{"id":"https://openalex.org/W2183340796","doi":"https://doi.org/10.1136/amiajnl-2011-000546","title":"Informatics and data quality at collaborative multicenter Breast and Colon Cancer Family Registries","display_name":"Informatics and data quality at collaborative multicenter Breast and Colon Cancer Family Registries","publication_year":2012,"publication_date":"2012-02-10","ids":{"openalex":"https://openalex.org/W2183340796","doi":"https://doi.org/10.1136/amiajnl-2011-000546","mag":"2183340796","pmid":"https://pubmed.ncbi.nlm.nih.gov/22323393"},"language":"en","primary_location":{"id":"doi:10.1136/amiajnl-2011-000546","is_oa":true,"landing_page_url":"https://doi.org/10.1136/amiajnl-2011-000546","pdf_url":"https://academic.oup.com/jamia/article-pdf/19/e1/e125/5877152/19-e1-e125.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://academic.oup.com/jamia/article-pdf/19/e1/e125/5877152/19-e1-e125.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5082558927","display_name":"Peter B. McGarvey","orcid":"https://orcid.org/0000-0002-8312-6017"},"institutions":[{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]},{"id":"https://openalex.org/I2799903593","display_name":"Georgetown University Medical Center","ror":"https://ror.org/00hjz7x27","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799903593"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"P. B. McGarvey","raw_affiliation_strings":["Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","Department of Biochemistry and Molecular & Cellular Biology, Georgetown University Medical Center, Washington, DC, USA"],"affiliations":[{"raw_affiliation_string":"Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]},{"raw_affiliation_string":"Department of Biochemistry and Molecular & Cellular Biology, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055907031","display_name":"Sweta A. Ladwa","orcid":"https://orcid.org/0000-0002-3785-9543"},"institutions":[{"id":"https://openalex.org/I4210109029","display_name":"Enterprise Science and Computing (United States)","ror":"https://ror.org/01mssdk07","country_code":"US","type":"company","lineage":["https://openalex.org/I4210109029"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"S. Ladwa","raw_affiliation_strings":["ESAC Inc., Rockville, Maryland, USA"],"affiliations":[{"raw_affiliation_string":"ESAC Inc., Rockville, Maryland, USA","institution_ids":["https://openalex.org/I4210109029"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002521828","display_name":"Mauricio Oberti","orcid":"https://orcid.org/0000-0001-7107-2616"},"institutions":[{"id":"https://openalex.org/I4210109029","display_name":"Enterprise Science and Computing (United States)","ror":"https://ror.org/01mssdk07","country_code":"US","type":"company","lineage":["https://openalex.org/I4210109029"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"M. Oberti","raw_affiliation_strings":["ESAC Inc., Rockville, Maryland, USA"],"affiliations":[{"raw_affiliation_string":"ESAC Inc., Rockville, Maryland, USA","institution_ids":["https://openalex.org/I4210109029"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030018246","display_name":"Anca Dragomir","orcid":"https://orcid.org/0000-0003-2777-8114"},"institutions":[{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]},{"id":"https://openalex.org/I2799903593","display_name":"Georgetown University Medical Center","ror":"https://ror.org/00hjz7x27","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799903593"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"A. D. Dragomir","raw_affiliation_strings":["Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","Department of Oncology, Georgetown University Medical Center, Washington, DC, USA"],"affiliations":[{"raw_affiliation_string":"Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]},{"raw_affiliation_string":"Department of Oncology, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059348797","display_name":"Erin Hedlund","orcid":null},"institutions":[{"id":"https://openalex.org/I4210109029","display_name":"Enterprise Science and Computing (United States)","ror":"https://ror.org/01mssdk07","country_code":"US","type":"company","lineage":["https://openalex.org/I4210109029"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"E. K. Hedlund","raw_affiliation_strings":["ESAC Inc., Rockville, Maryland, USA"],"affiliations":[{"raw_affiliation_string":"ESAC Inc., Rockville, Maryland, USA","institution_ids":["https://openalex.org/I4210109029"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035819672","display_name":"David M. Tanenbaum","orcid":"https://orcid.org/0000-0002-6070-8882"},"institutions":[{"id":"https://openalex.org/I4210109029","display_name":"Enterprise Science and Computing (United States)","ror":"https://ror.org/01mssdk07","country_code":"US","type":"company","lineage":["https://openalex.org/I4210109029"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"D. M. Tanenbaum","raw_affiliation_strings":["ESAC Inc., Rockville, Maryland, USA"],"affiliations":[{"raw_affiliation_string":"ESAC Inc., Rockville, Maryland, USA","institution_ids":["https://openalex.org/I4210109029"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042134761","display_name":"Bar\u0131\u015f Ethem S\u00fczek","orcid":"https://orcid.org/0000-0002-1521-4306"},"institutions":[{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]},{"id":"https://openalex.org/I2799903593","display_name":"Georgetown University Medical Center","ror":"https://ror.org/00hjz7x27","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799903593"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"B. E. Suzek","raw_affiliation_strings":["Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","Department of Biochemistry and Molecular & Cellular Biology, Georgetown University Medical Center, Washington, DC, USA"],"affiliations":[{"raw_affiliation_string":"Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]},{"raw_affiliation_string":"Department of Biochemistry and Molecular & Cellular Biology, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5037218810","display_name":"Subha Madhavan","orcid":"https://orcid.org/0000-0001-7617-3547"},"institutions":[{"id":"https://openalex.org/I2799903593","display_name":"Georgetown University Medical Center","ror":"https://ror.org/00hjz7x27","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799903593"]},{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"S. Madhavan","raw_affiliation_strings":["Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","Department of Oncology, Georgetown University Medical Center, Washington, DC, USA"],"affiliations":[{"raw_affiliation_string":"Clinical Research Informatics, Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]},{"raw_affiliation_string":"Department of Oncology, Georgetown University Medical Center, Washington, DC, USA","institution_ids":["https://openalex.org/I2799903593","https://openalex.org/I184565670"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":8,"corresponding_author_ids":["https://openalex.org/A5037218810"],"corresponding_institution_ids":["https://openalex.org/I184565670","https://openalex.org/I2799903593"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":1.4447,"has_fulltext":true,"cited_by_count":11,"citation_normalized_percentile":{"value":0.83753506,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":97},"biblio":{"volume":"19","issue":"e1","first_page":"e125","last_page":"e128"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":0.9947999715805054,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":0.9947999715805054,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T11287","display_name":"Cancer Genomics and Diagnostics","score":0.9919999837875366,"subfield":{"id":"https://openalex.org/subfields/1306","display_name":"Cancer Research"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9853000044822693,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.6986680626869202},{"id":"https://openalex.org/keywords/informatics","display_name":"Informatics","score":0.6548269987106323},{"id":"https://openalex.org/keywords/data-quality","display_name":"Data quality","score":0.6361831426620483},{"id":"https://openalex.org/keywords/harmonization","display_name":"Harmonization","score":0.5895435214042664},{"id":"https://openalex.org/keywords/consistency","display_name":"Consistency (knowledge bases)","score":0.5869439244270325},{"id":"https://openalex.org/keywords/data-consistency","display_name":"Data consistency","score":0.5413898825645447},{"id":"https://openalex.org/keywords/standardization","display_name":"Standardization","score":0.5127649903297424},{"id":"https://openalex.org/keywords/data-validation","display_name":"Data validation","score":0.5092455148696899},{"id":"https://openalex.org/keywords/health-informatics","display_name":"Health informatics","score":0.4921502470970154},{"id":"https://openalex.org/keywords/quality","display_name":"Quality (philosophy)","score":0.48116669058799744},{"id":"https://openalex.org/keywords/data-integrity","display_name":"Data integrity","score":0.45296716690063477},{"id":"https://openalex.org/keywords/data-mining","display_name":"Data mining","score":0.4477151930332184},{"id":"https://openalex.org/keywords/data-governance","display_name":"Data governance","score":0.4305289089679718},{"id":"https://openalex.org/keywords/database","display_name":"Database","score":0.4066985845565796},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.36143234372138977},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.21543842554092407},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.09717312455177307},{"id":"https://openalex.org/keywords/operations-management","display_name":"Operations management","score":0.0875091552734375},{"id":"https://openalex.org/keywords/artificial-intelligence","display_name":"Artificial intelligence","score":0.08546143770217896}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.6986680626869202},{"id":"https://openalex.org/C191630685","wikidata":"https://www.wikidata.org/wiki/Q4027615","display_name":"Informatics","level":2,"score":0.6548269987106323},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.6361831426620483},{"id":"https://openalex.org/C2779962950","wikidata":"https://www.wikidata.org/wiki/Q5659376","display_name":"Harmonization","level":2,"score":0.5895435214042664},{"id":"https://openalex.org/C2776436953","wikidata":"https://www.wikidata.org/wiki/Q5163215","display_name":"Consistency (knowledge bases)","level":2,"score":0.5869439244270325},{"id":"https://openalex.org/C93361087","wikidata":"https://www.wikidata.org/wiki/Q4426698","display_name":"Data consistency","level":2,"score":0.5413898825645447},{"id":"https://openalex.org/C188087704","wikidata":"https://www.wikidata.org/wiki/Q369577","display_name":"Standardization","level":2,"score":0.5127649903297424},{"id":"https://openalex.org/C92446256","wikidata":"https://www.wikidata.org/wiki/Q3306762","display_name":"Data validation","level":2,"score":0.5092455148696899},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.4921502470970154},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.48116669058799744},{"id":"https://openalex.org/C33762810","wikidata":"https://www.wikidata.org/wiki/Q461671","display_name":"Data integrity","level":2,"score":0.45296716690063477},{"id":"https://openalex.org/C124101348","wikidata":"https://www.wikidata.org/wiki/Q172491","display_name":"Data mining","level":1,"score":0.4477151930332184},{"id":"https://openalex.org/C196879817","wikidata":"https://www.wikidata.org/wiki/Q872685","display_name":"Data governance","level":4,"score":0.4305289089679718},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.4066985845565796},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.36143234372138977},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.21543842554092407},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.09717312455177307},{"id":"https://openalex.org/C21547014","wikidata":"https://www.wikidata.org/wiki/Q1423657","display_name":"Operations management","level":1,"score":0.0875091552734375},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.08546143770217896},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C119599485","wikidata":"https://www.wikidata.org/wiki/Q43035","display_name":"Electrical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C24890656","wikidata":"https://www.wikidata.org/wiki/Q82811","display_name":"Acoustics","level":1,"score":0.0},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D001943","descriptor_name":"Breast Neoplasms","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D001943","descriptor_name":"Breast Neoplasms","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D001943","descriptor_name":"Breast Neoplasms","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D003110","descriptor_name":"Colonic Neoplasms","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D003110","descriptor_name":"Colonic Neoplasms","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D003110","descriptor_name":"Colonic Neoplasms","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011786","descriptor_name":"Quality Control","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011786","descriptor_name":"Quality Control","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011786","descriptor_name":"Quality Control","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D012107","descriptor_name":"Research Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012107","descriptor_name":"Research Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012107","descriptor_name":"Research Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1136/amiajnl-2011-000546","is_oa":true,"landing_page_url":"https://doi.org/10.1136/amiajnl-2011-000546","pdf_url":"https://academic.oup.com/jamia/article-pdf/19/e1/e125/5877152/19-e1-e125.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:22323393","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22323393","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:europepmc.org:2665692","is_oa":false,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3392863","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1136/amiajnl-2011-000546","is_oa":true,"landing_page_url":"https://doi.org/10.1136/amiajnl-2011-000546","pdf_url":"https://academic.oup.com/jamia/article-pdf/19/e1/e125/5877152/19-e1-e125.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.5600000023841858,"id":"https://metadata.un.org/sdg/9","display_name":"Industry, innovation and infrastructure"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337351","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2183340796.pdf","grobid_xml":"https://content.openalex.org/works/W2183340796.grobid-xml"},"referenced_works_count":4,"referenced_works":["https://openalex.org/W1594961664","https://openalex.org/W1596854558","https://openalex.org/W2143940059","https://openalex.org/W2156286678"],"related_works":["https://openalex.org/W4255904760","https://openalex.org/W4295555246","https://openalex.org/W4212820174","https://openalex.org/W1882711135","https://openalex.org/W2788528095","https://openalex.org/W2759604065","https://openalex.org/W2062901726","https://openalex.org/W2896790854","https://openalex.org/W4386100725","https://openalex.org/W2105093310"],"abstract_inverted_index":{"Quality":[0],"control":[1],"and":[2,9,18,29,41,59,74,95,104,124,131],"harmonization":[3],"of":[4,56,98,119],"data":[5,15,42,52,77,80,129],"is":[6],"a":[7,19,36,51,66,82,96,109,113,125],"vital":[8],"challenging":[10],"undertaking":[11],"for":[12,76,102],"any":[13],"successful":[14],"coordination":[16],"center":[17],"responsibility":[20],"shared":[21],"between":[22,39],"the":[23,31,45,117,122],"multiple":[24],"sites":[25],"that":[26,70],"produce,":[27],"integrate,":[28],"utilize":[30],"data.":[32],"Here":[33],"we":[34],"describe":[35],"coordinated":[37],"effort":[38],"scientists":[40],"managers":[43],"in":[44,116,121,128],"Cancer":[46],"Family":[47],"Registries":[48],"to":[49,81],"implement":[50],"governance":[53],"infrastructure":[54],"consisting":[55],"both":[57,89],"organizational":[58],"technical":[60,63],"solutions.":[61],"The":[62],"solution":[64],"uses":[65],"rule-based":[67],"validation":[68],"system":[69],"facilitates":[71],"error":[72],"detection":[73],"correction":[75],"centers":[78],"submitting":[79],"central":[83],"informatics":[84],"database.":[85],"Validation":[86],"rules":[87],"comprise":[88],"standard":[90],"checks":[91],"on":[92],"allowable":[93],"values":[94],"crosscheck":[97],"related":[99],"database":[100,123],"elements":[101],"logical":[103],"scientific":[105],"consistency.":[106],"Evaluation":[107],"over":[108],"2-year":[110],"timeframe":[111],"showed":[112],"significant":[114],"decrease":[115],"number":[118],"errors":[120],"concurrent":[126],"increase":[127],"consistency":[130],"accuracy.":[132]},"counts_by_year":[{"year":2023,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2018,"cited_by_count":1},{"year":2015,"cited_by_count":1},{"year":2014,"cited_by_count":3},{"year":2013,"cited_by_count":2},{"year":2012,"cited_by_count":1}],"updated_date":"2026-03-10T16:38:18.471706","created_date":"2025-10-10T00:00:00"}
