{"id":"https://openalex.org/W2150440175","doi":"https://doi.org/10.1136/amiajnl-2012-000863","title":"Survey non-response in an internet-mediated, longitudinal autism research study","display_name":"Survey non-response in an internet-mediated, longitudinal autism research study","publication_year":2012,"publication_date":"2012-04-27","ids":{"openalex":"https://openalex.org/W2150440175","doi":"https://doi.org/10.1136/amiajnl-2012-000863","mag":"2150440175","pmid":"https://pubmed.ncbi.nlm.nih.gov/22539079"},"language":"en","primary_location":{"id":"doi:10.1136/amiajnl-2012-000863","is_oa":true,"landing_page_url":"https://doi.org/10.1136/amiajnl-2012-000863","pdf_url":"https://academic.oup.com/jamia/article-pdf/19/4/668/5955460/19-4-668.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://academic.oup.com/jamia/article-pdf/19/4/668/5955460/19-4-668.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5081719911","display_name":"Luke Kalb","orcid":null},"institutions":[{"id":"https://openalex.org/I94690351","display_name":"Center for Autism and Related Disorders","ror":"https://ror.org/00t7r5h51","country_code":"US","type":"other","lineage":["https://openalex.org/I94690351"]},{"id":"https://openalex.org/I1298154867","display_name":"Kennedy Krieger Institute","ror":"https://ror.org/05q6tgt32","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1298154867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"L. G. Kalb","raw_affiliation_strings":["Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, Maryland 21211, USA","Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, Maryland, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, Maryland 21211, USA","institution_ids":["https://openalex.org/I94690351","https://openalex.org/I1298154867"]},{"raw_affiliation_string":"Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, Maryland, USA","institution_ids":["https://openalex.org/I94690351","https://openalex.org/I1298154867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5086676078","display_name":"Cheryl Cohen","orcid":"https://orcid.org/0000-0003-0376-2302"},"institutions":[{"id":"https://openalex.org/I1298154867","display_name":"Kennedy Krieger Institute","ror":"https://ror.org/05q6tgt32","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1298154867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"C. Cohen","raw_affiliation_strings":["Department of Medical Informatics, Kennedy Krieger Institute, Baltimore, Maryland, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Informatics, Kennedy Krieger Institute, Baltimore, Maryland, USA","institution_ids":["https://openalex.org/I1298154867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5010827397","display_name":"Harold P. Lehmann","orcid":"https://orcid.org/0000-0002-7698-219X"},"institutions":[{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]},{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"H. Lehmann","raw_affiliation_strings":["Division of Health Science Informatics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Health Science Informatics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA","institution_ids":["https://openalex.org/I2799853436","https://openalex.org/I145311948"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5001391883","display_name":"Paul A. Law","orcid":null},"institutions":[{"id":"https://openalex.org/I1298154867","display_name":"Kennedy Krieger Institute","ror":"https://ror.org/05q6tgt32","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1298154867"]},{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I2799853436","display_name":"Johns Hopkins Medicine","ror":"https://ror.org/037zgn354","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799853436"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"P. Law","raw_affiliation_strings":["Department of Medical Informatics, Kennedy Krieger Institute, Baltimore, Maryland, USA","Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Informatics, Kennedy Krieger Institute, Baltimore, Maryland, USA","institution_ids":["https://openalex.org/I1298154867"]},{"raw_affiliation_string":"Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA","institution_ids":["https://openalex.org/I2799853436","https://openalex.org/I145311948"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5001391883"],"corresponding_institution_ids":["https://openalex.org/I1298154867","https://openalex.org/I145311948","https://openalex.org/I2799853436"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":8.4634,"has_fulltext":true,"cited_by_count":40,"citation_normalized_percentile":{"value":0.97232313,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"19","issue":"4","first_page":"668","last_page":"673"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.5601000189781189,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.5601000189781189,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.0869000032544136,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12679","display_name":"Focus Groups and Qualitative Methods","score":0.03579999879002571,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/autism","display_name":"Autism","score":0.7618371248245239},{"id":"https://openalex.org/keywords/the-internet","display_name":"The Internet","score":0.6268744468688965},{"id":"https://openalex.org/keywords/longitudinal-study","display_name":"Longitudinal study","score":0.5934309363365173},{"id":"https://openalex.org/keywords/longitudinal-data","display_name":"Longitudinal data","score":0.4693145751953125},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.45929116010665894},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.4395802915096283},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.35765624046325684},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.2885863482952118},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.273751825094223},{"id":"https://openalex.org/keywords/developmental-psychology","display_name":"Developmental psychology","score":0.20021185278892517},{"id":"https://openalex.org/keywords/data-mining","display_name":"Data mining","score":0.13255640864372253}],"concepts":[{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.7618371248245239},{"id":"https://openalex.org/C110875604","wikidata":"https://www.wikidata.org/wiki/Q75","display_name":"The Internet","level":2,"score":0.6268744468688965},{"id":"https://openalex.org/C2777895361","wikidata":"https://www.wikidata.org/wiki/Q1758614","display_name":"Longitudinal study","level":2,"score":0.5934309363365173},{"id":"https://openalex.org/C3020672099","wikidata":"https://www.wikidata.org/wiki/Q857354","display_name":"Longitudinal data","level":2,"score":0.4693145751953125},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.45929116010665894},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4395802915096283},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.35765624046325684},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.2885863482952118},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.273751825094223},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.20021185278892517},{"id":"https://openalex.org/C124101348","wikidata":"https://www.wikidata.org/wiki/Q172491","display_name":"Data mining","level":1,"score":0.13255640864372253},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002659","descriptor_name":"Child Development Disorders, Pervasive","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D002659","descriptor_name":"Child Development Disorders, Pervasive","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D002659","descriptor_name":"Child Development Disorders, Pervasive","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002675","descriptor_name":"Child, Preschool","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006297","descriptor_name":"Health Services Accessibility","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006297","descriptor_name":"Health Services Accessibility","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006297","descriptor_name":"Health Services Accessibility","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D006302","descriptor_name":"Health Services Research","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D006306","descriptor_name":"Health Surveys","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007223","descriptor_name":"Infant","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007223","descriptor_name":"Infant","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007223","descriptor_name":"Infant","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011159","descriptor_name":"Population Surveillance","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D011159","descriptor_name":"Population Surveillance","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D011159","descriptor_name":"Population Surveillance","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D015999","descriptor_name":"Multivariate Analysis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015999","descriptor_name":"Multivariate Analysis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015999","descriptor_name":"Multivariate Analysis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016015","descriptor_name":"Logistic Models","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016015","descriptor_name":"Logistic Models","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016015","descriptor_name":"Logistic Models","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D020407","descriptor_name":"Internet","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D053208","descriptor_name":"Kaplan-Meier Estimate","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D053208","descriptor_name":"Kaplan-Meier Estimate","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D053208","descriptor_name":"Kaplan-Meier Estimate","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1136/amiajnl-2012-000863","is_oa":true,"landing_page_url":"https://doi.org/10.1136/amiajnl-2012-000863","pdf_url":"https://academic.oup.com/jamia/article-pdf/19/4/668/5955460/19-4-668.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:22539079","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22539079","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:europepmc.org:2690584","is_oa":false,"landing_page_url":"http://europepmc.org/articles/PMC3384126","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Text"},{"id":"pmh:oai:pubmedcentral.nih.gov:3384126","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3384126","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1136/amiajnl-2012-000863","is_oa":true,"landing_page_url":"https://doi.org/10.1136/amiajnl-2012-000863","pdf_url":"https://academic.oup.com/jamia/article-pdf/19/4/668/5955460/19-4-668.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/4","score":0.5,"display_name":"Quality Education"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320306097","display_name":"Autism Speaks","ror":"https://ror.org/04bkad313"},{"id":"https://openalex.org/F4320337346","display_name":"National Institute of Mental Health","ror":"https://ror.org/04xeg9z08"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2150440175.pdf","grobid_xml":"https://content.openalex.org/works/W2150440175.grobid-xml"},"referenced_works_count":31,"referenced_works":["https://openalex.org/W71637537","https://openalex.org/W94706372","https://openalex.org/W1493524810","https://openalex.org/W1975064866","https://openalex.org/W1979070072","https://openalex.org/W1980609224","https://openalex.org/W1997527016","https://openalex.org/W2005240323","https://openalex.org/W2010051144","https://openalex.org/W2013110062","https://openalex.org/W2023306246","https://openalex.org/W2033606685","https://openalex.org/W2039488416","https://openalex.org/W2045397736","https://openalex.org/W2060312376","https://openalex.org/W2072456237","https://openalex.org/W2077406841","https://openalex.org/W2108421949","https://openalex.org/W2108653248","https://openalex.org/W2112433979","https://openalex.org/W2116199483","https://openalex.org/W2122628094","https://openalex.org/W2125070112","https://openalex.org/W2125151323","https://openalex.org/W2130527146","https://openalex.org/W2130835641","https://openalex.org/W2132981355","https://openalex.org/W2159586936","https://openalex.org/W2329286935","https://openalex.org/W2555756618","https://openalex.org/W4285719527"],"related_works":["https://openalex.org/W2902397990","https://openalex.org/W2111142662","https://openalex.org/W1545570060","https://openalex.org/W2035435174","https://openalex.org/W2160448378","https://openalex.org/W4241864416","https://openalex.org/W3122974305","https://openalex.org/W4244039756","https://openalex.org/W4400684018","https://openalex.org/W4377981863"],"abstract_inverted_index":{"OBJECTIVE:":[0],"To":[1],"evaluate":[2],"non-response":[3,33,124,146,202],"rates":[4,159,227],"to":[5,29,73,96,147,160,194],"follow-up":[6,75,148,187],"online":[7,45,135,161],"surveys":[8,127,149,162],"using":[9],"a":[10,43,234],"prospective":[11,235],"cohort":[12],"of":[13,32,55,99,107,125,197,224],"parents":[14,79],"raising":[15],"at":[16,179],"least":[17],"one":[18],"child":[19],"with":[20,145,154,172],"an":[21],"autism":[22],"spectrum":[23],"disorder.":[24],"A":[25,53],"secondary":[26],"objective":[27],"was":[28],"investigate":[30],"predictors":[31,98,223],"over":[34],"time.":[35],"MATERIALS":[36],"AND":[37],"METHODS:":[38],"Data":[39],"were":[40,66,93,105,112,143,163,170],"collected":[41],"from":[42,78,119,199],"US-based":[44],"research":[46,200,214],"database,":[47],"the":[48,69,85,120,134,155,182,195],"Interactive":[49],"Autism":[50],"Network":[51],"(IAN).":[52],"total":[54],"19,497":[56],"youths,":[57],"aged":[58],"1.9-19":[59],"years":[60,130],"(mean":[61],"9":[62],"years,":[63],"SD":[64],"3.94),":[65],"included":[67],"in":[68,133,185,211],"present":[70],"study.":[71,237],"Response":[72],"three":[74],"surveys,":[76],"solicited":[77],"after":[80],"baseline":[81,126,180],"enrollment,":[82],"served":[83],"as":[84],"outcome":[86],"measures.":[87],"Multivariate":[88],"binary":[89],"logistic":[90],"regression":[91],"models":[92],"then":[94],"used":[95],"examine":[97],"non-response.":[100,189],"RESULTS:":[101],"31,216":[102],"survey":[103,188],"instances":[104],"examined,":[106],"which":[108],"8772":[109],"or":[110,114],"28.1%":[111],"partly":[113],"completely":[115],"responded":[116],"to.":[117],"Results":[118],"multivariate":[121],"model":[122],"found":[123],"(OR":[128,137],"28.0),":[129],"since":[131,175],"enrollment":[132],"protocol":[136],"2.06),":[138],"and":[139,177],"numerous":[140],"sociodemographic":[141],"characteristics":[142,169],"associated":[144,171],"(all":[150],"p<0.05).":[151],"DISCUSSION:":[152],"Consistent":[153],"current":[156],"literature,":[157],"response":[158,226],"somewhat":[164],"low.":[165],"While":[166],"many":[167],"demographic":[168],"non-response,":[173],"time":[174],"registration":[176],"participation":[178],"played":[181],"greatest":[183],"role":[184],"predicting":[186],"CONCLUSION:":[190],"An":[191],"important":[192,222],"hazard":[193],"generalizability":[196],"findings":[198],"is":[201,206],"bias;":[203],"however,":[204],"little":[205],"known":[207],"about":[208],"this":[209],"problem":[210],"longitudinal":[212,225],"internet-mediated":[213],"(IMR).":[215],"This":[216],"study":[217],"sheds":[218],"new":[219],"light":[220],"on":[221],"that":[228],"should":[229],"be":[230],"considered":[231],"before":[232],"launching":[233],"IMR":[236]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":12},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":5},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":4},{"year":2016,"cited_by_count":1},{"year":2015,"cited_by_count":2},{"year":2014,"cited_by_count":1},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":1}],"updated_date":"2026-01-13T01:12:25.745995","created_date":"2025-10-10T00:00:00"}