{"id":"https://openalex.org/W2989047800","doi":"https://doi.org/10.1145/3274470","title":"Understanding Users Information Needs and Collaborative Sensemaking of Microbiome Data","display_name":"Understanding Users Information Needs and Collaborative Sensemaking of Microbiome Data","publication_year":2019,"publication_date":"2019-11-07","ids":{"openalex":"https://openalex.org/W2989047800","doi":"https://doi.org/10.1145/3274470","mag":"2989047800"},"language":"en","primary_location":{"id":"doi:10.1145/3274470","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3274470","pdf_url":null,"source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073173817","display_name":"Jennifer Otiono","orcid":"https://orcid.org/0000-0002-3837-3297"},"institutions":[{"id":"https://openalex.org/I189731429","display_name":"Wellesley College","ror":"https://ror.org/01srpnj69","country_code":"US","type":"education","lineage":["https://openalex.org/I189731429"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Jennifer Otiono","raw_affiliation_strings":["Wellesley College, Wellesley, MA, USA"],"affiliations":[{"raw_affiliation_string":"Wellesley College, Wellesley, MA, USA","institution_ids":["https://openalex.org/I189731429"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041982449","display_name":"Monsurat Olaosebikan","orcid":"https://orcid.org/0000-0002-1789-5336"},"institutions":[{"id":"https://openalex.org/I121934306","display_name":"Tufts University","ror":"https://ror.org/05wvpxv85","country_code":"US","type":"education","lineage":["https://openalex.org/I121934306"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Monsurat Olaosebikan","raw_affiliation_strings":["Tufts University, Medford, MA, USA"],"affiliations":[{"raw_affiliation_string":"Tufts University, Medford, MA, USA","institution_ids":["https://openalex.org/I121934306"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072659945","display_name":"Orit Shaer","orcid":"https://orcid.org/0000-0002-0515-2957"},"institutions":[{"id":"https://openalex.org/I189731429","display_name":"Wellesley College","ror":"https://ror.org/01srpnj69","country_code":"US","type":"education","lineage":["https://openalex.org/I189731429"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Orit Shaer","raw_affiliation_strings":["Wellesley College, Wellesley, MA, USA"],"affiliations":[{"raw_affiliation_string":"Wellesley College, Wellesley, MA, USA","institution_ids":["https://openalex.org/I189731429"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5007172071","display_name":"Oded Nov","orcid":"https://orcid.org/0000-0001-6410-2995"},"institutions":[{"id":"https://openalex.org/I57206974","display_name":"New York University","ror":"https://ror.org/0190ak572","country_code":"US","type":"education","lineage":["https://openalex.org/I57206974"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Oded Nov","raw_affiliation_strings":["New York University, New York, NY, USA"],"affiliations":[{"raw_affiliation_string":"New York University, New York, NY, USA","institution_ids":["https://openalex.org/I57206974"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5082457299","display_name":"Mad Price Ball","orcid":"https://orcid.org/0000-0003-0544-5925"},"institutions":[{"id":"https://openalex.org/I1327992077","display_name":"Open Society Foundations","ror":"https://ror.org/00qnfvz68","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1327992077"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mad Price Ball","raw_affiliation_strings":["Open Humans Foundation, Sanford, USA"],"affiliations":[{"raw_affiliation_string":"Open Humans Foundation, Sanford, USA","institution_ids":["https://openalex.org/I1327992077"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5073173817"],"corresponding_institution_ids":["https://openalex.org/I189731429"],"apc_list":null,"apc_paid":null,"fwci":1.3553,"has_fulltext":false,"cited_by_count":10,"citation_normalized_percentile":{"value":0.81881972,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":97},"biblio":{"volume":"3","issue":"CSCW","first_page":"1","last_page":"21"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9753999710083008,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T10803","display_name":"Innovative Human-Technology Interaction","score":0.9753999710083008,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.9562000036239624,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9495999813079834,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/sensemaking","display_name":"Sensemaking","score":0.6168206334114075},{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.5937516689300537},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.5655499696731567},{"id":"https://openalex.org/keywords/microbiome","display_name":"Microbiome","score":0.5547522306442261},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.5133435130119324},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.4389202296733856},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4221309721469879},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.2874670922756195},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.17689558863639832},{"id":"https://openalex.org/keywords/bioinformatics","display_name":"Bioinformatics","score":0.17574727535247803},{"id":"https://openalex.org/keywords/biology","display_name":"Biology","score":0.10663643479347229}],"concepts":[{"id":"https://openalex.org/C2780554381","wikidata":"https://www.wikidata.org/wiki/Q2063340","display_name":"Sensemaking","level":2,"score":0.6168206334114075},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.5937516689300537},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.5655499696731567},{"id":"https://openalex.org/C143121216","wikidata":"https://www.wikidata.org/wiki/Q1330402","display_name":"Microbiome","level":2,"score":0.5547522306442261},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.5133435130119324},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.4389202296733856},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4221309721469879},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.2874670922756195},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.17689558863639832},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.17574727535247803},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.10663643479347229},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1145/3274470","is_oa":false,"landing_page_url":"https://doi.org/10.1145/3274470","pdf_url":null,"source":{"id":"https://openalex.org/S4210183893","display_name":"Proceedings of the ACM on Human-Computer Interaction","issn_l":"2573-0142","issn":["2573-0142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319798","host_organization_name":"Association for Computing Machinery","host_organization_lineage":["https://openalex.org/P4310319798"],"host_organization_lineage_names":["Association for Computing Machinery"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Proceedings of the ACM on Human-Computer Interaction","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Partnerships for the goals","id":"https://metadata.un.org/sdg/17","score":0.44999998807907104}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":55,"referenced_works":["https://openalex.org/W1492851286","https://openalex.org/W1594945341","https://openalex.org/W1730818938","https://openalex.org/W1885665464","https://openalex.org/W1965904009","https://openalex.org/W1966976587","https://openalex.org/W1976557352","https://openalex.org/W1979682439","https://openalex.org/W1992563599","https://openalex.org/W2000489667","https://openalex.org/W2010875089","https://openalex.org/W2012640824","https://openalex.org/W2023136091","https://openalex.org/W2036873073","https://openalex.org/W2046318477","https://openalex.org/W2050642144","https://openalex.org/W2054712596","https://openalex.org/W2079708698","https://openalex.org/W2082950241","https://openalex.org/W2084499699","https://openalex.org/W2099017849","https://openalex.org/W2104959792","https://openalex.org/W2108491719","https://openalex.org/W2113322122","https://openalex.org/W2116027790","https://openalex.org/W2117470435","https://openalex.org/W2131415145","https://openalex.org/W2135033149","https://openalex.org/W2143512323","https://openalex.org/W2143738293","https://openalex.org/W2148698197","https://openalex.org/W2152823229","https://openalex.org/W2159033425","https://openalex.org/W2251541206","https://openalex.org/W2269816967","https://openalex.org/W2289713250","https://openalex.org/W2290835535","https://openalex.org/W2504691963","https://openalex.org/W2509938821","https://openalex.org/W2588050621","https://openalex.org/W2588312088","https://openalex.org/W2589022383","https://openalex.org/W2610811975","https://openalex.org/W2613903899","https://openalex.org/W2756779814","https://openalex.org/W2793785670","https://openalex.org/W2794407684","https://openalex.org/W2796743265","https://openalex.org/W2807988256","https://openalex.org/W2884683003","https://openalex.org/W2888028527","https://openalex.org/W2899086929","https://openalex.org/W2899292179","https://openalex.org/W2953786455","https://openalex.org/W4234142623"],"related_works":["https://openalex.org/W3002559787","https://openalex.org/W2100609754","https://openalex.org/W2050640900","https://openalex.org/W2795557596","https://openalex.org/W2049050102","https://openalex.org/W2596767525","https://openalex.org/W1886987011","https://openalex.org/W2023412717","https://openalex.org/W3045759591","https://openalex.org/W2907681338"],"abstract_inverted_index":{"Recent":[0],"years":[1],"are":[2],"seeing":[3],"a":[4],"sharp":[5],"increase":[6],"in":[7,133],"the":[8,24,33,36,57,68,75,122,131,145],"availability":[9],"of":[10,27,35,41,63,71,144],"personal":[11],"omic":[12],"(e.g.":[13],"genomes,":[14],"microbiomes)":[15],"data":[16,37,65,81],"to":[17,140],"non-experts":[18],"through":[19],"direct-to-consumer":[20],"testing":[21],"kits.":[22],"While":[23],"scientific":[25],"understanding":[26],"human":[28],"-omic":[29],"information":[30],"is":[31],"evolving,":[32],"interpretation":[34],"may":[38],"impact":[39],"well-being":[40],"users":[42,135],"and":[43,46,50,60,77,82,112,116,120,126,160,164],"relevant":[44],"others,":[45],"therefore":[47],"poses":[48],"challenges":[49],"opportunities":[51],"for":[52,95,154,161],"CSCW":[53],"research.":[54],"We":[55,129,147],"identify":[56],"information,":[58,110,114],"interaction,":[59],"sense-making":[61],"needs":[62,94],"microbiomic":[64],"users,":[66],"within":[67],"broader":[69],"context":[70],"social":[72],"omics":[73],"-":[74],"sharing":[76,117,163],"collaborative":[78],"engagement":[79],"with":[80,137,149,157],"interpretation.":[83],"Analyzing":[84],"users'":[85],"discussions":[86],"on":[87],"Reddit's":[88],"r/HumanMicrobiome,":[89],"we":[90],"identified":[91],"seven":[92],"user":[93],"microbiome":[96,103],"data:":[97],"reviewing":[98],"an":[99],"annotated":[100],"report,":[101],"comparing":[102],"data,":[104],"tracking":[105],"changes,":[106],"receiving":[107],"personalized":[108],"actionable":[109],"curating":[111],"securing":[113],"documenting":[115],"self":[118],"experiments,":[119],"enhancing":[121],"communication":[123,156],"between":[124],"patients":[125],"health-care":[127],"providers.":[128],"highlight":[130],"ways":[132],"which":[134],"interact":[136],"each":[138],"other":[139],"collaboratively":[141],"make":[142],"sense":[143],"data.":[146],"conclude":[148],"design":[150],"implications,":[151],"including":[152],"tools":[153],"better":[155],"care":[158],"providers,":[159],"symptom-centered":[162],"discussion.":[165]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":4},{"year":2021,"cited_by_count":4}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}