{"id":"https://openalex.org/W2887102207","doi":"https://doi.org/10.1109/tcbb.2018.2855125","title":"Privacy-Preserving Linkage of Genomic and Clinical Data Sets","display_name":"Privacy-Preserving Linkage of Genomic and Clinical Data Sets","publication_year":2018,"publication_date":"2018-07-31","ids":{"openalex":"https://openalex.org/W2887102207","doi":"https://doi.org/10.1109/tcbb.2018.2855125","mag":"2887102207","pmid":"https://pubmed.ncbi.nlm.nih.gov/30059313"},"language":"en","primary_location":{"id":"doi:10.1109/tcbb.2018.2855125","is_oa":true,"landing_page_url":"https://doi.org/10.1109/tcbb.2018.2855125","pdf_url":"https://ieeexplore.ieee.org/ielx7/8857/8790820/08423499.pdf","source":{"id":"https://openalex.org/S36029991","display_name":"IEEE/ACM Transactions on Computational Biology and Bioinformatics","issn_l":"1545-5963","issn":["1545-5963","1557-9964","2374-0043"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319808","host_organization_name":"Institute of Electrical and Electronics Engineers","host_organization_lineage":["https://openalex.org/P4310319808"],"host_organization_lineage_names":["Institute of Electrical and Electronics Engineers"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"IEEE/ACM Transactions on Computational Biology and Bioinformatics","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://ieeexplore.ieee.org/ielx7/8857/8790820/08423499.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5020415740","display_name":"Dixie B. Baker","orcid":"https://orcid.org/0000-0002-5598-4815"},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Dixie B. Baker","raw_affiliation_strings":["Martin, Blanck, and Associates, Arlington, VA, USA"],"affiliations":[{"raw_affiliation_string":"Martin, Blanck, and Associates, Arlington, VA, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5013672213","display_name":"Bartha Maria Knoppers","orcid":"https://orcid.org/0000-0001-7004-2722"},"institutions":[{"id":"https://openalex.org/I5023651","display_name":"McGill University","ror":"https://ror.org/01pxwe438","country_code":"CA","type":"education","lineage":["https://openalex.org/I5023651"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Bartha M. Knoppers","raw_affiliation_strings":["Centre of Genomics and Policy, McGill University, Quebec, Canada"],"affiliations":[{"raw_affiliation_string":"Centre of Genomics and Policy, McGill University, Quebec, Canada","institution_ids":["https://openalex.org/I5023651"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101800379","display_name":"Mark Phillips","orcid":"https://orcid.org/0000-0002-5002-2713"},"institutions":[{"id":"https://openalex.org/I5023651","display_name":"McGill University","ror":"https://ror.org/01pxwe438","country_code":"CA","type":"education","lineage":["https://openalex.org/I5023651"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Mark Phillips","raw_affiliation_strings":["Centre of Genomics and Policy, McGill University, Quebec, Canada"],"affiliations":[{"raw_affiliation_string":"Centre of Genomics and Policy, McGill University, Quebec, Canada","institution_ids":["https://openalex.org/I5023651"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5001296067","display_name":"David van Enckevort","orcid":"https://orcid.org/0000-0002-2440-3993"},"institutions":[{"id":"https://openalex.org/I1334415907","display_name":"University Medical Center Groningen","ror":"https://ror.org/03cv38k47","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I1334415907"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"David van Enckevort","raw_affiliation_strings":["University Medical Center Groningen, Groning-en, Netherlands"],"affiliations":[{"raw_affiliation_string":"University Medical Center Groningen, Groning-en, Netherlands","institution_ids":["https://openalex.org/I1334415907"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5109402687","display_name":"Petra Kaufmann","orcid":null},"institutions":[{"id":"https://openalex.org/I1299303238","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Petra Kaufmann","raw_affiliation_strings":["National Institutes of Health, Bethesda, MD, USA"],"affiliations":[{"raw_affiliation_string":"National Institutes of Health, Bethesda, MD, USA","institution_ids":["https://openalex.org/I1299303238"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5062908694","display_name":"Hanns Lochm\u00fcller","orcid":"https://orcid.org/0000-0003-2324-8001"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Hanns Lochmuller","raw_affiliation_strings":["Newcastle University, Newcastle Upon Tyne, United Kingdom"],"affiliations":[{"raw_affiliation_string":"Newcastle University, Newcastle Upon Tyne, United Kingdom","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5051396190","display_name":"Domenica Taruscio","orcid":"https://orcid.org/0000-0001-5403-233X"},"institutions":[{"id":"https://openalex.org/I27897274","display_name":"Istituto Superiore di Sanit\u00e0","ror":"https://ror.org/02hssy432","country_code":"IT","type":"government","lineage":["https://openalex.org/I27897274"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Domenica Taruscio","raw_affiliation_strings":["Istituto Superiore di Sanit\u00e0, Rome, Italy"],"affiliations":[{"raw_affiliation_string":"Istituto Superiore di Sanit\u00e0, Rome, Italy","institution_ids":["https://openalex.org/I27897274"]}]}],"institutions":[],"countries_distinct_count":5,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5020415740"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.2001,"has_fulltext":true,"cited_by_count":23,"citation_normalized_percentile":{"value":0.90663058,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":98},"biblio":{"volume":"16","issue":"4","first_page":"1342","last_page":"1348"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9987999796867371,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9987999796867371,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11719","display_name":"Data Quality and Management","score":0.9865000247955322,"subfield":{"id":"https://openalex.org/subfields/1803","display_name":"Management Science and Operations Research"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9567000269889832,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/linkage","display_name":"Linkage (software)","score":0.611035943031311},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.5295318961143494},{"id":"https://openalex.org/keywords/record-linkage","display_name":"Record linkage","score":0.4588589668273926},{"id":"https://openalex.org/keywords/information-privacy","display_name":"Information privacy","score":0.4231563210487366},{"id":"https://openalex.org/keywords/computational-biology","display_name":"Computational biology","score":0.39816534519195557},{"id":"https://openalex.org/keywords/genetics","display_name":"Genetics","score":0.2855812907218933},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.283306360244751},{"id":"https://openalex.org/keywords/biology","display_name":"Biology","score":0.2395273745059967},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.16310042142868042},{"id":"https://openalex.org/keywords/gene","display_name":"Gene","score":0.15344098210334778},{"id":"https://openalex.org/keywords/environmental-health","display_name":"Environmental health","score":0.06956499814987183}],"concepts":[{"id":"https://openalex.org/C31266012","wikidata":"https://www.wikidata.org/wiki/Q6554340","display_name":"Linkage (software)","level":3,"score":0.611035943031311},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5295318961143494},{"id":"https://openalex.org/C142210648","wikidata":"https://www.wikidata.org/wiki/Q1266546","display_name":"Record linkage","level":3,"score":0.4588589668273926},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.4231563210487366},{"id":"https://openalex.org/C70721500","wikidata":"https://www.wikidata.org/wiki/Q177005","display_name":"Computational biology","level":1,"score":0.39816534519195557},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.2855812907218933},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.283306360244751},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.2395273745059967},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.16310042142868042},{"id":"https://openalex.org/C104317684","wikidata":"https://www.wikidata.org/wiki/Q7187","display_name":"Gene","level":2,"score":0.15344098210334778},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.06956499814987183},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.0}],"mesh":[{"descriptor_ui":"D000077558","descriptor_name":"Big Data","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000077558","descriptor_name":"Big Data","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000077558","descriptor_name":"Big Data","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008040","descriptor_name":"Genetic Linkage","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008040","descriptor_name":"Genetic Linkage","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008040","descriptor_name":"Genetic Linkage","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015894","descriptor_name":"Genome, Human","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015894","descriptor_name":"Genome, Human","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015894","descriptor_name":"Genome, Human","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016208","descriptor_name":"Databases, Factual","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D023281","descriptor_name":"Genomics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D023281","descriptor_name":"Genomics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D023281","descriptor_name":"Genomics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033183","descriptor_name":"Interdisciplinary Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033183","descriptor_name":"Interdisciplinary Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033183","descriptor_name":"Interdisciplinary Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D035583","descriptor_name":"Rare Diseases","qualifier_ui":"Q000235","qualifier_name":"genetics","is_major_topic":false},{"descriptor_ui":"D035583","descriptor_name":"Rare Diseases","qualifier_ui":"Q000235","qualifier_name":"genetics","is_major_topic":false},{"descriptor_ui":"D035583","descriptor_name":"Rare Diseases","qualifier_ui":"Q000235","qualifier_name":"genetics","is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1109/tcbb.2018.2855125","is_oa":true,"landing_page_url":"https://doi.org/10.1109/tcbb.2018.2855125","pdf_url":"https://ieeexplore.ieee.org/ielx7/8857/8790820/08423499.pdf","source":{"id":"https://openalex.org/S36029991","display_name":"IEEE/ACM Transactions on Computational Biology and Bioinformatics","issn_l":"1545-5963","issn":["1545-5963","1557-9964","2374-0043"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319808","host_organization_name":"Institute of Electrical and Electronics Engineers","host_organization_lineage":["https://openalex.org/P4310319808"],"host_organization_lineage_names":["Institute of Electrical and Electronics Engineers"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"IEEE/ACM Transactions on Computational Biology and Bioinformatics","raw_type":"journal-article"},{"id":"pmid:30059313","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/30059313","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"IEEE/ACM transactions on computational biology and bioinformatics","raw_type":null},{"id":"pmh:oai:pure.rug.nl:publications/84524972-f57d-4f29-b538-f443f856dfdd","is_oa":true,"landing_page_url":"https://research.rug.nl/en/publications/84524972-f57d-4f29-b538-f443f856dfdd","pdf_url":"https://pure.rug.nl/ws/files/95440293/08423499.pdf","source":{"id":"https://openalex.org/S4306400420","display_name":"University of Groningen research database (University of Groningen / Centre for Information Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I169381384","host_organization_name":"University of Groningen","host_organization_lineage":["https://openalex.org/I169381384"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Baker, D B, Knoppers, B M, Phillips, M, van Enckevort, D, Kaufmann, P, Lochmuller, H & Taruscio, D 2019, 'Privacy-Preserving Linkage of Genomic and Clinical Data Sets', IEEE/ACM Transactions on Computational Biology and Bioinformatics, vol. 16, no. 4, pp. 1342-1348. https://doi.org/10.1109/TCBB.2018.2855125","raw_type":"info:eu-repo/semantics/publishedVersion"},{"id":"pmh:oai:eprint.ncl.ac.uk:250535","is_oa":false,"landing_page_url":null,"pdf_url":null,"source":{"id":"https://openalex.org/S4306402485","display_name":"Newcastle University ePrints (Newcastle Univesity)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I84884186","host_organization_name":"Newcastle University","host_organization_lineage":["https://openalex.org/I84884186"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":""}],"best_oa_location":{"id":"doi:10.1109/tcbb.2018.2855125","is_oa":true,"landing_page_url":"https://doi.org/10.1109/tcbb.2018.2855125","pdf_url":"https://ieeexplore.ieee.org/ielx7/8857/8790820/08423499.pdf","source":{"id":"https://openalex.org/S36029991","display_name":"IEEE/ACM Transactions on Computational Biology and Bioinformatics","issn_l":"1545-5963","issn":["1545-5963","1557-9964","2374-0043"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319808","host_organization_name":"Institute of Electrical and Electronics Engineers","host_organization_lineage":["https://openalex.org/P4310319808"],"host_organization_lineage_names":["Institute of Electrical and Electronics Engineers"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"IEEE/ACM Transactions on Computational Biology and Bioinformatics","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Peace, Justice and strong institutions","score":0.46000000834465027,"id":"https://metadata.un.org/sdg/16"}],"awards":[{"id":"https://openalex.org/G2657970655","display_name":null,"funder_award_id":"141210","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"},{"id":"https://openalex.org/G4389354971","display_name":null,"funder_award_id":"Research","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"},{"id":"https://openalex.org/G4590505460","display_name":null,"funder_award_id":"fund #141210","funder_id":"https://openalex.org/F4320310787","funder_display_name":"Genome Canada"},{"id":"https://openalex.org/G4913995153","display_name":null,"funder_award_id":"141210","funder_id":"https://openalex.org/F4320310787","funder_display_name":"Genome Canada"},{"id":"https://openalex.org/G6282788884","display_name":null,"funder_award_id":"Canadian Institutes of Health","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"},{"id":"https://openalex.org/G6629065353","display_name":null,"funder_award_id":"#141210","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"},{"id":"https://openalex.org/G7356991215","display_name":null,"funder_award_id":"Quebec","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"}],"funders":[{"id":"https://openalex.org/F4320310787","display_name":"Genome Canada","ror":"https://ror.org/029s29983"},{"id":"https://openalex.org/F4320319880","display_name":"Government of Canada","ror":"https://ror.org/010q4q527"},{"id":"https://openalex.org/F4320334506","display_name":"Canadian Institutes of Health Research","ror":"https://ror.org/01gavpb45"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2887102207.pdf","grobid_xml":"https://content.openalex.org/works/W2887102207.grobid-xml"},"referenced_works_count":9,"referenced_works":["https://openalex.org/W107524893","https://openalex.org/W1586468107","https://openalex.org/W2007833428","https://openalex.org/W2038654336","https://openalex.org/W2294502783","https://openalex.org/W2403821953","https://openalex.org/W2482751509","https://openalex.org/W2589250137","https://openalex.org/W6733495385"],"related_works":["https://openalex.org/W2899084033","https://openalex.org/W2487032012","https://openalex.org/W2211355040","https://openalex.org/W2808916796","https://openalex.org/W2176311362","https://openalex.org/W3012491082","https://openalex.org/W3211905090","https://openalex.org/W1936317645","https://openalex.org/W4310568775","https://openalex.org/W2178148352"],"abstract_inverted_index":{"The":[0,20,83,162],"capacity":[1],"to":[2,47,78,81,108,114,142,146,181,189],"link":[3],"records":[4,120],"associated":[5,121],"with":[6,89,122],"the":[7,25,45,63,67,90,123,135,138,147,158,168,182,196],"same":[8,124],"individual":[9,125],"across":[10],"data":[11,33,35,139],"sets":[12,36],"is":[13,22,86],"a":[14,75,87],"key":[15],"challenge":[16,21],"for":[17,93],"data-driven":[18],"research.":[19],"exacerbated":[23],"by":[24,44],"potential":[26],"inclusion":[27],"of":[28,66,119,137,144,160,174,184],"both":[29],"genomic":[30],"and":[31,43,95,99,101,106,111,152,172,176,187,194,198],"clinical":[32],"in":[34,50,133],"that":[37],"may":[38],"span":[39],"multiple":[40],"legal":[41],"jurisdictions,":[42],"need":[46],"enable":[48,115],"re-identification":[49],"limited":[51],"circumstances.":[52],"Privacy-Preserving":[53],"Record":[54],"Linkage":[55],"(PPRL)":[56],"methods":[57,186],"address":[58],"these":[59],"challenges.":[60],"In":[61],"2016,":[62],"Interdisciplinary":[64],"Committee":[65],"International":[68],"Rare":[69],"Diseases":[70],"Research":[71],"Consortium":[72],"(IRDiRC)":[73],"launched":[74],"task":[76,84],"team":[77,85],"explore":[79],"approaches":[80,188],"PPRL.":[82,190],"collaboration":[88],"Global":[91],"Alliance":[92],"Genomics":[94],"Health":[96],"(GA4GH)":[97],"Regulatory":[98],"Ethics":[100],"Data":[102],"Security":[103],"Work":[104],"Streams,":[105],"aims":[107],"prepare":[109],"policy":[110],"technology":[112,185],"standards":[113],"highly":[116],"reliable":[117],"linking":[118],"without":[126],"disclosing":[127],"their":[128],"identity":[129],"except":[130],"under":[131],"conditions":[132],"which":[134],"use":[136],"has":[140,166,177],"led":[141],"information":[143],"importance":[145],"individual's":[148],"safety":[149],"or":[150,156],"health,":[151],"applicable":[153],"law":[154],"allows":[155],"requires":[157],"return":[159],"results.":[161],"PPRL":[163],"Task":[164],"Force":[165],"examined":[167],"ethico-legal":[169],"requirements,":[170],"constraints,":[171],"implications":[173],"PPRL,":[175],"applied":[178],"this":[179],"knowledge":[180],"exploration":[183],"This":[191],"paper":[192],"reports":[193],"justifies":[195],"findings":[197],"recommendations":[199],"thus":[200],"far.":[201]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":5}],"updated_date":"2026-04-10T15:06:20.359241","created_date":"2025-10-10T00:00:00"}