":[29,35],"paper":[30],"diary":[31,115],"probe":[32],"kit":[33],"in":[34,69],"two-week":[36],"field":[37],"deployment":[38],"12":[40],"adolescent-parent":[41],"dyads":[42],"(24":[43],"participants).":[44],"Three":[45],"insights":[46],"emerged":[47],"from":[48,101],"the":[49,70,109],"study":[50],"that":[51,99],"highlight":[52],"shared":[57],"management:":[59],"1)":[60],"provide":[61],"scaffolds":[62],"recognize":[64],"physical":[65],"emotional":[67],"experiences":[68],"context":[71],"daily":[73],"activities;":[74],"2)":[75],"help":[76],"families":[77],"reconstruct":[78],"patient":[79],"experiences;":[80],"3)":[82],"adapt":[83],"individual":[85],"preferences":[86],"for":[87,96],"capturing,":[88],"representing":[89],"sharing":[91],"We":[93],"discuss":[94],"opportunities":[95],"HCI":[97],"research":[98],"follow":[100],"findings":[103],"conclude":[105],"by":[106],"reflecting":[107],"on":[108],"benefits":[110],"limitations":[112],"using":[114],"probes":[116],"adolescent":[118],"patients":[119],"parental":[122],"caregivers.":[123]},"counts_by_year":[{"year":2026,"cited_by_count":6},{"year":2025,"cited_by_count":8},{"year":2024,"cited_by_count":13},{"year":2023,"cited_by_count":9},{"year":2022,"cited_by_count":11},{"year":2021,"cited_by_count":6}],"updated_date":"2026-04-14T08:04:32.555800","created_date":"2025-10-10T00:00:00"}