{"id":"https://openalex.org/W4408792565","doi":"https://doi.org/10.1109/mc.2025.3533264","title":"Genomic Gold Rush or Ethical Minefield? Rethinking Data Practices in Health Tech Giants","display_name":"Genomic Gold Rush or Ethical Minefield? Rethinking Data Practices in Health Tech Giants","publication_year":2025,"publication_date":"2025-03-24","ids":{"openalex":"https://openalex.org/W4408792565","doi":"https://doi.org/10.1109/mc.2025.3533264"},"language":"en","primary_location":{"id":"doi:10.1109/mc.2025.3533264","is_oa":false,"landing_page_url":"https://doi.org/10.1109/mc.2025.3533264","pdf_url":null,"source":{"id":"https://openalex.org/S178916657","display_name":"Computer","issn_l":"0018-9162","issn":["0018-9162","1558-0814"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320439","host_organization_name":"IEEE Computer Society","host_organization_lineage":["https://openalex.org/P4310320439","https://openalex.org/P4310319808"],"host_organization_lineage_names":["IEEE Computer Society","Institute of Electrical and Electronics Engineers"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Computer","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5116657755","display_name":"Aqilah A. Julaihi","orcid":null},"institutions":[{"id":"https://openalex.org/I39555362","display_name":"University of Warwick","ror":"https://ror.org/01a77tt86","country_code":"GB","type":"education","lineage":["https://openalex.org/I39555362"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Aqilah Julaihi","raw_affiliation_strings":["University of Warwick, Coventry, U.K"],"affiliations":[{"raw_affiliation_string":"University of Warwick, Coventry, U.K","institution_ids":["https://openalex.org/I39555362"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5061643029","display_name":"Norita Ahmad","orcid":"https://orcid.org/0000-0001-5129-1133"},"institutions":[{"id":"https://openalex.org/I199440890","display_name":"American University of Sharjah","ror":"https://ror.org/001g2fj96","country_code":"AE","type":"education","lineage":["https://openalex.org/I199440890"]}],"countries":["AE"],"is_corresponding":false,"raw_author_name":"Norita Ahmad","raw_affiliation_strings":["American University of Sharjah, Sharjah, United Arab Emirates"],"affiliations":[{"raw_affiliation_string":"American University of Sharjah, Sharjah, United Arab Emirates","institution_ids":["https://openalex.org/I199440890"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5116657755"],"corresponding_institution_ids":["https://openalex.org/I39555362"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.09325623,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"58","issue":"4","first_page":"147","last_page":"151"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9700999855995178,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9700999855995178,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13417","display_name":"Biomedical Ethics and Regulation","score":0.9375,"subfield":{"id":"https://openalex.org/subfields/2737","display_name":"Physiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/gold-rush","display_name":"Gold rush","score":0.9359039068222046},{"id":"https://openalex.org/keywords/ethical-issues","display_name":"Ethical issues","score":0.4304690361022949},{"id":"https://openalex.org/keywords/genealogy","display_name":"Genealogy","score":0.3516034483909607},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.3205605745315552},{"id":"https://openalex.org/keywords/geography","display_name":"Geography","score":0.27107489109039307},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.22797131538391113},{"id":"https://openalex.org/keywords/history","display_name":"History","score":0.21564659476280212},{"id":"https://openalex.org/keywords/engineering-ethics","display_name":"Engineering ethics","score":0.212047278881073},{"id":"https://openalex.org/keywords/archaeology","display_name":"Archaeology","score":0.14751476049423218},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.1387169361114502}],"concepts":[{"id":"https://openalex.org/C2780750054","wikidata":"https://www.wikidata.org/wiki/Q273182","display_name":"Gold rush","level":2,"score":0.9359039068222046},{"id":"https://openalex.org/C2986663376","wikidata":"https://www.wikidata.org/wiki/Q9465","display_name":"Ethical issues","level":2,"score":0.4304690361022949},{"id":"https://openalex.org/C53553401","wikidata":"https://www.wikidata.org/wiki/Q47307","display_name":"Genealogy","level":1,"score":0.3516034483909607},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.3205605745315552},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.27107489109039307},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.22797131538391113},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.21564659476280212},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.212047278881073},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.14751476049423218},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.1387169361114502}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1109/mc.2025.3533264","is_oa":false,"landing_page_url":"https://doi.org/10.1109/mc.2025.3533264","pdf_url":null,"source":{"id":"https://openalex.org/S178916657","display_name":"Computer","issn_l":"0018-9162","issn":["0018-9162","1558-0814"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320439","host_organization_name":"IEEE Computer Society","host_organization_lineage":["https://openalex.org/P4310320439","https://openalex.org/P4310319808"],"host_organization_lineage_names":["IEEE Computer Society","Institute of Electrical and Electronics Engineers"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Computer","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":13,"referenced_works":["https://openalex.org/W2089379231","https://openalex.org/W2484172689","https://openalex.org/W2523075490","https://openalex.org/W2610893119","https://openalex.org/W2912955831","https://openalex.org/W2934302500","https://openalex.org/W2944759244","https://openalex.org/W2954676804","https://openalex.org/W3004219325","https://openalex.org/W3024533563","https://openalex.org/W3046696974","https://openalex.org/W3084033366","https://openalex.org/W6797470049"],"related_works":["https://openalex.org/W3129934226","https://openalex.org/W1522086612","https://openalex.org/W641906394","https://openalex.org/W2333657969","https://openalex.org/W4247289753","https://openalex.org/W2135646055","https://openalex.org/W2324575140","https://openalex.org/W2401653354","https://openalex.org/W1774131185","https://openalex.org/W4205620801"],"abstract_inverted_index":{"Direct-to-consumer":[0],"genomic":[1,35],"testing":[2],"offers":[3],"unprecedented":[4],"access":[5],"to":[6,28],"genetic":[7],"insights":[8],"but":[9],"raises":[10],"significant":[11],"ethical":[12,26],"challenges.":[13],"Addressing":[14],"these":[15],"issues":[16],"requires":[17],"transparent":[18],"data":[19],"practices,":[20],"stronger":[21],"informed":[22],"consent":[23],"mechanisms,":[24],"and":[25,31],"governance":[27],"ensure":[29],"equitable":[30],"responsible":[32],"use":[33],"of":[34],"innovations.":[36]},"counts_by_year":[],"updated_date":"2025-12-22T23:10:17.713674","created_date":"2025-10-10T00:00:00"}
