{"id":"https://openalex.org/W3032420689","doi":"https://doi.org/10.1145/3313831.3376397","title":"Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies","display_name":"Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies","publication_year":2020,"publication_date":"2020-04-21","ids":{"openalex":"https://openalex.org/W3032420689","doi":"https://doi.org/10.1145/3313831.3376397","mag":"3032420689"},"language":"en","primary_location":{"id":"doi:10.1145/3313831.3376397","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3313831.3376397","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5100399011","display_name":"Sun Young Park","orcid":"https://orcid.org/0000-0002-2784-513X"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan\u2013Ann Arbor","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Sun Young Park","raw_affiliation_strings":["University of Michigan - Ann Arbor, Ann Arbor, MI, USA"],"affiliations":[{"raw_affiliation_string":"University of Michigan - Ann Arbor, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068796595","display_name":"Woosuk Seo","orcid":"https://orcid.org/0000-0002-1316-4341"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan\u2013Ann Arbor","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Woosuk Seo","raw_affiliation_strings":["University of Michigan - Ann Arbor, Ann Arbor, MI, USA"],"affiliations":[{"raw_affiliation_string":"University of Michigan - Ann Arbor, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006502841","display_name":"Andrew Berry","orcid":"https://orcid.org/0000-0002-3167-4716"},"institutions":[{"id":"https://openalex.org/I1343052199","display_name":"Kaiser Permanente","ror":"https://ror.org/00t60zh31","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1343052199"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Andrew B.L. Berry","raw_affiliation_strings":["Kaiser Permanente Washington, Seattle, WA, USA"],"affiliations":[{"raw_affiliation_string":"Kaiser Permanente Washington, Seattle, WA, USA","institution_ids":["https://openalex.org/I1343052199"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048597626","display_name":"Hyeryoung Kim","orcid":null},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan\u2013Ann Arbor","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hyeryoung Kim","raw_affiliation_strings":["University of Michigan - Ann Arbor, Ann Arbor, MI, USA"],"affiliations":[{"raw_affiliation_string":"University of Michigan - Ann Arbor, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011798990","display_name":"Sanya Verma","orcid":null},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan\u2013Ann Arbor","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sanya Verma","raw_affiliation_strings":["University of Michigan - Ann Arbor, Ann Arbor, MI, USA"],"affiliations":[{"raw_affiliation_string":"University of Michigan - Ann Arbor, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059651113","display_name":"Sung Won Choi","orcid":"https://orcid.org/0000-0002-6321-3834"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan\u2013Ann Arbor","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sung Won Choi","raw_affiliation_strings":["University of Michigan - Ann Arbor, Ann Arbor, MI, USA"],"affiliations":[{"raw_affiliation_string":"University of Michigan - Ann Arbor, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5043178208","display_name":"Ay\u015fe G. B\u00fcy\u00fckt\u00fcr","orcid":"https://orcid.org/0009-0001-4859-9521"},"institutions":[{"id":"https://openalex.org/I27837315","display_name":"University of Michigan\u2013Ann Arbor","ror":"https://ror.org/00jmfr291","country_code":"US","type":"education","lineage":["https://openalex.org/I27837315"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ayse G. Buyuktur","raw_affiliation_strings":["University of Michigan - Ann Arbor, Ann Arbor, MI, USA"],"affiliations":[{"raw_affiliation_string":"University of Michigan - Ann Arbor, Ann Arbor, MI, USA","institution_ids":["https://openalex.org/I27837315"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5100399011"],"corresponding_institution_ids":["https://openalex.org/I27837315"],"apc_list":null,"apc_paid":null,"fwci":0.9787,"has_fulltext":false,"cited_by_count":7,"citation_normalized_percentile":{"value":0.77086544,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":91,"max":97},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"12"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9980999827384949,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9980999827384949,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.9803000092506409,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.972000002861023,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.48979878425598145},{"id":"https://openalex.org/keywords/cancer","display_name":"Cancer","score":0.43058571219444275},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3281534016132355},{"id":"https://openalex.org/keywords/internal-medicine","display_name":"Internal medicine","score":0.08398950099945068}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.48979878425598145},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.43058571219444275},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3281534016132355},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.08398950099945068}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3313831.3376397","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3313831.3376397","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":37,"referenced_works":["https://openalex.org/W1916530672","https://openalex.org/W1964245101","https://openalex.org/W1974086646","https://openalex.org/W1981785204","https://openalex.org/W1985125099","https://openalex.org/W1985896307","https://openalex.org/W1996459090","https://openalex.org/W2004147166","https://openalex.org/W2033256035","https://openalex.org/W2038506024","https://openalex.org/W2047972994","https://openalex.org/W2068185826","https://openalex.org/W2071644311","https://openalex.org/W2075042369","https://openalex.org/W2083671574","https://openalex.org/W2087411274","https://openalex.org/W2095536516","https://openalex.org/W2097578749","https://openalex.org/W2099115892","https://openalex.org/W2112901237","https://openalex.org/W2116855422","https://openalex.org/W2123610571","https://openalex.org/W2134152326","https://openalex.org/W2138385780","https://openalex.org/W2159987914","https://openalex.org/W2164473968","https://openalex.org/W2515934862","https://openalex.org/W2577450518","https://openalex.org/W2610752890","https://openalex.org/W2708724161","https://openalex.org/W2795970835","https://openalex.org/W2796353615","https://openalex.org/W2890130304","https://openalex.org/W2921900404","https://openalex.org/W2929784870","https://openalex.org/W2942132058","https://openalex.org/W4255687240"],"related_works":["https://openalex.org/W2748952813","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W3108674512","https://openalex.org/W1506200166","https://openalex.org/W1489783725","https://openalex.org/W2148612803"],"abstract_inverted_index":{"The":[0],"diagnosis":[1],"of":[2,11,51,66],"cancer":[3,53],"brings":[4],"about":[5],"significant":[6],"changes":[7],"in":[8,75],"the":[9,27,99],"life":[10,90],"a":[12],"child.":[13],"In":[14],"addition":[15],"to":[16,107,126],"physical":[17],"pain,":[18],"pediatric":[19,52],"patients":[20,31,54],"face":[21],"psychological":[22],"and":[23,37,42,55,85,89,92,95,128,134],"social":[24],"challenges.":[25],"At":[26],"same":[28],"time,":[29],"some":[30],"also":[32],"have":[33],"positive":[34,77,101,130],"experiences":[35,102,131],"with":[36,49,68],"attitudes":[38],"toward":[39],"their":[40,56,64,108],"illness":[41,133],"treatment.":[43,135],"Drawing":[44],"on":[45,63,116],"19":[46],"semi-structured":[47],"interviews":[48],"pairs":[50],"parental":[57],"caregivers,":[58],"we":[59,119],"examined":[60],"patients'":[61,76,100],"perspectives":[62],"experience":[65],"living":[67],"cancer.":[69],"We":[70],"identified":[71],"four":[72],"salient":[73],"themes":[74],"experiences:":[78],"future-oriented":[79],"thinking,":[80],"developing":[81,93],"strong":[82],"personal":[83],"bonds":[84],"relationships,":[86],"gaining":[87],"knowledge":[88],"experience,":[91],"self-management":[94],"coping":[96],"skills.":[97],"Collectively,":[98],"indicate":[103],"that":[104],"they":[105],"adapt":[106],"new":[109],"lives":[110],"through":[111],"an":[112],"evolving":[113],"process.":[114],"Based":[115],"this":[117],"process,":[118],"provide":[120],"design":[121],"implications":[122],"for":[123],"health":[124],"technologies":[125],"support":[127],"promote":[129],"during":[132]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":3},{"year":2022,"cited_by_count":3}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}
